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Update on breathlessness
Having ruled out any immediate issues with my heart, lung function tests have been done now. The results were sent to Aberdeen and I have had a chest x-ray and am waiting for the feedback. The Chest Clinic in Aberdeen want to see me for more detailed tests and have referred me for a CT scan. There is
Having ruled out any immediate issues with my heart, lung function tests have been done now. The results were sent to Aberdeen and I have had a chest x-ray and am waiting for the feedback. The Chest Clinic in Aberdeen want to see me for more detailed tests and have referred me for a CT scan. There is
Scottishlad
in
NRAS
2 years ago
How long does a diagnosis take ? Help in Limbo
Hi, I have been feeling unwell for ages lots of different symptoms,eventually a nurse practioner ordered blood test and they came back positive for antinuclear antibodies centromere >8 in July 2022. I was referred to Rheumatologist who as in turn referred me for several test, Ultrasound hands- no
Hi, I have been feeling unwell for ages lots of different symptoms,eventually a nurse practioner ordered blood test and they came back positive for antinuclear antibodies centromere >8 in July 2022. I was referred to Rheumatologist who as in turn referred me for several test, Ultrasound hands- no
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
2 years ago
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Continuous never ending onslaught - still trying to be happy happy positive but 🤷‍♀️
Been sick this time for 9 months, 2cardioversions, 3rd ablation 5wks ago. Had a few complications and still have the asthma I left hospital with. Until yesterday I’d been NSR but the asthma is not letting up. The inhalers, steroids etc have put the heart rate up to continuous 100-117 which is now exhausting
Been sick this time for 9 months, 2cardioversions, 3rd ablation 5wks ago. Had a few complications and still have the asthma I left hospital with. Until yesterday I’d been NSR but the asthma is not letting up. The inhalers, steroids etc have put the heart rate up to continuous 100-117 which is now exhausting
Afibflipper
in
AF Association
2 years ago
50yr old smoker just quit have some questions
hi everyone and Merry Christmas/Happy Holidays. I’m a 50yr 1/2 a pack a day smoker (smoked more when I was in my 20’s) and now former smoker for a week still finding it difficult to not smoke but trying. I’ve been diagnosed with Gerd, Barrett’s Esophagus and a 5cm. Hiatal Hernia. About 6 months ago
hi everyone and Merry Christmas/Happy Holidays. I’m a 50yr 1/2 a pack a day smoker (smoked more when I was in my 20’s) and now former smoker for a week still finding it difficult to not smoke but trying. I’ve been diagnosed with Gerd, Barrett’s Esophagus and a 5cm. Hiatal Hernia. About 6 months ago
B0ugatsa
in
Lung Conditions Community Forum
2 years ago
Coughing up blood and CT scan results
Hello, I'm new here. I'm wondering if anyone can advise me if possible. I've been coughing up some blood and bloody mucus over the last couple of months. Went to the GP and they referred me on the 2 week pathway. I had a chest x-ray last week which came back clear. I had a chest CT scan yesterday and
Hello, I'm new here. I'm wondering if anyone can advise me if possible. I've been coughing up some blood and bloody mucus over the last couple of months. Went to the GP and they referred me on the 2 week pathway. I had a chest x-ray last week which came back clear. I had a chest CT scan yesterday and
Col178
in
The Roy Castle Lung Cancer Foundation
2 years ago
Pneumonia update
So have been on antibiotics for two weeks and have been resting...as best I can. At weekend I felt worse again. Had a routine rheumy appointment Monday morning. (New consultant, not been seen by any consultant in 18mths ish). He obviously knew I'd had problems, first he says you don't look very well
So have been on antibiotics for two weeks and have been resting...as best I can. At weekend I felt worse again. Had a routine rheumy appointment Monday morning. (New consultant, not been seen by any consultant in 18mths ish). He obviously knew I'd had problems, first he says you don't look very well
wilbertjellyfish
in
NRAS
2 years ago
It Never Rains
What an absolute few months I've had. Have been on a constant heavy period, where I'm losing blood clots for the past 5 months, plus having really bad issues with breathing, which added to all my comorbidities is an absolute bugger. Due for a chest x-ray and an ultrasound this week. Then to top it all
What an absolute few months I've had. Have been on a constant heavy period, where I'm losing blood clots for the past 5 months, plus having really bad issues with breathing, which added to all my comorbidities is an absolute bugger. Due for a chest x-ray and an ultrasound this week. Then to top it all
Sher78
in
Hughes Syndrome APS Forum
2 years ago
day 2 after bypass surgery
hi all, my hubby had his triple bypass yesterday)finally after 3 cancellations in 6 weeks!) thr op went well the surgeon said snd he was recovering well. This morning just before they were moving him from ICU to high dependency his oxygen levels dropped and so they kept him in icu and gave him extra
hi all, my hubby had his triple bypass yesterday)finally after 3 cancellations in 6 weeks!) thr op went well the surgeon said snd he was recovering well. This morning just before they were moving him from ICU to high dependency his oxygen levels dropped and so they kept him in icu and gave him extra
Finmum
in
British Heart Foundation
2 years ago
pramipexole (containing Dopamine), can it contribute to heart regurgitation?
I recently had an echocardiogram after chest x-ray for breathlessness and it was thought to show an enlarged heart , but later found it wasn’t, hence the ecg. It has shown that I have some regurgitation which GP said nothing to worry about but I have read that Dopamine can be a cause of this. Can anyone
I recently had an echocardiogram after chest x-ray for breathlessness and it was thought to show an enlarged heart , but later found it wasn’t, hence the ecg. It has shown that I have some regurgitation which GP said nothing to worry about but I have read that Dopamine can be a cause of this. Can anyone
Sunny70
in
Restless Legs Syndrome
2 years ago
Etoricoxib?
Finally got to see rheumatologist on 8 Dec for the urgent appointment requested by my GP in June (!) He took a detailed history and did a thorough examination (I didn’t realize how much everything was hurting until he prodded all the muscles round my joints - been quite sore since.) His conclusion
Finally got to see rheumatologist on 8 Dec for the urgent appointment requested by my GP in June (!) He took a detailed history and did a thorough examination (I didn’t realize how much everything was hurting until he prodded all the muscles round my joints - been quite sore since.) His conclusion
Lyra42
in
PMRGCAuk
2 years ago
Confusion
One of the things most interesting about using this site is the variety of different experiences people have with the same problem, in my case bronchiectasis. I have been diagnosed for 12 years and see my consultant regularly. She is a bit unforthcoming and big on science. In that time I have had one
One of the things most interesting about using this site is the variety of different experiences people have with the same problem, in my case bronchiectasis. I have been diagnosed for 12 years and see my consultant regularly. She is a bit unforthcoming and big on science. In that time I have had one
Shonkie
in
Lung Conditions Community Forum
2 years ago
Possible Blood Clots
Hi all, it’s me again! So in the early hours of Monday morning I was woken by an intense pain in my chest and it took me about an hour to settle the pain and go back to sleep (after realising that it would go away if I didn’t move). When I woke up on Monday morning the pain was still there but only
Hi all, it’s me again! So in the early hours of Monday morning I was woken by an intense pain in my chest and it took me about an hour to settle the pain and go back to sleep (after realising that it would go away if I didn’t move). When I woke up on Monday morning the pain was still there but only
MummaSoap
in
British Heart Foundation
2 years ago
Battling with lupus
Iam Jacqueline Stecie Beyard from Malawi. I have been fighting with lupus for so long without knowing. I have been given wrong medications and nobody understood what i was going through. People thought i was crazy. Been having sharp pains on my palms, chest, pelvis and it kept on changing from organ
Iam Jacqueline Stecie Beyard from Malawi. I have been fighting with lupus for so long without knowing. I have been given wrong medications and nobody understood what i was going through. People thought i was crazy. Been having sharp pains on my palms, chest, pelvis and it kept on changing from organ
1shz
in
LUPUS UK
2 years ago
Husband with PD hospitalised with uti infection
I'm worried sick about my husband, he became very unsteady on his feet, couldn't stand up, couldn't walk his speech changed dramatically to a tiny whisper he just can't make himself heard. This all happened in the space of a couple of weeks his neuro suggested a UTI and he was started on antibiotics
I'm worried sick about my husband, he became very unsteady on his feet, couldn't stand up, couldn't walk his speech changed dramatically to a tiny whisper he just can't make himself heard. This all happened in the space of a couple of weeks his neuro suggested a UTI and he was started on antibiotics
allofatremor
in
Cure Parkinson's
2 years ago
ET Jak 2+ Pegasys working well but ...
Just thought I'd write an update. Any information I have on MPN has been obtained from this site, which i am very grateful for. I thought that my explaining my experiences might help others. I've been on Pegasys for about 18 months platelets were initially 530 I started on 45mcg weekly. Went up to
Just thought I'd write an update. Any information I have on MPN has been obtained from this site, which i am very grateful for. I thought that my explaining my experiences might help others. I've been on Pegasys for about 18 months platelets were initially 530 I started on 45mcg weekly. Went up to
Izzys-Mum
in
MPN Voice
2 years ago
B12 deficient - just wanted to share
Hi all, I just wanted to share my story as I've had so many thoughts and concerns rattling around my head these past couple of weeks that I don't know if I'm coming or going. I have had occasional heart palpitations since at least late spring, but didn't really think much of it until a month ago when
Hi all, I just wanted to share my story as I've had so many thoughts and concerns rattling around my head these past couple of weeks that I don't know if I'm coming or going. I have had occasional heart palpitations since at least late spring, but didn't really think much of it until a month ago when
TheDukeOfDogs
in
Pernicious Anaemia Society
2 years ago
Biopsy Results
Even though I've commented on other posts, this is my first. In July I coughed up blood, saw the GP who organised a chest x-ray. The GP called me an hour after the x-ray to tell me I had a 6cm shadow on my right lung and it could be cancer. After meeting a respiratory consultant, I had CT scan, PET scan
Even though I've commented on other posts, this is my first. In July I coughed up blood, saw the GP who organised a chest x-ray. The GP called me an hour after the x-ray to tell me I had a 6cm shadow on my right lung and it could be cancer. After meeting a respiratory consultant, I had CT scan, PET scan
Ianhick
in
The Roy Castle Lung Cancer Foundation
2 years ago
any similar experience?
Hello friends, I did a chest X-ray following a bad flu to check for pneumonia which I didn’t have. The x-ray showed a prominent pulmonary artery. My doctor suggested doing an echo which showed a prominent artery as well. I have zero symptoms and I run everyday 7k! I’m scheduled for a CT scan to see what
Hello friends, I did a chest X-ray following a bad flu to check for pneumonia which I didn’t have. The x-ray showed a prominent pulmonary artery. My doctor suggested doing an echo which showed a prominent artery as well. I have zero symptoms and I run everyday 7k! I’m scheduled for a CT scan to see what
Yarw
in
MPN Voice
2 years ago
Cough cough cough - Methotrexate?
I have PMR/GCA/LVV – all currently under control on 5mg Pred and 25mg MTX. However… I’ve had a terrible cough for three weeks now. Thank the Lord for Tena Ladies! I’ve gone through a bottle of Kovonia from the local pharmacist; a course of Doxycycline 100mg antibiotics from GP1 (telephone consult)
I have PMR/GCA/LVV – all currently under control on 5mg Pred and 25mg MTX. However… I’ve had a terrible cough for three weeks now. Thank the Lord for Tena Ladies! I’ve gone through a bottle of Kovonia from the local pharmacist; a course of Doxycycline 100mg antibiotics from GP1 (telephone consult)
JanetRosslyn
in
PMRGCAuk
2 years ago
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