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WANTED: PERHAPS THE MOST IMPORTANT DECISION YOU'LL EVER MAKE ABOUT PARKINSONS.
A WOMAN 30 - 60 YEARS OLD. MUST HAVE A WONDERFUL HEART, (AS IN LOVE) ,A KIND DISPOSITION AND MOST IMPORTANTLY...HAVE PARKINSONS. AS I GROW OLDER IT BECOMES INCREASINGLY MORE EVIDENT TO OTHERS THAT I HAVE PD, AND I GET THEIR "AWWW,'' LOOK. I'M SICK OF PEOPLE'S SYMPATHY. THEY CAN SHOVE IT. EVENTUALLY
A WOMAN 30 - 60 YEARS OLD. MUST HAVE A WONDERFUL HEART, (AS IN LOVE) ,A KIND DISPOSITION AND MOST IMPORTANTLY...HAVE PARKINSONS. AS I GROW OLDER IT BECOMES INCREASINGLY MORE EVIDENT TO OTHERS THAT I HAVE PD, AND I GET THEIR "AWWW,'' LOOK. I'M SICK OF PEOPLE'S SYMPATHY. THEY CAN SHOVE IT. EVENTUALLY
MyownPOV
in
Cure Parkinson's
10 years ago
Does anyone have any imput/comment on this? As everyone says, diagnosis doesn't change anything, but it helps to structure the future.
My husband was diagnosed with Agent Orange induced Parkinson's in 2009. In December 2013, the neuro said that she felt there might be some conmorbitant PSP (involuntary eyes closing/unable to open, legs involuntarily straightening out, stiff as a board). The sinemet, ropinerole, and entacapone still
My husband was diagnosed with Agent Orange induced Parkinson's in 2009. In December 2013, the neuro said that she felt there might be some conmorbitant PSP (involuntary eyes closing/unable to open, legs involuntarily straightening out, stiff as a board). The sinemet, ropinerole, and entacapone still
mommajo
in
PSP Association
10 years ago
Foot and thumb cramp etc.
Hi I met a neurologist about a year ago who put me on Sinemet then wanted to increase the strength. He mentioned dopa reponsive dystonia. I didn't like the idea of the increase and asked for another opinion. (Still waiting and will see the new neurogist in a month). So not taking the sinemet at the moment
Hi I met a neurologist about a year ago who put me on Sinemet then wanted to increase the strength. He mentioned dopa reponsive dystonia. I didn't like the idea of the increase and asked for another opinion. (Still waiting and will see the new neurogist in a month). So not taking the sinemet at the moment
spuddy
in
Cure Parkinson's
10 years ago
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CBD Diagnosis
Hi everyone , Just wanted to introduce myself to you all. I was diagnosed with Parkinson Plus Syndrome in July 2013 .My consultant said it was either MSA PSP or CBD but in his letter to my Gp it said Corticobasal Degeneration . In further correspondence Parkinsons Plus syndrome is used rather than CBD
Hi everyone , Just wanted to introduce myself to you all. I was diagnosed with Parkinson Plus Syndrome in July 2013 .My consultant said it was either MSA PSP or CBD but in his letter to my Gp it said Corticobasal Degeneration . In further correspondence Parkinsons Plus syndrome is used rather than CBD
CheekyChops1973
in
PSP Association
10 years ago
I was diagnosed 5 yrs. ago. Had DBS 2 yrs ago. My movement is pretty good, but I have CONSTANT anxiety issues. On sinemet and requip.
Clenching of my left foot is bad, and with the angst I'm never comfortable. Any one else?
Clenching of my left foot is bad, and with the angst I'm never comfortable. Any one else?
fishwife
in
Cure Parkinson's
10 years ago
Stalevo side effects
Hi, I've been put on Stalevo as Sinemet not working all the time but have found it upset my stomach and gave me legs drained of energy when I exercise! Do others suffer similar side effects?
Hi, I've been put on Stalevo as Sinemet not working all the time but have found it upset my stomach and gave me legs drained of energy when I exercise! Do others suffer similar side effects?
Lestur
in
Cure Parkinson's
10 years ago
Has anyone been able to retire on PD disability although you are not quite disabled yet?
I really don't want to wait until I am disabled before I can retire. I'm 55 and been with the Federal Gov't for 22 years. I've been diagnosed with PD for 5 years. My current symptoms include depression, tremor and lack of co-ordination in my left hand, which are resolved with Sinemet. But the Sinemet
I really don't want to wait until I am disabled before I can retire. I'm 55 and been with the Federal Gov't for 22 years. I've been diagnosed with PD for 5 years. My current symptoms include depression, tremor and lack of co-ordination in my left hand, which are resolved with Sinemet. But the Sinemet
DeanGreen
in
Cure Parkinson's
10 years ago
Comtan / entacapone cost
Comtan (generic:entacapone) really works for me in extending my on-times for carbidopa-levadopa to the point where I am almost symptom free some days. However, I have been paying $300-$400 for it per month because my insurance, and I've been told, most insurance didn't cover it. Well, IT DOES NOW and
Comtan (generic:entacapone) really works for me in extending my on-times for carbidopa-levadopa to the point where I am almost symptom free some days. However, I have been paying $300-$400 for it per month because my insurance, and I've been told, most insurance didn't cover it. Well, IT DOES NOW and
MichaelOM
in
Cure Parkinson's
10 years ago
Happy St. Pat's Day all! (All Irish on my mom's side:). Question for any/all on Sinemet
My PSP guy takes his Sinemet in the morning & afternoon. I realized that is when he is most agitated and out of control. And unfortunately, usually, it is in the car. Has anyone else noticed a correlation between taking it and violent behavior or agitation?
My PSP guy takes his Sinemet in the morning & afternoon. I realized that is when he is most agitated and out of control. And unfortunately, usually, it is in the car. Has anyone else noticed a correlation between taking it and violent behavior or agitation?
goldcap
in
PSP Association
10 years ago
Zoloft.
My neuro wants me to start a small dose of zoloft to go with my sinemet. Any experiences out there you can share with me. I am open to positive experiences along with the negative. Thanks.
My neuro wants me to start a small dose of zoloft to go with my sinemet. Any experiences out there you can share with me. I am open to positive experiences along with the negative. Thanks.
grayland
in
Cure Parkinson's
10 years ago
about repinarole
I am taking 3mg of repinarol at 6.15pm then a slow release sinemet at about 10.0pm about 9.0pm I fall asleep but everynight for the last two weeks I have woke up at roughly the same time around 2.0am in the morning taken another sinemet (approved by my neurologist) but when I eventually do get up
I am taking 3mg of repinarol at 6.15pm then a slow release sinemet at about 10.0pm about 9.0pm I fall asleep but everynight for the last two weeks I have woke up at roughly the same time around 2.0am in the morning taken another sinemet (approved by my neurologist) but when I eventually do get up
connie50
in
Restless Legs Syndrome
10 years ago
COCONUT OIL
1ST My meds/Sup coconut oil , CoQ10 , turmeric , Sinemet I take these for my psp. b-12 , asprin ,flecanide , diltizem for my heart condition, I ran out of coconut oil this past Monday today is Wednesday and now I feel bad worst day so far . Needless to say as soon as I can I will pick up more coconut
1ST My meds/Sup coconut oil , CoQ10 , turmeric , Sinemet I take these for my psp. b-12 , asprin ,flecanide , diltizem for my heart condition, I ran out of coconut oil this past Monday today is Wednesday and now I feel bad worst day so far . Needless to say as soon as I can I will pick up more coconut
edkor
in
PSP Association
10 years ago
Has anyone had the side effect of muscle pain when taking Sinemet?
I asked in a previous post if PD can cause pain. But final realized it was Sinemet causing it.
I asked in a previous post if PD can cause pain. But final realized it was Sinemet causing it.
ppanther
in
Cure Parkinson's
10 years ago
So I am new to this forum..I am 59 and was diagnosed in 2011 with PD. I am now on disability from a 30+ years as an oncology RN.
I take Sinemet 100/25 2tabs q4 hrs which makes me nauseous and sleepy. I have tried holding a dose if I'm at home then I have difficulty with my balance and have blurred vision. My neurologist is really no help at all spend 5 min with him to hear you really look great come back in 9 months. I believe
I take Sinemet 100/25 2tabs q4 hrs which makes me nauseous and sleepy. I have tried holding a dose if I'm at home then I have difficulty with my balance and have blurred vision. My neurologist is really no help at all spend 5 min with him to hear you really look great come back in 9 months. I believe
Annie11
in
Cure Parkinson's
10 years ago
MY TRIP TO THE NERO.
My neck has been a real pain. So he says What I need is a couple of shots of Botox in my neck. After getting home my neck is better but my dizziness is now worse than before. What I would like to know is anyone have a story to tell bout what happened to them? Also my sinemet was reduced and told to keep
My neck has been a real pain. So he says What I need is a couple of shots of Botox in my neck. After getting home my neck is better but my dizziness is now worse than before. What I would like to know is anyone have a story to tell bout what happened to them? Also my sinemet was reduced and told to keep
edkor
in
PSP Association
10 years ago
better to start with sinemet (cardidopa levodopa) or dopamine agonists? what ones can one function best on?
grapes6
in
Cure Parkinson's
10 years ago
pd & us
my husbands had pd 28yrs dx aged 37yrs.coped well for years.began to get hallucinations 2yrs ago & had to be taken off most of his meds, which has caused him to lose his mobility.Now needs my care full time.hospital will not risk putting him back on meds, they say hallucinations will return,been left
my husbands had pd 28yrs dx aged 37yrs.coped well for years.began to get hallucinations 2yrs ago & had to be taken off most of his meds, which has caused him to lose his mobility.Now needs my care full time.hospital will not risk putting him back on meds, they say hallucinations will return,been left
macelott
in
Cure Parkinson's
11 years ago
I'm not sure whether what I experience is what people refer to as freezing.
I have what I call "go slows" - I am fully aware of what is going on around me and I can hear people talking (usually wondering what to do about me) but I can't really communicate clearly and can't move - like wading through mud. These episodes can last for several hours and are often associated with
I have what I call "go slows" - I am fully aware of what is going on around me and I can hear people talking (usually wondering what to do about me) but I can't really communicate clearly and can't move - like wading through mud. These episodes can last for several hours and are often associated with
Rozzles
in
Cure Parkinson's
11 years ago
SINEMET - I have been taking sinemet for four years now. I've gone from 3 doses a day to six a day now, one about every three hours.
I'm thinking I am need more. I wondered how this compared to other people out there on sinemet. I wonder if I'm taking more too fast or if it sounds like others experinece. My dosage is 25/100 Thanks
I'm thinking I am need more. I wondered how this compared to other people out there on sinemet. I wonder if I'm taking more too fast or if it sounds like others experinece. My dosage is 25/100 Thanks
grayland
in
Cure Parkinson's
11 years ago
Problems with medication
Recently, I noticed my PD symptoms were getting much worse. I was becoming forgetful, doing some really weird things, more shaky in general and in pain. I also noticed I was losing my hair by the handfuls, so I went online and checked the side effects of Sinemet. Yes, hair loss was one of them. So were
Recently, I noticed my PD symptoms were getting much worse. I was becoming forgetful, doing some really weird things, more shaky in general and in pain. I also noticed I was losing my hair by the handfuls, so I went online and checked the side effects of Sinemet. Yes, hair loss was one of them. So were
JackieMJ
in
Cure Parkinson's
11 years ago
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