Experiences with

Heart valve diseases

Hi all - I wanted to update everyone on a positive experience and to hopefully debunk some of the myths. For context I live in the Republic of Ireland and also have private medical insurance (this is very common in Ireland). 55, male and generally fit. I was having episodes of waking up, bolt upright

I live in the U.S. and I have decided -- the decision can be debated elsewhere -- to take Eliquis, which is available outside the U.S. as a generic called apixaban. My Eliquis costs $314 for 30 pills. I could do a bit better pricewise at another pharmacy 50 miles away, with long, long lines. I pay

Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks

Found this lecture helpful to know what my options are after the neurologist chose for me. Currently on madopar with entacapone newly added. Feel a little better. Time will tell. https://youtu.be/LJVcrvrFYJs?si=Km9qcU_fC71QRSbz

Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy

Waiting for a new blood thinner the surgery caluated they have four days till medication was needed ,wrong I had to phone up 111 to get a perscription,chemist no Af tablet no tablets for 2 days. when I phoned up the surgery the reception did not know about it. , yesterday no problem when I was busy.

Finished my 6th and final Pluvicto and am now getting lab results. I see that somehow I neglected to put results after #5 -- may have been distracted by doctors freaking out that my kidney function was going down and my calcium shot up. My nuclear medicine doc made a judgement call to give me a full

Hi everyone, I’m looking for any information about bloods and Thyroid please. I was diagnosed in 2017 with chronic pain, chronic fatigue and osteoarthritis. I have tried all pain medications the NHS has, and nothing touches the pain. I have had horrendous pain in my feet, left one for over a year,

I’m getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadn’t changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing

I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide

I have high liver enzymes. AST 91. Alt 134. Ggt 235. Fibroscan cap 366 and kpa 5.6. What does this mean .

I’ve had ET+Jak2 for 9 years and have tolerated Hydroxy plus asprin quite well. I’ve always had low blood pressure but was diagnosed with high blood pressure a month ago and put on meds which have worked in bringing it down. The problem is I feel really tired on them and my ankles have swollen, a common

I'm on 10mg Ramipril and have been so for at least 15 years, maybe a bit longer. My GP has now asked me to cease taking it for 8 weeks. It was originally prescribed as a blood pressure control drug. It has done its job, up to a point ! In more recent years I have had added to the blood pressure mix Felodopine

Hi just got a letter from cardiology.Anyone know what a QRS of 176 milisecond relates too? In permanent AFib so guessing it's something to do with the heart rate? Thanks

Upon diagnosis of atrial fibrillation (AF) many individuals are prescribed medications that include antiarrhythmic medication(s). These help to restore the normal (sinus) heart rhythm. They work by blocking specific electrical conduction channels in the heart. Many can slow the activation of the heart

I've been on edoxaban and bisoprolol after permanent AF became part of my life in 2022. I had an ablation in April this year, but went back in AF soon after so had a cardioversion and amiodarone for two months. I'm still in NSR, feeling better but still tired and get breathless fairly easily.At my follow

Disregarding the discussion as whether to temporarily discontinue or not discontinue in fht efirst place... Purportedly some substances may "mask" PSA. I believe the general rule of thumb is on 5-ARIs like Avodart (Dutasteride) you are supposed to double the PSA reading to get the "real" PSA? In addition

Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say

Hey all: As I’ve mentioned before, I’m doing a comic about this experience. I want to have a short section at the end with websites that are good for learning about prostate cancer. I have room for a few more, and am looking for suggestions. Not an exhaustive list, but hoping for a useful list: Thanks

I have recently been prescribed azithromycin long term three times a week. Has anyone had their blood pressure go up as a result of taking this whilst also being treated for high blood pressure and AF with Digoxin cadesartan and bisoprolol. I have been told by the consultant that the digoxin is a low