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I’ll health retirement
Hi All I posted on here a couple of months back about I’ll health retirement with the NHS pension I got a letter back today saying I don’t qualify for tier one or two reason being there is still ongoing issues not resolved I was diagnosed with Fibro in 2022 and mainly bedbound most days I was
Hi All I posted on here a couple of months back about I’ll health retirement with the NHS pension I got a letter back today saying I don’t qualify for tier one or two reason being there is still ongoing issues not resolved I was diagnosed with Fibro in 2022 and mainly bedbound most days I was
10x10
in
Fibromyalgia Action UK
2 months ago
Erleada or Xtandi vs Seizure Risk
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
vintage42
in
Advanced Prostate Cancer
6 months ago
Chemotherapy
I had metastatic breast cancer in 2014. I had a breast removed, and my lymph nodes removed. Followed by 6 Fec-T Chemotherapy Sessions and 15 Radiotherapy Sessions. Whilst the chemotherapy is a dreadful treatment to have to endure and can have lasting permanent effects (I have neuropathy in my legs
I had metastatic breast cancer in 2014. I had a breast removed, and my lymph nodes removed. Followed by 6 Fec-T Chemotherapy Sessions and 15 Radiotherapy Sessions. Whilst the chemotherapy is a dreadful treatment to have to endure and can have lasting permanent effects (I have neuropathy in my legs
Petalka32
in
SHARE Metastatic Breast Cancer
6 months ago
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Chocolatemilk44
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
chocolatemilk44
in
My Ovacome
6 months ago
16cm Fibroid
Hi all, I have just had a phone call from my doctor advising I have a large mass in my pelvic, 16cm which looks like a fibroid. I’ve had pain and bloating for the last few months which is why I had the scan. It’s caused me a lot of worry as the doctor said ‘they think it’s a fibroid’ so now I’m googling
Hi all, I have just had a phone call from my doctor advising I have a large mass in my pelvic, 16cm which looks like a fibroid. I’ve had pain and bloating for the last few months which is why I had the scan. It’s caused me a lot of worry as the doctor said ‘they think it’s a fibroid’ so now I’m googling
Dem92
in
Pelvic Pain Support Network
6 months ago
Liquid Biopsy
Has anyone had experience with having a Liquid Biopsy done? It is a blood test that can identify cells in the body which may show cancer, then enabling doctors to target therapies that can help. It’s recently been approved by FDA, so insurance can pay. I just had this done at Stanford Hospital (California
Has anyone had experience with having a Liquid Biopsy done? It is a blood test that can identify cells in the body which may show cancer, then enabling doctors to target therapies that can help. It’s recently been approved by FDA, so insurance can pay. I just had this done at Stanford Hospital (California
RedwoodLady
in
SHARE Metastatic Breast Cancer
7 months ago
CA 27.29 Blood test
My new oncologist wants to add a new tumor marker test to my regular tests for CA15 and CEA. I know these guys all have widely varying ideas on which ones - if any - mean anything. So just looking to see if you all have any experience with this. My Ca15 has always been an accurate indicator and predictor
My new oncologist wants to add a new tumor marker test to my regular tests for CA15 and CEA. I know these guys all have widely varying ideas on which ones - if any - mean anything. So just looking to see if you all have any experience with this. My Ca15 has always been an accurate indicator and predictor
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
7 months ago
Colostomy
I was diagnosed with Ovarian ca IVa involving the omentum and liver tumors in September 2023. Since then, have undergone 6 cycles of chemo (avastin, Carboplatin, taxol). Now, am anticipating for surgery on Feb 27 ( in 3 weeks). My surgery told me there’s a 50/50 chance I will need colostomy ( tumor
I was diagnosed with Ovarian ca IVa involving the omentum and liver tumors in September 2023. Since then, have undergone 6 cycles of chemo (avastin, Carboplatin, taxol). Now, am anticipating for surgery on Feb 27 ( in 3 weeks). My surgery told me there’s a 50/50 chance I will need colostomy ( tumor
DIYdiva
in
SHARE Ovarian Cancer Support
7 months ago
Coping with chemo side effects
Hi all I'm diagnosed stage 4 clear cell ovarian cancer since 15 Dec 23 & currently struggling so much with chemo side effects & wondering how it has been for others.. I had my 1st chemo 2 Jan (carboplatin paclitaxel and bevacizumab) 8 hour infusion. I didn't know how I would react and although I had
Hi all I'm diagnosed stage 4 clear cell ovarian cancer since 15 Dec 23 & currently struggling so much with chemo side effects & wondering how it has been for others.. I had my 1st chemo 2 Jan (carboplatin paclitaxel and bevacizumab) 8 hour infusion. I didn't know how I would react and although I had
Kazzh
in
My Ovacome
7 months ago
hope + action
thought it befitting to share on World Cancer Day. the latest (yearly) PET/CT scan was 29 January. thankFULL it was another NEAD result; the initial dx was Oct 2011, and the mBC dx was July 2015. the aforementioned scan is eight years of mBC NEAD scans. and, after the scan we discussed stopping Ibrance
thought it befitting to share on World Cancer Day. the latest (yearly) PET/CT scan was 29 January. thankFULL it was another NEAD result; the initial dx was Oct 2011, and the mBC dx was July 2015. the aforementioned scan is eight years of mBC NEAD scans. and, after the scan we discussed stopping Ibrance
hurricaneheather
in
SHARE Metastatic Breast Cancer
7 months ago
Blood biopsy
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
sevoia
in
SHARE Metastatic Breast Cancer
7 months ago
Polyps and IUI
At my baseline scan last week a 3mm polyp was found on my lining, it wasn't there on my first round of IUI, which resulted in a BFN, but has appeared this time round. I am now in the difficult position of deciding whether to carry on with round two, due to surge tomorrow or Saturday, or to stop and investigate
At my baseline scan last week a 3mm polyp was found on my lining, it wasn't there on my first round of IUI, which resulted in a BFN, but has appeared this time round. I am now in the difficult position of deciding whether to carry on with round two, due to surge tomorrow or Saturday, or to stop and investigate
Lostinmaze
in
Fertility Network UK
3 months ago
Heartburn
I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.
I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.
Whippetmama
in
Restless Legs Syndrome
3 months ago
Feel good post/Psychological first aid kit
What makes you feel better? Funny videos? Music? Videogames? Quotes? Thank you guys, you're helping me with my so complicated case
What makes you feel better? Funny videos? Music? Videogames? Quotes? Thank you guys, you're helping me with my so complicated case
Against_the_current
in
Anxiety and Depression Support
2 months ago
treatment for rectal bleeding/hemorrhoids?
It’s now May 2024 and I’ve had a total of two colonoscopies and one sigmoidoscopy since 2020 and they have found the following: hypertrophic anal papillae(basically a benign fibrous polyp that many gi doctors regard as a skin tag), internal hemorrhoids and one external friable hemorrhoid, small divericula
It’s now May 2024 and I’ve had a total of two colonoscopies and one sigmoidoscopy since 2020 and they have found the following: hypertrophic anal papillae(basically a benign fibrous polyp that many gi doctors regard as a skin tag), internal hemorrhoids and one external friable hemorrhoid, small divericula
digar
in
Colon Cancer Connected
3 months ago
B1 Thiamine
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including setting an alarm to inject at night if warranted. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral nephropathy returns. Benfotiamin
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
7 months ago
Feeling a greasy taste
I have been feeling greasy taste in my mouth for about a week now, I'm taking Ciprotab. Please can it cause it and what should I do to resolve it
I have been feeling greasy taste in my mouth for about a week now, I'm taking Ciprotab. Please can it cause it and what should I do to resolve it
ToniaC
in
PMRGCAuk
3 months ago
help please seeing the doctors today and haematologist
hello I have has my thyroid tested privately as my tsh levels have always been around 1. these are the results from the test done at 11 am.i had not eaten since about 7 pm the night before. Tsh 1.060 Ft4 12.30 Ft3 4.35 A bit of background information I have low iron but take iron tablets everyday
hello I have has my thyroid tested privately as my tsh levels have always been around 1. these are the results from the test done at 11 am.i had not eaten since about 7 pm the night before. Tsh 1.060 Ft4 12.30 Ft3 4.35 A bit of background information I have low iron but take iron tablets everyday
Bonfire24
in
Thyroid UK
3 months ago
Carbo/Gem
Stage 3 primary peritoneal diagnosed October 2021. Previously: Carbo/taxol/avastin, carbo/caelyx, Niraparib. I have just had treatment 2 of cycle 1 of carbo/gem and I have a very itchy red rash between my neck and just below my breast. I am using e45 and taking anti histamine at present. Has
Stage 3 primary peritoneal diagnosed October 2021. Previously: Carbo/taxol/avastin, carbo/caelyx, Niraparib. I have just had treatment 2 of cycle 1 of carbo/gem and I have a very itchy red rash between my neck and just below my breast. I am using e45 and taking anti histamine at present. Has
NewtonEmma1900
in
My Ovacome
3 months ago
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