RLS morphing

[MumofBella]

Having had RLS for over 60 years I’ve experienced different phases of the curse and I wonder if anyone else has had similar symptoms.

I have kept a pain diary for several years to document what’s happened but also I’ve been trying to find out why my RLS comes and goes - is it to do with air pressure/the weather, is it phases of the moon?

For the past year or so it has developed a cycle of three to four nights on followed by the same time off. How does my body know to time it that way?

It’s also not as bad as it used to be and is also linked to my sacroiliitis - when my sacroiliac joint hurts my RLS is bad. I believe my sacroiliac joint is misaligned.

I’m due to have injections into the joint and hip bursa soon so it will be interesting to see if this wipes out my RLS.

Does this ring a bell with anyone?

[SueJohnson]

Sacroiliitis is inflammation of the joints and inflammation is known to make RLS worse so when the joint acts up there is probably more inflammation making your RLS worse and not controlled by your medicine.

[MumofBella in reply to SueJohnson]

Thank you Sue. I also have fibromyalgia (of course I do!) so it can be rather difficult.

[DicCarlson]

Many of my friends - all of us in our 60s and 70s - really just wait for the pill, injection or joint replacement rather than investigate Physical Therapy as a solution to the many ills of joint and body aging. I am very impressed by the volume of short videos on Facebook and Instagram (reels). They are also available on You tube. Many are incredibly Innovative - using various techniques I've never seen before. They appear to be working for me in assuaging knee issues.

Curious to me I watched some of the 1961 movie West Side Story. I of course googled the stars - and the leading cast members are all still alive today in their 80s and 90s! They are all dancers (read lifetime exercisers).

[MumofBella in reply to DicCarlson]

Yes, it’s true that an active life early on makes a difference. My husband is 80 and had a job that kept him running round most of his working life and he’s so fit now.

[Boldgirl45 in reply to DicCarlson]

could you recommend some of the videos ? Thanks !

[DicCarlson in reply to Boldgirl45]

I would go to You tube and search for: best "body part" exercises. You may want to add "seniors" to avoid body building videos. For hips and knees, exercises that strengthen glutes (your butt) seem to be very important. If you're on Facebook - search for Knees Over Toes Guy, and El Paso Manual Physical Therapy.

[MumofBella in reply to DicCarlson]

Thank you! I'll certainly have a look.

[Boldgirl45 in reply to DicCarlson]

Thanks so much !