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Fungal infections
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19 public communities
Aspergillosis and Rare Fungal Infection Support
3,884 members
Serious fungal infections are very rare but also very under-diagnosed and that has several consequences. 1) There are many more cases than we currently know about 2) People who are diagnosed can be very isolated and benefit from community support This community is intended to address these issues by informing and educating people in the UK about serious fungal infections, what to look out for, how to get diagnosed and where the expert help is in the UK. We also feel that informing patients is a great way to support their medical teams. The National Aspergillosis Centre (www.nationalaspergillosiscentre.org.uk), currently based in Manchester is the main UK centre for the serious fungal infections caused by Aspergillus (see aspergillosis.org) and is where admin of this community is based, so we have all we need t to advise you on aspergillosis - maybe even get you a referral to this centre if warranted. This is also the site of the Mycology Reference Centre in Manchester (http://mrcm.org.uk/) which is a big skill base for the identification of all pathogenic fungi, consequently, we can support the diagnosis and treatment of other rare fungal diseases like cryptococcal meningitis, Candida bloodstream infection, Pneumocystis pneumonia and more. Note that we only support people who can use the UK NHS and only for questions and conversation about serious rare fungal infections and NOT the very common infections that you should be consulting your GP or pharmacist about - we cannot replace your relationship with your medical team but we may be able to help them help you. Any entries that seem to us to be better dealt with by your medical team first will be deleted. Any non-UK questions will also be deleted - sorry, but we are funded by the UK taxpayer and they have to come first!
BASHH
21,281 members
The British Association for Sexual Health and HIV or BASHH for short is the UK's leading organisation dealing with all aspects of sexual health including Contraception, sexual infections and HIV. At present there is no one to actively monitor or moderate posts here. We advise that if you seek specific healthcare advice regarding sexual health you go to our website www.bashh.org Here you will find a wealth of information for the public - particularly patient information leaflets on a range of sexual infections: www.bashh.org/pils Other good sources of information include for both sexual infections and contraception include: www.sexwise.org.uk and www.nhs.uk
MY SKIN
8,708 members
Welcome to the MY SKIN Community, a peer support community for those experiencing issues with their skin. Join us to share your story and experiences, ask questions, and support others. Connect with others like you today and get real opinions from others who have experienced similar conditions. Anyone needing help or support from a patient organisation can choose from the list of resources in the pinned post in the right hand column on the posts/home page.
Living Well with HIV
1,016 members
This community is for people affected by HIV/ AIDS. If you or someone you know is positive, this is a safe peer support community is for you.
HIV Partners
2,327 members
Forum Link has joined forces with the HealthUnlocked team to create this HIV positive online community. We want to make it easier for HIV positive people to find a range of information and support we all need, particularly when we have just been diagnosed with HIV. We do this by highlighting resources from selected other community sites and encouraging members of this community to post messages online. Whether you are newly diagnosed or have been living with HIV for some time we hope you will find this online community of other people living with HIV useful. For more details see the Forum Link web site at http://www.forum-link.org
Group B Strep Support
747 members
This is a community dedicated to helping those affected by group B Strep (GBS). GBS is a common bacterium that lives in 20-30% of adults, usually with no symptoms or side-effects. Most commonly found in the intestines, it can also live in the vagina of adult women. It is a ‘commensal’ – an organism that lives on another without causing harm. GBS can cause infection, most often in newborn babies. It more rarely causes infection in adults (typically women during pregnancy or after birth, the elderly and those with serious underlying medical conditions causing impaired immune system). Although relatively uncommon, GBS is the most common cause of infection in newborn babies and of meningitis in babies under age 3 months. On average in the UK, one baby a day develops GBS infection - one baby a week dies and one survivor a fortnight has long-term disability.
Brain health
1,280 members
This Brain Health community is a safe space for those affected by brain conditions to connect, share their experiences and offer support to others.
Meningitis Now
6,830 members
Meningitis can strike in an instant, but the impact can last a lifetime. At Meningitis Now we offer support to anyone living in the UK who has been affected by this deadly disease. Our Health Unlocked forum is a place where you can share your meningitis experience, ask questions about the disease and find others who have been through a similar experience.
Arthritis New Zealand
87 members
Arthritis Ireland
460 members
Arthritis Ireland works to reduce the pain and improve the lives of almost one million children and adults in Ireland with arthritis.
Cure Arthritis Community
2,820 members
We’re a US-based non-profit searching for a cure to help an estimated 50 million Americans and 300,000 children afflicted with various forms of arthritis. This arthritis foundation is focused entirely on research. The Arthritis National Research Foundation is committed to funding cutting-edge research and pushing the field of arthritis research forward!
Arthritis Action
7,621 members
Arthritis Action is a UK charity that promotes a self-management approach to managing all types of arthritis which encompasses diet, nutrition, weight management and exercise for physical and mental well-being. We aim to give people the tools and knowledge through evidence-based research to minimise pain and live happy and fulfilling lives. For more information, visit arthritisaction.org.uk As well as a wealth of information we share with all, we also offer membership with additional benefits including two subsidised physical therapy sessions, exercise classes, priority booking on our self-management events, twice-yearly digital magazine, access our personalised pathway programme, and one-to-one healthy eating and weight management advice from our Dietitian. Visit arthritisaction.org.uk or email info@arthritisaction.org.uk for more info.
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