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Peg and Ear infection
Hi all! New to the forum, what a great community and resource. I was diagnosed with PV recently at age 53 and started a Pegasys a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics. Fullness
Hi all! New to the forum, what a great community and resource. I was diagnosed with PV recently at age 53 and started a Pegasys a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics. Fullness
Fabfam5
in
MPN Voice
4 months ago
End of running
After completing 6 weeks of the program I had to permanently hang up my running shoes. I have a long standing issue with sacro-iliac pain which running has exacerbated. I am gutted because I love running but the pain and restricted mobility is debilitating so very reluctantly I am giving it up. I have
After completing 6 weeks of the program I had to permanently hang up my running shoes. I have a long standing issue with sacro-iliac pain which running has exacerbated. I am gutted because I love running but the pain and restricted mobility is debilitating so very reluctantly I am giving it up. I have
Dhiney
in
Couch to 5K
1 year ago
Pain Concern
Hello Again. Has anyone had an epidural steroid injection for shingles pain? I am scheduled for one and I'm scared. I have had trigger point injections in the past, but those go into muscle where this would go to the nerves that shingles infect. This doctor is very good at what she does so I have no
Hello Again. Has anyone had an epidural steroid injection for shingles pain? I am scheduled for one and I'm scared. I have had trigger point injections in the past, but those go into muscle where this would go to the nerves that shingles infect. This doctor is very good at what she does so I have no
mlp3434
in
Atrial Fibrillation Support
2 months ago
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Epidural Injection for shingles pain
Hello Again. Has anyone had an epidural steroid injection for shingles pain? I am scheduled for one and I'm scared. I have had trigger point injections in the past, but those go into muscle where this would go to the nerves that shingles infect. This doctor is very good at what she does so I have no
Hello Again. Has anyone had an epidural steroid injection for shingles pain? I am scheduled for one and I'm scared. I have had trigger point injections in the past, but those go into muscle where this would go to the nerves that shingles infect. This doctor is very good at what she does so I have no
mlp3434
in
AF Association
2 months ago
Quinoric side effects
Hi all, I hope you’re keeping tip top as best you can. So, I have been on hydroxychloquine for 5 years this year. I’ve mostly been given the brand Quinoric which is increasingly upsetting my tummy. I already have gastrointestinal issues from endometriosis and the Lupus meds aggravate it. I understand
Hi all, I hope you’re keeping tip top as best you can. So, I have been on hydroxychloquine for 5 years this year. I’ve mostly been given the brand Quinoric which is increasingly upsetting my tummy. I already have gastrointestinal issues from endometriosis and the Lupus meds aggravate it. I understand
BloominUterus
in
LUPUS UK
4 months ago
Pegasys for MF transitioning from hydroxycarbamide
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
jointpain
in
MPN Voice
4 months ago
Shingles Vaccination UK
Hi I am glad to report that I needed no hospital admissions in 2023 (having had 4 in 2022) Decided after open ended discussion with my GP not to take Covid or Flu vaccinations as each one had in the past laid me up with fever etc for a week to ten days and feeling dreadful. Next up is an offer of
Hi I am glad to report that I needed no hospital admissions in 2023 (having had 4 in 2022) Decided after open ended discussion with my GP not to take Covid or Flu vaccinations as each one had in the past laid me up with fever etc for a week to ten days and feeling dreadful. Next up is an offer of
Hihohiho
in
CLL Support
4 months ago
Pegasys is applying for formal approval in MPN treatment
Dear friends, I came across a EMA document recently and found that Pegasys is applying for indication extension to PV and ET. It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for
Dear friends, I came across a EMA document recently and found that Pegasys is applying for indication extension to PV and ET. It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for
TimothyHLuff
in
MPN Voice
4 months ago
Mumps contact 😷
Hi Peeps 🙂 I hope this post finds you as well as can be 🫠 I am writing to ask about contact with mumps. I have RA and my main meds are Tocilizumab (injection), Methotrexate (injection) and Sulphasalazine. Do I have to be particularly careful that I do not come in contact with a child who possibly has
Hi Peeps 🙂 I hope this post finds you as well as can be 🫠 I am writing to ask about contact with mumps. I have RA and my main meds are Tocilizumab (injection), Methotrexate (injection) and Sulphasalazine. Do I have to be particularly careful that I do not come in contact with a child who possibly has
Moomin8
in
NRAS
4 months ago
pneumonia jab
hi , I’ve booked to have a jab privately as I wasn’t having any luck requesting it from the gp. Is this definitely safe for me to have with liver disease. Thanks
hi , I’ve booked to have a jab privately as I wasn’t having any luck requesting it from the gp. Is this definitely safe for me to have with liver disease. Thanks
Etymolog
in
British Liver Trust
4 months ago
Tuberculosis
I have been talking medication for lymph node tb for 4 months now, however i have been developing fever and night sweats for the past few day. Is it common to have fever and nights sweats 4 months into the treatment? My lymph node is secreting pus and is very itchy.
I have been talking medication for lymph node tb for 4 months now, however i have been developing fever and night sweats for the past few day. Is it common to have fever and nights sweats 4 months into the treatment? My lymph node is secreting pus and is very itchy.
Premika
in
TB Alert
4 months ago
Thankyou for letting me join the community
I am interested in blood borne Candida … and recurrent
fungal
infections
..
I am interested in blood borne Candida … and recurrent
fungal
infections
..
Delilahmy
in
Aspergillosis and Rare Fungal Infection Support
1 year ago
Haemophilus influenzae
Has anyone been able to get immunised against haemophilus influenzae? I've just had a bad infection which has been hard to shake off and I don't want it again. I know there is a vaccine available for adults but my hospital seems never to have heard of it.
Has anyone been able to get immunised against haemophilus influenzae? I've just had a bad infection which has been hard to shake off and I don't want it again. I know there is a vaccine available for adults but my hospital seems never to have heard of it.
1234emc
in
CLL Support
15 days ago
Change in inhalers
I'm currently on sertide and being switched over to symbicort. I'm not sure of the dosage etc as need to discuss further with gp. I'm a little concerned as been on seretide for years. When I get switched it triggers flares and I've already had loads of time of work. I work part time. I also think I'm
I'm currently on sertide and being switched over to symbicort. I'm not sure of the dosage etc as need to discuss further with gp. I'm a little concerned as been on seretide for years. When I get switched it triggers flares and I've already had loads of time of work. I work part time. I also think I'm
spookylou
in
Asthma Community Forum
27 days ago
Starting Pegasys soon
Hi all and merry belated Christmas So… chemo…. I was diagnosed with ET about a year ago and finally found an MPN specialist in Montreal after a few months with a hemo who, unfortunately, knew very little about ET. I should be starting Pegasys sometime in January and I have a few questions :
Hi all and merry belated Christmas So… chemo…. I was diagnosed with ET about a year ago and finally found an MPN specialist in Montreal after a few months with a hemo who, unfortunately, knew very little about ET. I should be starting Pegasys sometime in January and I have a few questions :
IsabelleHo
in
MPN Voice
4 months ago
ADT and crying
Does anyone else that has been on ADT drugs for years have trouble with tears or crying for no real reason? I tear up anymore at just the thought of something sad. It’s a major pain in the ass, not to mention embarrassing because I am still employed. Wondering if there is a solution other than stopping
Does anyone else that has been on ADT drugs for years have trouble with tears or crying for no real reason? I tear up anymore at just the thought of something sad. It’s a major pain in the ass, not to mention embarrassing because I am still employed. Wondering if there is a solution other than stopping
joeguy
in
Advanced Prostate Cancer
4 months ago
GPA flare, is it likely even if I only have 1 symptom
I was diagnosed with GPA in 2017, I have had 3 flares since initial diagnosis and although the symptoms have got milder each time, I always have the same symptoms - pain and loss of hearing in my ear, discomfort and blood in my nose, pain and stiffness in my finger joints and extreme fatigue. I regularly
I was diagnosed with GPA in 2017, I have had 3 flares since initial diagnosis and although the symptoms have got milder each time, I always have the same symptoms - pain and loss of hearing in my ear, discomfort and blood in my nose, pain and stiffness in my finger joints and extreme fatigue. I regularly
stuc
in
Vasculitis UK
4 months ago
enlarged sore breasts
hi - rather embarrassing but here goes! Approximately 2 weeks ago I had to increase levothyroxine to 100 mcgs- breasts are now enlarged and sore. I can’t be pregnant- I happen to of had routine breast scan just prior to meds increase and no abnormalities detected. Has anyone else experienced this
hi - rather embarrassing but here goes! Approximately 2 weeks ago I had to increase levothyroxine to 100 mcgs- breasts are now enlarged and sore. I can’t be pregnant- I happen to of had routine breast scan just prior to meds increase and no abnormalities detected. Has anyone else experienced this
Purplepuffin
in
Thyroid UK
4 months ago
cellulitis
Hello, Has anyone had cellulitis? I have had it for just over a week. I have just completed a 2 day course of Ciprobay 500 and it didn’t work then I had a 2 day of Meronam 1gm tds by injection and I can tell it works good. Now, I need your advice if I can travel for a week with my oral antibiotic Augmentin
Hello, Has anyone had cellulitis? I have had it for just over a week. I have just completed a 2 day course of Ciprobay 500 and it didn’t work then I had a 2 day of Meronam 1gm tds by injection and I can tell it works good. Now, I need your advice if I can travel for a week with my oral antibiotic Augmentin
ANA4
in
CLL Support
5 months ago
Steroid injection and surgery
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Trishfrog1
in
NRAS
6 days ago
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