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Terrys nails
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
FarahS
in
PBC Foundation
6 months ago
Finally diagnosed after twenty years!
I have finally got a diagnosis of IBS after at least twenty years of endoscopies, colonoscopies, scans, investigations, etc, etc. Strangely I feel much better even though they say it's a lifelong condition with no cure. My problem today is that it's after half past six in the evening, I have had one
I have finally got a diagnosis of IBS after at least twenty years of endoscopies, colonoscopies, scans, investigations, etc, etc. Strangely I feel much better even though they say it's a lifelong condition with no cure. My problem today is that it's after half past six in the evening, I have had one
Merry_Widow
in
IBS Network
7 months ago
Raised Liver Markers - Octasa/ Mesalamine?
I started taking Octasa for Crohns in October 23. Just had blood tests (for another issue) and dr called to say that my liver enzyme markers were raised (ALT 255, AST 99, ALP 239, GT 334.. all substantially above the top end of normal) and they want to do an ultrasound to check my liver. The only difference
I started taking Octasa for Crohns in October 23. Just had blood tests (for another issue) and dr called to say that my liver enzyme markers were raised (ALT 255, AST 99, ALP 239, GT 334.. all substantially above the top end of normal) and they want to do an ultrasound to check my liver. The only difference
VV_1990
in
Crohn's and Colitis Support
7 months ago
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Recently started Acalabrutinib
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Healthgiddy
in
CLL Support
4 months ago
confused about bowels
Hi everyone so was just wondering if anyone had similar symptoms. Iv had 3 children in less then 5 years, after my second born in 2021 i started getting piles every month. after my baby boy was born in May 2023 I also got the piles but probably once every few months , I was on iron tablets while pregnant
Hi everyone so was just wondering if anyone had similar symptoms. Iv had 3 children in less then 5 years, after my second born in 2021 i started getting piles every month. after my baby boy was born in May 2023 I also got the piles but probably once every few months , I was on iron tablets while pregnant
Purplelover3
in
Bowel Disease Support
7 months ago
Buprenorphine and Nausea
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
davchar23
in
Restless Legs Syndrome
4 months ago
Salofalk foam enema - should I feel it?
Thanks in advance if anyone has experience using foam enemas - in particular, Salofalk. I just had colonoscopy and endoscopy 2 days ago after suffering a UC flare up as a result of COVID with intestinal symptoms in November. Was very shocked and disappointed to learn that my ulcerative proctitis has
Thanks in advance if anyone has experience using foam enemas - in particular, Salofalk. I just had colonoscopy and endoscopy 2 days ago after suffering a UC flare up as a result of COVID with intestinal symptoms in November. Was very shocked and disappointed to learn that my ulcerative proctitis has
Bunnygirl1
in
Crohn's and Colitis Support
7 months ago
Sigmoidoscopy
Had a ct scan with contrast dye last year and nothing was found. Was given antibiotics for suspected giardia and everything settled down for 7 months then Christmas came had a few foods that may have caused some issues as I'm lactose intolerant and other foods can cause problems at times too also had
Had a ct scan with contrast dye last year and nothing was found. Was given antibiotics for suspected giardia and everything settled down for 7 months then Christmas came had a few foods that may have caused some issues as I'm lactose intolerant and other foods can cause problems at times too also had
Sooty712
in
Crohn's and Colitis Support
7 months ago
Purpura and b12 deficiency, Query
Does anyone else suffer with purpura on here and have a b12 deficiency or low iron? Im just trying to figure out if theyre linked or not? Thanx
Does anyone else suffer with purpura on here and have a b12 deficiency or low iron? Im just trying to figure out if theyre linked or not? Thanx
jadeite11
in
Pernicious Anaemia Society
7 months ago
Lactose intolerant
I am changing from Armour Thyroid to synthetic T4 and T3, due to cost and that a local Endo has agreed to this on the NHS. However I’m super sensitive to lactose and the hospital pharmacy are dithering about finding lactose free options. Does anyone know which brands are lactose free please?
I am changing from Armour Thyroid to synthetic T4 and T3, due to cost and that a local Endo has agreed to this on the NHS. However I’m super sensitive to lactose and the hospital pharmacy are dithering about finding lactose free options. Does anyone know which brands are lactose free please?
Karen-Eleanor
in
Thyroid UK
7 months ago
BCG - intravesical immunotherapy - Update.
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Ern007
in
Lung Conditions Community Forum
9 months ago
b12 injections making me worse
Hi, My bloods came back as having a serum b12 of 73 so my doctor started me on b12 injections. I have had 3 out of 6 so far, but instead of feeling better my symptoms seem to be getting worse. I can't think straight and missed my 4th b12 injection today because I thought it was at a different time
Hi, My bloods came back as having a serum b12 of 73 so my doctor started me on b12 injections. I have had 3 out of 6 so far, but instead of feeling better my symptoms seem to be getting worse. I can't think straight and missed my 4th b12 injection today because I thought it was at a different time
hc918
in
Pernicious Anaemia Society
7 months ago
worried and anxious
My lung cancer growth is small and operable. I just feel so worried and anxious it’s spread. As well as the operation to remove the growth with lower lung they are going to take lymph node sampling. I wondered if this is usual and would love to hear from anyone who has had this done. I’m planning to
My lung cancer growth is small and operable. I just feel so worried and anxious it’s spread. As well as the operation to remove the growth with lower lung they are going to take lymph node sampling. I wondered if this is usual and would love to hear from anyone who has had this done. I’m planning to
Sally789
in
The Roy Castle Lung Cancer Foundation
9 months ago
Horrible food and mouth taste
I am trying to find out which tablet can spoil taste a food. Dose anyone have this problem on Prednisonal ?
I am trying to find out which tablet can spoil taste a food. Dose anyone have this problem on Prednisonal ?
Doublef
in
PMRGCAuk
7 months ago
🤖 ChatGPT on Cancer-Fighting Exercise💪 vs PCa
ChatGPT, the free AI research tool provided by OpenAI, is surprisingly good at summarizing some topic of interest that one might be interested in. I submitted a long question this evening on "
exercise against metastatic prostate cancer progression
". My goal is understanding exercise in an environment
ChatGPT, the free AI research tool provided by OpenAI, is surprisingly good at summarizing some topic of interest that one might be interested in. I submitted a long question this evening on "
exercise against metastatic prostate cancer progression
". My goal is understanding exercise in an environment
JohnInTheMiddle
in
Advanced Prostate Cancer
9 months ago
Afinitor +ESR1 mutation for the hive mind.
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Hi I am starting Afinitor on Wednesday after a mixed scan a few weeks ago after 6 months on Orserdu. It suddenly dawned on me that Afinitor is combined with estrogen therapy, likely an AI. But doesn't the ESR1 mutation cause AI resistance? In which case does that make Afinitor less effective? I will
Pbsoup
in
SHARE Metastatic Breast Cancer
9 months ago
Familial Polycythemia
Hi,I wondered if anyone could advise on what care we should be getting for familial polycythemia? my 2 children (age 24 & 27) and I were tested at Guys a few years ago for the Jak2 gene, it was negative & we were discharged. Our blood tests always show a red cell count around 5.6, Haemoglobin 160
Hi,I wondered if anyone could advise on what care we should be getting for familial polycythemia? my 2 children (age 24 & 27) and I were tested at Guys a few years ago for the Jak2 gene, it was negative & we were discharged. Our blood tests always show a red cell count around 5.6, Haemoglobin 160
Vicky_b
in
MPN Voice
7 months ago
Post Rheumatology Appointment
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience at Benenden Hospital. I have posted this as a response in my original thread too but thought I'd start a new post to see if people found it useful
Paulx222
in
PMRGCAuk
9 months ago
Dental Issues on Finesteride
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
fast_eddie
in
Fight Prostate Cancer
7 months ago
Vitamin D and Dementia
Vitamin D is a topic that gets a regular airing on this forum. In the context of CLL, here is a good place to review past posts https://healthunlocked.com/cllsupport/posts/149126536/recent-research-report?responses=149129259 (reply by Lankisterguy). Personally, the idea of dying with CLL just doesn't
Vitamin D is a topic that gets a regular airing on this forum. In the context of CLL, here is a good place to review past posts https://healthunlocked.com/cllsupport/posts/149126536/recent-research-report?responses=149129259 (reply by Lankisterguy). Personally, the idea of dying with CLL just doesn't
bennevisplace
in
CLL Support
7 months ago
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