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Gemcitibane/intravenous zoledronic acid
I was diagnosed stage 4b in January 2018, had debulking surgery, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
I was diagnosed stage 4b in January 2018, had debulking surgery, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
bamboo89
in
My Ovacome
9 months ago
Could use encouragement - Depressed and Anxious, New Medication offered by Psychiatrist - It’s been a Hot Minute
I haven’t posted in a while, nor responded to people, but I could really use some encouragement. Sorry! I’m very depressed and anxious these days, SADD getting to me. My psychiatrist has offered a nasal spray 2x a week for 8 weeks that will work for up to five years to decrease depression. I’m waiting
I haven’t posted in a while, nor responded to people, but I could really use some encouragement. Sorry! I’m very depressed and anxious these days, SADD getting to me. My psychiatrist has offered a nasal spray 2x a week for 8 weeks that will work for up to five years to decrease depression. I’m waiting
LifeisLikeGarden
in
Anxiety and Depression Support
5 months ago
Advice on iron status
Hi lovely people, I was hoping to get some advice on my iron status. A bit of background, I have just recently increased levo to 88mcg a couple of weeks ago, and was on 75mcg before that. So, I am aware that my thyroid hormone is still too low. It's a slow process getting docs to increase! My question
Hi lovely people, I was hoping to get some advice on my iron status. A bit of background, I have just recently increased levo to 88mcg a couple of weeks ago, and was on 75mcg before that. So, I am aware that my thyroid hormone is still too low. It's a slow process getting docs to increase! My question
catpotter44
in
Thyroid UK
7 months ago
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Just had My Monthly Injection of Firmagon Monthly Labs PSA is Up <0.06 to 0.09
That’s pretty modest. I’m assuming I will wait till next month to see if it goes down. Kind of stressed with this new diverticulitis and blood bowel thing AND Moving. Got results of psa after I saw My Medical Oncologist so haven’t discussed modest jump. Even with bleeding from rectum the gastroenterologist
That’s pretty modest. I’m assuming I will wait till next month to see if it goes down. Kind of stressed with this new diverticulitis and blood bowel thing AND Moving. Got results of psa after I saw My Medical Oncologist so haven’t discussed modest jump. Even with bleeding from rectum the gastroenterologist
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Thyroid symptoms or Parkinsons, an update to my previous post
A huge thank you to all the people who gave me such good advice! My FT3 is slightly up and my FT4 is slighty down, result! Going in the right direction. My Vitamin D is improving, I will continue to use BetterYou sublingual sprays (D3+K2) for this, and magnesium. My Vitamin B12 hasn't moved much,
A huge thank you to all the people who gave me such good advice! My FT3 is slightly up and my FT4 is slighty down, result! Going in the right direction. My Vitamin D is improving, I will continue to use BetterYou sublingual sprays (D3+K2) for this, and magnesium. My Vitamin B12 hasn't moved much,
Joat_the_cat
in
Thyroid UK
7 months ago
Newly Diagnosed PSC
Hi all I have IBD - diagnosed in 2020 and have mainly been in control of it since. I've now been diagnosed with PSC - had a liver biopsy, MRI, ultrasound and numerous blood tests to diagnose this. I'm going for a colonoscopy after Christmas to check my IBD is okay but I just wanted to reach out to anyone
Hi all I have IBD - diagnosed in 2020 and have mainly been in control of it since. I've now been diagnosed with PSC - had a liver biopsy, MRI, ultrasound and numerous blood tests to diagnose this. I'm going for a colonoscopy after Christmas to check my IBD is okay but I just wanted to reach out to anyone
LiverLover123
in
British Liver Trust
7 months ago
Meridian Viewray is toast. Can Cyberkife machines use MRI the same way?
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. Looking for substitutes. Thinking that Cyberknife machines can also
Just was unenrolled in a Phase I clinical trial using the Meridian Viewray machine at Dana Farber. Meridian went belly-up in the summer, and the hospital (Brigham and Women’s in Boston) will cease using that machine in October 25th. Looking for substitutes. Thinking that Cyberknife machines can also
Cancer2x
in
Advanced Prostate Cancer
9 months ago
Vitamin C and B12
Despite weekly injections of b12 my blood results show that I am only mid range and I am still symptomatic. I take codeine for arthritic pain and with this I take about 4000 mg of vitamin C to alleviate constipation. Is the vit C helping rid my body of B12 and if so can I just increase my injections
Despite weekly injections of b12 my blood results show that I am only mid range and I am still symptomatic. I take codeine for arthritic pain and with this I take about 4000 mg of vitamin C to alleviate constipation. Is the vit C helping rid my body of B12 and if so can I just increase my injections
Hectorsmum2
in
Pernicious Anaemia Society
7 months ago
My Cancer Reality Check
I am having one of those “I can’t believe I have cancer and I am having to go through all of this” moments!!!! Feeling a bit low with all of this chemotherapy stuff, more doctor visits, side effects, up and down 🎢 emotions!! You guys get me. Right? Sometimes it is hard to be strong and positive!
I am having one of those “I can’t believe I have cancer and I am having to go through all of this” moments!!!! Feeling a bit low with all of this chemotherapy stuff, more doctor visits, side effects, up and down 🎢 emotions!! You guys get me. Right? Sometimes it is hard to be strong and positive!
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
9 months ago
📢 Saturday October 14th Free Live HCC Workshop📢
Dive deep into critical healthcare topics with leading experts in the field! 🌟 Spotlight on Dr. Daneng Li: Spearheading the Liver Cancer Collaborative Program within the Department of Medical Oncology & Therapeutics Research at the City of Hope Comprehensive Cancer Center, Dr. Li's tireless efforts
Dive deep into critical healthcare topics with leading experts in the field! 🌟 Spotlight on Dr. Daneng Li: Spearheading the Liver Cancer Collaborative Program within the Department of Medical Oncology & Therapeutics Research at the City of Hope Comprehensive Cancer Center, Dr. Li's tireless efforts
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
9 months ago
Worried Mother of 14 year old Son.
Hello all, Hoping coming here will help as there is not much online particular to my situation. My son who is 14, started puberty at age 12 and is very active and healthy has wet the bed the past two nights. Needless to say he and I are both
very confused and worried
about this considering he
Hello all, Hoping coming here will help as there is not much online particular to my situation. My son who is 14, started puberty at age 12 and is very active and healthy has wet the bed the past two nights. Needless to say he and I are both
very confused and worried
about this considering he
WorriedMotherof1
in
ERIC
7 months ago
Back MRI Showed Pelvic Mass
Hello all! I am new here, so this is my first post. I had a back MRI in September 2023 in preparation for possible back surgery. The results of the MRI showed a pelvic mass in the area of left ovary. I took this information to my Gyn, who referred me to a GynOnc because of my age (65), the results
Hello all! I am new here, so this is my first post. I had a back MRI in September 2023 in preparation for possible back surgery. The results of the MRI showed a pelvic mass in the area of left ovary. I took this information to my Gyn, who referred me to a GynOnc because of my age (65), the results
retiredteacher1
in
My Ovacome
7 months ago
CT scan
I started on Ibrance and Anastrozole roughly in June 2023. Took it for 2 months and had to go off Ibrance for 5 weeks for surgery. Back on it for a month. Has a CT scan which showed more bone Mets and increased size. A node in lungs which was not seen on previous scan 6 months ago. Discouraged to think
I started on Ibrance and Anastrozole roughly in June 2023. Took it for 2 months and had to go off Ibrance for 5 weeks for surgery. Back on it for a month. Has a CT scan which showed more bone Mets and increased size. A node in lungs which was not seen on previous scan 6 months ago. Discouraged to think
mkrienke55
in
SHARE Metastatic Breast Cancer
9 months ago
JFK - Kennedy and B12
Given the current coverage of the anniversary of the death of President Kennedy, it seems not unreasonable to post about his health issues - specifically the possibility of Pernicious Anaemia. This is a paragraph from near the end of the article. Not intended as anything other than an interesting footnote
Given the current coverage of the anniversary of the death of President Kennedy, it seems not unreasonable to post about his health issues - specifically the possibility of Pernicious Anaemia. This is a paragraph from near the end of the article. Not intended as anything other than an interesting footnote
helvella
in
Pernicious Anaemia Society
7 months ago
horror surgery
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
so I’m 5 days past what was meant to be a “simple” hysterectomy. Oh no, 6 1:2 hrs and emergency surgery later to fit a stoma here I am in hospital with multiple drains etc and in agony. My head is in a mess. Has anyone had this happen!? I can’t get my head round dealing with the stoma bag cleaning and
MrsPaddingtonBear
in
Endometriosis UK
9 months ago
Great purchase
I want to make everyone aware of an amazing book by the world reknowned PBC expert. I encourage everyone, especially those newly diagnosed, to purchase this book - both editions if possible. Dr. Jones has been one of the contributors to The PBC Foundation's Thursdays' live Q&A sessions. This information
I want to make everyone aware of an amazing book by the world reknowned PBC expert. I encourage everyone, especially those newly diagnosed, to purchase this book - both editions if possible. Dr. Jones has been one of the contributors to The PBC Foundation's Thursdays' live Q&A sessions. This information
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
filgotinib dosage
hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was brilliant without pain.Because of age dr persey decreased from 200mg to 100 mg 4 weeks ago and pain has all come back.It was so good while it lasted
hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was brilliant without pain.Because of age dr persey decreased from 200mg to 100 mg 4 weeks ago and pain has all come back.It was so good while it lasted
Doodlereggie
in
NRAS
7 months ago
Suspected Bechets - affecting me mentally & physically
Hello, So sorry for the long post! So my doctor believes I have Bechets and I am currently undergoing tests/waiting for results. I have suffered with horrendous mouth ulcers ever since I had glandular fever at the age of 19 (now 36), and after a couple of years back and forth to the doctors about it,
Hello, So sorry for the long post! So my doctor believes I have Bechets and I am currently undergoing tests/waiting for results. I have suffered with horrendous mouth ulcers ever since I had glandular fever at the age of 19 (now 36), and after a couple of years back and forth to the doctors about it,
TigerLily42
in
Behçet's UK
5 months ago
Liver cancer
Hi Everyone Quick update ..... Some of you may remember me posting a few times about my partner Nick who has cirrhosis. He had an MRI scan a couple of weeks ago because they had seen lesion on his left lobe on an ultrasound scan. This lesion it turns out is cancer. Stage 1 so very early but still
Hi Everyone Quick update ..... Some of you may remember me posting a few times about my partner Nick who has cirrhosis. He had an MRI scan a couple of weeks ago because they had seen lesion on his left lobe on an ultrasound scan. This lesion it turns out is cancer. Stage 1 so very early but still
pussycat66
in
British Liver Trust
9 months ago
SBRT alternative
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
MauiJef
in
Prostate Cancer Network
9 months ago
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