I was on Fycompa for eleven months Dec 2016 to Nov 2017, I have had Juvenile Myoclonic epilepsy for 52 years, worst I ever had!

[Adlon57]

Fycompa, had two suicide attempts, out of that time, two thirds in bed, about two and a half weeks asleep, did not recover from irregular sleep patterns for 2 1/2 years! Weakened joints! Anybody else similar effects with Fycompa! [Even writing this name down, cold chills up my spine😱]

[EpilepsyAction1 Partner Epilepsy Action]

Dear Adlon57

That sounds like a scary experience. Unfortunately you never know how you are going to respond to a medicine until you take it.

I hope you hear from others in this community soon.

If you don’t, as well as managing the HealthUnlocked community, Epilepsy Action has other ways for you to contact others. These are:

Facebook facebook.com/epilepsyaction

Twitter twitter.com/epilepsyaction

Talk and Support epilepsy.org.uk/talk-and-su...

Regards

Diane

Helpline Team

[Adlon57 in reply to EpilepsyAction1]

Thank you Dianne having had Juvenile Myoclonic Epilepsy for 52 years, so quite experienced! I am now terminally ill as being told the next seizure will be my last in July 2021, after having had over 400 grand mal seizures, in retrospect, not really surprising, a double seizure in Jan. 2018, being the cause! My current medication Vimpat and Briviact, has proved successful, although currently hit by "early diagnosis" PC, I am now fully retired and hopefully set to retire gracefully!