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Fycompa
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Could Epilim and lacosamide/VIMPAT have something in common [type of medication?] that causes 'shakes',need to get some research done on it?
In 2016 I was taken off Epilim, I have JME epilepsy, I was on it for circa. eight years, with lamictal, but my hands shook so bad, fears it was Parkinson's disease, [my father had Parkinson's disease] I was 'tested' then subsequently again in 2021 both negative, I was put on
Fycompa
in 2016, the shaking
In 2016 I was taken off Epilim, I have JME epilepsy, I was on it for circa. eight years, with lamictal, but my hands shook so bad, fears it was Parkinson's disease, [my father had Parkinson's disease] I was 'tested' then subsequently again in 2021 both negative, I was put on
Fycompa
in 2016, the shaking
Adlon57
in
Epilepsy Action
8 months ago
I was on Fycompa for eleven months Dec 2016 to Nov 2017, I have had Juvenile Myoclonic epilepsy for 52 years, worst I ever had!
Fycompa
, had two suicide attempts, out of that time, two thirds in bed, about two and a half weeks asleep, did not recover from irregular sleep patterns for 2 1/2 years! Weakened joints! Anybody else similar effects with
Fycompa
! [Even writing this name down, cold chills up my spine😱]
Fycompa
, had two suicide attempts, out of that time, two thirds in bed, about two and a half weeks asleep, did not recover from irregular sleep patterns for 2 1/2 years! Weakened joints! Anybody else similar effects with
Fycompa
! [Even writing this name down, cold chills up my spine😱]
Adlon57
in
Epilepsy Action
2 years ago
I have Prostate Cancer Adenocarcinoma grade 7 "in the early states" hopeful? How long do the effects of the Decapeptyl injection last after?
I have epilepsy and was on
Fycompa
medication, the side effects of that lasted 30 months, does the effects of the Decapeptyl wear off, if it does approximately how long? Maybe🤞 if I get through the treatment something to look forward to some sort of sanity?
I have epilepsy and was on
Fycompa
medication, the side effects of that lasted 30 months, does the effects of the Decapeptyl wear off, if it does approximately how long? Maybe🤞 if I get through the treatment something to look forward to some sort of sanity?
Adlon57
in
Advanced Prostate Cancer
2 years ago
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What do I do?
In 2017 I had an enlightening period, I was on an Epileptic drug [
Fycompa
], I attempted suicide, I saw a white light, felt an immense calm, when I had swallowed a number of pills, I awoke and puked up the medications, but then realised my beliefs were ok👍 for me I was going up the right path inwardly
In 2017 I had an enlightening period, I was on an Epileptic drug [
Fycompa
], I attempted suicide, I saw a white light, felt an immense calm, when I had swallowed a number of pills, I awoke and puked up the medications, but then realised my beliefs were ok👍 for me I was going up the right path inwardly
Adlon57
in
Anxiety and Depression Support
1 year ago
I can feel that old fybro feeling again, in 2020 in full isolation from Covid, lack of mobility, developed fybromyalgia [undiagnosed]?
I have JME epilepsy, it feels like the side effects of one of the medications
Fycompa
, which I stopped five years ago! Affects the body joints, want to go to sleep, but wake up more tired than when I retired to sleep, no incentive to talk to anybody? 😴😴DEAD TIRED!
I have JME epilepsy, it feels like the side effects of one of the medications
Fycompa
, which I stopped five years ago! Affects the body joints, want to go to sleep, but wake up more tired than when I retired to sleep, no incentive to talk to anybody? 😴😴DEAD TIRED!
Adlon57
in
Fibromyalgia Action UK
2 years ago
New Medication
I’m being weaned of parampenal (
fycompa
) as had very bad side effects with my mood and exhausted whole time. I’m hoping this one is going to help , with
fycompa
my side effects were really bad but seizures were still happening too on a regular basis.
I’m being weaned of parampenal (
fycompa
) as had very bad side effects with my mood and exhausted whole time. I’m hoping this one is going to help , with
fycompa
my side effects were really bad but seizures were still happening too on a regular basis.
car67
in
Epilepsy Action
2 years ago
How do you stop tremors in my hands, every time I get pressurised under stress etc, my hands shake especially my fingers, I cannot type?
I was on
Fycompa
and Lamictal in January 2017 I was thinking of starting up drawing classes? I had a double seizure in January 2018 fractured skull while transferring one medication to my present [April 2018]. Is there any way of 'calming' my system down?
I was on
Fycompa
and Lamictal in January 2017 I was thinking of starting up drawing classes? I had a double seizure in January 2018 fractured skull while transferring one medication to my present [April 2018]. Is there any way of 'calming' my system down?
Adlon57
in
Healthy Evidence
3 years ago
I was on Epilim and Lamictal for my Juvenile Myoclonic Epilepsy, bad shaking hands, was it Parkinson's disease, found reaction to Epilim!
My specialist had retired in 2013, but my GP thought it was Parkinson's disease as my father had dad it, negative test, but found it was a reaction built up over the years of Epilim, my new specialist in Dec. 2016 put me on
Fycompa
and Lamictal, within a couple of weeks I wanted to take up drawing classes
My specialist had retired in 2013, but my GP thought it was Parkinson's disease as my father had dad it, negative test, but found it was a reaction built up over the years of Epilim, my new specialist in Dec. 2016 put me on
Fycompa
and Lamictal, within a couple of weeks I wanted to take up drawing classes
Adlon57
in
Epilepsy Action
3 years ago
Long term side effects of Lamictal on bones and teeth?
I took Lamictal for my JME epilepsy, with Keppra, Epilim and
Fycompa
, my dentist was always ticking me off for years, I was paying for expensive fillings, crowns, etc, I wondered why, even going onto electric toothbrushes, still severe 'slap on the wrists' "Why don't use ...." blah, blah, then when
I took Lamictal for my JME epilepsy, with Keppra, Epilim and
Fycompa
, my dentist was always ticking me off for years, I was paying for expensive fillings, crowns, etc, I wondered why, even going onto electric toothbrushes, still severe 'slap on the wrists' "Why don't use ...." blah, blah, then when
Adlon57
in
Epilepsy Action
3 years ago
Essential tremors for Epilim and Lamictal [2013-2016] now same thing for Vimpat and Briviact [2018- 2021 ......
I have Juvenile Myoclonic Epilepsy and from 2013 was on Epilim and Lamictal but due to the severe tremors of my hands especially my left hand was scanned for Parkinson's disease, which proved negative [my father had had Parkinson's disease] my medication was changed to
Fycompa
and Lamictal which at first
I have Juvenile Myoclonic Epilepsy and from 2013 was on Epilim and Lamictal but due to the severe tremors of my hands especially my left hand was scanned for Parkinson's disease, which proved negative [my father had had Parkinson's disease] my medication was changed to
Fycompa
and Lamictal which at first
Adlon57
in
Epilepsy Action
3 years ago
I have J M E since the age of 14 I am 65, and have had over 400 + seizures, since 2013 I have seen "epilepsy specialists" four times!
Epilim and lamictal, side effects of Epilim, meant I was tested for Parkinson's disease, severe shaking of hands, [negative] (my father had had Parkinson's){one. two} then new specialist {three} in December 2016, I smashed my chest, broke at least 5 ribs in February 2017, [tried suicide three times],
Fycompa
Epilim and lamictal, side effects of Epilim, meant I was tested for Parkinson's disease, severe shaking of hands, [negative] (my father had had Parkinson's){one. two} then new specialist {three} in December 2016, I smashed my chest, broke at least 5 ribs in February 2017, [tried suicide three times],
Fycompa
Adlon57
in
Epilepsy Action
3 years ago
Fycompa turned me tardive
could not controll my body scary at the time cause i thought i was going to be stuck in it but now its funny when i tell my friends i stoped taking
fycompa
that day
could not controll my body scary at the time cause i thought i was going to be stuck in it but now its funny when i tell my friends i stoped taking
fycompa
that day
Hidden
in
Epilepsy Action
4 years ago
Fycompa
Does anyone know if this medicine causes augmentation?
Does anyone know if this medicine causes augmentation?
LanaCSR
in
Restless Legs Syndrome
4 years ago
Vimpat and side effects?
I was on
Fycompa
and Lamictal for F.M.Epilepsy, I was taken off both in pretty quick successession, in the end of 2018, beginning of 2019, a bumpy ride, but my specialist was more worried about the Briviact, being that it was a newer product in the field, BUT what are the side effects of Vimpat?
I was on
Fycompa
and Lamictal for F.M.Epilepsy, I was taken off both in pretty quick successession, in the end of 2018, beginning of 2019, a bumpy ride, but my specialist was more worried about the Briviact, being that it was a newer product in the field, BUT what are the side effects of Vimpat?
Adlon57
in
Epilepsy Action
4 years ago
Effect of warfarin on epilepsy medication
He is now wanting to include
fycompa
into the mixture. I have also tried a keto diet and cbd oil as well. Is there anyone else on warfarin and AED's that have managed to get control over their seizures?
He is now wanting to include
fycompa
into the mixture. I have also tried a keto diet and cbd oil as well. Is there anyone else on warfarin and AED's that have managed to get control over their seizures?
VernHarvey
in
Epilepsy South Africa
5 years ago
Briviact and dislocated shoulder
My son was on Keppra, vimpat and Onfi and still having seizures and they recently took him off of keppra and onto
Fycompa
and he had more seizures that before and now we are going to start Briviact. Does anyone have any experience they would like to share? All is appreciated.
My son was on Keppra, vimpat and Onfi and still having seizures and they recently took him off of keppra and onto
Fycompa
and he had more seizures that before and now we are going to start Briviact. Does anyone have any experience they would like to share? All is appreciated.
Comedy
in
Epilepsy Action
5 years ago
Fycompa
Hello, I have read a lot of negative side effects and terrifying reviews about
Fycompa
and just wondered if anyone would recommend this medication. My son is 24, high functioning autism with uncontrolled seizures for about 12 years.
Hello, I have read a lot of negative side effects and terrifying reviews about
Fycompa
and just wondered if anyone would recommend this medication. My son is 24, high functioning autism with uncontrolled seizures for about 12 years.
Comedy
in
Epilepsy Action
5 years ago
34 yrs,7 meds and a surgery later: Only Marijuana controls my seizures. Less side effects, less money, and greatly improved quality of life.
Phenabarbital, Dilantin, Trileptal, Keppra, Vimpat,
Fycompa
, Lamictal, Surrgery: I SWEAR TO YOU, FROM THE BOTTOM OF MY HEART THAT MARIJUANA IS THE ONLY SOLUTION FOR MY EPILEPSY! I FINALLY HAVE SOME FREEDOM BACK IN MY LIFE :o)
Phenabarbital, Dilantin, Trileptal, Keppra, Vimpat,
Fycompa
, Lamictal, Surrgery: I SWEAR TO YOU, FROM THE BOTTOM OF MY HEART THAT MARIJUANA IS THE ONLY SOLUTION FOR MY EPILEPSY! I FINALLY HAVE SOME FREEDOM BACK IN MY LIFE :o)
superflyerfan
in
Epilepsy Society
6 years ago
Lamictal and electric shock nighttime 'seizures'
I have had JME for nearly fifty years, but I was on Keppra, then Epilim, then
Fycompa
, all with Lamictal from circa 2012 that caused the question?
I have had JME for nearly fifty years, but I was on Keppra, then Epilim, then
Fycompa
, all with Lamictal from circa 2012 that caused the question?
Adlon57
in
Epilepsy Action
6 years ago
Sugar and Fycompa
ps I have just recovered from a dose of pancreatitis, from the long drawn out change of medication, between changing from
Fycompa
and Vimpat and Briviact, which means I now won't be able to celebrate anytime at all?
ps I have just recovered from a dose of pancreatitis, from the long drawn out change of medication, between changing from
Fycompa
and Vimpat and Briviact, which means I now won't be able to celebrate anytime at all?
Adlon57
in
Epilepsy Action
6 years ago
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