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Do I increase Pred to cover me for Covid jab?
I'm very anxious about having a Covid booster as I believe the vaccines precipitated my PMR early last year. I was advised (by consultant) not to have the 2002 autumn booster as I had some immunity from catching Covid itself but he has said to have the booster this year as it is now 15 months since my
I'm very anxious about having a Covid booster as I believe the vaccines precipitated my PMR early last year. I was advised (by consultant) not to have the 2002 autumn booster as I had some immunity from catching Covid itself but he has said to have the booster this year as it is now 15 months since my
FleetRose
in
PMRGCAuk
9 months ago
anyone have achy legs
I’m learning so much from reading everyone’s posts. Unfortunately I am still trying to figure out what is going on with my legs. I know I have a component of RLS as my legs feel like a “current” is running through them when I am sitting for long periods, watching Tv in evenings and laying in bed.
I’m learning so much from reading everyone’s posts. Unfortunately I am still trying to figure out what is going on with my legs. I know I have a component of RLS as my legs feel like a “current” is running through them when I am sitting for long periods, watching Tv in evenings and laying in bed.
Corolla1
in
Restless Legs Syndrome
5 months ago
Off topic? Stravinsky Study
Hi folks Just in case anyone fancies being involved in a research study. I tried to attach the poster but failed miserably so resorted to copy/paste of the information.
We are conducting a study to determine whether an antibody test result can predict who has the greatest risk of severe COVID-19
Hi folks Just in case anyone fancies being involved in a research study. I tried to attach the poster but failed miserably so resorted to copy/paste of the information.
We are conducting a study to determine whether an antibody test result can predict who has the greatest risk of severe COVID-19
jbzm
in
NRAS
9 months ago
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Flare after covid
I’ve had a fairly mild dose of covid, and lots of stress with a leaking roof, which has caused a flare. I’ve been on prednisolone since early July after waiting six months for a diagnosis. I started on 20mg and had reduced to 12.5 without much pain but that has returned. I’ve taken 15mg for two days
I’ve had a fairly mild dose of covid, and lots of stress with a leaking roof, which has caused a flare. I’ve been on prednisolone since early July after waiting six months for a diagnosis. I started on 20mg and had reduced to 12.5 without much pain but that has returned. I’ve taken 15mg for two days
Nanatoo
in
PMRGCAuk
9 months ago
Immunoglobin Blood Test.
Hello everyone. I had the Covid booster 2 weeks ago. I had an appointment booked for blood tests 4 days later. These were to rule in or out the cause of Osteopenia - low bone density mass.I now have Covid. Nurse rang me with blood test results yesterday and said they were normal apart from the Immunoglobin
Hello everyone. I had the Covid booster 2 weeks ago. I had an appointment booked for blood tests 4 days later. These were to rule in or out the cause of Osteopenia - low bone density mass.I now have Covid. Nurse rang me with blood test results yesterday and said they were normal apart from the Immunoglobin
dollcat
in
Pernicious Anaemia Society
9 months ago
Steroid injection in shoulder joint
I had a steroid injection in my left shoulder on Thurs pm (after waiting about 6 months). The doctor administering it, advised me to postpone a forthcoming shingles jab, but I forgot to ask him if I should continue to take methotrexate (due Fri - i opted to skip it this week) and my 2 weekly Imraldi
I had a steroid injection in my left shoulder on Thurs pm (after waiting about 6 months). The doctor administering it, advised me to postpone a forthcoming shingles jab, but I forgot to ask him if I should continue to take methotrexate (due Fri - i opted to skip it this week) and my 2 weekly Imraldi
Cutes
in
NRAS
5 months ago
Slow burn flare, following latest Covid vaccine.
It started with extreme fatigue - unable to keep my eyes open. Now I am finding it hard to walk and have significant back, knee, neck and head pain. A complete eye Heath check where nothing of concern was found yesterday required 2 hours sleep to recover. I am doubling my 5 mgs dose to do sick day rules
It started with extreme fatigue - unable to keep my eyes open. Now I am finding it hard to walk and have significant back, knee, neck and head pain. A complete eye Heath check where nothing of concern was found yesterday required 2 hours sleep to recover. I am doubling my 5 mgs dose to do sick day rules
SheffieldJane
in
PMRGCAuk
9 months ago
Covid Jab.
I've had my covid jab on 12/10/23.I'm alive ( yaaaaaay) , however like the previous jabs this one too has slowed me down too & it takes 48hrs for me to get back to normal & it's no different from having the flu jab. To me it's worth my life & I can now focus on getting over the hurdle of me getting reacquainted
I've had my covid jab on 12/10/23.I'm alive ( yaaaaaay) , however like the previous jabs this one too has slowed me down too & it takes 48hrs for me to get back to normal & it's no different from having the flu jab. To me it's worth my life & I can now focus on getting over the hurdle of me getting reacquainted
DodgeDhanda
in
Anxiety and Depression Support
9 months ago
Covid vaccine after ribuximub
how long should l wait after having ribuximub to have my Covid booster. I had my infusion 3 weeks ago and have had 2 texts inviting me to get my booster. I can’t seem to find any information regarding this . If any one can help l would be grateful thank you
how long should l wait after having ribuximub to have my Covid booster. I had my infusion 3 weeks ago and have had 2 texts inviting me to get my booster. I can’t seem to find any information regarding this . If any one can help l would be grateful thank you
artists
in
Vasculitis UK
9 months ago
Back again!!
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
Danni54
in
Restless Legs Syndrome
4 months ago
Left Ventricle?
Hi..had an echocardiogram yesterday and the radiologist is referring me to the cardeologist because she said she can't tell if my left ventricle is operating at optimal capacity...right away I'm spooked by this...since lockdown in 2020 I've gone from 4-5 days of 45 mins on the treadmill and moderate
Hi..had an echocardiogram yesterday and the radiologist is referring me to the cardeologist because she said she can't tell if my left ventricle is operating at optimal capacity...right away I'm spooked by this...since lockdown in 2020 I've gone from 4-5 days of 45 mins on the treadmill and moderate
Yankee71
in
British Heart Foundation
9 months ago
Sciatica
Hi all. I have been suffering with back pain for several years. In regards to medication, you name it, I've tried it. I've have two lots of steroid injections which had no effect whatsoever and then finally in 2022 I had radio frequency ablation which was brilliant. I had instant relief from this. I
Hi all. I have been suffering with back pain for several years. In regards to medication, you name it, I've tried it. I've have two lots of steroid injections which had no effect whatsoever and then finally in 2022 I had radio frequency ablation which was brilliant. I had instant relief from this. I
Stormtrooper4
in
Pain Concern
5 months ago
HDR Brachytherapy after initial RT
Anyone has a success story to share on using HDR Brachytherapy 2-3 years after initial Radiation of the prostate gland in case of recurrence of cancer? Thank you for sharing your story.
Anyone has a success story to share on using HDR Brachytherapy 2-3 years after initial Radiation of the prostate gland in case of recurrence of cancer? Thank you for sharing your story.
Simonapo
in
Advanced Prostate Cancer
2 months ago
Another cold type virus
Posted in January about respiratory virus which I recovered from about 2 weeks ago. Blow me down, I have a sore throat, runny nose, feel flat and no energy again. This is the 3rd cold/flu type bug I have had in 3 months. Is this due to suppressed immune system or overdoing it or just bad luck? @
Posted in January about respiratory virus which I recovered from about 2 weeks ago. Blow me down, I have a sore throat, runny nose, feel flat and no energy again. This is the 3rd cold/flu type bug I have had in 3 months. Is this due to suppressed immune system or overdoing it or just bad luck? @
EnyaBlue
in
PMRGCAuk
5 months ago
End of running
After completing 6 weeks of the program I had to permanently hang up my running shoes. I have a long standing issue with sacro-iliac pain which running has exacerbated. I am gutted because I love running but the pain and restricted mobility is debilitating so very reluctantly I am giving it up. I have
After completing 6 weeks of the program I had to permanently hang up my running shoes. I have a long standing issue with sacro-iliac pain which running has exacerbated. I am gutted because I love running but the pain and restricted mobility is debilitating so very reluctantly I am giving it up. I have
Dhiney
in
Couch to 5K
1 year ago
Covid
Hi all.So, I'm now on my 4th bout of covid. I am not really so surprised I'm stuck with heart problems. I guess it can only get worse. Has anyone else had covid 4 times, or at least more than once? I want to point out that I am a healthcare worker and have been vaccinated, although I don't believe
Hi all.So, I'm now on my 4th bout of covid. I am not really so surprised I'm stuck with heart problems. I guess it can only get worse. Has anyone else had covid 4 times, or at least more than once? I want to point out that I am a healthcare worker and have been vaccinated, although I don't believe
Blackwolf_7619
in
British Heart Foundation
9 months ago
Am I at a higher risk from Covid ?
Hi, Ive seen on MPN voice and here that people with an MPN are at a higher risk from Covid. I have ET which is currently being treated with Pegasys and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see
Hi, Ive seen on MPN voice and here that people with an MPN are at a higher risk from Covid. I have ET which is currently being treated with Pegasys and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see
Scarlett500
in
MPN Voice
9 months ago
Covid booster..good news story
We are all different, and respond differently to meds, vaccines, etc. I thought I'd post to say I had both my Covid booster (my 7th covid jab to date) and my flu jab on Sat. I had a slightly sore arm, and that was it. The least reaction I've had to date. BTW I was Pfizered, like in the spring. I
We are all different, and respond differently to meds, vaccines, etc. I thought I'd post to say I had both my Covid booster (my 7th covid jab to date) and my flu jab on Sat. I had a slightly sore arm, and that was it. The least reaction I've had to date. BTW I was Pfizered, like in the spring. I
greynot
in
NRAS
9 months ago
Sinemet Plus 25mg/100mg tablets Side effects?
My brother takes Sinemet plus 25mg/100mg tablets - One and a half tablets at 8am, 11am, 2pm, 5pm and 8pm. Half Sinemet CR 25mg/100mg tablets - one taken at bedtime. I have noticed after taking Sinemet plus he is unable to get out of chair or bed for up to an hour, dizziness and sleepiness. His vision
My brother takes Sinemet plus 25mg/100mg tablets - One and a half tablets at 8am, 11am, 2pm, 5pm and 8pm. Half Sinemet CR 25mg/100mg tablets - one taken at bedtime. I have noticed after taking Sinemet plus he is unable to get out of chair or bed for up to an hour, dizziness and sleepiness. His vision
Sarah106
in
Cure Parkinson's
7 months ago
New research - COVID-19 Tied to Autoimmune Disease Risk
Hi all - I know PMR/GCA are not mentioned but some consider there is an autoimmune element at least so - sharing an abstract. COVID-19 Tied to Autoimmune Disease Risk Lucy Hicks October 06, 2023 TOPLINE: Research from Korea provides additional evidence for the connection between COVID
Hi all - I know PMR/GCA are not mentioned but some consider there is an autoimmune element at least so - sharing an abstract. COVID-19 Tied to Autoimmune Disease Risk Lucy Hicks October 06, 2023 TOPLINE: Research from Korea provides additional evidence for the connection between COVID
MDT1
in
PMRGCAuk
9 months ago
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