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JUNE NEWSLETTER
our June newsletter will be coming out soon. If you are not already a member then sign up to the Pernicious Anaemia Society https://pernicious-anaemia-society.org/member/ so you don't miss out! If you are a member and are not getting your newsletter make sure to check in Spam/Junk or check that we
our June newsletter will be coming out soon. If you are not already a member then sign up to the Pernicious Anaemia Society https://pernicious-anaemia-society.org/member/ so you don't miss out! If you are a member and are not getting your newsletter make sure to check in Spam/Junk or check that we
PAScomms
in
Pernicious Anaemia Society
4 months ago
PSA REACHES 5,125 !!
Diagnosed seven years ago with metastatic prostate cancer (PSA 1,666). Got down to 0.9 with hormone (eligard) shots. PSA increased, even with eligard. Recently completed my fourth of five Pluvicto infusion treatments (last due in one week). Currently, my PSA is at 5,125. Looking for similar
Diagnosed seven years ago with metastatic prostate cancer (PSA 1,666). Got down to 0.9 with hormone (eligard) shots. PSA increased, even with eligard. Recently completed my fourth of five Pluvicto infusion treatments (last due in one week). Currently, my PSA is at 5,125. Looking for similar
fsiefert
in
Advanced Prostate Cancer
7 months ago
Intermittent fasting
Does anyone have experience with intermittent fasting? It is supposed to help with autoimmune diseases.
Does anyone have experience with intermittent fasting? It is supposed to help with autoimmune diseases.
Swizzly
in
PMRGCAuk
4 months ago
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DC Cardioversion
So, had a private consultation with a Cardiologist yesterday to investigate my AF and subsequent shortness of breath. I had previously had 2 separate lung function tests and seen a respiratory consultant twice as well. The net result was that my lungs were normal, and a low key level of emphysema was
So, had a private consultation with a Cardiologist yesterday to investigate my AF and subsequent shortness of breath. I had previously had 2 separate lung function tests and seen a respiratory consultant twice as well. The net result was that my lungs were normal, and a low key level of emphysema was
Dastardly
in
Atrial Fibrillation Support
3 months ago
Liver hemangiona
hi, I’ve just been told I have a small lover hemangiona. My mum passed away in September and her post mortem revealed advanced cancer of the gall bladder, bile ducts and liver lessions. I am told there is nothing to worry about but I have all the same symptoms my mum use to get, jaundiced eyes, swelling
hi, I’ve just been told I have a small lover hemangiona. My mum passed away in September and her post mortem revealed advanced cancer of the gall bladder, bile ducts and liver lessions. I am told there is nothing to worry about but I have all the same symptoms my mum use to get, jaundiced eyes, swelling
helnetball
in
British Liver Trust
7 months ago
Increased thyroid stimulating hormone (TSH) as a possible risk factor for atherosclerosis in subclinical hypothyroidism.
Have to admit, it is quite hard to read and I have not managed the entirety yet! But it does appear to read that even subclinical hypothyroidism might be important in itself - due to the increased TSH. [i]
Increased thyroid stimulating hormone (TSH) as a possible risk factor for atherosclerosis
Have to admit, it is quite hard to read and I have not managed the entirety yet! But it does appear to read that even subclinical hypothyroidism might be important in itself - due to the increased TSH. [i]
Increased thyroid stimulating hormone (TSH) as a possible risk factor for atherosclerosis
helvella
Thyroid UK
in
Thyroid UK
3 months ago
cortisol/underactive thyroid
Out of interest, if your cortisol is high in the morning, would taking your levothyroxine in the morning make you feel even more stressed/twitchy?
Out of interest, if your cortisol is high in the morning, would taking your levothyroxine in the morning make you feel even more stressed/twitchy?
Puddingym
in
Thyroid UK
6 months ago
heart rate drop
Good evening, i had an ablation back in Jan-23 after being diagnosed with PAF in Oct-22. My avg resting bpm was always between mid high 50s-low 60s as I had exercised regular for all my adult life. I learnt its not uncommon to gain an 10-15 extra beats post ablation and my avg resting bpm did jump
Good evening, i had an ablation back in Jan-23 after being diagnosed with PAF in Oct-22. My avg resting bpm was always between mid high 50s-low 60s as I had exercised regular for all my adult life. I learnt its not uncommon to gain an 10-15 extra beats post ablation and my avg resting bpm did jump
Flutterby100
in
Atrial Fibrillation Support
3 months ago
New here saying hello!
Hello. I am a 62 year old male from UK. In March I had chest pain, dizziness, fast heart rate. I was taken to A & E. AF was thought the likely cause. Following an echocardiogram (normal) a 24 hour ECG (not normal - mean HR 118 peaking at 140 and in AF most of the time) and a CT angiogram (still
Hello. I am a 62 year old male from UK. In March I had chest pain, dizziness, fast heart rate. I was taken to A & E. AF was thought the likely cause. Following an echocardiogram (normal) a 24 hour ECG (not normal - mean HR 118 peaking at 140 and in AF most of the time) and a CT angiogram (still
ajcooper4
in
Atrial Fibrillation Support
3 months ago
My Update on Breathing and 02 SATs...
Thank you all that replied to my post - My SATS are not to blame for my Breathlessness - But something is and it's being sorted. I went to see my GP and my 02 SATs are normal for me, They go to 89 and even lower, but not consistently. I normally am 92 at the moment - but as I say can go lower. I
Thank you all that replied to my post - My SATS are not to blame for my Breathlessness - But something is and it's being sorted. I went to see my GP and my 02 SATs are normal for me, They go to 89 and even lower, but not consistently. I normally am 92 at the moment - but as I say can go lower. I
Ern007
in
Lung Conditions Community Forum
3 months ago
Is Low Dose Naltrexone (LDN) ever used in Sjogren's syndrome?
Is Low Dose Naltrexone (LDN) ever used in Sjogren's syndrome? Answered by Linda Elsegood, LDNRT Founder https://youtu.be/NQXRcsKpdOk
Is Low Dose Naltrexone (LDN) ever used in Sjogren's syndrome? Answered by Linda Elsegood, LDNRT Founder https://youtu.be/NQXRcsKpdOk
Shewulf
Administrator
in
LDN Research Trust
4 months ago
New Ablation Date
Hi Thanks to all who replied, supported and advised re my previous rant about my cancelled ablation two weeks ago. My scheduled ablation 3/7/24 was cancelled a week before due to junior doctors strike knock on effects. The cardiology waiting list co-ordinator was very sorry and promised to arrange
Hi Thanks to all who replied, supported and advised re my previous rant about my cancelled ablation two weeks ago. My scheduled ablation 3/7/24 was cancelled a week before due to junior doctors strike knock on effects. The cardiology waiting list co-ordinator was very sorry and promised to arrange
Lefthook
in
Atrial Fibrillation Support
3 months ago
lupus or fibromyalgia
hi has anyone else in a similarly position my GP can’t tell whether I have fibromyalgia or lupus or a combination of the two
hi has anyone else in a similarly position my GP can’t tell whether I have fibromyalgia or lupus or a combination of the two
Pricey110
in
Fibromyalgia Action UK
4 months ago
fibromyalgia or lupus
hi has anyone else been diagnosed with fibromyalgia but you think it’s more likely to be Lupus. I am constantly tired and just don’t have any energy, hate direct sunlight and have constant pain in my joints. How do I get my GP to actually come to a conclusion it’s so frustrating not knowing.
hi has anyone else been diagnosed with fibromyalgia but you think it’s more likely to be Lupus. I am constantly tired and just don’t have any energy, hate direct sunlight and have constant pain in my joints. How do I get my GP to actually come to a conclusion it’s so frustrating not knowing.
Pricey110
in
LUPUS UK
4 months ago
Does fear play a role with pernicious anemia?
Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because
Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because
25092
in
Pernicious Anaemia Society
4 months ago
2 Kardia mobile devices
I have afib & cll... There are two Kardia mobile devices I.e. the best selling $79 KardiaMobile 1-Lead Personal EKG Monitor – Record at Home – Detects AFib & Irregular Arrhythmias ….. And the second best selling $129 KardiaMobile 6-Lead Personal EKG Monitor – Six Views of The Heart – Detects AFib and
I have afib & cll... There are two Kardia mobile devices I.e. the best selling $79 KardiaMobile 1-Lead Personal EKG Monitor – Record at Home – Detects AFib & Irregular Arrhythmias ….. And the second best selling $129 KardiaMobile 6-Lead Personal EKG Monitor – Six Views of The Heart – Detects AFib and
Bobsterguy
in
Atrial Fibrillation Support
3 months ago
concert and heart attack 7 weeks ago
Hello there My father had a heart attack almost 2 months ago and had a stent put in. There was some damage done to his heart but the surgeon is waiting to see if time and medication will heal it. He’s been walking for 15-20 min each day and does cardiac rehab 2 times a week all for the past month.
Hello there My father had a heart attack almost 2 months ago and had a stent put in. There was some damage done to his heart but the surgeon is waiting to see if time and medication will heal it. He’s been walking for 15-20 min each day and does cardiac rehab 2 times a week all for the past month.
Fatherpoolover
in
Sudden Cardiac Arrest & Heart Attack
3 months ago
concert and heart attack 7 weeks ago
Hello there My father had a heart attack almost 2 months ago and had a stent put in. There was some damage done to his heart but the surgeon is waiting to see if time and medication will heal it. He’s been walking for 15-20 min each day and does cardiac rehab 2 times a week all for the past month.
Hello there My father had a heart attack almost 2 months ago and had a stent put in. There was some damage done to his heart but the surgeon is waiting to see if time and medication will heal it. He’s been walking for 15-20 min each day and does cardiac rehab 2 times a week all for the past month.
Fatherpoolover
in
Sudden Cardiac Arrest & Heart Attack
3 months ago
Chemo progress
PSA 139 @ DX1-2024 started Orgovyx and Nubeqa dropped PSA to 62.93. Started Chemo 1st infusion..PSA 23.3 2nd infusion..PSA 11.26 3rd infusion.. PSA 7.45 Just got my labs back for the 3rd infusion. Just feel disappointed as I was hoping for a larger drop and seemed to have stalled out. Does it look
PSA 139 @ DX1-2024 started Orgovyx and Nubeqa dropped PSA to 62.93. Started Chemo 1st infusion..PSA 23.3 2nd infusion..PSA 11.26 3rd infusion.. PSA 7.45 Just got my labs back for the 3rd infusion. Just feel disappointed as I was hoping for a larger drop and seemed to have stalled out. Does it look
APK3
in
Advanced Prostate Cancer
7 months ago
Effects of dietary intervention on human diseases: molecular mechanisms and therapeutic potential
Several neurodegenerative diseases (NDs), such as epilepsy, Alzheimer’s disease (AD), Parkinson’s disease (PD), Huntington’s disease (HD), and amyotrophic lateral sclerosis (ALS), which feature chronic progressive damage to the nervous system, have been proven to be tightly connected with nutrient availability
Several neurodegenerative diseases (NDs), such as epilepsy, Alzheimer’s disease (AD), Parkinson’s disease (PD), Huntington’s disease (HD), and amyotrophic lateral sclerosis (ALS), which feature chronic progressive damage to the nervous system, have been proven to be tightly connected with nutrient availability
Farooqji
in
Cure Parkinson's
7 months ago
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