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Switching from generic Carbidopa/Levodopa to Rytary
*** Update*** I will be starting on Rytary from tomorrow. I will keep everyone updated. Here is the link to the new medication: https://rytary.com/ https://www.accessdata.fda.gov/drugsatfda_docs/label/2015/203312s000lbl.pdf Rytary is actually a combination medication that is composed of short acting
*** Update*** I will be starting on Rytary from tomorrow. I will keep everyone updated. Here is the link to the new medication: https://rytary.com/ https://www.accessdata.fda.gov/drugsatfda_docs/label/2015/203312s000lbl.pdf Rytary is actually a combination medication that is composed of short acting
Hidden
in
Cure Parkinson's
5 years ago
dosage of B1 powder
I have been impressed with the positive postings of taking vitamin B1. I want to venture on taking Thiamine hcl high dosage in POWDER form but don't know where I can find instructions on how to take it except from this forum. Has anyone out there has any positive experience and suggestions? I'm 83
I have been impressed with the positive postings of taking vitamin B1. I want to venture on taking Thiamine hcl high dosage in POWDER form but don't know where I can find instructions on how to take it except from this forum. Has anyone out there has any positive experience and suggestions? I'm 83
Tato
in
Cure Parkinson's
5 years ago
Sinemet not available in Italy
Sinemet has not been found in Italy since 15/20 days. Those who use 100+25 must have their family doctor fill out a form to request the drug "Levocomp" abroad, to be precise in Germany. For other dosages it is not possible to purchase abroad for which a therapeutic alternative is necessary. Already in
Sinemet has not been found in Italy since 15/20 days. Those who use 100+25 must have their family doctor fill out a form to request the drug "Levocomp" abroad, to be precise in Germany. For other dosages it is not possible to purchase abroad for which a therapeutic alternative is necessary. Already in
Fed1000
in
Cure Parkinson's
5 years ago
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Looking for relief on shuffling and freezing during off periods. These symptoms are driving me nuts....
Hey guys. I would like to have any recommendations may work to you all having similar disgusting episodes. It hurts my self esteem and erodes my strength. I have been with PD over 12 years now and I am able to deal with most symptoms like tremors, dystonia, stiffness, rigidity, muscle pain, hallucination
Hey guys. I would like to have any recommendations may work to you all having similar disgusting episodes. It hurts my self esteem and erodes my strength. I have been with PD over 12 years now and I am able to deal with most symptoms like tremors, dystonia, stiffness, rigidity, muscle pain, hallucination
marnegro
in
Cure Parkinson's
5 years ago
Relief from Artane but none with Sinemet
I’m curious if anyone else has had symptom relief while taking Artane after levodopa provided no relief? My neurologist had me on Sinemet, eventually up to 3 tablets 4x a day. During this time I didn’t experience any symptom relief. He recently had me try Artane, and after taking 1/2 tablet 2x a day
I’m curious if anyone else has had symptom relief while taking Artane after levodopa provided no relief? My neurologist had me on Sinemet, eventually up to 3 tablets 4x a day. During this time I didn’t experience any symptom relief. He recently had me try Artane, and after taking 1/2 tablet 2x a day
PixelPaul
in
Cure Parkinson's
5 years ago
Fava beans
Does anyone eat them? And in what form? After reading about fava beans as a natural source of dopamine, I started eating fresh steamed beans in salads almost daily. I do take Sinemet 25-100 3 times daily along with Rasagiline. In PA, USA they are available, seasonally, at Wegman’s as Melissa’s steamed
Does anyone eat them? And in what form? After reading about fava beans as a natural source of dopamine, I started eating fresh steamed beans in salads almost daily. I do take Sinemet 25-100 3 times daily along with Rasagiline. In PA, USA they are available, seasonally, at Wegman’s as Melissa’s steamed
Lionore
in
Cure Parkinson's
5 years ago
Brand name Sinemet versus Generic Sinemet
I am starting to wonder if my on/off extreme motor fluctuations are due to the various manufacturers of generic Sinemet. I am contemplating whether to ask my doctor (movement disorders specialist) to prescribe me the brand name version of Sinemet. Has anyone else experienced a difference in the response
I am starting to wonder if my on/off extreme motor fluctuations are due to the various manufacturers of generic Sinemet. I am contemplating whether to ask my doctor (movement disorders specialist) to prescribe me the brand name version of Sinemet. Has anyone else experienced a difference in the response
Hidden
in
Cure Parkinson's
5 years ago
viral gastroenteritis — often called stomach flu and Sinemet
Just Sharing. Stomach flu can be a relatively simple infection for a healthy person, which I am. But I have PD and I take Sinemet and Selegiline. Here is what happened: I got the effects of the bug and diarrhea started, muscle soreness and fatigue followed quickly thereafter. I had no appetite but
Just Sharing. Stomach flu can be a relatively simple infection for a healthy person, which I am. But I have PD and I take Sinemet and Selegiline. Here is what happened: I got the effects of the bug and diarrhea started, muscle soreness and fatigue followed quickly thereafter. I had no appetite but
hercules957
in
Cure Parkinson's
5 years ago
B1 overdose at 0.5g ?
Dear easilly/Art Your 3.28.19 response is MUCH APPRECIATED because I find it DETAILED and RATIONAL ! My background: 3.13.19 START B1 at 500mg/day 146lbs, age 77, 15 months after early phase diagnosis, now updrs 15/100, still ignoring neurologist prescription for Sinemet, one single step backward
Dear easilly/Art Your 3.28.19 response is MUCH APPRECIATED because I find it DETAILED and RATIONAL ! My background: 3.13.19 START B1 at 500mg/day 146lbs, age 77, 15 months after early phase diagnosis, now updrs 15/100, still ignoring neurologist prescription for Sinemet, one single step backward
Pa-zzi69
in
Cure Parkinson's
5 years ago
Mucuna with 1 sinemet
How much mucuna would equal 1 25/100 and will the sinemet help mucuna cross into the brain? Also I was typing about something I've discovered for myself and Dystonia really bad cramps in feet/ halves. I found out that protein gives me the Dystonia/ cramping no matter how I wait not to interfere
How much mucuna would equal 1 25/100 and will the sinemet help mucuna cross into the brain? Also I was typing about something I've discovered for myself and Dystonia really bad cramps in feet/ halves. I found out that protein gives me the Dystonia/ cramping no matter how I wait not to interfere
akgirlsrock
in
Cure Parkinson's
5 years ago
Dyskinesia getting bad big movements
I've tried mucuna early on, don't know if it helped , Symptoms were not bad. How to slowly switch back to l- ,dopa mucuna prions HOW TO GET IT ACROSS THE NLOOD BRAIN BARRIER. I TOOK GREEN TEA DECAF GOLD 50% EGCG which suposible gets it across blood brain barrier. Anyone take Alpha GPC INCREASES
I've tried mucuna early on, don't know if it helped , Symptoms were not bad. How to slowly switch back to l- ,dopa mucuna prions HOW TO GET IT ACROSS THE NLOOD BRAIN BARRIER. I TOOK GREEN TEA DECAF GOLD 50% EGCG which suposible gets it across blood brain barrier. Anyone take Alpha GPC INCREASES
akgirlsrock
in
Cure Parkinson's
5 years ago
On period for Parkinson's with alternative medicine
Hi I'm here to learn from anybody approaching Parkinson's treatment differently! I hate Western medicine not minding how my neurologist feel about it! I prefer alternative medicine and currently on Zandopa with green tea which gives me 3 hours on time! Recently I started adding sinemet CR to the Mucuna
Hi I'm here to learn from anybody approaching Parkinson's treatment differently! I hate Western medicine not minding how my neurologist feel about it! I prefer alternative medicine and currently on Zandopa with green tea which gives me 3 hours on time! Recently I started adding sinemet CR to the Mucuna
Kayyyyuz
in
Cure Parkinson's
5 years ago
Imbrejia, Anyone?
Maybe I missed this thread. It’s probably already being discussed. However, here goes again. Has anybody here tried an oral fast acting sinemet, the inhalable stuff? I just watched the demonstration of it at the pharmaceutical company’s Inbrejia website. Does it cost $1 million? Any information appreciated
Maybe I missed this thread. It’s probably already being discussed. However, here goes again. Has anybody here tried an oral fast acting sinemet, the inhalable stuff? I just watched the demonstration of it at the pharmaceutical company’s Inbrejia website. Does it cost $1 million? Any information appreciated
bcowart
in
Cure Parkinson's
5 years ago
Sinemet after 20 minutes
I wonder if anyone else experiences this. About 20-30 minutes after I take sinemet my tremors get worse for a few minutes, and then calm down.
I wonder if anyone else experiences this. About 20-30 minutes after I take sinemet my tremors get worse for a few minutes, and then calm down.
DougV
in
Cure Parkinson's
5 years ago
Experience with Rytary
Hi folks. I am exploring the option of switching to Rytary from Sinemet and wanted to see if anyone else has done so and what are your experiences?
Hi folks. I am exploring the option of switching to Rytary from Sinemet and wanted to see if anyone else has done so and what are your experiences?
Hidden
in
Cure Parkinson's
5 years ago
HOW DO YOU DEAL WITH TOO MANY FRIENDS ASKING YOU QUESTIONS ABOUT PARKINSON?DO YOU AVOID THEM?
I was diagnosed with PD 2 years ago,and I am beginning to feel like avoiding some social events and only attend the most important ones.I noticed that during my off periods,I start to worry about what to tell friends outdoor if they ever noticed my symptoms,before the next dose of sinemet kicks in.I
I was diagnosed with PD 2 years ago,and I am beginning to feel like avoiding some social events and only attend the most important ones.I noticed that during my off periods,I start to worry about what to tell friends outdoor if they ever noticed my symptoms,before the next dose of sinemet kicks in.I
GBAMIGOD
in
Cure Parkinson's
5 years ago
CBD oil
Anyone using full spectrum CBD oil for Pd. Especially to calm anxiety and pain. If so what is your dosage and does it interfere with the sinemet
Anyone using full spectrum CBD oil for Pd. Especially to calm anxiety and pain. If so what is your dosage and does it interfere with the sinemet
Williemom
in
Cure Parkinson's
5 years ago
9th year of psp
Hi Folks, I have been reading everyone's posts for quite a while and have never added anything till now. My husband, who turned 77 today and was an active concert cellist and teacher until 2012, began acting strangely in the summer of 2010. He has always had executive functioning issues, but he was
Hi Folks, I have been reading everyone's posts for quite a while and have never added anything till now. My husband, who turned 77 today and was an active concert cellist and teacher until 2012, began acting strangely in the summer of 2010. He has always had executive functioning issues, but he was
AndreEmelianoff
in
PSP Association
5 years ago
Sinemet miserable side effects
Poor sleep. Anxious half waking thoughts while trying to sleep. Overactive bowel. Feel zoned out. I know this is wrong. Started sinemet on 1 Feb. 3 x 12.5 / 50. Increased to double dose 3 March. Back to original dose 13 March because of the side effects. This is no way to carry on. I'm going to have
Poor sleep. Anxious half waking thoughts while trying to sleep. Overactive bowel. Feel zoned out. I know this is wrong. Started sinemet on 1 Feb. 3 x 12.5 / 50. Increased to double dose 3 March. Back to original dose 13 March because of the side effects. This is no way to carry on. I'm going to have
Yoginipoet
in
Cure Parkinson's
5 years ago
High-Dose Thiamine Protocol IM Injections
I am new with the Parkinson's Movement Community. I am seeking advice from Parkinson’s patients who have received High-dose Thiamine injections with Dr. Costantini. I started with Dr. Costantini but unfortunately, are missing his continued guidance, due to his health situation. Profile: 65 years of age
I am new with the Parkinson's Movement Community. I am seeking advice from Parkinson’s patients who have received High-dose Thiamine injections with Dr. Costantini. I started with Dr. Costantini but unfortunately, are missing his continued guidance, due to his health situation. Profile: 65 years of age
TigerShark
in
Cure Parkinson's
5 years ago
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