Hi, I dont think I have ever posted before though I have derived great comfort from reading others posts. I am in Ireland, my mam, who is 62, was diagnosed with stage 3c ovarian cancer in Dec 2012. Peritoneal carcinomatosis was also mentioned later so to be honest I dont know if maybe that is the more accurate description. She also had a bilateral pulmonary embolism and continues to inject daily with Innohep (heparin).
Excellent surgeon feels she is unsuitable for surgery, she never had a "mass" as such, its more that the cancer "seeded" inside her abdomen, so surgery would have to be so radical as to leave her with poor quality of life, while not necessarily removing all the cancer. Also the fact that she is very prone to clotting. When she was biopsied for diagnosis they drained a huge amount of ascites (bloating had been her main symptom, apart from tiredness).
First line Carbo Taxol failed almost immediately she finished. We were then told the outlook was bleak, but she elected to try Caelyx, 3 doses followed by hospitalisation due to mouth ulcers, couldn't continue, but she got 5 good months chemo free. In April of this year her 3 month scan showed activity, so third line Carbo Gem followed, which she tolerated well. 2 good months once that ended, followed by development of ascites in recent weeks.
Saw oncologist today (no problems with her, very nice, approachable, accessible etc). Pockets of ascites and tumours have grown, compressing bowel. Also something on top of liver. Partial drainage last week (600ml) has given no relief. The fact that it's in pockets complicates drainage. Again, mam willing to try more chemo, so awating a hospital bed to start Avastin and a yet to be decided drug, and another scan to see if more drainage possible. My mam is a lovely brave kind good person, I am her only daughter and we are very close, she is much loved by us all. All we want right now is for her to be comfortable, she can barely eat and feels great abdominal pressure. If anyone has anything positive they can say, anyone who had positive experience with 4th line chemo, or anything at all, it would be greatly appreciated. I wish you all the best on your journey with this horrible disease. I apologise for the length of this.