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Long survivors with ADT + Xtandi (Enzulatamide)
5 years after RPE and RT my PSA is rising again. I am advised to start ADT + Xtandi. Who are longest still on this combination without getting castration resistant?
5 years after RPE and RT my PSA is rising again. I am advised to start ADT + Xtandi. Who are longest still on this combination without getting castration resistant?
ElemanJ
in
Advanced Prostate Cancer
11 months ago
PSMA PET 2 weeks after EBRT
So my MO scheduled a PSMA PET 2 weeks after the end of my EBRT. I didn't argue and did it. Im seeing her tomorrow and will ask why. Maybe she forgot I did radiation?? Ill ask for another in 3 months. Meanwhile, the report shows the lymph node is now mild uptake SUV 2.5 MAX. It was intensely radiotracer
So my MO scheduled a PSMA PET 2 weeks after the end of my EBRT. I didn't argue and did it. Im seeing her tomorrow and will ask why. Maybe she forgot I did radiation?? Ill ask for another in 3 months. Meanwhile, the report shows the lymph node is now mild uptake SUV 2.5 MAX. It was intensely radiotracer
Hidden
in
Advanced Prostate Cancer
11 months ago
your help needed again.
I started pregabalin in May and the first time i took it at 150mg i started with hallucinations but slept well. I haven’t slept well on it since. I have been checking in on this health site and taking your advice. I Have gradually increased dose to 275 but my sleep has got worse and worse. My partner
I started pregabalin in May and the first time i took it at 150mg i started with hallucinations but slept well. I haven’t slept well on it since. I have been checking in on this health site and taking your advice. I Have gradually increased dose to 275 but my sleep has got worse and worse. My partner
Jukebox55
in
Restless Legs Syndrome
11 months ago
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Anxiety and treatments
Hi, Looking for some advice. I have had anxiety for most of my life but managed it until the last few years . I’ve had some big family issues arose plus perimenopausal in the last two years. Since these things have occurred my anxiety has become heightened and i’m trying to manage it with diet , supplements
Hi, Looking for some advice. I have had anxiety for most of my life but managed it until the last few years . I’ve had some big family issues arose plus perimenopausal in the last two years. Since these things have occurred my anxiety has become heightened and i’m trying to manage it with diet , supplements
WeeB
in
Thyroid UK
11 months ago
Swanbio Gene Therapy Trial
Has anyone researched the swanbio
gene
therapy
trial? Or even began the trial? I was wondering how often you would have to go to Boston etc. I can get around but my balance isn’t great and am getting weaker. Wondering if it would basically halt the progression or possibly make it a little better?
Has anyone researched the swanbio
gene
therapy
trial? Or even began the trial? I was wondering how often you would have to go to Boston etc. I can get around but my balance isn’t great and am getting weaker. Wondering if it would basically halt the progression or possibly make it a little better?
Golfdog3
in
AMN EASIER
2 years ago
intensive group therapy as outpatient
Any care to share if it was a positive or negative experience? I start Friday. It is victual for 3 hours , 3 days a week, up to 18 in the group. Never done it before. Feeling skeptical, frightened, and want to get something out of it.
Any care to share if it was a positive or negative experience? I start Friday. It is victual for 3 hours , 3 days a week, up to 18 in the group. Never done it before. Feeling skeptical, frightened, and want to get something out of it.
Lightswitch
in
Mental Health Support
1 year ago
HRT and autoimmune thyroiditis
Am about to be prescribed transdermal oestrogen and progesterone tablets. I am 56 y with much crabbines and fatigue. Have also just discovered that I may have Hashimotot's (see my post). How will HRT affect things? Do I not go ahead with it? Thanks.
Am about to be prescribed transdermal oestrogen and progesterone tablets. I am 56 y with much crabbines and fatigue. Have also just discovered that I may have Hashimotot's (see my post). How will HRT affect things? Do I not go ahead with it? Thanks.
CobaltBlueDark
in
Thyroid UK
11 months ago
3 Months post ADT (Orgovyx) Still having hot flashes and fatigue-doing blood test in two weeks..for hopefully nadir..
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
JWS13
in
Prostate Cancer Network
10 months ago
After ADT
Dear fellows, see my post "Adjuvant ADT". My question there was what to expect after completion of 24 months of ADT (22 june 2023). Now we are six weeks later and first results are in. PSA remained <0.1, whereas my T. rose from <0.4 to 0.9. Coming thursday I am seeing my oncologist/radiotherapist. Is
Dear fellows, see my post "Adjuvant ADT". My question there was what to expect after completion of 24 months of ADT (22 june 2023). Now we are six weeks later and first results are in. PSA remained <0.1, whereas my T. rose from <0.4 to 0.9. Coming thursday I am seeing my oncologist/radiotherapist. Is
Nomiskneh
in
Prostate Cancer Network
11 months ago
After ADT
Dear fellows, see my post "Adjuvant ADT". My question there was what to expect after completion of 24 months of ADT (22 june 2023). Now we are six weeks later and first results are in. PSA remained <0.1, whereas my T. rose from <0.4 to 0.9. Coming thursday I am seeing my oncologist/radiotherapist. Is
Dear fellows, see my post "Adjuvant ADT". My question there was what to expect after completion of 24 months of ADT (22 june 2023). Now we are six weeks later and first results are in. PSA remained <0.1, whereas my T. rose from <0.4 to 0.9. Coming thursday I am seeing my oncologist/radiotherapist. Is
Nomiskneh
in
Prostate Cancer Network
11 months ago
Uric Acid [UA] & PCa Mortality
I once had a gouty foot. It was self-induced - I was having a brief but intense craving for high-purine foods, particularly anchovies. (Perhaps PCa was driving the craving - lol.) At some point I looked at the PCa / Uric Acid [UA] literature (more than I expected), but it was mixed & failed to impress
I once had a gouty foot. It was self-induced - I was having a brief but intense craving for high-purine foods, particularly anchovies. (Perhaps PCa was driving the craving - lol.) At some point I looked at the PCa / Uric Acid [UA] literature (more than I expected), but it was mixed & failed to impress
pca2004
in
Fight Prostate Cancer
11 months ago
Update on my daddy- 8 years stage four
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Lynsi13
in
Advanced Prostate Cancer
11 months ago
Latest test results
Hi, Slow Dragon kindly suggested I submit my latest test results , given that I continue with episodic fatigue. ( also heat/sweats). I’ve had a number of blood tests over the past 6 months all apparently normal but of course only TSH tested in respect of my diagnosis of hypothyroidism, prescribed currently
Hi, Slow Dragon kindly suggested I submit my latest test results , given that I continue with episodic fatigue. ( also heat/sweats). I’ve had a number of blood tests over the past 6 months all apparently normal but of course only TSH tested in respect of my diagnosis of hypothyroidism, prescribed currently
Calceolaria
in
Thyroid UK
11 months ago
IBRT/SBRT Radiation and ADT
I have heard so many horrifying things here about adverse reactions to those who were prescribed ADT in conjunction with or shortly after radiation treatment. Has anyone forgone taking ADT therapy or does that ruin any progress made from radiation? I have read there is no evidence ADT actually improves
I have heard so many horrifying things here about adverse reactions to those who were prescribed ADT in conjunction with or shortly after radiation treatment. Has anyone forgone taking ADT therapy or does that ruin any progress made from radiation? I have read there is no evidence ADT actually improves
805guy
in
Prostate Cancer And Gay Men
11 months ago
Heart-healthy foods.
New study [1]. It's well-known that men with PCa have a higher risk for cardiovascular disease. Even before ADT. Mark Moyad coined the phrase "heart-healthy is prostate healthy" and I think he is correct. The American "food pyramid" is a disaster imo, with grains at the bottom & fats at the
New study [1]. It's well-known that men with PCa have a higher risk for cardiovascular disease. Even before ADT. Mark Moyad coined the phrase "heart-healthy is prostate healthy" and I think he is correct. The American "food pyramid" is a disaster imo, with grains at the bottom & fats at the
pca2004
in
Fight Prostate Cancer
11 months ago
SHBG test through Medichecks?
I'm set with an appointment with a menopause clinic in a couple of weeks for an HRT consult and noticed that their charges for some of the tests were quite a bit higher than Medichecks, and they are running a 20% off sale that ends tonight. I've had my thyroid tests done with them already, so I believe
I'm set with an appointment with a menopause clinic in a couple of weeks for an HRT consult and noticed that their charges for some of the tests were quite a bit higher than Medichecks, and they are running a 20% off sale that ends tonight. I've had my thyroid tests done with them already, so I believe
wavedancers
in
Thyroid UK
11 months ago
Treatment after Zoladex/Prostrap
I’m due to go back to the consultant next week and I’m just wondering what your experiences were a) coming off Zoladex/prostrap and b) what treatment options are next. For context I have been on the injections for 11 months now, and HRT for the past 5 months. I know everyone’s experiences have been different
I’m due to go back to the consultant next week and I’m just wondering what your experiences were a) coming off Zoladex/prostrap and b) what treatment options are next. For context I have been on the injections for 11 months now, and HRT for the past 5 months. I know everyone’s experiences have been different
Hfm89
in
Endometriosis UK
11 months ago
A Gene that affects allele reduction in Jak2 by IFN.
Maybe this sort of thing lends to
gene
therapy
, ie deliberately change or get rid of it before starting IFN. For sure it's not that simple since other risks are unknown, but it comes to mind. This gene had no effect on HR. -I didn't have this one in my NGS panel, but mine was only 54 genes.
Maybe this sort of thing lends to
gene
therapy
, ie deliberately change or get rid of it before starting IFN. For sure it's not that simple since other risks are unknown, but it comes to mind. This gene had no effect on HR. -I didn't have this one in my NGS panel, but mine was only 54 genes.
EPguy
in
MPN Voice
2 years ago
Unkind
I don't seem to have much in the way of symptoms. I took motion classes but they said you're fine, come back when you have a problem. I took acupuncture sessions til they said come back when you have a problem. MY problem is the neurologist wants to take my license. I failed a driving test that didn't
I don't seem to have much in the way of symptoms. I took motion classes but they said you're fine, come back when you have a problem. I took acupuncture sessions til they said come back when you have a problem. MY problem is the neurologist wants to take my license. I failed a driving test that didn't
kaypeeoh
in
Cure Parkinson's
1 year ago
Ozempic-Anti Cancer?
I'm 10-15 pounds above ideal weight, not on any form of ADT. Since cancer feeds on sugar, does it make sense to use Ozempic to reduce blood sugar to presumably starve the cancer?
I'm 10-15 pounds above ideal weight, not on any form of ADT. Since cancer feeds on sugar, does it make sense to use Ozempic to reduce blood sugar to presumably starve the cancer?
TEBozo
in
Advanced Prostate Cancer
11 months ago
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