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Obeticholic acid
Hi everyone I was diagnosed around 5 years ago. Unfortunately I am not fully responding to first line treatment Urso. The Dr's are suggesting that I should start on Obeticholic Acid. I'm a little apprehensive due to the side effects listed. Is there anyone here who could advise please? Tia š
Hi everyone I was diagnosed around 5 years ago. Unfortunately I am not fully responding to first line treatment Urso. The Dr's are suggesting that I should start on Obeticholic Acid. I'm a little apprehensive due to the side effects listed. Is there anyone here who could advise please? Tia š
Marj6364
in
PBC Foundation
2 years ago
Elevated parathyroid hormone?
Is there any research, data, or personal experience with having parathyroid levels, but not blood calcium levels, become elevated while taking alendronate? I had been on alendronate very successfully (no side effects and a stabilized DEXA) for about 6 months when my TSH to monitor my decade long hypothyroidism
Is there any research, data, or personal experience with having parathyroid levels, but not blood calcium levels, become elevated while taking alendronate? I had been on alendronate very successfully (no side effects and a stabilized DEXA) for about 6 months when my TSH to monitor my decade long hypothyroidism
Loveballet
in
Osteoporosis Support
2 years ago
Sleep Aid
Anyone use childrenās Benadryl or Unisom to help sleep? Or another remedy? My doctor actually suggested the childrenās Benadryl but it was the first time I ever saw him, he is a family med doc and may not have been aware yet that I have controlled afibā¦
Anyone use childrenās Benadryl or Unisom to help sleep? Or another remedy? My doctor actually suggested the childrenās Benadryl but it was the first time I ever saw him, he is a family med doc and may not have been aware yet that I have controlled afibā¦
Jafib
in
Atrial Fibrillation Support
2 years ago
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Fungus used in Chinese medicine improves sleep in rodents (and also impacts glutamine/glutamate)
This isn't an easy read but, if the results can be relied on, looks promising https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8837518/ Abstract Ganoderma resinaceum is a valuable Chinese medicine. This study aimed to investigate whether a G. resinaceum alcohol extract (GRAE) improves sleep, and analyze
This isn't an easy read but, if the results can be relied on, looks promising https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8837518/ Abstract Ganoderma resinaceum is a valuable Chinese medicine. This study aimed to investigate whether a G. resinaceum alcohol extract (GRAE) improves sleep, and analyze
Hidden
in
Restless Legs Syndrome
2 years ago
denosumab injections
Hi Everyone, Iām hoping to get some advice so I can make an informed decision about treatment with denosumab. I am 61 and I had a small hormone-related breast cancer removed at the start of 2020. Subsequently I went on Letrozole which I couldnāt tolerate. They changed me to Anastrozole which Iām ok
Hi Everyone, Iām hoping to get some advice so I can make an informed decision about treatment with denosumab. I am 61 and I had a small hormone-related breast cancer removed at the start of 2020. Subsequently I went on Letrozole which I couldnāt tolerate. They changed me to Anastrozole which Iām ok
Calamintha
in
Bone Health and Osteoporosis UK
2 years ago
Anyone clued up on bone health please?
I recently had a bone scan and was very concerned to learn that there had been severe degenerative changes to both my spine and hips which weren't expected as my scan 3 years ago wasn't bad. They did take me off Alendronic Acid 18 months ago at which time I also went gluten and dairy free (found out
I recently had a bone scan and was very concerned to learn that there had been severe degenerative changes to both my spine and hips which weren't expected as my scan 3 years ago wasn't bad. They did take me off Alendronic Acid 18 months ago at which time I also went gluten and dairy free (found out
Delgor
in
Thyroid UK
2 years ago
Campaign for Changes
Firstly Happy New Year to you all. Just wanted to let you know about the work we are doing to raise awareness. We are launching a new epilepsy first aid campaign this year, and we continue to work around benefits, employment and the cost of living. You can keep up today with our campaigns work on
Firstly Happy New Year to you all. Just wanted to let you know about the work we are doing to raise awareness. We are launching a new epilepsy first aid campaign this year, and we continue to work around benefits, employment and the cost of living. You can keep up today with our campaigns work on
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
2 years ago
Diagnosis Issue
Hi All, I have been having issues with my periods since they began but the last 3 years have gotten much worse. Every period I have seems to be worse than the last. After a lot of back and forth with the GP and having tried the pill, mini pill and coil over the last 6 years, I persuaded them to refer
Hi All, I have been having issues with my periods since they began but the last 3 years have gotten much worse. Every period I have seems to be worse than the last. After a lot of back and forth with the GP and having tried the pill, mini pill and coil over the last 6 years, I persuaded them to refer
RioBeau
in
Endometriosis UK
2 years ago
Dosage of Ursodiol
Looking at my M2 Antibody levels from the last 2 blood panels, it looks like I have PBC. My other levels, GGT and Alk Phos are within normal range. My doctor has prescribed Ursodiol for me to treat the PBC and the dosage seems high. I am to take a 500mg tablet in the morning and a 250mg tablet at
Looking at my M2 Antibody levels from the last 2 blood panels, it looks like I have PBC. My other levels, GGT and Alk Phos are within normal range. My doctor has prescribed Ursodiol for me to treat the PBC and the dosage seems high. I am to take a 500mg tablet in the morning and a 250mg tablet at
Greenfern
in
PBCers Organization
2 years ago
Osteoporosis/alendronic acid
I have had a reasonably uneventful PMR journey so far š¤. Diagnosed April 2020 slow pred reduction from 15mg now reducing 5.5mg/5m. I also take lansoprazole15mg/ vitamin D 800iu as prescribed by my GP since first diagnosis ( she said my diet was high enough in calcium) and following advice on this invaluable
I have had a reasonably uneventful PMR journey so far š¤. Diagnosed April 2020 slow pred reduction from 15mg now reducing 5.5mg/5m. I also take lansoprazole15mg/ vitamin D 800iu as prescribed by my GP since first diagnosis ( she said my diet was high enough in calcium) and following advice on this invaluable
Clarbeston
in
PMRGCAuk
2 years ago
The Human Serum Metabolome of Vitamin B-12 Deficiency and Repletion, and Associations with Neurological Function in Elderly Adults
Just came across this paper from a few years ago. Thought it interesting as, so often, B12 seems to be though of as a one-trick pony - affecting erythropoiesis and nothing else. The occasional use of methylmalonic acid and homocysteine as additional tests. And that's your lot, folks. In my
Just came across this paper from a few years ago. Thought it interesting as, so often, B12 seems to be though of as a one-trick pony - affecting erythropoiesis and nothing else. The occasional use of methylmalonic acid and homocysteine as additional tests. And that's your lot, folks. In my
helvella
in
Pernicious Anaemia Society
2 years ago
Small steps on the journey back to NSR
OK, I'm probably going to sound hopelessly optimistic here, but yesterday evening I met my EP Cardiologist who was giving a talk and update on AF and it cheered me up immensely. We hadn't met, but the technician who fitted the monitor told me to "make myself known". So I did. For the first time since
OK, I'm probably going to sound hopelessly optimistic here, but yesterday evening I met my EP Cardiologist who was giving a talk and update on AF and it cheered me up immensely. We hadn't met, but the technician who fitted the monitor told me to "make myself known". So I did. For the first time since
Rainfern
in
AF Association
1 year ago
My rheumy wants me off of prednisone as soon as possible
First of all, thanks to everyone who replied me, and gave me valuable advice on my previous post. This is an update. Previously, I mentioned that I wasn't happy with my first rheumy appointment as she thinks I donāt need steroids because my inflammation markers are in a normal range and this is not a
First of all, thanks to everyone who replied me, and gave me valuable advice on my previous post. This is an update. Previously, I mentioned that I wasn't happy with my first rheumy appointment as she thinks I donāt need steroids because my inflammation markers are in a normal range and this is not a
Morningdew62
in
PMRGCAuk
2 years ago
B-12 is Low (398), Folate is High, HCY is 55.6, uMMA is 1.7 , vitamin D and C and Magnesium are Low, all B vitamins are low.
Why is the GP not taking my labs seriously, I've been taking methylcobalamin tablets for a year and just began 5-MTHF because of Folate Deficiency found in my DNA, GP declined to do a MMA Blood serum test, I have been allergic to milk and beef since birth, peanuts followed with life threatening allergies
Why is the GP not taking my labs seriously, I've been taking methylcobalamin tablets for a year and just began 5-MTHF because of Folate Deficiency found in my DNA, GP declined to do a MMA Blood serum test, I have been allergic to milk and beef since birth, peanuts followed with life threatening allergies
Hoyle
in
Pernicious Anaemia Society
2 years ago
omega 3 supplement
Good morning everyone. I saw my cardiologist yesterday as Iām having a new knee next week and for my own peace of mind had an echocardiogram which shows my heart is now as it was before AF and high blood pressure were found 3 years ago. She said this showed my blood pressure tablets and healthier lifestyle
Good morning everyone. I saw my cardiologist yesterday as Iām having a new knee next week and for my own peace of mind had an echocardiogram which shows my heart is now as it was before AF and high blood pressure were found 3 years ago. She said this showed my blood pressure tablets and healthier lifestyle
Lakky12
in
AF Association
1 year ago
REMs scan result
Hi everyone, just wanted to share my good news with you all. I broke my back after a high impact fall from my kitchen worktop onto the floor in 2020. I had to fight for a Dexa scan after being advised to start bone meds. I had the scan last March results as follows. Dual Femur total -1.5 and lumbar spine
Hi everyone, just wanted to share my good news with you all. I broke my back after a high impact fall from my kitchen worktop onto the floor in 2020. I had to fight for a Dexa scan after being advised to start bone meds. I had the scan last March results as follows. Dual Femur total -1.5 and lumbar spine
Unluckylors
in
Bone Health and Osteoporosis UK
2 years ago
Brief update on my lower Intestinal Tract Capsule Endoscopy.
Just to let you know that the procedure went fine. Although the camera was a little larger than an Omega 3 high strength capsule, I found that with the right mindset I swallowed it easily. The staff were a little disconcerted about my long term steroid use and the possibility of an adrenal crisis and
Just to let you know that the procedure went fine. Although the camera was a little larger than an Omega 3 high strength capsule, I found that with the right mindset I swallowed it easily. The staff were a little disconcerted about my long term steroid use and the possibility of an adrenal crisis and
SheffieldJane
in
PMRGCAuk
1 year ago
alendronic acid and tooth extraction
morning all I managed to crack a tooth on a tea cake last week š³ and after an emergency visit to the dentist Iām being referred to a hospital for an extraction because of the Alendronic acid ā¹ļø I have been on pred ( 5mgs daily at present ) as well as Alendronic for 2 years I am also taking Lefludamide
morning all I managed to crack a tooth on a tea cake last week š³ and after an emergency visit to the dentist Iām being referred to a hospital for an extraction because of the Alendronic acid ā¹ļø I have been on pred ( 5mgs daily at present ) as well as Alendronic for 2 years I am also taking Lefludamide
Geordieland
in
PMRGCAuk
2 years ago
Vasepa (icosapent ethyl)
I have been prescribed Vasepa (icosapent ethyl) for several years now to lower my triglycerides and it has worked very well . I also know that it is a specific omega-3 fatty acid EPA and now I'm wondering what effect it may also have on my recently diagnosed fatty liver (S3) & (F3)?
I have been prescribed Vasepa (icosapent ethyl) for several years now to lower my triglycerides and it has worked very well . I also know that it is a specific omega-3 fatty acid EPA and now I'm wondering what effect it may also have on my recently diagnosed fatty liver (S3) & (F3)?
Boomer642
in
Living with Fatty Liver and NASH
1 year ago
Recommendation
I need advice under standing how to take my meds and supplements. I take omeprazole, (for gerd) Losartan 12.5 mg.(Blood pressure) Allegra 180mg ((Allergy) Multi Vitamin, B12 1000mg, zinc 50mg, Gentle Iron 25 mg, 1200 mg of Gabapentin, I also take a sleep aid either Tylenol PM, Advil PM, or Trazodone
I need advice under standing how to take my meds and supplements. I take omeprazole, (for gerd) Losartan 12.5 mg.(Blood pressure) Allegra 180mg ((Allergy) Multi Vitamin, B12 1000mg, zinc 50mg, Gentle Iron 25 mg, 1200 mg of Gabapentin, I also take a sleep aid either Tylenol PM, Advil PM, or Trazodone
Courtroad
in
Restless Legs Syndrome
2 years ago
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