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Symptoms suddenly taking a turn for the worse
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
restlegs1
in
Restless Legs Syndrome
9 months ago
Too many vitamins ?
i was diagnosed 8 years ago with prostate cancer. I chose not to do anything until 4 months ago , when i felt in pain everywhere and went for treatment . I am now on Erleada and degarelix feeling much better and with the regular side effect of hot flashes and tireness. I took for 8 years and still
i was diagnosed 8 years ago with prostate cancer. I chose not to do anything until 4 months ago , when i felt in pain everywhere and went for treatment . I am now on Erleada and degarelix feeling much better and with the regular side effect of hot flashes and tireness. I took for 8 years and still
Raminagrobis
in
Advanced Prostate Cancer
9 months ago
28-day Prescribing
It is now over ten years since the issues with "old formula" Teva levothyroxine which saw the publication of the MHRA/Committee on Human Medicines report which expressly advise avoiding 28-day prescribing. Yet we still see all too many members forced into getting repeats every 28 days with all that
It is now over ten years since the issues with "old formula" Teva levothyroxine which saw the publication of the MHRA/Committee on Human Medicines report which expressly advise avoiding 28-day prescribing. Yet we still see all too many members forced into getting repeats every 28 days with all that
helvella
Thyroid UK
in
Thyroid UK
11 months ago
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I am freaking out right now. Right before I decide to celebrate with friends for my 5 year milestone, the cancer is active again and I feel defeated. I want to cancel the party next week. It’s all very overwhelming. I am ER/PR pos, HER2 neg. I’m in a lot of pain and although I am awaiting a chest
I am freaking out right now. Right before I decide to celebrate with friends for my 5 year milestone, the cancer is active again and I feel defeated. I want to cancel the party next week. It’s all very overwhelming. I am ER/PR pos, HER2 neg. I’m in a lot of pain and although I am awaiting a chest
Casual
in
SHARE Metastatic Breast Cancer
9 months ago
Suppliments that help with chemo?
A friend on their own chemo journey recommended the following - wondering if anyone agrees, or is this the equivalent of snake oil? Thanks for any help you can give. Pao V “FM”® is a dietary supplement composed of Pao pereira extract (Geissospermum vellosii) and "Quassia amara" powder. Ginkgo V® is
A friend on their own chemo journey recommended the following - wondering if anyone agrees, or is this the equivalent of snake oil? Thanks for any help you can give. Pao V “FM”® is a dietary supplement composed of Pao pereira extract (Geissospermum vellosii) and "Quassia amara" powder. Ginkgo V® is
Tinuriel
in
Advanced Prostate Cancer
9 months ago
I got impetigo and I’m due to get my Covid booster
hi all, hope you are all enjoying the nice weather although from indoors. I was going to the gym up to last week and since Tuesday I got impetigo in my face. At first I thought it was a cold sore but I don’t usually have cold sores and this was itchy and had a runny liquid so I went to the pharmacy and
hi all, hope you are all enjoying the nice weather although from indoors. I was going to the gym up to last week and since Tuesday I got impetigo in my face. At first I thought it was a cold sore but I don’t usually have cold sores and this was itchy and had a runny liquid so I went to the pharmacy and
EG74
in
LUPUS UK
1 year ago
GP referred me to Endocrinology
hi I really hope someone can help… I’m diagnosed with Ehlers Danlos syndrome hypermobility type and fibromyalgia. I was diagnosed with bipolar disorder after a single episode of psychosis over a decade ago. pain is an every day thing but the past 18 months I’ve felt on a slippery slope. Usually
hi I really hope someone can help… I’m diagnosed with Ehlers Danlos syndrome hypermobility type and fibromyalgia. I was diagnosed with bipolar disorder after a single episode of psychosis over a decade ago. pain is an every day thing but the past 18 months I’ve felt on a slippery slope. Usually
Kaatse
in
Thyroid UK
7 months ago
Do I risk taking T3 medication?
I had a double thyroidectomy 15 years ago and I have managed quite well on an optimal dose of 112mcg of Mercury Pharma levothyroxine per day. After the second operation I was told that the crucial test results would now be T3 and T4 instead of T4 and TSH . I was advised that I would probably feel well
I had a double thyroidectomy 15 years ago and I have managed quite well on an optimal dose of 112mcg of Mercury Pharma levothyroxine per day. After the second operation I was told that the crucial test results would now be T3 and T4 instead of T4 and TSH . I was advised that I would probably feel well
Scolbyn
in
Thyroid UK
11 months ago
Fibromyalgia help! Please
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
sunflower022
in
Fibromyalgia Action UK
10 months ago
my results today
Hi everyone, From the Thyroid clinic uk My results are as follows, I am confused now as to what is causing my awful symptoms. TSH 2.34 range 0.27 - 4.2 Free T3 3.9 range 3.1 - 6.8 FT4 15.7 range 12 -22 TPA <9 range 0 - 34 Folate serum 37.4 range 8.83 - 60.8 B12 792 range 145 - 769 (HIGH)
Hi everyone, From the Thyroid clinic uk My results are as follows, I am confused now as to what is causing my awful symptoms. TSH 2.34 range 0.27 - 4.2 Free T3 3.9 range 3.1 - 6.8 FT4 15.7 range 12 -22 TPA <9 range 0 - 34 Folate serum 37.4 range 8.83 - 60.8 B12 792 range 145 - 769 (HIGH)
FoxyTed
in
Thyroid UK
8 months ago
Prednisone tapering
I've been tapering off prednisone which initially was 30 mg daily by 1 mg every 3 days on dr's and rheumatologist advice. (Was diagnosed with PMR then changed to fibromyalgia). I was also taking tumeric supplements which i stopped on saturday. As of today I am on 7 mg. My question is: the last 2 days
I've been tapering off prednisone which initially was 30 mg daily by 1 mg every 3 days on dr's and rheumatologist advice. (Was diagnosed with PMR then changed to fibromyalgia). I was also taking tumeric supplements which i stopped on saturday. As of today I am on 7 mg. My question is: the last 2 days
Monkey321
in
PMRGCAuk
10 months ago
Results of test with a history of ME/CFS
First of all I have a history of ME/CFS not hypothyroidism. I feel well and have either recovered from ME/CFS or it is in remission, and wanted to get tests while feeling well. My only symptom is tinnitus. I have no fatigue or neurological complaints otherwise at present although i have had lots of fatigue
First of all I have a history of ME/CFS not hypothyroidism. I feel well and have either recovered from ME/CFS or it is in remission, and wanted to get tests while feeling well. My only symptom is tinnitus. I have no fatigue or neurological complaints otherwise at present although i have had lots of fatigue
MEguy
in
Thyroid UK
8 months ago
Iron test results advise please!
Hi, Thanks for the great advice on my last post. Latest Thyroid results: TSH 0.824 (0.27 - 4.2) FT3 4.2 (3.1 - 6.8) FT4 15.2 (12 -22) TPA antibodies 13.1 (0 -34) Thyroglobulin antibodies 285 (0 -115) HIGH Since my last post I have seen a private thyroid GP and have been prescribed T3 I took
Hi, Thanks for the great advice on my last post. Latest Thyroid results: TSH 0.824 (0.27 - 4.2) FT3 4.2 (3.1 - 6.8) FT4 15.2 (12 -22) TPA antibodies 13.1 (0 -34) Thyroglobulin antibodies 285 (0 -115) HIGH Since my last post I have seen a private thyroid GP and have been prescribed T3 I took
Bluecat77
in
Thyroid UK
8 months ago
CBD Capsules
Can I take this while on the Pred My anxiety is through the roof and this used to help Also are we allowed Tumeric capsules to help with immflamation?
Can I take this while on the Pred My anxiety is through the roof and this used to help Also are we allowed Tumeric capsules to help with immflamation?
Northernnugget
in
PMRGCAuk
11 months ago
Trialling magnesium
Been looking for an answer to RLS since my twenties. At one stage I thought the cause might be beer but managed to eliminate that as the prime suspect, thank goodness. Tried ginko biloba tablets, thought we were doing well but eventually lost faith in that. Over the years it was only intermittent and
Been looking for an answer to RLS since my twenties. At one stage I thought the cause might be beer but managed to eliminate that as the prime suspect, thank goodness. Tried ginko biloba tablets, thought we were doing well but eventually lost faith in that. Over the years it was only intermittent and
50568789
in
Restless Legs Syndrome
11 months ago
2nd short term Ginkgo trial underway
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
Ray200
in
Tinnitus UK
8 months ago
Teva levothyroxine
Is there anyone that takes the Teva brand of levo finding it difficult to get hold of the 25mcg? I’ve just been given an increase from 100mcg to 125mcg and I can’t find a pharmacy anywhere that stocks the 25. Really don’t want to have to switch brands as I’ve been on this brand only for two years.
Is there anyone that takes the Teva brand of levo finding it difficult to get hold of the 25mcg? I’ve just been given an increase from 100mcg to 125mcg and I can’t find a pharmacy anywhere that stocks the 25. Really don’t want to have to switch brands as I’ve been on this brand only for two years.
BBoopie
in
Thyroid UK
1 year ago
Distribution of medication and supplements throughout the day.
In my efforts to optimise the effect of C/L medication and oral supplements, I would like advice on this, to promote positive drug / supplements interactions if possible and to prevent any negative interactions. For example, I am familiar with the interaction carbidopa <> B6, but what is the best time
In my efforts to optimise the effect of C/L medication and oral supplements, I would like advice on this, to promote positive drug / supplements interactions if possible and to prevent any negative interactions. For example, I am familiar with the interaction carbidopa <> B6, but what is the best time
Esperanto
in
Cure Parkinson's
1 year ago
Arnica cream for jab reactions
Just posting in case it's useful to anyone else...🤞 I've posted previously about a hive style reaction I get after SC injections on my tummy. I've tried allsorts, including strong antihistamines and mild steroid cream, to ease the itch and calm the redness. I've now found that Arnica cream is the
Just posting in case it's useful to anyone else...🤞 I've posted previously about a hive style reaction I get after SC injections on my tummy. I've tried allsorts, including strong antihistamines and mild steroid cream, to ease the itch and calm the redness. I've now found that Arnica cream is the
ClaireWF1346
in
Pernicious Anaemia Society
6 days ago
Buprenorphine Depression Again
Hi All, As I have written before, I live in Brasil where the only access I have to Buprenorphine is in the form of a patch. And it is expensive. So when I was in California recently, I asked my neurologist to write a prescription for Buprenorphine in tablet form. With my insurance it is quite cheap.
Hi All, As I have written before, I live in Brasil where the only access I have to Buprenorphine is in the form of a patch. And it is expensive. So when I was in California recently, I asked my neurologist to write a prescription for Buprenorphine in tablet form. With my insurance it is quite cheap.
RiversW
in
Restless Legs Syndrome
7 days ago
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