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Seeing hemo today, still no word from France, Wife's dropping off a cliff since Monday.
She continued on the French meds up until Friday when the
heparin
ran out. The GP said to replace the
heparin
with aspirin, knowing her platelet count was rising and over 1.3 million.
She continued on the French meds up until Friday when the
heparin
ran out. The GP said to replace the
heparin
with aspirin, knowing her platelet count was rising and over 1.3 million.
jointpain
in
MPN Voice
6 years ago
Professor Graham RV Hughes Blog: June 2018
In view of the severity of the illness, and the lack of response to aspirin, we decided on our old standby – a 2 to 3 week trial of daily low dose
heparin
. The result was striking – I quote the email sent by the patient: “……within 48 hours of starting
heparin
….
In view of the severity of the illness, and the lack of response to aspirin, we decided on our old standby – a 2 to 3 week trial of daily low dose
heparin
. The result was striking – I quote the email sent by the patient: “……within 48 hours of starting
heparin
….
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Trigeminal Neuralgia/facial migraines & menopause
(I am coagulated with
Heparin
) My curiosity is that has any other woman noticed a cycle like I have linked to their facial pain? Also if anyone has any medication ideas or pain reducing ideas I would love to hear them too :) Thanks :)
(I am coagulated with
Heparin
) My curiosity is that has any other woman noticed a cycle like I have linked to their facial pain? Also if anyone has any medication ideas or pain reducing ideas I would love to hear them too :) Thanks :)
AnnieAxVale
in
Women's Health
6 years ago
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Would you continue with this doctor?
To do away with the
heparin
when her platelets are over 880 along with removing half of the blood pressure pills while knowing one kidney is blocked and not working makes me want to scream. I will be having words tomorrow Thursday.
To do away with the
heparin
when her platelets are over 880 along with removing half of the blood pressure pills while knowing one kidney is blocked and not working makes me want to scream. I will be having words tomorrow Thursday.
jointpain
in
MPN Voice
6 years ago
More than fed up.
What the point of this site and the Vasculitis site let alone the so called doctors that are supposed to be treating me. So far have a diagnosis for U.V and going round in circles. I give up, had enough of repeated blood tests, scans and what ever. Vasculitis site say a completely different type of treatment
What the point of this site and the Vasculitis site let alone the so called doctors that are supposed to be treating me. So far have a diagnosis for U.V and going round in circles. I give up, had enough of repeated blood tests, scans and what ever. Vasculitis site say a completely different type of treatment
Boudica1
in
Vasculitis UK
6 years ago
Here it is guys. I got my second amniotic graph shot plus a lot more done ready for this. I wasn’t expecting this.
I didn’t know that I was going to bleed that bad but I guess because I had
heparin
put into my bladder it made me bleed more. I was very uncomfortable for the first 3 days afterward and I’m still very swollen.
I didn’t know that I was going to bleed that bad but I guess because I had
heparin
put into my bladder it made me bleed more. I was very uncomfortable for the first 3 days afterward and I’m still very swollen.
Debra13
in
Pelvic Pain Support Network
6 years ago
anybody diagnosed with lupus had balance problems headaches fever joint pain on immune suppressant told symptoms Fibo
CT Scan showed a large blood clot on the lung i've gone into A and E at seven in the morning about 11:30 at night I was finally put on the ward still no painkillers next morning
heparin
to start dissolving the blood clot penicillin for the pneumonia.
CT Scan showed a large blood clot on the lung i've gone into A and E at seven in the morning about 11:30 at night I was finally put on the ward still no painkillers next morning
heparin
to start dissolving the blood clot penicillin for the pneumonia.
Hidden
in
LUPUS UK
6 years ago
Help Appreciated Please
Hi I am new to the site and would appreciate some help please. In 2013 I gave up Deejaying as I noticed I was having 4000 hertz pitched spikes during the day that would last 10 seconds or so before my hearing resumed to normal with no sounds whatsoever. I went for an hearing test and was told I had age
Hi I am new to the site and would appreciate some help please. In 2013 I gave up Deejaying as I noticed I was having 4000 hertz pitched spikes during the day that would last 10 seconds or so before my hearing resumed to normal with no sounds whatsoever. I went for an hearing test and was told I had age
SI_Blue
in
British Tinnitus Association
6 years ago
First referral to ENT
My 16 yr old son, who has suffered for as long as he remembers, has a ENT appointment coming up in August. He already had a hearing test which shows he has good hearing but has never been referred to a specialist until now as he has always been told there is nothing they can do. However he now has this
My 16 yr old son, who has suffered for as long as he remembers, has a ENT appointment coming up in August. He already had a hearing test which shows he has good hearing but has never been referred to a specialist until now as he has always been told there is nothing they can do. However he now has this
isalou
in
Tinnitus UK
6 years ago
Research in Hampshire area
I am just wondering if there is any research taking place which I could join in with? I would be interested in seeing what difficulties are encountered with Hearing tests by like minded individuals with Tinnitus . Has a Survey been done on this topic and if so, what was the outcome? I will welcome comments
I am just wondering if there is any research taking place which I could join in with? I would be interested in seeing what difficulties are encountered with Hearing tests by like minded individuals with Tinnitus . Has a Survey been done on this topic and if so, what was the outcome? I will welcome comments
Spotted
in
British Tinnitus Association
6 years ago
Professor Graham Hughes Blog: April 2018
She was treated with
heparin
and then warfarin. A year later, she remains very well on long-term warfarin, and plaquenil for the aches and pains. The headaches have disappeared.
What is this patient teaching up?
She was treated with
heparin
and then warfarin. A year later, she remains very well on long-term warfarin, and plaquenil for the aches and pains. The headaches have disappeared.
What is this patient teaching up?
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Dream run has had a hiccup.
After a wait of several hours I was allowed a shot of
heparin
after telling them if I had a PE or stroke it would be on their heads. (Pain killers still working at this stage, so I could fight!)
After a wait of several hours I was allowed a shot of
heparin
after telling them if I had a PE or stroke it would be on their heads. (Pain killers still working at this stage, so I could fight!)
Ozchick
in
Hughes Syndrome APS Forum
6 years ago
Tinnitus & Hearing Tests
I attended my annual Hearing Test with my audiologist and I was amazed at the lack of consideration for me as one living with severe Tinnitus. My Tinnitus started in 1989 very suddenly following a very bad cold and overcoming a stressful time visiting an Architectural Colleague of mine in my local
I attended my annual Hearing Test with my audiologist and I was amazed at the lack of consideration for me as one living with severe Tinnitus. My Tinnitus started in 1989 very suddenly following a very bad cold and overcoming a stressful time visiting an Architectural Colleague of mine in my local
Spotted
in
British Tinnitus Association
6 years ago
Dr Graham RV Hughes Blog Post, May 2018
May 2018 by Professor Graham R V Hughes MD FRCP At last, successive days of hot sunny weather! Last week’s royal wedding in Windsor was bathed in glorious sunshine and clear blue skies. My plane home from Lisbon descended into Heathrow directly over Windsor Castle – we could make out the dwindling
May 2018 by Professor Graham R V Hughes MD FRCP At last, successive days of hot sunny weather! Last week’s royal wedding in Windsor was bathed in glorious sunshine and clear blue skies. My plane home from Lisbon descended into Heathrow directly over Windsor Castle – we could make out the dwindling
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Early Days but here’s hoping. . . .
Finally had my appointment today with NHS Audiologist and my hearing test showed a slight deterioration from my last test 6/7 years ago. I was provided with 2 hearing aids with masking sounds downloaded into them and I opted for white noise over pink noise. Both aids were fitted and I’ve worn them since
Finally had my appointment today with NHS Audiologist and my hearing test showed a slight deterioration from my last test 6/7 years ago. I was provided with 2 hearing aids with masking sounds downloaded into them and I opted for white noise over pink noise. Both aids were fitted and I’ve worn them since
HissingSid
in
British Tinnitus Association
6 years ago
CTI Ablation getting close now
EP doesn’t know what he will find until he gets in there and knowing how complicated I am I have posed quite a problem with the fact that I’m allergic to
heparin
apparently they fill you with the stuff not good for me though I’m allergic to aspirin too and morphine doesn’t Suit me either.
EP doesn’t know what he will find until he gets in there and knowing how complicated I am I have posed quite a problem with the fact that I’m allergic to
heparin
apparently they fill you with the stuff not good for me though I’m allergic to aspirin too and morphine doesn’t Suit me either.
Babyr1996
in
Atrial Fibrillation Support
6 years ago
Lupus (SLE) & anti-phospholipid antibodies - unexpected pregnancy and very worried if I'll be well enough
Also, I saw my rheumatologist last week and she agreed I need to be urgently on
heparin
injections but I have to wait until I go to the high risk combined clinic with a specialist obstetrician and a lupus consultant who specialises in lupus in pregnancy,which is in 4 weeks time.
Also, I saw my rheumatologist last week and she agreed I need to be urgently on
heparin
injections but I have to wait until I go to the high risk combined clinic with a specialist obstetrician and a lupus consultant who specialises in lupus in pregnancy,which is in 4 weeks time.
Veethebee
in
LUPUS UK
6 years ago
Ablation yesterday! So far, so good.....
This came back clear and the consensus is that the combination of
heparin
and rivaroxaban during the procedure was the root cause. Prescribed ranitidine to soothe stomach acid and, hopefully, settle the problem. Has anyone else experienced this?
This came back clear and the consensus is that the combination of
heparin
and rivaroxaban during the procedure was the root cause. Prescribed ranitidine to soothe stomach acid and, hopefully, settle the problem. Has anyone else experienced this?
ijan
in
AF Association
6 years ago
Plastic surgery
I have spoken it over with my specialist who can control my
heparin
pre and post surgery but I would still like others experiences, surgeons used etc?? Thank you
I have spoken it over with my specialist who can control my
heparin
pre and post surgery but I would still like others experiences, surgeons used etc?? Thank you
Kittybaker
in
Hughes Syndrome APS Forum
6 years ago
Hybrid Ablation - second time lucky
Four weeks later, after going in to hospital 2 days before the op to have a
heparin
infusion, the second operation was successful. Wonderful surgical team at Derriford - couldn't ask for a more professional treatment.
Four weeks later, after going in to hospital 2 days before the op to have a
heparin
infusion, the second operation was successful. Wonderful surgical team at Derriford - couldn't ask for a more professional treatment.
Uppaton1
in
AF Association
6 years ago
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