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Moving on to Provenge/Sipuleucel-t
We met with my husband's onc yesterday to discuss the next move since the 3 years of Abiraraterone/prednisone has run its course. His psa numbers are now around 2.0 (up from a low of .04) and psma scan indicates that bone met volume is quite low. A recent lab biopsy didn't reveal much... The good doc
We met with my husband's onc yesterday to discuss the next move since the 3 years of Abiraraterone/prednisone has run its course. His psa numbers are now around 2.0 (up from a low of .04) and psma scan indicates that bone met volume is quite low. A recent lab biopsy didn't reveal much... The good doc
Lavender22
in
Advanced Prostate Cancer
4 months ago
new and looking for resources Stage 4 metastatic. Gleason 9
New and concerned wife here. The Reddit group suggested to come to this form. Yesterday we got the worst news possible after waiting 3+ weeks for results. I waffle back and forth between anger, sadness and hope. My husband was diagnosed at 61 with metastatic prostate cancer. Gleason 9, it has
New and concerned wife here. The Reddit group suggested to come to this form. Yesterday we got the worst news possible after waiting 3+ weeks for results. I waffle back and forth between anger, sadness and hope. My husband was diagnosed at 61 with metastatic prostate cancer. Gleason 9, it has
Sunnysailor
in
Advanced Prostate Cancer
6 months ago
NICE guideline on B12 Deficiency diagnosis and monitoring in over 16s
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
PAScomms
in
Pernicious Anaemia Society
5 months ago
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Rising T Bili on Xeloda
Hi ladies!! my mom has been on xeloda and her T bili continues to go up last few weeks. Her last scans showed shrinking lesions on liver. Her Tumor Markers went up 28 points this month. Her scan is bumped up to next week . She s checking for blockage that would require a stent in the liver I guess
Hi ladies!! my mom has been on xeloda and her T bili continues to go up last few weeks. Her last scans showed shrinking lesions on liver. Her Tumor Markers went up 28 points this month. Her scan is bumped up to next week . She s checking for blockage that would require a stent in the liver I guess
Flower1513
in
SHARE Metastatic Breast Cancer
4 months ago
Need help with cancer pain
Hello my fellow thrivers, May I consult with you all for advice on how to manage cancer pain please? My cancer recently progressed again and the pain is getting worse and more intense. I am currently taking oxycodone 5mg IR every 5-6 hours but it greatly upsets my stomach and the constipation is killing
Hello my fellow thrivers, May I consult with you all for advice on how to manage cancer pain please? My cancer recently progressed again and the pain is getting worse and more intense. I am currently taking oxycodone 5mg IR every 5-6 hours but it greatly upsets my stomach and the constipation is killing
hopeoflife
in
SHARE Metastatic Breast Cancer
4 months ago
Advice with Graves Disease
Hi All - I was diagnosed with Graves Disease in June 2023 and prescribed Carbimazole 20mg plus Propranolol 80mg Sustained Release. I have never actually met my endocrinologist owing to NHS strikes, so as a 60yo man I feel pretty alone with this condition as I don't know anyone else who has it. After
Hi All - I was diagnosed with Graves Disease in June 2023 and prescribed Carbimazole 20mg plus Propranolol 80mg Sustained Release. I have never actually met my endocrinologist owing to NHS strikes, so as a 60yo man I feel pretty alone with this condition as I don't know anyone else who has it. After
CharlieUK
in
Thyroid UK
6 months ago
high liver enzymes
Hello there. I was wondering if anyone had any experiences or knowledge over what I’m going through right now. Recently I had my blood test done. My ALT,AST, and alkaline phosphates came out super high (131, 89, 146) respectfully. I was struggling with a really bad flu at the time of these tests. Could
Hello there. I was wondering if anyone had any experiences or knowledge over what I’m going through right now. Recently I had my blood test done. My ALT,AST, and alkaline phosphates came out super high (131, 89, 146) respectfully. I was struggling with a really bad flu at the time of these tests. Could
Dna4christ
in
Liver4Life
6 months ago
What's on at Ovacome next week? (week commencing Monday 22 April 2024)
Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 23 April - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Our stories
Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 23 April - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Our stories
OvacomeSupport
My Ovacome Team
in
My Ovacome
4 months ago
What are my options?
My bio is not necessarily up to date. I will update it but her is my most recent history and questions: I was getting Pluvicto treatments. Was supposed to get 6 but foe some reason that is not entirely clear at this point it was decided (i have three oncologist and do not know which one or combination
My bio is not necessarily up to date. I will update it but her is my most recent history and questions: I was getting Pluvicto treatments. Was supposed to get 6 but foe some reason that is not entirely clear at this point it was decided (i have three oncologist and do not know which one or combination
spencoid2
in
Advanced Prostate Cancer
4 months ago
colonoscopy and endoscopy concerns
I am scheduled to have a colonoscopy and endoscopy in 1 week. My last colonoscopy was 8 years ago and the two colonoscopies before that found nothing but hemorrhoids ( all colonoscopies were pre CLL diagnosis in Oct of 2017). I have never had an endoscopy but I do have a cough that seems to start after
I am scheduled to have a colonoscopy and endoscopy in 1 week. My last colonoscopy was 8 years ago and the two colonoscopies before that found nothing but hemorrhoids ( all colonoscopies were pre CLL diagnosis in Oct of 2017). I have never had an endoscopy but I do have a cough that seems to start after
Claybuster
in
CLL Support
4 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
7 months ago
Adrenal tumour - anyone here with experience with it?
Hey everyone, My aldosterone levels are very elevated at 409 (range up to 190). I'm waiting for the adrenal MRI. My endo said he's suspecting adrenal adenoma since my ACTH was low, blood cortisol high, unable to raise thyroid meds or raising and having symptoms. Anyone here diagnosed with it or know
Hey everyone, My aldosterone levels are very elevated at 409 (range up to 190). I'm waiting for the adrenal MRI. My endo said he's suspecting adrenal adenoma since my ACTH was low, blood cortisol high, unable to raise thyroid meds or raising and having symptoms. Anyone here diagnosed with it or know
Incoguto
in
Thyroid UK
6 months ago
Confused again 😕
How do you know if your intrinsic factor antibody blood test is good or bad?
How do you know if your intrinsic factor antibody blood test is good or bad?
Popcorn12345
in
Pernicious Anaemia Society
6 months ago
In vivo & in vitro: CRISPR 9 new approach to attack PCa proof of concept
The idea is to use the CRISPR technology to tweak prostate cancer cells so that they build up a specific type of compound (called porphyrins) that is usually harmless unless exposed to certain types of light. In people with a condition called porphyria, these porphyrins naturally build up because of
The idea is to use the CRISPR technology to tweak prostate cancer cells so that they build up a specific type of compound (called porphyrins) that is usually harmless unless exposed to certain types of light. In people with a condition called porphyria, these porphyrins naturally build up because of
Maxone73
in
Advanced Prostate Cancer
4 months ago
Do I have Graves disease?
After being diagnosed with Thyrotoxicosis and medicated with Carbimazole and Propranolol, they finally did the Thyroid Antibodies test. They said I have hyperthyroidism, likely caused by Graves disease. I have symptoms of Thyroid Eye Disease. My results came back in range! So, do I not have Graves disease
After being diagnosed with Thyrotoxicosis and medicated with Carbimazole and Propranolol, they finally did the Thyroid Antibodies test. They said I have hyperthyroidism, likely caused by Graves disease. I have symptoms of Thyroid Eye Disease. My results came back in range! So, do I not have Graves disease
Opposite
in
Thyroid UK
6 months ago
Not like a research from Johns Hopkins, but let's consider it
"Florida Atlantic University's Schmidt College of Medicine and collaborators are the first to demonstrate in vivo the chemo-preventive properties of alpha-santalol against prostate cancer development using a transgenic mouse model." https://www.news-medical.net/news/20240213/Study-demonstrates-chemo-preventive-properties-of-alpha-santalol-against-prostate-cancer-development.aspx
"Florida Atlantic University's Schmidt College of Medicine and collaborators are the first to demonstrate in vivo the chemo-preventive properties of alpha-santalol against prostate cancer development using a transgenic mouse model." https://www.news-medical.net/news/20240213/Study-demonstrates-chemo-preventive-properties-of-alpha-santalol-against-prostate-cancer-development.aspx
Maxone73
in
Fight Prostate Cancer
6 months ago
Is there a “recovery sheet” on what to do/not do after a cardioversion.
had first cardioversion in December 2024, which lasted 5 days. Next cardioversion is booked for next Thursday, hospital advice was rest for 24 hours, no alcohol or caffeine, no driving. After 48 hours back to normal. Any suggestions to try and prolong sinus rhythm would be appreciated
had first cardioversion in December 2024, which lasted 5 days. Next cardioversion is booked for next Thursday, hospital advice was rest for 24 hours, no alcohol or caffeine, no driving. After 48 hours back to normal. Any suggestions to try and prolong sinus rhythm would be appreciated
mear1957
in
Atrial Fibrillation Support
1 hour ago
Ramipril, diarrhoea and pred
After doubling my dose of amlodipine due to my BP still being too high, I suffered from poor sleep quality - my fitbit recorded very little if any, deep sleep. I dropped back to 5mg and immediately my sleep improved. But now they've put me on ramipril 2.5mg to try, in addition to the 5mg amlodipine.
After doubling my dose of amlodipine due to my BP still being too high, I suffered from poor sleep quality - my fitbit recorded very little if any, deep sleep. I dropped back to 5mg and immediately my sleep improved. But now they've put me on ramipril 2.5mg to try, in addition to the 5mg amlodipine.
Broseley
in
PMRGCAuk
3 days ago
biologic medication and possible side effects
Wondering if anyone has had something similar happen. I’ve had severe p since 2020 and PA soon after and started the biologic adalimumab in January 2020 after systemic treatments failed/side effects became to bad. In June this month my adalimumab was swapped as it want working wellto ustekinumab which
Wondering if anyone has had something similar happen. I’ve had severe p since 2020 and PA soon after and started the biologic adalimumab in January 2020 after systemic treatments failed/side effects became to bad. In June this month my adalimumab was swapped as it want working wellto ustekinumab which
katienewland
in
NRAS
4 days ago
A Fib
I had an ablation done on 12/23, now I have no palpitations, my Dr. says I can go off the Eliquis is there something natural I can take to thin my blood?
I had an ablation done on 12/23, now I have no palpitations, my Dr. says I can go off the Eliquis is there something natural I can take to thin my blood?
Ddserj
in
Atrial Fibrillation Support
4 days ago
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