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Experiences with
Gaucher disease type 1 (GD1)
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Into the 2nd phase?
Hello Had PAF for over 11 years...11 days ago I flipped into AF and haven't really been out of it much. Was taking PIP bisoprolol which slowed it down to an ok level...it used to fix it so I'd return to NSR. Not this time. A few calls to the Arrythmia nurses and they call me into their clinic. Sent
Hello Had PAF for over 11 years...11 days ago I flipped into AF and haven't really been out of it much. Was taking PIP bisoprolol which slowed it down to an ok level...it used to fix it so I'd return to NSR. Not this time. A few calls to the Arrythmia nurses and they call me into their clinic. Sent
Harrison1
in
AF Association
5 months ago
Update on my first EP visit & recomendation
Hi guys. Just wanted to give you an update on my first visit to EP. In short, after she carefully looked at my complete documentation (afib diagnose 2 months ago) she advised me to proceed with ablation. Her main arguments are following -I'm relatively young (40) and ablation has the best outcome in
Hi guys. Just wanted to give you an update on my first visit to EP. In short, after she carefully looked at my complete documentation (afib diagnose 2 months ago) she advised me to proceed with ablation. Her main arguments are following -I'm relatively young (40) and ablation has the best outcome in
NewOne2023
in
Atrial Fibrillation Support
5 months ago
Alpha-1 antitrypsin deficiency
I was diagnosed with alpha-1 antitrypsin deficiency over 2 years ago. I now have emphysema and high white blood cell count. But my doctor says I no longer have alpha-1 antitrypsin deficiency. Is this possible??
I was diagnosed with alpha-1 antitrypsin deficiency over 2 years ago. I now have emphysema and high white blood cell count. But my doctor says I no longer have alpha-1 antitrypsin deficiency. Is this possible??
carriecatlady
in
British Liver Trust
1 year ago
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Next Oxfordshire Lupus Group meeting - 6th December 2pm!
Following a successful first meeting for the Oxfordshire Lupus Group, we are thrilled to announced our next virtual meeting, which will be the 6th December at 2pm. This is a fantastic opportunity to meet others with lupus and associated conditions, friends and family also welcome to join! If you would
Following a successful first meeting for the Oxfordshire Lupus Group, we are thrilled to announced our next virtual meeting, which will be the 6th December at 2pm. This is a fantastic opportunity to meet others with lupus and associated conditions, friends and family also welcome to join! If you would
michaellasmith
Administrator
in
LUPUS UK
6 months ago
I have a partner in crime now
It turns out my husband has just been diagnosed with NAFLD. Not that he was not supporting me but he can now properly join me me on my journey get both my liver back to normal 😊 I have NASH Fibrosis 1 and my husband has NAFLD. Apparently he was told a year ago but completely forgot about it and our
It turns out my husband has just been diagnosed with NAFLD. Not that he was not supporting me but he can now properly join me me on my journey get both my liver back to normal 😊 I have NASH Fibrosis 1 and my husband has NAFLD. Apparently he was told a year ago but completely forgot about it and our
Redgreenblue
in
British Liver Trust
8 months ago
Updates to the EULAR guidelines on managing lupus
The European Alliance of Associations for Rheumatology (EULAR) have updated their guidelines on how doctors should manage lupus. You can find out about how these guidelines are used in the UK, and how they've been updated, on our website here: https://lupusuk.org.uk/updates-to-the-eular-guidelines-on-managing-lupus
The European Alliance of Associations for Rheumatology (EULAR) have updated their guidelines on how doctors should manage lupus. You can find out about how these guidelines are used in the UK, and how they've been updated, on our website here: https://lupusuk.org.uk/updates-to-the-eular-guidelines-on-managing-lupus
Debbie_kinsey
Administrator
in
LUPUS UK
6 months ago
In a sexual relstionship with someone who has Lupus type SLE.
How do i maintain a healthy sexual relationship with someone who has Lupus. At times frustrated how do i treat person. Feel like have to be careful delicate with him. I cannot be in control and neither can he. Treating him very delicately intimacy problems sometimes communication barrier. Anyone advice
How do i maintain a healthy sexual relationship with someone who has Lupus. At times frustrated how do i treat person. Feel like have to be careful delicate with him. I cannot be in control and neither can he. Treating him very delicately intimacy problems sometimes communication barrier. Anyone advice
Tameeka723
in
LUPUS UK
6 months ago
Thoughts and Help
Hello all! I am new here. I know this is a lupus / autoimmune group, but before joining I noticed some helpful posts for other conditions, so I am hoping I can find some advice here. I have been dealing with declining health for a few years now, but have not received any diagnoses. I do have a positive
Hello all! I am new here. I know this is a lupus / autoimmune group, but before joining I noticed some helpful posts for other conditions, so I am hoping I can find some advice here. I have been dealing with declining health for a few years now, but have not received any diagnoses. I do have a positive
Hidden
in
LUPUS UK
6 months ago
Interesting Article (please read)
came across this article today and would like to know your thoughts: i was swayed by flashy advertising in the late 1990s featuring medical stars like Professor Lord Winston, who convinced me that omega-3 fish oil supplements were essential for my brain and my heart. Fast forward to today, and
came across this article today and would like to know your thoughts: i was swayed by flashy advertising in the late 1990s featuring medical stars like Professor Lord Winston, who convinced me that omega-3 fish oil supplements were essential for my brain and my heart. Fast forward to today, and
Padayn01
in
AF Association
5 months ago
transplant and rheumatoid arthritis
partner was listed then delisted as condition improved , now diagnosed with Rheumatoid Arthritis and of course off he goes a googling and finds some random site in the US that says you cannot have a transplant with autoimmune disease such as RA. Of course we hope he never needs a transplant but we need
partner was listed then delisted as condition improved , now diagnosed with Rheumatoid Arthritis and of course off he goes a googling and finds some random site in the US that says you cannot have a transplant with autoimmune disease such as RA. Of course we hope he never needs a transplant but we need
Rshc
in
British Liver Trust
6 months ago
liver pain in side. Terrified
I am a heavy drinker who had a scare earlier this year where I was told I had reversible liver damage. I was sober for a month and bloods improved. I foolishly slipped back to my old ways of very heavy daily drinking and now have pain in my right side. I am seeing the doctor tomorrow and can’t see how
I am a heavy drinker who had a scare earlier this year where I was told I had reversible liver damage. I was sober for a month and bloods improved. I foolishly slipped back to my old ways of very heavy daily drinking and now have pain in my right side. I am seeing the doctor tomorrow and can’t see how
LeWabbit
in
British Liver Trust
8 months ago
Cardioversion
Have been on medication for AF for 30 yrs, with occasional paroxysmes. First on Amiodarone which kept me on NSR . As it was too toxic, my cardiologist insisted change on propanolol 2 yrs ago.But AF became permanent . Now my EP insists on cardioversion if not ablation before putting me on flecoidine
Have been on medication for AF for 30 yrs, with occasional paroxysmes. First on Amiodarone which kept me on NSR . As it was too toxic, my cardiologist insisted change on propanolol 2 yrs ago.But AF became permanent . Now my EP insists on cardioversion if not ablation before putting me on flecoidine
Davidtol
in
Atrial Fibrillation Support
5 months ago
Is APS hereditary?
I'm just wondering because my dad's keeping getting these nose bleeds and it's just not stopping. He's just had an operation to cut the artery and doc said that will be the end of nose bleeds. Well it's not. He's got what looks like clots coming out of his nose. So I've said maybe mention me with APS
I'm just wondering because my dad's keeping getting these nose bleeds and it's just not stopping. He's just had an operation to cut the artery and doc said that will be the end of nose bleeds. Well it's not. He's got what looks like clots coming out of his nose. So I've said maybe mention me with APS
Charts
in
Hughes Syndrome APS Forum
8 months ago
Avocado good for the heart?
Is avocado good for your heart? My doctor has me on blood pressure and cholesterol meds, so trying to eat foods that help reduce cholelsterol and are good for the cardiovascular system. A friend told me that avocados are great. That they reduce the risk of coronary heart disease. But there is a
Is avocado good for your heart? My doctor has me on blood pressure and cholesterol meds, so trying to eat foods that help reduce cholelsterol and are good for the cardiovascular system. A friend told me that avocados are great. That they reduce the risk of coronary heart disease. But there is a
sobreviviente
in
Healthy Eating
5 months ago
RITUXIMAB
HI I HAVE PMR AND MY ANTIBODIES ARE THROUGH THE ROOF. IT HAS CAUSED MY KIDNEY READING TO DROP TO 11% FUNCTION. THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START RITUXIMAB NEXT WEEK. I HAVE HAD
HI I HAVE PMR AND MY ANTIBODIES ARE THROUGH THE ROOF. IT HAS CAUSED MY KIDNEY READING TO DROP TO 11% FUNCTION. THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START RITUXIMAB NEXT WEEK. I HAVE HAD
eyeBRing
in
PMRGCAuk
8 months ago
Enzalutamide (Xtandi): Start at half standard dose to extend efficacy time span?
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
KGU1
in
Advanced Prostate Cancer
8 months ago
Travel Insurance
Hello all, I was diagnosed with Liver Cirrhosis last October with Gastric Varices that where treated with a coil at the time. Can anyone advise as to any travel insurance companies that specialise in Liver disease conditions? Best regards Gary
Hello all, I was diagnosed with Liver Cirrhosis last October with Gastric Varices that where treated with a coil at the time. Can anyone advise as to any travel insurance companies that specialise in Liver disease conditions? Best regards Gary
RoryG2023
in
British Liver Trust
4 months ago
Zoloft and parkinson's
I take Zoloft (Sertraline) 100mgs daily. I have been on this medication for many years before the parkinson's diagnosis. My hand tremors are not stopping after starting 6 weeks ago C/L 25/100 (generic Sinemet) 1 pill, three times a day? My family Doc said that maybe the Zoloft is the reason for the continuity
I take Zoloft (Sertraline) 100mgs daily. I have been on this medication for many years before the parkinson's diagnosis. My hand tremors are not stopping after starting 6 weeks ago C/L 25/100 (generic Sinemet) 1 pill, three times a day? My family Doc said that maybe the Zoloft is the reason for the continuity
Patitou
in
Cure Parkinson's
8 months ago
Unsure what to do?
Yesterday [Friday 22nd Sept] I recieved a call from the Hospital treating my Cirrhosis to inform me they have had a request from my Heptoligy Doctor for a Biopsy due to them not being able to determine the cause of continued elevating blood results, they have had a cancellation for Monday [25th]. This
Yesterday [Friday 22nd Sept] I recieved a call from the Hospital treating my Cirrhosis to inform me they have had a request from my Heptoligy Doctor for a Biopsy due to them not being able to determine the cause of continued elevating blood results, they have had a cancellation for Monday [25th]. This
tipovtong
in
British Liver Trust
8 months ago
help me
Had my first Cardioversion but it didn’t work they ended up putting drugs in the IV. My Grandfather had a stroke at 59. My Dad had triple bypass at 70 and Mom had A-fib!!! I have to get serious with my health!I don’t drink. But l smoke!!! Hardest damn habit l have ever tried to kick!!!! Anyone tried
Had my first Cardioversion but it didn’t work they ended up putting drugs in the IV. My Grandfather had a stroke at 59. My Dad had triple bypass at 70 and Mom had A-fib!!! I have to get serious with my health!I don’t drink. But l smoke!!! Hardest damn habit l have ever tried to kick!!!! Anyone tried
Chrissygirl62
in
AF Association
5 months ago
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