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My PBC Journey
GI watched enzymes for 5 years 2015-2020. No symptoms except GI sent me to Ohio State in Dec of 2019 to make sure she wasn’t missing anything . Ordered MRI of liver—-best test to slice and dice liver. Found two spots of cancer on top ridge of liver and did a Microwave ablation to kill it. Successful
GI watched enzymes for 5 years 2015-2020. No symptoms except GI sent me to Ohio State in Dec of 2019 to make sure she wasn’t missing anything . Ordered MRI of liver—-best test to slice and dice liver. Found two spots of cancer on top ridge of liver and did a Microwave ablation to kill it. Successful
Miamomma
in
PBC Foundation
3 years ago
Critique My Supplement Stacking? Share Your Protocol?
Update: I can be such an idiot. I have not been diagnosed with PK. I have REM Sleep Behavior Disorder and my neurologist was kind enough to let me know PK is in my future (and/or LBD). My supplement list is intended to keep PK and LBD away (though truth be told my balance is not what it used to be, and
Update: I can be such an idiot. I have not been diagnosed with PK. I have REM Sleep Behavior Disorder and my neurologist was kind enough to let me know PK is in my future (and/or LBD). My supplement list is intended to keep PK and LBD away (though truth be told my balance is not what it used to be, and
Bolt_Upright
in
Cure Parkinson's
3 years ago
Wondering how long the process of endoscopies and banding can last . Any of your knowledge would be great thanks .
Hi all ! I’ve had cirrhosis for 5 years was diagnosed with decompensated liver but stopped drinking alcohol straight away and then have been compensated since . I now have started the journey of portal hypertension and varices . I’m going in next week for my third endoscopy in 3 months , 1st one they
Hi all ! I’ve had cirrhosis for 5 years was diagnosed with decompensated liver but stopped drinking alcohol straight away and then have been compensated since . I now have started the journey of portal hypertension and varices . I’m going in next week for my third endoscopy in 3 months , 1st one they
Lilliebell
in
British Liver Trust
3 years ago
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Liver transplant
Hi my dad is 67 and a diabetic he was diagnosed with liver disease in April of this year and is in the process of scan after scan. He has passed the heart and lung/ fitness tests. The consultant suspects cancer in the liver bile duct but spy glass test broke on the last try so inconclusive. They have
Hi my dad is 67 and a diabetic he was diagnosed with liver disease in April of this year and is in the process of scan after scan. He has passed the heart and lung/ fitness tests. The consultant suspects cancer in the liver bile duct but spy glass test broke on the last try so inconclusive. They have
Audi123
in
British Liver Trust
3 years ago
Liver Biopsy black spots on scans
Hey All. Sorry if this has already been spoken about. We are just very worried. My partners Mum was admitted to hospital for gallstones and whilst there they performed ultrasound which showed dark spots on the liver. They then performed both a ct scan and mri with dye and are still non the wiser so she
Hey All. Sorry if this has already been spoken about. We are just very worried. My partners Mum was admitted to hospital for gallstones and whilst there they performed ultrasound which showed dark spots on the liver. They then performed both a ct scan and mri with dye and are still non the wiser so she
Bekbooo
in
British Liver Trust
3 years ago
Nervous to take urso
Hi everyone, new here and recently diagnosed with PBC. My dr says I’ve probably had it since 2019 but that there’s no sign in my bloodwork of actual damage yet. I was prescribed 1000mg of urso and I’m also seeing a naturopathic dr who gave me some supplements, including milk thistle. Is urso generally
Hi everyone, new here and recently diagnosed with PBC. My dr says I’ve probably had it since 2019 but that there’s no sign in my bloodwork of actual damage yet. I was prescribed 1000mg of urso and I’m also seeing a naturopathic dr who gave me some supplements, including milk thistle. Is urso generally
ginabean
in
PBC Foundation
3 years ago
Air travel, gastroscopy and non alcoholic beverages
My hubby has been diagnosed with cirrhosis. He had ascites which has been drained. He is now at home on a high protein, carb diet and low salt. He has stopped drinking alcohol since he was discharged home. He was an habit drinker and has had no symptoms of withdrawal. When out socialising he drinks
My hubby has been diagnosed with cirrhosis. He had ascites which has been drained. He is now at home on a high protein, carb diet and low salt. He has stopped drinking alcohol since he was discharged home. He was an habit drinker and has had no symptoms of withdrawal. When out socialising he drinks
Sanblass
in
British Liver Trust
3 years ago
Trying to keep the chin up!
Evening! My Husband had his first face to face consultation with the transplant team since he was listed today. Looking back it was very intense, despite the friendly faces of the Team. Came away feeling less certain about what our future will look like than when we went in....the real bummer about Liver
Evening! My Husband had his first face to face consultation with the transplant team since he was listed today. Looking back it was very intense, despite the friendly faces of the Team. Came away feeling less certain about what our future will look like than when we went in....the real bummer about Liver
Ewife
in
British Liver Trust
3 years ago
Help pls re terminology.
I should know the answer but I don't. I haven't heard the terms Compensated and the other De-compensated. I have already posted about the decision not to offer me a transplant but they have sent me to an extended team, the High Intensity Alcohol Cirrhosis Clinic. I'm trying to get my head organised.
I should know the answer but I don't. I haven't heard the terms Compensated and the other De-compensated. I have already posted about the decision not to offer me a transplant but they have sent me to an extended team, the High Intensity Alcohol Cirrhosis Clinic. I'm trying to get my head organised.
Charlie-legs
in
British Liver Trust
3 years ago
Liver questions
This is my first time asking a question here. I am a 44-year-old male I am worried I have something wrong with my liver I have had stomach pain on and off for the past three years .These tests have been performed I’ve had 7 CT scans with dye in the past three years all normal /all bloodwork normal
This is my first time asking a question here. I am a 44-year-old male I am worried I have something wrong with my liver I have had stomach pain on and off for the past three years .These tests have been performed I’ve had 7 CT scans with dye in the past three years all normal /all bloodwork normal
Protint123
in
British Liver Trust
3 years ago
What dosage of calcium supplement is recommended when on prednisolone?
I'm on 7.5mg of prednisolone. At my rheumatologists appointment today I advised him that I wouldn't be taking up his recommendation of Alendronic Acid despite having a very small amount of osteoporosis in my lower lumber region. I advised him that I was taking Caltrate which has 600mg calcium/200 IU
I'm on 7.5mg of prednisolone. At my rheumatologists appointment today I advised him that I wouldn't be taking up his recommendation of Alendronic Acid despite having a very small amount of osteoporosis in my lower lumber region. I advised him that I was taking Caltrate which has 600mg calcium/200 IU
Pr0jection
in
PMRGCAuk
3 years ago
Unknown liver disease - No symptoms
Hello! I’ve been on this trip for 4-5 years. I’m a young man (31), “normal” weight and I didn’t start drinking until I was 24, and not abusing (you know, just some drinks on weekends with my friends). It all started with a very low elevation of liver enzymes at a regular doc visit. He said that they
Hello! I’ve been on this trip for 4-5 years. I’m a young man (31), “normal” weight and I didn’t start drinking until I was 24, and not abusing (you know, just some drinks on weekends with my friends). It all started with a very low elevation of liver enzymes at a regular doc visit. He said that they
Kramkv
in
British Liver Trust
3 years ago
Understanding Portal Hypertension
Please can someone explain to me (in a really simple way), what Portal Hypertension is, what are the symptoms and why would I not be informed I have it (by Liver Consultant) when my Diabetic Consultant knows and, once again, nobody has considered it prudent to inform me. Dr Google does not explain
Please can someone explain to me (in a really simple way), what Portal Hypertension is, what are the symptoms and why would I not be informed I have it (by Liver Consultant) when my Diabetic Consultant knows and, once again, nobody has considered it prudent to inform me. Dr Google does not explain
Splodge60
in
British Liver Trust
3 years ago
Another day another scan
So had two more scans Re:right sided flank pain. Previous ultrasound sound said enlarged liver Fatty liver enlarged right kidney. Today they decided I haven’t got enlarged anything and liver only very mild fatty liver and a very very small umbilical hernia. So all good except bloods Alt 62in Feb/ 41
So had two more scans Re:right sided flank pain. Previous ultrasound sound said enlarged liver Fatty liver enlarged right kidney. Today they decided I haven’t got enlarged anything and liver only very mild fatty liver and a very very small umbilical hernia. So all good except bloods Alt 62in Feb/ 41
Seoe
in
British Liver Trust
3 years ago
Husband diagnosed with Liver Cancer
Hi everyone!!! I haven’t been on for quite awhile. I am in need, once again! My husband was diagnosed with cirrhosis in October 2018. He had a large gastric vessel burst!!! It was one of the scariest moments in our lives!!! He recovered well and we explored options for correcting the large vessel in
Hi everyone!!! I haven’t been on for quite awhile. I am in need, once again! My husband was diagnosed with cirrhosis in October 2018. He had a large gastric vessel burst!!! It was one of the scariest moments in our lives!!! He recovered well and we explored options for correcting the large vessel in
Jujubeeart123
in
British Liver Trust
3 years ago
Just need some honest opinions
34 year old male, drinking since age 18. Pretty good shape, not overweight, pretty active, eating fairly healthy. Started drinking at parties and socially and went 2 + years in the span from 18-24 without drinking at all. Started drinking heavier (usually 4-5 drinks per night) around 2013-2014. Since
34 year old male, drinking since age 18. Pretty good shape, not overweight, pretty active, eating fairly healthy. Started drinking at parties and socially and went 2 + years in the span from 18-24 without drinking at all. Started drinking heavier (usually 4-5 drinks per night) around 2013-2014. Since
mrm8676
in
British Liver Trust
3 years ago
Normal ALP at time of Diagnosis
Hello. I have had PBC for just over 3 years. I have always had a very normal ALP. I've read that one of the hallmarks of PBC is an elevated ALP. I have positive AMA and other elevated liver enzymes, now normal with urso. Can you explain why my ALP is normal? What does that indicate?
Hello. I have had PBC for just over 3 years. I have always had a very normal ALP. I've read that one of the hallmarks of PBC is an elevated ALP. I have positive AMA and other elevated liver enzymes, now normal with urso. Can you explain why my ALP is normal? What does that indicate?
kerrypark
in
PBC Foundation
3 years ago
Milk Thistle and Boldo
I'm a 64 year old, diagnosed in 2019 and started taking Urso 1250mg/day. Enzyme levels dropped some but not enough. Started on Ocaliva Feb. 2021, Wanted to know if Milk Thistle and Boldo combination is ok to take.
I'm a 64 year old, diagnosed in 2019 and started taking Urso 1250mg/day. Enzyme levels dropped some but not enough. Started on Ocaliva Feb. 2021, Wanted to know if Milk Thistle and Boldo combination is ok to take.
Germinal
in
PBC Foundation
3 years ago
Feeling scared.
Had ultrasound last week. Found hyperechogenic area. Dr called and called it a lesion. Now I scheduled an MRI. Scared to death. 2 years ago raised liver enzymes. Unremarkable ultrasound. This year liver enzymes raised slightly. Not anywhere near as high as 2 years ago. Now lesion & worried. Cannot get
Had ultrasound last week. Found hyperechogenic area. Dr called and called it a lesion. Now I scheduled an MRI. Scared to death. 2 years ago raised liver enzymes. Unremarkable ultrasound. This year liver enzymes raised slightly. Not anywhere near as high as 2 years ago. Now lesion & worried. Cannot get
Shoie
in
British Liver Trust
3 years ago
Odema and diuretics
I was diagnosed last September with ARLD and had a severe attack of HE that I almost didn't survive. I'm managing to control this with meds but my partner sees blips of HE now and then in my behaviour. My consultant has stopped my diuretic because it's effecting my liver and I've blown up like a balloon
I was diagnosed last September with ARLD and had a severe attack of HE that I almost didn't survive. I'm managing to control this with meds but my partner sees blips of HE now and then in my behaviour. My consultant has stopped my diuretic because it's effecting my liver and I've blown up like a balloon
Puggypip
in
British Liver Trust
3 years ago
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