Experiences with

Frontotemporal dementia

Hi All, rather than go into extended detail I am wondering if anybody has any experience of frontotemporal dementia as a result of a tbi

Recent studies by JAMA (https://news.cancerconnect.com/prostate-cancer/does-hormone-therapy-for-prostate-cancer-increase-alzheimer-s-dementia-risk?redir=1) indicate that Alzheimer's and Dementia risk can be increased by up to 28% with ADT......as if there weren't already enough negatives.... The article

Hi all , I’ve received a text message that my assessment will be next week by phone. It is for renewal. Please give me some advice, I’m so confused and worried. All responses will be much appreciated Thank you all .

Hi I had a brain injury few years ago it was missed (bike crash )as time has gone on EVERYTHING has got worse horrific Hallucinations mostly night time Memory is disintegrating anger etc I spend my days /nights alone docs no use I genuinely do not know what to do

Metyrosine (Demser) - Jonathan Sackner-Bernstein, he has a completely new approach - see article... He is preparing a study with Metyrosine (Demser). It will start with a low dosage (well below 250mg) and then be increased. However, only people with Parkinson's who are not yet taking L-Dopa are allowed

Driven by high doses of Levocarb, On a hunch, I went back to a genetic test (which dealt with Detoxification) result from 2009 that I received early in my diagnosis that was never clearly explained to me or properly documented as it turns out. It dealt with the COMT gene. What follows is the answer to

This article from Parkinson's News Today about Jotrol which is a resveratrol formulation that may reduce inflammation that contributes to Parkinson's. https://parkinsonsnewstoday.com/news/phase-2a-trial-jotrol-treatment-parkinsons-planned/?utm_source=PAR&utm_campaign=6f9ed52794-Email_ENL_US_PAR&utm_medium

To the Atypical Parkinsonism community—patients, caregivers, family, friends, and the public— You are not alone. Every challenge faced, every moment of uncertainty, and every act of care and support matters. In the face of adversity, we stand together—united by resilience, strengthened by HOPE. It does

Hi there, I’m new to this forum, although I’ve been on some other Healthunlocked forums, this is my first time on this one. My wife was having some problems with short term memory. This became very apparent, and worrying, when I was parked outside a place having dropped her off for a short appointment

https://academic.oup.com/braincomms/article/6/4/fcae193/7736990?login=false Hey there - came across this one on my usual search and found it quite compelling. 2% Trehalose - nose spray, pretty easy to prepare for oneself. I find different number depending on logic for dose equivalent, roughly x 12

I mentioned Modified Citrus Pectin in several posts and replies but I was sent this write up and figured it was good to share. https://justusrhope.substack.com/p/preventing-cancers-dementia-and-spike?utm_source=post-email-title

For quite sometime, I have been feeling that perhaps I should write herein a love story I know of that centers on a husband who cares 24×7 for his wife suffering from a neurodegenerative disease and the lady physiotherapist who visits routinely at their home for a therapy session of his wife. His

Israeli professor Michal Schwartz and her team aim for an Immunotherapy breakthrough in 2-3 years.. https://www.timesofisrael.com/israeli-scientist-in-peer-reviewed-study-immunotherapy-treatment-could-slow-aging-process/

Doctors and Psychiatrist light the fuse for refractory diseases, Dysfunction, destruction, violence with other medications This article titled sleep review, don't light the fuse, highlights dopamine agonists and gives not mention to the dopamine antagonist antidopaminergic or dopamine inhibitors, all

Having read some posts yesterday I saw that Omega 3 is not good for CLL patients. I took green tea and Omega 3 thinking they would be good for me but after reading a post from Neil I stopped green tea and now I think I need to stop Omega 3. Am I right in thinking this.

Well this is interesting. I can’t seem to post the link so I have copy and pasted. Maybe a bit of positive outcome for all the various drugs we take! Common cardiovascular drugs are linked to a lower risk of dementia in older age, according to a new study from Karolinska Institutet published in Alzheimer's

anyone got any comments on this article? I was diagnosed with PD this summer . My older brother passed away from a Glioblastoma in 2009. This article really has me thinking!

An interesting real world study indicating a survival benefit of bone modifying agents. Administration and cancer-control outcomes of bone-modifying agents in real-world patients with metastatic castration-resistant prostate cancer, JBMR Plus, Volume 9, Issue 1, January 2025, ziae157, https://doi.org

Hello,I am a 71 female. In good health but have persistent Afib. I don't take any medication for the Afib. I don't even know I have it. I see my Cardiologist once a year. My question concerns Ivermectin. I was wanting to take a prophylactic dose of Ivermectin weekly to prevent sickness from rhino

Mitte Dezember habe ich begonnen Levodopa/Carbidopa (L/C) mit Mucuna Kapseln (40 % mit 174 mg L-Dopa) auszutauschen. Ich habe bis dahin 3 x 100/25 mg L/C eingenommen, dazu Neupro Pflaster 4 mg und 3 x 50 mg Amandantin. Zusätzlich nehme ich 1600 mg B1. Seit Anfang Dezember trinke ich morgens den „bullet