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Best mobile phone for Ataxia?
hi all, my brother suffers badly with his eyes, the blurry vision has gone worse and he’s struggling to read books or watch telly. He uses an “old school” mobile phone since he cannot stand the glare from smartphone screens. What mobile phones do you recommend? I’d like to get him a new one as this
hi all, my brother suffers badly with his eyes, the blurry vision has gone worse and he’s struggling to read books or watch telly. He uses an “old school” mobile phone since he cannot stand the glare from smartphone screens. What mobile phones do you recommend? I’d like to get him a new one as this
Larobby
in
Ataxia UK
2 years ago
Battling with lupus
Iam Jacqueline Stecie Beyard from Malawi. I have been fighting with lupus for so long without knowing. I have been given wrong medications and nobody understood what i was going through. People thought i was crazy. Been having sharp pains on my palms, chest, pelvis and it kept on changing from organ
Iam Jacqueline Stecie Beyard from Malawi. I have been fighting with lupus for so long without knowing. I have been given wrong medications and nobody understood what i was going through. People thought i was crazy. Been having sharp pains on my palms, chest, pelvis and it kept on changing from organ
1shz
in
LUPUS UK
2 years ago
polymyalgia and brachytherapy
I am 63 diabetic and recently diagnosed with pmr and prostate cancer. I am waiting for brachytherapy treatment for the cancer but the doc is uncertain about doing this while I am on pred / any ideas?
I am 63 diabetic and recently diagnosed with pmr and prostate cancer. I am waiting for brachytherapy treatment for the cancer but the doc is uncertain about doing this while I am on pred / any ideas?
Limes123
in
PMRGCAuk
2 years ago
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Ocular hypertension and insomnia
My glaucoma consultant is concerned that the IOP in my left eye is too high. I’ve already had a trab on my right eye and she says that if the left one doesn’t go down I will need to have a trab on that eye too. I’ve been suffering with insomnia since I got Covid about a month ago and haven’t had a good
My glaucoma consultant is concerned that the IOP in my left eye is too high. I’ve already had a trab on my right eye and she says that if the left one doesn’t go down I will need to have a trab on that eye too. I’ve been suffering with insomnia since I got Covid about a month ago and haven’t had a good
YoungontheOutside
in
Glaucoma UK
2 years ago
Anyone with ET use Besremi?
Pegasys is causing me significant liver enzyme increases. I have high risk ET, CALR-1 and resistant to Hydrea. Pegasys has worked well for past 8 years but now liver can no longer tolerate. Just wondering if anyone else has had this happen and what the change in cytoreductive management strategy was
Pegasys is causing me significant liver enzyme increases. I have high risk ET, CALR-1 and resistant to Hydrea. Pegasys has worked well for past 8 years but now liver can no longer tolerate. Just wondering if anyone else has had this happen and what the change in cytoreductive management strategy was
Mountainbiker12
in
MPN Voice
2 years ago
Husband with PD hospitalised with uti infection
I'm worried sick about my husband, he became very unsteady on his feet, couldn't stand up, couldn't walk his speech changed dramatically to a tiny whisper he just can't make himself heard. This all happened in the space of a couple of weeks his neuro suggested a UTI and he was started on antibiotics
I'm worried sick about my husband, he became very unsteady on his feet, couldn't stand up, couldn't walk his speech changed dramatically to a tiny whisper he just can't make himself heard. This all happened in the space of a couple of weeks his neuro suggested a UTI and he was started on antibiotics
allofatremor
in
Cure Parkinson's
2 years ago
Flying with flareup of GCA
I have planned a trip to England from the United States to England for several Months now. I am supposed to leave the U.S. on Monday 26th September. Now my right temporal vein has started to protrude and aches. Ihave had an ESR test nd CRP test but both are normal.I have been on a maintenance level of
I have planned a trip to England from the United States to England for several Months now. I am supposed to leave the U.S. on Monday 26th September. Now my right temporal vein has started to protrude and aches. Ihave had an ESR test nd CRP test but both are normal.I have been on a maintenance level of
DeliaGray
in
PMRGCAuk
2 years ago
Trab Positivity
I had a trab 4 weeks ago and a complete rework 1 week later due to very low pressure. It hasnt been easy. I went in high risk as my pressure was 50 so I guess I wasnt going to have an easy ride of it. We are now getting somewhere but Im not there yet. Yesterday a member of my family who I rarely see
I had a trab 4 weeks ago and a complete rework 1 week later due to very low pressure. It hasnt been easy. I went in high risk as my pressure was 50 so I guess I wasnt going to have an easy ride of it. We are now getting somewhere but Im not there yet. Yesterday a member of my family who I rarely see
Beaudidily
in
Glaucoma UK
2 years ago
Ganfort - is it preservative free?
My consultant prescribed Ganfort eye drops because they're supposed to be preservative free and I had been having problems (soreness) with other eye drops. However, I note from the accompanying leaflet that they contain the preservative benzalkonium chloride which is a preservative. Just wondering if
My consultant prescribed Ganfort eye drops because they're supposed to be preservative free and I had been having problems (soreness) with other eye drops. However, I note from the accompanying leaflet that they contain the preservative benzalkonium chloride which is a preservative. Just wondering if
tcpace
in
Glaucoma UK
2 years ago
Glaucoma, Migraine, Anxiety & Depression : My Story
Hi. First of all this post is not an advert or a recommendation. It is just my Story and an opportunity for me to share my experiences in the hope that some good will come out of the last two years. My sincere wish is that something in my story will help someone that is reading this. Whether that is
Hi. First of all this post is not an advert or a recommendation. It is just my Story and an opportunity for me to share my experiences in the hope that some good will come out of the last two years. My sincere wish is that something in my story will help someone that is reading this. Whether that is
Royrace
in
Glaucoma UK
2 years ago
Ptosis following Trabeculectomy
I’m on week 8 following my first Trabeculectomy and still have a droopy eyelid (ptosis) - I know this is a very common factor and was expecting it but just wondering (praying) that this will resolve and go back to normal on its own? I think roughly the 3 month point is what I’ve read in terms of full
I’m on week 8 following my first Trabeculectomy and still have a droopy eyelid (ptosis) - I know this is a very common factor and was expecting it but just wondering (praying) that this will resolve and go back to normal on its own? I think roughly the 3 month point is what I’ve read in terms of full
Eyehelp5
in
Glaucoma UK
2 years ago
ET Jak 2+ Pegasys working well but ...
Just thought I'd write an update. Any information I have on MPN has been obtained from this site, which i am very grateful for. I thought that my explaining my experiences might help others. I've been on Pegasys for about 18 months platelets were initially 530 I started on 45mcg weekly. Went up to
Just thought I'd write an update. Any information I have on MPN has been obtained from this site, which i am very grateful for. I thought that my explaining my experiences might help others. I've been on Pegasys for about 18 months platelets were initially 530 I started on 45mcg weekly. Went up to
Izzys-Mum
in
MPN Voice
2 years ago
B12 deficient - just wanted to share
Hi all, I just wanted to share my story as I've had so many thoughts and concerns rattling around my head these past couple of weeks that I don't know if I'm coming or going. I have had occasional heart palpitations since at least late spring, but didn't really think much of it until a month ago when
Hi all, I just wanted to share my story as I've had so many thoughts and concerns rattling around my head these past couple of weeks that I don't know if I'm coming or going. I have had occasional heart palpitations since at least late spring, but didn't really think much of it until a month ago when
TheDukeOfDogs
in
Pernicious Anaemia Society
2 years ago
Biopsy Results
Even though I've commented on other posts, this is my first. In July I coughed up blood, saw the GP who organised a chest x-ray. The GP called me an hour after the x-ray to tell me I had a 6cm shadow on my right lung and it could be cancer. After meeting a respiratory consultant, I had CT scan, PET scan
Even though I've commented on other posts, this is my first. In July I coughed up blood, saw the GP who organised a chest x-ray. The GP called me an hour after the x-ray to tell me I had a 6cm shadow on my right lung and it could be cancer. After meeting a respiratory consultant, I had CT scan, PET scan
Ianhick
in
The Roy Castle Lung Cancer Foundation
2 years ago
any similar experience?
Hello friends, I did a chest X-ray following a bad flu to check for pneumonia which I didn’t have. The x-ray showed a prominent pulmonary artery. My doctor suggested doing an echo which showed a prominent artery as well. I have zero symptoms and I run everyday 7k! I’m scheduled for a CT scan to see what
Hello friends, I did a chest X-ray following a bad flu to check for pneumonia which I didn’t have. The x-ray showed a prominent pulmonary artery. My doctor suggested doing an echo which showed a prominent artery as well. I have zero symptoms and I run everyday 7k! I’m scheduled for a CT scan to see what
Yarw
in
MPN Voice
2 years ago
Cough cough cough - Methotrexate?
I have PMR/GCA/LVV – all currently under control on 5mg Pred and 25mg MTX. However… I’ve had a terrible cough for three weeks now. Thank the Lord for Tena Ladies! I’ve gone through a bottle of Kovonia from the local pharmacist; a course of Doxycycline 100mg antibiotics from GP1 (telephone consult)
I have PMR/GCA/LVV – all currently under control on 5mg Pred and 25mg MTX. However… I’ve had a terrible cough for three weeks now. Thank the Lord for Tena Ladies! I’ve gone through a bottle of Kovonia from the local pharmacist; a course of Doxycycline 100mg antibiotics from GP1 (telephone consult)
JanetRosslyn
in
PMRGCAuk
2 years ago
Why ………..
My fit and healthy 48 year old husband sadly passed away on the 6th November 2022. It all began on the 3rd October 2022 when he coughed up some blood that morning whilst brushing his teeth. We got him an appointment that day to see our local GP who after a quick check of his chest was not overly concerned
My fit and healthy 48 year old husband sadly passed away on the 6th November 2022. It all began on the 3rd October 2022 when he coughed up some blood that morning whilst brushing his teeth. We got him an appointment that day to see our local GP who after a quick check of his chest was not overly concerned
JL76
in
The Roy Castle Lung Cancer Foundation
2 years ago
Finally I have a Sight long distance Reading!!
Hi everyone I, Long story short I recently had cataract surgery in April which was a bodge job that ended up slicing my corneal layer . After 5months into it with still inflammation and pain , constant migraines putting up with constant ghosting and refection . I finally had a positive reading lens
Hi everyone I, Long story short I recently had cataract surgery in April which was a bodge job that ended up slicing my corneal layer . After 5months into it with still inflammation and pain , constant migraines putting up with constant ghosting and refection . I finally had a positive reading lens
KnitSewPurl
in
LUPUS UK
2 years ago
GCA Symptoms
Hello, I’m curious of those that have gone blind in one eye, or completely, from GCA…did you have any symptoms? We’re you misdiagnosed? If you had symptom, were they consistent, and present all the time? How long did you have symptoms before going blind? Was your blindness abrupt, or a slow loss of sight
Hello, I’m curious of those that have gone blind in one eye, or completely, from GCA…did you have any symptoms? We’re you misdiagnosed? If you had symptom, were they consistent, and present all the time? How long did you have symptoms before going blind? Was your blindness abrupt, or a slow loss of sight
Newcomer22
in
PMRGCAuk
2 years ago
Azathioprine hydroxychloroquine steroids and dental extraction
Hello lovely people. I am due to have a dental root extraction and are on the above drugs. I am finding it hard to get to see my rheumatologist so in the absence of a GP who understands lupus does anyone know if there is anything that I need to particularly be aware of or do before or after? I am
Hello lovely people. I am due to have a dental root extraction and are on the above drugs. I am finding it hard to get to see my rheumatologist so in the absence of a GP who understands lupus does anyone know if there is anything that I need to particularly be aware of or do before or after? I am
cakerbaker
in
LUPUS UK
2 years ago
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