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Gaucher disease type 1 (GD1)
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GCA, Afib, heart failure
I was concerned my Afib following a TIA Aug 23 wasn’t controlled. GP requested bloods for BNP plus CRP/ ESR which hadn’t been done since March. I have had bouts of fatigue which have up to now been linked to adrenals following a Syncathen test. The CRP came back as 15, ESR 14. Rheumatology helpline suggested
I was concerned my Afib following a TIA Aug 23 wasn’t controlled. GP requested bloods for BNP plus CRP/ ESR which hadn’t been done since March. I have had bouts of fatigue which have up to now been linked to adrenals following a Syncathen test. The CRP came back as 15, ESR 14. Rheumatology helpline suggested
Bluey-1
in
PMRGCAuk
14 days ago
Is vitamin K2 ok with edoxaban?
I'm in the UK I'll keep it brief but I take edoxaban and bisoprolol for afib. I'm aware that historically Warfarin has a question mark over vitamin K1 for various reasons Some people seem to monitor using inr testing but my question is that more modern anti coagulants use a different mechanism of action
I'm in the UK I'll keep it brief but I take edoxaban and bisoprolol for afib. I'm aware that historically Warfarin has a question mark over vitamin K1 for various reasons Some people seem to monitor using inr testing but my question is that more modern anti coagulants use a different mechanism of action
Nogginuk
in
Atrial Fibrillation Support
14 days ago
"When to Hold, When to Fold"...or "a Bird in the Hand..."
Since first experiencing Afib 4 years ago, I have been advised off and on to consider ablation. Many people seem to think that ablation cured or reduced their Afib, while others have reported disappointing ineffectiveness and complications. It is difficult to pin down statistical assessments because
Since first experiencing Afib 4 years ago, I have been advised off and on to consider ablation. Many people seem to think that ablation cured or reduced their Afib, while others have reported disappointing ineffectiveness and complications. It is difficult to pin down statistical assessments because
fibnum
in
Atrial Fibrillation Support
14 days ago
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Measuring force of heart beats?
Hi. I'm Amelia. New here. Age 63. Paroxysmal AFib since at least 2015. Dx in 2018. Rx Metoprolol. Question: is there any way of measuring the force of your irregular heartbeats? Just wondering if that could explain the difference between people who don't feel their Afib and people that feel all of it
Hi. I'm Amelia. New here. Age 63. Paroxysmal AFib since at least 2015. Dx in 2018. Rx Metoprolol. Question: is there any way of measuring the force of your irregular heartbeats? Just wondering if that could explain the difference between people who don't feel their Afib and people that feel all of it
Amelia123_usa
in
Atrial Fibrillation Support
15 days ago
Is coping with arrhythmia... "strong" or "weak"?
I posted the following in a different thread, edited a little for this post to make more sense. I felt some might not have read it there and might be interested in replying. I wonder what others' views are on "being strong" when faced with illness, well - arrhythmias in our case (for some daily, maybe
I posted the following in a different thread, edited a little for this post to make more sense. I felt some might not have read it there and might be interested in replying. I wonder what others' views are on "being strong" when faced with illness, well - arrhythmias in our case (for some daily, maybe
Ppiman
in
Atrial Fibrillation Support
16 days ago
Recompensated Liver.
HI folks.First of all Merry Christmas to you all. I was diagnosed with Decompensated Cirrhosis in 2021 and after having all my scheduled MRI Liver/ spleen scans my results have all came back no features of concern.. AFT blood monitoring results normal range. The only symptom I had was jaundice in my
HI folks.First of all Merry Christmas to you all. I was diagnosed with Decompensated Cirrhosis in 2021 and after having all my scheduled MRI Liver/ spleen scans my results have all came back no features of concern.. AFT blood monitoring results normal range. The only symptom I had was jaundice in my
Nip1
in
British Liver Trust
6 months ago
Symptoms after cardioversion
It's nearly two weeks since I had a successful cardioversion after being in permanent AF following an ablation ten weeks ago. I'm on 5m bisprolol and 200mg amiodarone daily. I'm feeling much better for being in NSR and able to do a lot more (I was very symptomatic in AF). I do still get slightly breathless
It's nearly two weeks since I had a successful cardioversion after being in permanent AF following an ablation ten weeks ago. I'm on 5m bisprolol and 200mg amiodarone daily. I'm feeling much better for being in NSR and able to do a lot more (I was very symptomatic in AF). I do still get slightly breathless
JoDogBlue
in
Atrial Fibrillation Support
16 days ago
Result of CT angiogram
Heard back from the rapid access chest pain clinic and they confirmed I have a mild to moderate blockage of my coronary arteries. They requested my doctor prescribe amlopidine and aspirin - so more medication! I'm not sure about the aspirin as I've had a stomach ulcer in the past and also bleed very
Heard back from the rapid access chest pain clinic and they confirmed I have a mild to moderate blockage of my coronary arteries. They requested my doctor prescribe amlopidine and aspirin - so more medication! I'm not sure about the aspirin as I've had a stomach ulcer in the past and also bleed very
Roxdale
in
Lung Conditions Community Forum
17 days ago
drug induced lupus
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Denny39
in
LUPUS UK
3 months ago
He and liver disease
I am so scared about damage to my liver , I’m worried I have Hepatic encephalopathy. I stupidly took to many over the counter tablets over a course of a month ( paracetamol) , I ended up in ANE but blood work come back ok and wasn’t ever treated however I’m worried I left it to long to go to the hospital
I am so scared about damage to my liver , I’m worried I have Hepatic encephalopathy. I stupidly took to many over the counter tablets over a course of a month ( paracetamol) , I ended up in ANE but blood work come back ok and wasn’t ever treated however I’m worried I left it to long to go to the hospital
Chickenlady34
in
British Liver Trust
6 months ago
Lymphedema a year post 28 IMRTs and QoLin for the Weekend
https://youtu.be/IukHtBnxgM8?si=ItGOthQ2Xtjf1pne Pitting edema https://photos.app.goo.gl/ecD8vdbjctXYFfgT8 Maybe it was my Bday 28 miles😜, Nah exercise helps with fluid flow. I have compression calf sleeves that I wear thru the day and off at night. And Yes I'm still hiking 😁 did 6.2 Sat am Got
https://youtu.be/IukHtBnxgM8?si=ItGOthQ2Xtjf1pne Pitting edema https://photos.app.goo.gl/ecD8vdbjctXYFfgT8 Maybe it was my Bday 28 miles😜, Nah exercise helps with fluid flow. I have compression calf sleeves that I wear thru the day and off at night. And Yes I'm still hiking 😁 did 6.2 Sat am Got
dockam
in
Advanced Prostate Cancer
17 days ago
Advice
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myself😂! many thanks, elaine
elainenorman
in
Lung Conditions Community Forum
3 months ago
Sodium Lauryl Sulphate&Iron
Hi, anybody found out if ferrous fumerate can be got without sodium lauryl sulphate. I need the iron badly but suffer because of the SLS.
Hi, anybody found out if ferrous fumerate can be got without sodium lauryl sulphate. I need the iron badly but suffer because of the SLS.
Mattie2022
in
Thyroid UK
18 days ago
Importance of ADT
Are there any good outcomes without using ADT ( hormone therapy)? I delayed it for a couple of years with bad results. My history -- [u]
2021
[/u]: Age 78. PSA was 7.79, Gleason 4+3=7. Small lesion in prostate, with perineural invasion. Had 20 IMRT for prostate. No ADT. [u]
2022
[/u]: PSA
Are there any good outcomes without using ADT ( hormone therapy)? I delayed it for a couple of years with bad results. My history -- [u]
2021
[/u]: Age 78. PSA was 7.79, Gleason 4+3=7. Small lesion in prostate, with perineural invasion. Had 20 IMRT for prostate. No ADT. [u]
2022
[/u]: PSA
vintage42
in
Advanced Prostate Cancer
6 months ago
Radiation side effects
The good news is that my husband sailed thru the Orgovyx with no problems whatsoever, now is in his 6th month and is due to complete that treatment at the end of June. The bad news is that he has had 22 sessions of salvage RT. He is supposed to have a total of 38 however, he has developed severe cramping
The good news is that my husband sailed thru the Orgovyx with no problems whatsoever, now is in his 6th month and is due to complete that treatment at the end of June. The bad news is that he has had 22 sessions of salvage RT. He is supposed to have a total of 38 however, he has developed severe cramping
shihtzu124
in
Advanced Prostate Cancer
19 days ago
Skin ulcers
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
lupus_paradise
in
LUPUS UK
3 months ago
More questions
First question: I had an episode of atrial fibrillation Friday morning. Usually, when I have an episode, I feel normal after it stops. I took a flecainide and it stopped after a couple of hours, but I felt bad the rest of the day - as if I were still in afib, without the pounding heart. I took a couple
First question: I had an episode of atrial fibrillation Friday morning. Usually, when I have an episode, I feel normal after it stops. I took a flecainide and it stopped after a couple of hours, but I felt bad the rest of the day - as if I were still in afib, without the pounding heart. I took a couple
HotGuacamole
in
Atrial Fibrillation Support
20 days ago
Biopsies and confusion
Here is my wifes Biopsys from Nov of 2020 STEATOHEPATITIS (SEE COMMENT), 'There are 9 portal tracts represented. A trichrome stain shows extensive pericellular fibrosis and bridging fibrosis. A PAS with diastase is negative for alpha-1-antitiypsin inclusions. A reticulin stain shows a maintained architecture
Here is my wifes Biopsys from Nov of 2020 STEATOHEPATITIS (SEE COMMENT), 'There are 9 portal tracts represented. A trichrome stain shows extensive pericellular fibrosis and bridging fibrosis. A PAS with diastase is negative for alpha-1-antitiypsin inclusions. A reticulin stain shows a maintained architecture
ceward204
in
British Liver Trust
6 months ago
Unusual prescription?
Hi all, I'm 73 with no weight, diabetes or BP ailments. A CT scan at a Targeted Lung Check last year revealed mild emphysema and "coronary artery calcification". The ensuing ECG indicated heart block (LAFB). Following an ultrasound last Thursday (during which I was told that there was an anomaly that
Hi all, I'm 73 with no weight, diabetes or BP ailments. A CT scan at a Targeted Lung Check last year revealed mild emphysema and "coronary artery calcification". The ensuing ECG indicated heart block (LAFB). Following an ultrasound last Thursday (during which I was told that there was an anomaly that
Globus
in
Anticoagulation Support
21 days ago
Lightheadedness after AFib episode
A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one
A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one
Jomaur
in
Atrial Fibrillation Support
22 days ago
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