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Half Sinemet CR
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Annual neurological check
This morning I made the annual neurological check from my PD diagnosis of May 2018. The therapy was 2 tablet Sinemet 100+25 mg. per day. Compared to the previous control, has been confirmed the substantial stability of the general situation. Pull test ok, cognitive tests ok, engine tests ok, balance
This morning I made the annual neurological check from my PD diagnosis of May 2018. The therapy was 2 tablet Sinemet 100+25 mg. per day. Compared to the previous control, has been confirmed the substantial stability of the general situation. Pull test ok, cognitive tests ok, engine tests ok, balance
Fed1000
in
Cure Parkinson's
5 years ago
Unable to take Sinemet.
I have PD and been on Azilect for a couple of years. I need to begin Sinemet per Neurologist but I never reached therapeutic dose before having severe reactions to the medication. Has anyone else been unable to take sinemet?
I have PD and been on Azilect for a couple of years. I need to begin Sinemet per Neurologist but I never reached therapeutic dose before having severe reactions to the medication. Has anyone else been unable to take sinemet?
Yardmom7
in
Cure Parkinson's
5 years ago
NECK DYSTONIA WOKE ME UP TODAY.HAS ANYONE WITH PD EXPERIENCED THIS?
Hi fellow parkies. I woke up with stiff neck today,unable to turn my neck to the right or left.I have experienced this before,but not as much as today's.I am currently taking sinemet 25/100mg, 1&1/4 tab 3x plus 1 tab before bed time.Has anyone on sinemet experienced this before?If so how did you treat
Hi fellow parkies. I woke up with stiff neck today,unable to turn my neck to the right or left.I have experienced this before,but not as much as today's.I am currently taking sinemet 25/100mg, 1&1/4 tab 3x plus 1 tab before bed time.Has anyone on sinemet experienced this before?If so how did you treat
GBAMIGOD
in
Cure Parkinson's
5 years ago
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Hallucinations
My husband takes Sinemet 25 mg/100mg three times a day.He seems to be having hallucinations every couple of weeks.They seem to occur in the evening .He often thinks I am being unfaithful to him.Does anyone think what he is eating could trigger them ?
My husband takes Sinemet 25 mg/100mg three times a day.He seems to be having hallucinations every couple of weeks.They seem to occur in the evening .He often thinks I am being unfaithful to him.Does anyone think what he is eating could trigger them ?
Hidden
in
Cure Parkinson's
5 years ago
Colonoscopy while on Parkinson's Meds
My Primary Care Doc says I need a colonoscopy in a few weeks, but I have Parkinson's and I'm on a cocktail of drugs: Sinemet 25/100, Baclofen, Amantadine, Clonazepam, ad Sinemet 50/200 Extended Release ER (ER taken at night). I am hearing 2 different stories as to whether or not I can stay on my meds
My Primary Care Doc says I need a colonoscopy in a few weeks, but I have Parkinson's and I'm on a cocktail of drugs: Sinemet 25/100, Baclofen, Amantadine, Clonazepam, ad Sinemet 50/200 Extended Release ER (ER taken at night). I am hearing 2 different stories as to whether or not I can stay on my meds
willason
in
Cure Parkinson's
5 years ago
Thiamine B1 « Insufficient dose @ 0.25g » RoyProp
Thanks RoyProp for your timely feedback ! Please note: - aesilly/Art reported a wide 60-to-1 range in dosage, going as low as 0.10g [up to 6g on the high end] - On 3.13.19, 6 wks ago, I started the protocol at 0.50g; - On 3.29.19, 16 days later, I stopped momentarily after full-body shakes interrupted
Thanks RoyProp for your timely feedback ! Please note: - aesilly/Art reported a wide 60-to-1 range in dosage, going as low as 0.10g [up to 6g on the high end] - On 3.13.19, 6 wks ago, I started the protocol at 0.50g; - On 3.29.19, 16 days later, I stopped momentarily after full-body shakes interrupted
Pa-zzi69
in
Cure Parkinson's
5 years ago
How are people dealing with symptoms in the evening/getting to sleep?
I'm recently diagnosed, looking to avoid using sleep meds but my left hand, lower left leg and my left foot get really electrified and it makes it really hard to get to sleep. I take my last dose of Sinemet around 8pm but it typically doesn't touch these evening symptoms. I was prescribed Remeron,
I'm recently diagnosed, looking to avoid using sleep meds but my left hand, lower left leg and my left foot get really electrified and it makes it really hard to get to sleep. I take my last dose of Sinemet around 8pm but it typically doesn't touch these evening symptoms. I was prescribed Remeron,
Jockboy17
in
Cure Parkinson's
5 years ago
Shortness of breath
Shortness of breath I appreciated the replies and the consensus is about breathing deeply, Especially exhaling. Louise Hayes says Parkinson’s is about not letting go so to learn to fully exhale is good medicine. As well as meditating. I am lucky in that I don’t experience on and off periods, taking
Shortness of breath I appreciated the replies and the consensus is about breathing deeply, Especially exhaling. Louise Hayes says Parkinson’s is about not letting go so to learn to fully exhale is good medicine. As well as meditating. I am lucky in that I don’t experience on and off periods, taking
Wolfepower22
in
Cure Parkinson's
5 years ago
Sinemet Dosage
My husband who has had PD for 6years, is on Sinemet 25/100, 2 pills, 3 times a day. Has anyone taken 50/200 , one pill verses the two 25/100 and is there a difference/benefit re symptoms?
My husband who has had PD for 6years, is on Sinemet 25/100, 2 pills, 3 times a day. Has anyone taken 50/200 , one pill verses the two 25/100 and is there a difference/benefit re symptoms?
Hidden
in
Cure Parkinson's
5 years ago
why are my pupils dilated in the evening and why do I get olfactory hallucinations?
I was started on 1 tab of sinemet 3x's per day, needed more it seemed, my doc increased to 2 tabs 3x's per day of the 25/100. still had alot of off time. heard about taking 1 tab 6x's per day and that helped with coverage but caused the dilation and hallucinations or at least i think it did because
I was started on 1 tab of sinemet 3x's per day, needed more it seemed, my doc increased to 2 tabs 3x's per day of the 25/100. still had alot of off time. heard about taking 1 tab 6x's per day and that helped with coverage but caused the dilation and hallucinations or at least i think it did because
Jockboy17
in
Cure Parkinson's
5 years ago
10 months since starting on a Keto Diet and still on Zero Medication - progress report :-)
Update17.04.2019 So, currently I’m somewhere between Keto Diet LCHF and Full Carnivore with Intermittent Fasting. Delighted to say that my diarrhoea gradually cleared up and was possibly caused by a bug rather than carnivory. I’ve cut back on my coffee intake, take a (very) cold shower when I get up
Update17.04.2019 So, currently I’m somewhere between Keto Diet LCHF and Full Carnivore with Intermittent Fasting. Delighted to say that my diarrhoea gradually cleared up and was possibly caused by a bug rather than carnivory. I’ve cut back on my coffee intake, take a (very) cold shower when I get up
2bats
in
Cure Parkinson's
5 years ago
L Dopa, the drug which makes Parkinson's worse?
What do you think? From my negative experience of Sinemet, I surmise that it brings some initial improvement in movement issues along with some devastating side effects. It wears off, so more is taken, and after a while dyskinesias can occur solely because of the drug. Also 'on - off' can occur due to
What do you think? From my negative experience of Sinemet, I surmise that it brings some initial improvement in movement issues along with some devastating side effects. It wears off, so more is taken, and after a while dyskinesias can occur solely because of the drug. Also 'on - off' can occur due to
Yoginipoet
in
Cure Parkinson's
5 years ago
Focused Ultrasound in Switzerland
I have decided to see if I can have focused ultrasound at Sonimodul clinic in Switzerland. The neurologist there has the most experienced and 2 friends have had excellent results. I’ve collated lots of information for anyone who’s interested. https://sonimodul.ch https://www.frontiersin.org/articles
I have decided to see if I can have focused ultrasound at Sonimodul clinic in Switzerland. The neurologist there has the most experienced and 2 friends have had excellent results. I’ve collated lots of information for anyone who’s interested. https://sonimodul.ch https://www.frontiersin.org/articles
Trixiedee
in
Cure Parkinson's
5 years ago
Just joined this group.....feedback welcome.
I was diagnosed 3 months ago. I'm a 51 y.o. male. My symptoms started a few years ago with the tip of my left finger feeling "pressured." That's the best way I can describe. That was followed by carpal tunnel doctor, then I got a frozen shoulder, then a neuroma in my left foot, then odd sensations in
I was diagnosed 3 months ago. I'm a 51 y.o. male. My symptoms started a few years ago with the tip of my left finger feeling "pressured." That's the best way I can describe. That was followed by carpal tunnel doctor, then I got a frozen shoulder, then a neuroma in my left foot, then odd sensations in
Jockboy17
in
Cure Parkinson's
5 years ago
Preliminary report on B1 HDT trial -
Hi all, A full detailed report will be posted if and when I achieve a month of improvement. I've finally stabilized with sinemet cr 5x 200 and 10mg requip xl after 2 yr of drug adjustments and changes. I'm 10 yr post dx and would describe my symptoms as severe and poorly controlled. I'm rigidity
Hi all, A full detailed report will be posted if and when I achieve a month of improvement. I've finally stabilized with sinemet cr 5x 200 and 10mg requip xl after 2 yr of drug adjustments and changes. I'm 10 yr post dx and would describe my symptoms as severe and poorly controlled. I'm rigidity
Niggs
in
Cure Parkinson's
5 years ago
Rytary vs Sinemet
Has anyone compared these name brands as opposed to comparing generics? I’m going to switch from Rytary to Sinemet. For me , Rytary is bad news. Afraid it would cost me my marriage. Good C/L 50/200 is N/A in the PNW. Gotta go name brand in my opinion.
Has anyone compared these name brands as opposed to comparing generics? I’m going to switch from Rytary to Sinemet. For me , Rytary is bad news. Afraid it would cost me my marriage. Good C/L 50/200 is N/A in the PNW. Gotta go name brand in my opinion.
Mogul1
in
Cure Parkinson's
5 years ago
Gou Teng helps with my tremors .
Hi everyone came across Gou Teng and have been trying for the last 3months. I find it does help with my tremor and energy. Thought I’d post and see what you think, I had never heard of it . Wishing everyone the best 🙂 Can you tell me about the Chinese herb gou teng, which I understand is helpful
Hi everyone came across Gou Teng and have been trying for the last 3months. I find it does help with my tremor and energy. Thought I’d post and see what you think, I had never heard of it . Wishing everyone the best 🙂 Can you tell me about the Chinese herb gou teng, which I understand is helpful
twotutts42
in
Cure Parkinson's
5 years ago
DID YOU SWITCH FROM SINEMET TO RYTARY? HOW EASY?
Hi,please help as usual with your experience.Are you currently on Rytary?Did you switch from sinemet to rytary?Please share your experiences as regards minimum starting dose,positive and negative effects if any.How much are benefitting from rytary before it wears off? Thanks for your contribution.
Hi,please help as usual with your experience.Are you currently on Rytary?Did you switch from sinemet to rytary?Please share your experiences as regards minimum starting dose,positive and negative effects if any.How much are benefitting from rytary before it wears off? Thanks for your contribution.
GBAMIGOD
in
Cure Parkinson's
5 years ago
DOES B1 Thiamin Help In extending the on Period of Sinemet?
Hi friends, for those Pwp using sinemet with B1,who feels B1 has been effective,would you say B1 helps to prolong the effect of sinemet. I am currently getting decreased on period with sinemet and I don't want to increase my dose.Would you advise to try B1 therapy for increased effect of sinemet? Your
Hi friends, for those Pwp using sinemet with B1,who feels B1 has been effective,would you say B1 helps to prolong the effect of sinemet. I am currently getting decreased on period with sinemet and I don't want to increase my dose.Would you advise to try B1 therapy for increased effect of sinemet? Your
GBAMIGOD
in
Cure Parkinson's
5 years ago
Hello, I am new
My Mum is 82 and for 3 or 4 years has been showing signs of dementia and apathy. She began to have backwards falls. In addition her right hand (and since her whole arm) has become spastic and terribly painful. She can't move it at all now and it remains tightly clenched under her bosom. Her left hand
My Mum is 82 and for 3 or 4 years has been showing signs of dementia and apathy. She began to have backwards falls. In addition her right hand (and since her whole arm) has become spastic and terribly painful. She can't move it at all now and it remains tightly clenched under her bosom. Her left hand
TheJackster
in
PSP Association
5 years ago
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