Haemochromatosis

[Thomas67]

I’ve just been diagnosed with Haemochromatosis. A condition where there is iron overload. I need venesection to remove the iron. Has anyone else experienced this?

[Omniscient1]

I've just been diagnosed with this and I am waiting to see the haemotologist. I assume venesection if it comes to out is like just giving blood?

[Barre01 in reply to Omniscient1]

I have this condition, consultant told me my level is below that needing Venesection. Informed me that folic acid levels low, so need supplement. Advised to drink more water, checking for rare genetic disorder. Cautioned about alcohol - which is modest.

[Omniscient1 in reply to Barre01]

Thanks. I tested positive for a/the genetic condition - gene C282Y. And was pointed at these 2 NHS sites...

nhs.uk/conditions/haemochro...

newcastle-hospitals.nhs.uk/...

[BenZou in reply to Omniscient1]

THX

[BenZou in reply to BenZou]

OK

[Thomas67 in reply to Omniscient1]

Yes venesection is the first line of treatment. Seems very archaic, from the Middle Ages . Hope it will have some effect. 🙏

[Omniscient1 in reply to Thomas67]

Ask them to use top quality trained leeches, don't accept cheap ones

[Thomas67 in reply to Omniscient1]

Only quality ones from M&S will be acceptable 🩸😀

[Thomas67]

Yes I’m due for venesection on Tuesday. I’m very nervous to be honest, even though I work in blood bank. I just can’t believe I’ve inherited this disorder, it would explain my late onset diabetes and finger inflammation. All fits now.