I arrived at this community by a rather long route.
Back in July 2014 I was diagnosed with a DVT. A big one - four inches long behind the knee. Many years ago I'd had a DVT and a PE, but came off Warfarin after a few years. Clearly, now, I need to stay on the Warfarin.
My first DVT was different. I had extreme pain when walking. I could only walk a few yards before having to rest, rather like a Flamingo standing on one leg. With this recent DVT I had pain in the leg but I could keep walking. Hence I did not think (at first) that it was a DVT. When I went to my GP, she thought the pain was muscular, but sent me for a D-Dimer blood test to exclude DVT.
Leading up to that point, I had been suffering depression. Sure, the depression had a number of 'causes' but it became worse as a result of what I felt was my body packing up. Gradually I was less able to function - becoming slower, lethargic and unable to function. At the time, I put it down to worsening depression.
When the DVT was diagnosed, I was put onto Heparin and Warfarin. Within three days of starting treatment, not only had the pain in my leg gone, but I felt much less depressed. After a month, I did not feel depressed at all. I told my psychiatrist that I was better and she effectively signed me off. And that was that. So I thought.
Then the other day I got a letter from the DVLA telling me that my driving license was revoked on medical grounds. Their decision was based on a GP report, but my GP had not seen me since June, and was of the opinion that I was still 'unwell' (Severe depression). Far from it. I was better, in my opinion thanks to Warfarin.
Shortly after starting on the Warfarin, my pharmacist (who knows me well) told me that I was outwardly much better, and she commented that it was probably due to being on Warfarin. She explained that (obviously) Warfarin thins the blood, and that in turn leads to better circulation. I came to think that it was too coincidental that within days of starting on Warfarin, my depression lifted, and the two are connected.
I am not qualified to link the two, but a little exploration on Google has led me to believe that they are connected. ie Sluggish blood can lead to lethargy etc which in turn can cause depression. If my hypothesis is correct, I think that there should be greater awareness of how sluggish blood may lead health care professionals to misdiagnose illness. In my case it has led to months of depression culminating in the loss of my driving license. I now have a tremendous battle to get my license back.
And then I found the Hughes Syndrome Foundation web site. Reading through, it seems to me that things such as migraines I do not have. However, there's been a problem developing over the past two years. I get tingling and numbness on the left side of the face. This varies and can extend from the chin to the forehead at its worst. Other times it's just the lip. My doctor is investigating it and tested Vitamin B/Iron etc - and that was okay, but she said that I have 'inflamation' somewhere in me, and she's now doing a CRP blood test.
I wonder if these things are linked?
Any comments much appreciated.