Hi all, I am so happy to find this forum. I was (cautiously) diagnosed with APS after 2 miscarriages and no children yet. I say cautiously because I have yet to have the follow up test but my anti-cardiolipin antibodies were quite high and the consultant in the pregnancy loss clinic was pretty confident this is what I have. I got pregnant v quickly after my second miscarriage and was put on 75mg aspirin (which I had started to take myself anyway), high dose folic acid at approx 4.5 weeks. They had to wait until scans before they would put me on heparin so I started this at about 6 weeks. The follow up scans showed the baby was developing but it was a week behind my own dates, which I was sure of. Sadly, I lost this pregnancy at about 9 weeks, having seen a heartbeat the week before. So now I have had 3 miscarriages and still no child. I am not sure what to do next, I have read that steroids could help in the early weeks and also that vitamin D deficiency is found in patients with APS. I am just wondering if anyone has tried adding either of these to their prescribed medication and what kind of outcome people have in this situation. The doctors told me to come off the aspirin as I'm not pegnant anymore but if I'm planning a pregnancy again, surely I should still be taking it?!
Apart from the miscarriages, I don't think I have any other symptoms of APS. I live in Ireland and have been thinking that maybe it would be worth a trip to London to one of the specialists there but I am not sure what extra they would do as the blood tests are the same. Are there any specialists in Ireland that anyone knows of?
Thanks for your help!