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road to diagnosis
Hi everyone, I don’t know where to start… it’s been a bit of a rollercoaster so far. It all started when I started getting redness and discolouration in both feet. My GP did a blood test and referred me to my rheumatologist for further assessment. My rheumatologist felt that my feet getting red was
Hi everyone, I don’t know where to start… it’s been a bit of a rollercoaster so far. It all started when I started getting redness and discolouration in both feet. My GP did a blood test and referred me to my rheumatologist for further assessment. My rheumatologist felt that my feet getting red was
RA_123
in
LUPUS UK
7 months ago
Bob Mortimer
Bob has brought Rheumatoid Arthritis into the conversation with the Christmas special I knew he had health issues but didn't know Arthritis until he mentioned on the programme. I read his autobiography which is good poignant and funny. Arthritis is not mentioned. He says diagnosed in 20s but he was
Bob has brought Rheumatoid Arthritis into the conversation with the Christmas special I knew he had health issues but didn't know Arthritis until he mentioned on the programme. I read his autobiography which is good poignant and funny. Arthritis is not mentioned. He says diagnosed in 20s but he was
welsh12
in
NRAS
7 months ago
Heart Attack
My Dad had a heart attack back in April. He refused a triple heart bypass and was sent home with medication.He has had no follow up about his heart but is struggling to manage. He is slow, shaky, weak and unstable. He is breathy after minor exertion, generally has cold hands and feet and is a little
My Dad had a heart attack back in April. He refused a triple heart bypass and was sent home with medication.He has had no follow up about his heart but is struggling to manage. He is slow, shaky, weak and unstable. He is breathy after minor exertion, generally has cold hands and feet and is a little
Hidden
in
British Heart Foundation
11 months ago
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3year Updates w/PSA Graph
Hi Everyone, I'd like to report my 3 year journey. Initial PSA 27 in 6/20. Diagnosed w/PC 10/20. Gleason score is 3+4 (high-risk). My T-stage is T2a/T2b. CT Scan showed no lymph node & Bone Scan showed some indication of met. PSMA/PET in 1/12/21 showed no met outside. Started ADT (Lupron
Hi Everyone, I'd like to report my 3 year journey. Initial PSA 27 in 6/20. Diagnosed w/PC 10/20. Gleason score is 3+4 (high-risk). My T-stage is T2a/T2b. CT Scan showed no lymph node & Bone Scan showed some indication of met. PSMA/PET in 1/12/21 showed no met outside. Started ADT (Lupron
brucesam
in
Advanced Prostate Cancer
4 months ago
Unsure how to proceed after flare continues
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
Donna5658
in
PMRGCAuk
4 months ago
Sustaining friendships in the 21st century
When I got Parkinsons, I knew that there'd be a few years before I became housebound (and I'm not there yet). When that point was actually reached, I comforted myself with the knowledge that I had many friends, some of whome have admittedly moved away either to far flung place in the UK, or abroad.
When I got Parkinsons, I knew that there'd be a few years before I became housebound (and I'm not there yet). When that point was actually reached, I comforted myself with the knowledge that I had many friends, some of whome have admittedly moved away either to far flung place in the UK, or abroad.
jeeves19
in
Cure Parkinson's
4 months ago
AASLD organization
www.aasld.org This is the site for the [u][i]
American
[/i][/u] Association for the Study of Liver Diseases. They make the AASLD Guidelines for the Diagnosis and Treatment of PBC. Every one should take the time to read this. Take a copy of it to your doctor as well. They should be familiar
www.aasld.org This is the site for the [u][i]
American
[/i][/u] Association for the Study of Liver Diseases. They make the AASLD Guidelines for the Diagnosis and Treatment of PBC. Every one should take the time to read this. Take a copy of it to your doctor as well. They should be familiar
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Coping
My story starting in 2020,light headed,weight loss,in and out if the toilet.When i eventually went to the hospital was tokd Cirrhosis,been in and out since,they never explained diet so i have had a couple of burst blood vessels not nice. Now i am aware this us my 1st week of rabbit food!! No booze for
My story starting in 2020,light headed,weight loss,in and out if the toilet.When i eventually went to the hospital was tokd Cirrhosis,been in and out since,they never explained diet so i have had a couple of burst blood vessels not nice. Now i am aware this us my 1st week of rabbit food!! No booze for
Rawai
in
British Liver Trust
4 months ago
Levodopa effect on AF?
Diagnosed with Parkinsons last year.....medication (Levodopa) seems to be helping AF...anyone else feel the same?
Diagnosed with Parkinsons last year.....medication (Levodopa) seems to be helping AF...anyone else feel the same?
fleckynyde
in
Atrial Fibrillation Support
4 months ago
mitral valve
hi I had a quadruple heart bypass 8 half years ago. Last week told I have a problem with mitral valve . Echocardiogram has been booked for 3 weeks time. In the meantime I am going on holiday to Greece for 2 weeks. Consultant said go we will deal with it when you get back. Anyone else had this and what
hi I had a quadruple heart bypass 8 half years ago. Last week told I have a problem with mitral valve . Echocardiogram has been booked for 3 weeks time. In the meantime I am going on holiday to Greece for 2 weeks. Consultant said go we will deal with it when you get back. Anyone else had this and what
Leilavivienne
in
British Heart Foundation
11 months ago
Possible over treatment with Levothyroxine
Hi everyone, I’m new to the site. It was suggested that I make a post following a comment I made replying to another post as I may benefit from some guidance on my current treatment. I was diagnosed with an underactive thyroid 9 years ago. I have been treated with Levothyroxine throughout. Since 2020
Hi everyone, I’m new to the site. It was suggested that I make a post following a comment I made replying to another post as I may benefit from some guidance on my current treatment. I was diagnosed with an underactive thyroid 9 years ago. I have been treated with Levothyroxine throughout. Since 2020
Vizslaaddict
in
Thyroid UK
7 months ago
Has methotrexate caused liver damage
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
Beanyynwa
in
NRAS
4 months ago
for all new members of late.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
first line treatment with bendamustin and rithoximab
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
09123836306
in
CLL Support
4 months ago
Excessive Nasal Mucous
I have been treated for underactive thyroid for around 30 years. The past decade I keep experiencing what is like very severe cold symptoms on a regular basis. My body produces excess amounts of thick green slimy sticky mucous, my sinuses get blocked, I have endless nasal drip/cough and it makes me really
I have been treated for underactive thyroid for around 30 years. The past decade I keep experiencing what is like very severe cold symptoms on a regular basis. My body produces excess amounts of thick green slimy sticky mucous, my sinuses get blocked, I have endless nasal drip/cough and it makes me really
OzMan
in
Thyroid UK
7 months ago
highest liver - don’t know why think it’s thyroid
Hi any idea why so high Zero alcohol drugs or sex I did hve carbs for a week as needed to put on weight I had Hida scan 5 days before test - gallbladder fine I stopped all supplements except NAC for a week I used to take milk thistle before and my Enzymes were lower . Everyone warns against
Hi any idea why so high Zero alcohol drugs or sex I did hve carbs for a week as needed to put on weight I had Hida scan 5 days before test - gallbladder fine I stopped all supplements except NAC for a week I used to take milk thistle before and my Enzymes were lower . Everyone warns against
Chouchou1234
in
Thyroid UK
4 months ago
PSA rise
I have been undetectable for about 2 years. On Dec 6 my PSA was 0.04 then on March 19 it was 0.21 so this indicates a rise in Mets. Is this too low for a scan? What should be the next steps?
I have been undetectable for about 2 years. On Dec 6 my PSA was 0.04 then on March 19 it was 0.21 so this indicates a rise in Mets. Is this too low for a scan? What should be the next steps?
Howard53545
in
Advanced Prostate Cancer
4 months ago
‘Normal’ results but feeling terrible
Hi, I have an underactive thyroid (35f) and was diagnosed 5 years ago. I think my Dad (60m) does too, in April 2021 I persuaded him to get a medichecks test done. I have attached a screenshot of those results. I have persuaded him to get another medichecks done to see if his results are different. He
Hi, I have an underactive thyroid (35f) and was diagnosed 5 years ago. I think my Dad (60m) does too, in April 2021 I persuaded him to get a medichecks test done. I have attached a screenshot of those results. I have persuaded him to get another medichecks done to see if his results are different. He
ZDA23
in
Thyroid UK
7 months ago
PSA rise due to physical activity
My PSA has been rising slowly.. 4-5 points in 3 months. Until January when it went from 29 to 43 in one month. By end of February it was still at 43. I feel fine! Here is a quote from the National Library of Medicine: “Physical activity releases prostate-specific antigen (PSA) from the prostate
My PSA has been rising slowly.. 4-5 points in 3 months. Until January when it went from 29 to 43 in one month. By end of February it was still at 43. I feel fine! Here is a quote from the National Library of Medicine: “Physical activity releases prostate-specific antigen (PSA) from the prostate
Ian99
in
Advanced Prostate Cancer
4 months ago
Concern about having more radiation to prostate after 43 external beam treatments 15 years ago
15 years ago my husband had 43 radiation treatments after PSA reached 50 & his 3rd biopsy showed 1 core to have cancer., Gleason was 3-3. He has had Lupron injections since then. He was on 250mg of Zytiga with food and 5 mg Prednisone for 3 years until a year ago because PSA was creeping up & he was
15 years ago my husband had 43 radiation treatments after PSA reached 50 & his 3rd biopsy showed 1 core to have cancer., Gleason was 3-3. He has had Lupron injections since then. He was on 250mg of Zytiga with food and 5 mg Prednisone for 3 years until a year ago because PSA was creeping up & he was
Pickleball38
in
Advanced Prostate Cancer
4 months ago
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