Well counting down the days now finally I get to get my Ablation for flutter on Wednesday next week. It can’t come quick enough tbh!!
Filled with excitement yet apprehension mmmm keep reading different outcomes on here some are encouraging yet others not so. But need to know all both the good and the bad.
EP doesn’t know what he will find until he gets in there and knowing how complicated I am I have posed quite a problem with the fact that I’m allergic to heparin apparently they fill you with the stuff not good for me though I’m allergic to aspirin too and morphine doesn’t Suit me either. This will be fun!! But all that aside I know I’m in excellent hands under an excellent team at Glenfield
This site really is informative and helpful and encouraging. Thank you everyone for this wonderful community
Will try and keep you updated
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Babyr1996
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Hope all goes well. If you feel like it, can I ask how did the flutter develop i.e. your AF and drug history in a couple of sentences would be interesting. I am a bit concerned the Flecainide I am on whilst stopped my AF for several years now may result in Flutter soon.
I’m a bit complicated I’m afraid it all started back in 2006 ide been experiencing that feeling of butterflies in the chest I remember ide had this as a child and kept fainting (syncope) I had all the usual tests and cardiologist inserted duel chamber pacemaker and diagnosed paroxysmal atrial fibrillation no drugs at this stage. I was bradycardia and had low BP hence pacemaker
October 2016 I had a box change which was better.
I was told I had Ectopic beats too.
In 2015/16 I suddenly started to have fast rates/rhythm I had episodes of SVT but not lasting long. I was put on Midrodrine which gives me cold shards in my head so on a low dose of 2x tabs 2x daily now. I then was adding on ivabradine 1x 2x daily
In November 2017 oh boy I suddenly started to get more and more AF & Flutter. It was almost constant HR would go to 246bpm but not lasting long only seconds - perhaps 30mins.
Cardiologist couldn’t do anymore so referred me to Dr Stafford (EP) at Glenfield in December 2017 he then got me on Bisoprolol 1.5mg daily I can’t tolerate higher doses side affects terrible.
Now he decides on ablation for AF but ide not had any episodes since September last year he decided to deal with the flutter with a view to doing AF when it decides to appear again. That’s the thing with PAF it’s unpredictable you never know when it’s going to return and when it does I know about it.
Sorry it’s long this is just a brief outline
Thank you for asking but I don’t know anything about flecainide. I suppose flutter can just happen whilst it’s jolly well annoying it’s not life threatening unless it becomes s constant and then anticoagulants would be be needed to prevent stroke I believe
Don’t know how much my story will help but hope it does in some small way
Hi,my understanding is that it flec is going to cause flutter on top of afib,it is at the start of treatment with flecI think that is why they start it under doctor supervision .It happened to me...but I might be mistaken!
CTI ablation is right atria? If so I understand it is less complicated than left side, less hazardous and up to 95% successul .I had a right side atrial ablation in February AFTER I had a left side PVI ablation in January and then developed atrial flutter 9 days later. My flutter stopped immediately and has not returned in the last 6 weeks. I was on flecainide 50mg x 2 for the AFIB with diltiazem as rate control ( can' tolerate bisoprolol) I have continued with the flecainide since the flutter ablation with no problems. I have in fact stopped taking it a few days ago ( no issues so far fingers crossed) . I understand flecainide can promote flutter but did not do for me until the Afib was removed(?? Or us it just coincidence).
My heart history is a lot less complicated than yours but the flutter ablation was quite quick with no issues
Good luck Babyr1996. I'm also awaiting CTI and PVI at the same hospital. Don't have a date yet, but rather nervous. How do you get around your morphine issue if heavy meds are needed? I also have a problem with both morphine and codeine
Awe thanks for that I’m not sure what he’s gonna do tbh but apparently there’s stuff they can use instead I will find out on Wednesday. Yes I’m feeling a bit nervous too it’s hug me today that’s it’s this Wednesday this is the week but I’m being positive
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