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Spontaneous Referral!
It may have something to do with the fact that I had just emailed her to say that I want to inject
Heparin
if my INR goes below 2.5 rather than below 2, and she is worried I am risking a bleed, but whatever precipitated it, I have obviously written back to say yes thank you very much.
It may have something to do with the fact that I had just emailed her to say that I want to inject
Heparin
if my INR goes below 2.5 rather than below 2, and she is worried I am risking a bleed, but whatever precipitated it, I have obviously written back to say yes thank you very much.
Elaine77c
in
Hughes Syndrome APS Forum
10 years ago
I am hearing my pulse in my ear and light headed
Hi everyone, I am new here. I recently been having shortness of breath,chest tightness and I visit Dr about 3 times. They did blood work,ekg,chest X-ray,ct scan of the lung and all was normal. I am doing acupuncture and taking B complex vitamins, magnesium,fish oil, I need to drink more water though.
Hi everyone, I am new here. I recently been having shortness of breath,chest tightness and I visit Dr about 3 times. They did blood work,ekg,chest X-ray,ct scan of the lung and all was normal. I am doing acupuncture and taking B complex vitamins, magnesium,fish oil, I need to drink more water though.
klang
in
Anxiety Support
9 years ago
Hello.. it's been a while.
I've been put back on 150mg of aspirin and
heparin
injections daily. Its very, very scary, but we are determined to stay positive. Everything will be okay this time. Im only still very early, my guess is around 4-5 weeks. But we are hopeful. Hope you're all well.
I've been put back on 150mg of aspirin and
heparin
injections daily. Its very, very scary, but we are determined to stay positive. Everything will be okay this time. Im only still very early, my guess is around 4-5 weeks. But we are hopeful. Hope you're all well.
kirstyleigh
in
Hughes Syndrome APS Forum
10 years ago
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October's Blog (Part 2) - Rebecca's experiences of pregnancy with lupus
I have to inject myself daily for six weeks post birth with
heparin
to reduce my risk of blood clotting, and for someone who doesn’t like needles that hasn’t been much fun, but I just think of Bella, and I remember why I have to do it. I am also wearing TED stockings for 6 weeks.
I have to inject myself daily for six weeks post birth with
heparin
to reduce my risk of blood clotting, and for someone who doesn’t like needles that hasn’t been much fun, but I just think of Bella, and I remember why I have to do it. I am also wearing TED stockings for 6 weeks.
Paul_Howard
LUPUS UK
in
LUPUS UK
10 years ago
APS after 3 miscarriages and a still birth AND a premature baby?!!
I was told I would be put to
heparin
and aspirin only if I get pregnant again. But what I don't understand is why wait when I am pregnant or are they right in saying that? I would really appreciate if anyone replies to my confused questions!!!
I was told I would be put to
heparin
and aspirin only if I get pregnant again. But what I don't understand is why wait when I am pregnant or are they right in saying that? I would really appreciate if anyone replies to my confused questions!!!
Nafisah
in
Hughes Syndrome APS Forum
10 years ago
Sticky blood and depression/lethargy
When the DVT was diagnosed, I was put onto
Heparin
and Warfarin. Within three days of starting treatment, not only had the pain in my leg gone, but I felt much less depressed. After a month, I did not feel depressed at all. I told my psychiatrist that I was better and she effectively signed me off.
When the DVT was diagnosed, I was put onto
Heparin
and Warfarin. Within three days of starting treatment, not only had the pain in my leg gone, but I felt much less depressed. After a month, I did not feel depressed at all. I told my psychiatrist that I was better and she effectively signed me off.
MeerB
in
Hughes Syndrome APS Forum
10 years ago
Surgery update..
The
heparin
shots should be completed today, I am back on Warfarin now also. I check into the clinic today for INR check. I am looking forward to a self tester, as I am going deeper within my diet to further build an even healthier diet related to organics and vegetarian.
The
heparin
shots should be completed today, I am back on Warfarin now also. I check into the clinic today for INR check. I am looking forward to a self tester, as I am going deeper within my diet to further build an even healthier diet related to organics and vegetarian.
beccafullcircle
in
Hughes Syndrome APS Forum
10 years ago
Professor Graham Hughes August 2014 Blog
In Hughes syndrome when brain or spinal cord involvement is prominent, most patients require
heparin
or warfarin. And yet, this seriously incapacitated lady responded ‘miraculously’ to a single ‘baby’ aspirin daily. Why? We don’t know. Secondly, the links between Hughes syndrome and MS.
In Hughes syndrome when brain or spinal cord involvement is prominent, most patients require
heparin
or warfarin. And yet, this seriously incapacitated lady responded ‘miraculously’ to a single ‘baby’ aspirin daily. Why? We don’t know. Secondly, the links between Hughes syndrome and MS.
MaryF
Administrator
in
Hughes Syndrome APS Forum
10 years ago
ENT issues - anyone else suffering?
I have been living with Hashimoto's (officially) since March although I believe I have had it for several years. Around the same time I was referred to ENT for an enlarged tonsil on the left side, nasal congestion on right side and a stuffy ear on the right side with a whooshing noise. THe ENT did a
I have been living with Hashimoto's (officially) since March although I believe I have had it for several years. Around the same time I was referred to ENT for an enlarged tonsil on the left side, nasal congestion on right side and a stuffy ear on the right side with a whooshing noise. THe ENT did a
jlo211
in
Thyroid UK
10 years ago
heparin dosage in pregnancy
Hi again. I need your advice and experience with APS and pregnancy treatment. In 6 week of my pregnancy i got positive lupus anticoagulant test and also in 11 week of pregnancy. Since 8 week i am on aspirin 100 and clexane 40mg. Last week I got negative LAc test and my doctot want to take clexane 20
Hi again. I need your advice and experience with APS and pregnancy treatment. In 6 week of my pregnancy i got positive lupus anticoagulant test and also in 11 week of pregnancy. Since 8 week i am on aspirin 100 and clexane 40mg. Last week I got negative LAc test and my doctot want to take clexane 20
Glassart
in
Hughes Syndrome APS Forum
10 years ago
Menigitis. Pls help someone?
Hi people, this is first time on here, but I'm so desperate I contracted menigitis 3 and half wks ago, somhow through trying to come of pregabalin ( strong nerve tabs) on the third day of not takin them I got men....these tabs have such a bad write up & comin of them was hell. I feel that I got so run
Hi people, this is first time on here, but I'm so desperate I contracted menigitis 3 and half wks ago, somhow through trying to come of pregabalin ( strong nerve tabs) on the third day of not takin them I got men....these tabs have such a bad write up & comin of them was hell. I feel that I got so run
Tucker71
in
Meningitis Now
10 years ago
4th line chemo
She also had a bilateral pulmonary embolism and continues to inject daily with Innohep (
heparin
).
She also had a bilateral pulmonary embolism and continues to inject daily with Innohep (
heparin
).
marymarcy
in
My Ovacome
10 years ago
Insomnia and muscle spasms - off to st t's x
With all your advice on here im going to take notes and ask for
heparin
. Ive had two hours sleep with my muscles in spasm and insomnia so i can only assume my inr is low, with the kidney problesm lately i just cant seem to stabilise my levels.
With all your advice on here im going to take notes and ask for
heparin
. Ive had two hours sleep with my muscles in spasm and insomnia so i can only assume my inr is low, with the kidney problesm lately i just cant seem to stabilise my levels.
emmaj
in
Hughes Syndrome APS Forum
10 years ago
Heparin trial
He is stopping the aspirin and starting
heparin
and cyclophosphamide. I'm a bit scared, has anyone else been on this? Grateful for your reply Thanks Elfie.
He is stopping the aspirin and starting
heparin
and cyclophosphamide. I'm a bit scared, has anyone else been on this? Grateful for your reply Thanks Elfie.
Elfie1
in
Hughes Syndrome APS Forum
10 years ago
Re. Heparin trial
Thought it would be better to admit me for aheadscan and start the
heparin
+cyclophosphamide.and if that doesn't work he will give me Rituximab. Has anyone had any hairloss with the cyclo? Thanks elfie
Thought it would be better to admit me for aheadscan and start the
heparin
+cyclophosphamide.and if that doesn't work he will give me Rituximab. Has anyone had any hairloss with the cyclo? Thanks elfie
Elfie1
in
Hughes Syndrome APS Forum
10 years ago
Advice after miscarriages
They had to wait until scans before they would put me on
heparin
so I started this at about 6 weeks. The follow up scans showed the baby was developing but it was a week behind my own dates, which I was sure of. Sadly, I lost this pregnancy at about 9 weeks, having seen a heartbeat the week before.
They had to wait until scans before they would put me on
heparin
so I started this at about 6 weeks. The follow up scans showed the baby was developing but it was a week behind my own dates, which I was sure of. Sadly, I lost this pregnancy at about 9 weeks, having seen a heartbeat the week before.
Tlove
in
Hughes Syndrome APS Forum
10 years ago
Ménière's too
Does anyone else have Ménière's as well as SSc? I've had symptoms of Ménière's for 18 months but consultant said no definitive diagnoses as my hearing test was normal although it was likely. Episodes of tinnitus and dizziness have increased recently and I had a bad episode whilst driving. GP says
Does anyone else have Ménière's as well as SSc? I've had symptoms of Ménière's for 18 months but consultant said no definitive diagnoses as my hearing test was normal although it was likely. Episodes of tinnitus and dizziness have increased recently and I had a bad episode whilst driving. GP says
Anjigrunty
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Headaches while asleep
Get blurred vision and floating grey bits in front of my eyes in the day, but not headaches unless INR so low I am having
heparin
injections as a safety net until it goes up.
Get blurred vision and floating grey bits in front of my eyes in the day, but not headaches unless INR so low I am having
heparin
injections as a safety net until it goes up.
Elaine77c
in
Hughes Syndrome APS Forum
10 years ago
Question about treatment
I was on aspirin and
heparin
in pregnancy. I've seen a consultant haemotologist who says all my tests were negative apart from the DRVVT - the more sensitive one for lupus antibody.
I was on aspirin and
heparin
in pregnancy. I've seen a consultant haemotologist who says all my tests were negative apart from the DRVVT - the more sensitive one for lupus antibody.
Hopingforababy
in
Hughes Syndrome APS Forum
10 years ago
Medical and fitness test
I have a medical and fitness assessment next week for a job i have recently been offered. I have no idea what to expect so if someone has been to one before and could shed any light i'd be grateful! Especially for the fitness side of things I have the following information, of which some is obvious
I have a medical and fitness assessment next week for a job i have recently been offered. I have no idea what to expect so if someone has been to one before and could shed any light i'd be grateful! Especially for the fitness side of things I have the following information, of which some is obvious
k823127
in
Weight Loss Support
10 years ago
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