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Weird 6 day Miracale
The weirdest thing one of my peeps . Multiple failed back surgeries spondylitis ,sciatica , severe RLS ,Menenigioma {brain cancer remisssion } She is drenched in sweat Hormone replacement ceased due to cancer RLS 24/7 Horrific Pain score 10 vomits daily from the pain ,can no longer eat lives on
The weirdest thing one of my peeps . Multiple failed back surgeries spondylitis ,sciatica , severe RLS ,Menenigioma {brain cancer remisssion } She is drenched in sweat Hormone replacement ceased due to cancer RLS 24/7 Horrific Pain score 10 vomits daily from the pain ,can no longer eat lives on
Shumbah
in
Restless Legs Syndrome
8 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
8 months ago
Help! Hubby's PSA doubling time one week!
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
cancervictim
in
Advanced Prostate Cancer
8 months ago
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Endo & HRT
Hi Please can you advise regarding someone who has had endometriosis rather badly can safely take any form of HRT? My daughter suffered from severe endo since she was 14 years old. After having many operations she was finally fitted with a Mirena Coil at the age of 40 and eventually this was quite
Hi Please can you advise regarding someone who has had endometriosis rather badly can safely take any form of HRT? My daughter suffered from severe endo since she was 14 years old. After having many operations she was finally fitted with a Mirena Coil at the age of 40 and eventually this was quite
meme2
in
Endometriosis UK
8 months ago
Regret going to group therapy. Overwhelmed, another day wasted and money wasted. Why do all my attempts to get help backflip?
So i had a crisis some days ago and texted and old therapist that i loved. Told her it passed but now I'm wondering whether to go to group therapy. She said i deside but maybe it could be beneficial. At the last moment i went. Late. Saw people who just didn't feel right. Much older than me and with different
So i had a crisis some days ago and texted and old therapist that i loved. Told her it passed but now I'm wondering whether to go to group therapy. She said i deside but maybe it could be beneficial. At the last moment i went. Late. Saw people who just didn't feel right. Much older than me and with different
Against_the_current
in
Anxiety and Depression Support
11 months ago
degeralix vs lupron
Hello, Any thoughts on which ADT treatment is better? My husband received his first injection with Degeralix today to prevent the testosterone flare and next month the doctor is planning on a 3 month Lupron injection. From what I’ve been reading, it seems that the Degeralix may be better than Lupron
Hello, Any thoughts on which ADT treatment is better? My husband received his first injection with Degeralix today to prevent the testosterone flare and next month the doctor is planning on a 3 month Lupron injection. From what I’ve been reading, it seems that the Degeralix may be better than Lupron
Oatmeal2
in
Prostate Cancer Network
8 months ago
SpaceOAR Gel - Extracapsular Extension
Hello Everyone, Just wanted to see if anyone had similar situation and how you dealt with it. I have advanced cancer with Extracapsular Extension. I decided to do a radiation treatments: IMRT and HDR Brachy. My Radiation Oncologist says that since I have
extracapsular extension
, placing spacer
Hello Everyone, Just wanted to see if anyone had similar situation and how you dealt with it. I have advanced cancer with Extracapsular Extension. I decided to do a radiation treatments: IMRT and HDR Brachy. My Radiation Oncologist says that since I have
extracapsular extension
, placing spacer
FightCancer101
in
Advanced Prostate Cancer
6 months ago
ART Intermittent HT, Quality of Life, and Testosterone Recovery
[u]
Summary
[/u]: Dr. Laurence Klotz presented "Intermittent HT, Quality of Life, and Testosterone Recovery" at the 22nd Annual Scottsdale Prostate Cancer Symposium on Friday, March 17, 2017. Main points include; a. Intermittent ADT Therapy. No difference in OS found in 10 Phase 3 trials. Men
[u]
Summary
[/u]: Dr. Laurence Klotz presented "Intermittent HT, Quality of Life, and Testosterone Recovery" at the 22nd Annual Scottsdale Prostate Cancer Symposium on Friday, March 17, 2017. Main points include; a. Intermittent ADT Therapy. No difference in OS found in 10 Phase 3 trials. Men
RMontana
in
Active Surveillance - Prostate Cancer
8 months ago
biologic therapy blood tests to start Adalimumab
Hi after azaoprine caused liver cirrhosis, my consultant said I should start Adalimumab . I have had lots of various bloods taken including TB, HIV. Is this normal? 😳
Hi after azaoprine caused liver cirrhosis, my consultant said I should start Adalimumab . I have had lots of various bloods taken including TB, HIV. Is this normal? 😳
Bucket13
in
Crohn's and Colitis Support
11 months ago
Gleason score 8 and lots of questions...
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Scuttfarkus
in
Prostate Cancer Network
8 months ago
What the heck is wrong with me?
I haven't posted in awhile. I was turned down a second time for disability. My depression is to a point I don't want to talk anybody. The letter said "I maybe sad and forgetful" SAD! SAD! FORGETFUL! FORGETFUL! Everyday I deal with an illness that attacks my will live. I've had 21 rounds of old school
I haven't posted in awhile. I was turned down a second time for disability. My depression is to a point I don't want to talk anybody. The letter said "I maybe sad and forgetful" SAD! SAD! FORGETFUL! FORGETFUL! Everyday I deal with an illness that attacks my will live. I've had 21 rounds of old school
Raggedy-Ann
in
Anxiety and Depression Support
10 months ago
Prostate cancer morphed into NEPC
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
CharlieBC
in
Advanced Prostate Cancer
8 months ago
Trodelvy and dizziness
Hello everyone! I haven’t posted in awhile because I have been trying to make it through my new chemo regime. I am on Trodelvy and seemed to hit the jackpot in experiencing lots of the side affects. I have had one full cycle of it. ( 2 doses at 100 percent strength). Lots of nausea that I don’t
Hello everyone! I haven’t posted in awhile because I have been trying to make it through my new chemo regime. I am on Trodelvy and seemed to hit the jackpot in experiencing lots of the side affects. I have had one full cycle of it. ( 2 doses at 100 percent strength). Lots of nausea that I don’t
Ticket123
in
SHARE Metastatic Breast Cancer
10 months ago
Zoladex delay
Hi All, has anyone postponed one of their monthly Zoladex injections by a week? Any issues in that week? My situation is that I have a consultant appointment to review how I’ve got on with Zoladex (and, on the basis of my response, aid the decision making process on how much to do in surgery) booked
Hi All, has anyone postponed one of their monthly Zoladex injections by a week? Any issues in that week? My situation is that I have a consultant appointment to review how I’ve got on with Zoladex (and, on the basis of my response, aid the decision making process on how much to do in surgery) booked
Saffie123
in
Endometriosis UK
8 months ago
Panic and panic attacks
Hi I’ve had panic attacks this year (four full blown ones) and a few attacks that I managed to avoid by taking deep breaths until they passed I never suffered from these before despite suffering with anxiety all my life for which I take Setraline I’m wondering if it is because I am now taking Thyroid
Hi I’ve had panic attacks this year (four full blown ones) and a few attacks that I managed to avoid by taking deep breaths until they passed I never suffered from these before despite suffering with anxiety all my life for which I take Setraline I’m wondering if it is because I am now taking Thyroid
jaxie28
in
Thyroid UK
8 months ago
Anxiety/peri menopause
hi So in Nov 2022 I had a hysterectomy but kept my ovaries at my 3mth phone call following the doctor said happy to put you on HRT. I was like no it’s ok will see how I go mainly because I felt too young am 44. however as the months have gone by am becoming worse to the point it’s affecting my life
hi So in Nov 2022 I had a hysterectomy but kept my ovaries at my 3mth phone call following the doctor said happy to put you on HRT. I was like no it’s ok will see how I go mainly because I felt too young am 44. however as the months have gone by am becoming worse to the point it’s affecting my life
Bassem1979
in
Menopause and Perimenopause Support
8 months ago
Anyone w Xofigo experience?
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
JDN0415
in
Advanced Prostate Cancer
8 months ago
HDR BT Salvage Therapy
Hello All I just completed the second BT procedure at MSK. Pain level was maybe 3 but mostly gone the next morning with some soreness. My next step I’m told is bloodwork in 3 months which I’m not concerned about. I am concerned about the 6 month MRI which could show if any cancer still remains. When
Hello All I just completed the second BT procedure at MSK. Pain level was maybe 3 but mostly gone the next morning with some soreness. My next step I’m told is bloodwork in 3 months which I’m not concerned about. I am concerned about the 6 month MRI which could show if any cancer still remains. When
Trying-Times
in
Advanced Prostate Cancer
11 months ago
ADT/Exercise and QoL thanks
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
LongevityAT
in
Advanced Prostate Cancer
8 months ago
RT without HT
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with ‘something on the right that I have been informed is possibly
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with ‘something on the right that I have been informed is possibly
Nordman
in
Prostate Cancer Network
6 months ago
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