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Xgeva Question...Please tell me what it is like for you to be on Xgeva
Hi Please tell me what it is like for you to be on Xgeva. Are the injections painful? Have you stopped taking the injections because of side effects from Xgeva? Whatever you can share from your experience with Xgeva will be helpful. Thanks in advance.
Hi Please tell me what it is like for you to be on Xgeva. Are the injections painful? Have you stopped taking the injections because of side effects from Xgeva? Whatever you can share from your experience with Xgeva will be helpful. Thanks in advance.
Darryl
Partner
in
Advanced Prostate Cancer
4 years ago
Muscle fatigue
I’m still finding this a problem. Even though I’m fairly sure my levels are good now (they’ve been steady and dose constant for a few months now, even with increased exercise etc) and I’m managing to be very active again - walking, cycling, just being a mum!, and I completed the couch to 5k this week
I’m still finding this a problem. Even though I’m fairly sure my levels are good now (they’ve been steady and dose constant for a few months now, even with increased exercise etc) and I’m managing to be very active again - walking, cycling, just being a mum!, and I completed the couch to 5k this week
Murphysmum
in
Thyroid UK
4 years ago
W1R1 with my dad
Morning all, hope you’re all well! My dad and I completed the first run today. My dad has struggled with shin splints, calf and Achilles issues in the past, so this is really about him building into his running, preventing pain and enjoying running for the sake of running. I’m merely his guide, his
Morning all, hope you’re all well! My dad and I completed the first run today. My dad has struggled with shin splints, calf and Achilles issues in the past, so this is really about him building into his running, preventing pain and enjoying running for the sake of running. I’m merely his guide, his
Mobiliseandmove
in
Couch to 5K
4 years ago
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ADT vacation has been great, but coming to an end soon
Hello fellow PC warriors, I have been on an ADT vacation now for about 8 months, and it has been wonderful. My T is currently at 250 (I had low T before starting treatment) and PSA has come up from 0.000 to 0.1 PSA has been increasing by a factor of 5 every 8 weeks, so in 3-4 months it should be in
Hello fellow PC warriors, I have been on an ADT vacation now for about 8 months, and it has been wonderful. My T is currently at 250 (I had low T before starting treatment) and PSA has come up from 0.000 to 0.1 PSA has been increasing by a factor of 5 every 8 weeks, so in 3-4 months it should be in
joeguy
in
Advanced Prostate Cancer
4 years ago
Xgeva vs Estrogen Patch against bone loss?
my husband will begin ADT, probably Firmagon. since he has already some micro bone mets and to some degree osteopenia, bone loss while on ADT is an even more serious issue. What are the differences in this regard between Xgeva and E2 add-back in men undergoing non-estrogen ADT?
my husband will begin ADT, probably Firmagon. since he has already some micro bone mets and to some degree osteopenia, bone loss while on ADT is an even more serious issue. What are the differences in this regard between Xgeva and E2 add-back in men undergoing non-estrogen ADT?
Hidden
in
Advanced Prostate Cancer
4 years ago
Firmagon - no side effects not working?
Hello! My father took a triple dose of Firmagon 3 days ago and besides feeling a bit tired and almost drunk the first day (and an itching on the injection spots) says he feel zero side effects. He even woke up the day after with an erection (which he told me about in a ”it doesnt seem to work??”-fashion
Hello! My father took a triple dose of Firmagon 3 days ago and besides feeling a bit tired and almost drunk the first day (and an itching on the injection spots) says he feel zero side effects. He even woke up the day after with an erection (which he told me about in a ”it doesnt seem to work??”-fashion
TheTopBanana
in
Advanced Prostate Cancer
4 years ago
Zytiga Has Stopped. What's next
PSA started at 250+ in November. Got down to 7 in April. Since then has risen to 19 in July. Had a bone and CT scan. Unfortunately it was mixed news. There is evidence of progression in my bone disease. However, spots on my lung and Kidney are gone. My Onc wants me to start on Xgeva in two weeks
PSA started at 250+ in November. Got down to 7 in April. Since then has risen to 19 in July. Had a bone and CT scan. Unfortunately it was mixed news. There is evidence of progression in my bone disease. However, spots on my lung and Kidney are gone. My Onc wants me to start on Xgeva in two weeks
Newyork6264
in
Advanced Prostate Cancer
4 years ago
Keytruda
I hope everyone is doing well. After genome testing, it was determined that I woild be a candidate for Keytruda. I have been at this fight for 6 years, Taxotere, casodex, lupron, xgeva, Xtandi. They all worked until they didn't. I am still on lupron and xgeva. I had my first infusion of Keytruda on
I hope everyone is doing well. After genome testing, it was determined that I woild be a candidate for Keytruda. I have been at this fight for 6 years, Taxotere, casodex, lupron, xgeva, Xtandi. They all worked until they didn't. I am still on lupron and xgeva. I had my first infusion of Keytruda on
Jrb12
in
Advanced Prostate Cancer
4 years ago
PSA drop VMAT-radiation
My father is 68 years young, G-9 recurrent, removal of prostate in 2017, PSA went up to 0,24-0,26 in May 2020, two small bone mets iliac and pelvis discovered on PSMA, T was 720 ng/dl in May 2020. The doctor suggested only vmat-radiation 7 weeks to bed + mets starting beginning of June. Now 4 weeks of
My father is 68 years young, G-9 recurrent, removal of prostate in 2017, PSA went up to 0,24-0,26 in May 2020, two small bone mets iliac and pelvis discovered on PSMA, T was 720 ng/dl in May 2020. The doctor suggested only vmat-radiation 7 weeks to bed + mets starting beginning of June. Now 4 weeks of
TheTopBanana
in
Advanced Prostate Cancer
4 years ago
Asthma treatments and stress fractures
Dr advised given my previous high steroid use for extended periods of time I might be prone to stress
fractures
and I had to stop running.
Dr advised given my previous high steroid use for extended periods of time I might be prone to stress
fractures
and I had to stop running.
asthmaticclimber
in
Asthma Community Forum
4 years ago
Xtandi
Question on Xtandi, I have been on Xtandi/Lupron for 41 months with a great deal of success. However, I have been experiencing tons of back pain for quite a few months. Thought it was recurrence but did CT and bone scan and my regular PSA test and all of that was negative for advancement (PSA less than
Question on Xtandi, I have been on Xtandi/Lupron for 41 months with a great deal of success. However, I have been experiencing tons of back pain for quite a few months. Thought it was recurrence but did CT and bone scan and my regular PSA test and all of that was negative for advancement (PSA less than
Survivor1965
in
Advanced Prostate Cancer
4 years ago
BAT & Abiraterone / Enzalutamide resensitization
BAT is bipolar androgen therapy. Men receive cyclic high-dose testosterone injections while on ADT. IMO, BAT is best started along with ADT because it may delay CRPC indefinitely. There are numerous reasons for CRPC & not everyone will respond to BAT at that stage - particularly in heavily treated Abiraterone
BAT is bipolar androgen therapy. Men receive cyclic high-dose testosterone injections while on ADT. IMO, BAT is best started along with ADT because it may delay CRPC indefinitely. There are numerous reasons for CRPC & not everyone will respond to BAT at that stage - particularly in heavily treated Abiraterone
pjoshea13
in
Advanced Prostate Cancer
4 years ago
Abiraterone failing...Xtandi next best step?
This is my first post. I've been reading and following so many of you since September. The information, suggestions and hope I've read here has been an important part of my morning. My husband (age 58) was diagnosed July 2019 with APc. PSA score of 3300. Gleason score 8 (4+4) and 8 (4+4). NM bone
This is my first post. I've been reading and following so many of you since September. The information, suggestions and hope I've read here has been an important part of my morning. My husband (age 58) was diagnosed July 2019 with APc. PSA score of 3300. Gleason score 8 (4+4) and 8 (4+4). NM bone
Yadifan
in
Advanced Prostate Cancer
4 years ago
Biofreeze with Chest Wall Pain
For the sake of turning my chest green like the Hulk is it safe to use Biofreeze for Chest Wall Pain?
For the sake of turning my chest green like the Hulk is it safe to use Biofreeze for Chest Wall Pain?
Hidden
in
Pain Concern
4 years ago
Xtandi+Keytruda may still work after Xtandi alone fails
In a small trial, 5 of 28 men (18%) got a PSA response (dropped at least by half) from the combination even after Xtandi alone failed. Median survival among responders was 42 months (some still alive at follow-up) vs 19 months for non-responders. It is not clear how to choose those who will respond
In a small trial, 5 of 28 men (18%) got a PSA response (dropped at least by half) from the combination even after Xtandi alone failed. Median survival among responders was 42 months (some still alive at follow-up) vs 19 months for non-responders. It is not clear how to choose those who will respond
Tall_Allen
in
Advanced Prostate Cancer
4 years ago
If i did it - anyone can
W9R3 Just finished my final run. I have always put off doing something like this using the excuse of shin splints and a bad back. The first 2 weeks were really tough and painful but after that I haven’t looked back. Advise to anyone is to just keep putting one foot in front of another and get through
W9R3 Just finished my final run. I have always put off doing something like this using the excuse of shin splints and a bad back. The first 2 weeks were really tough and painful but after that I haven’t looked back. Advise to anyone is to just keep putting one foot in front of another and get through
TomSweeney
in
Couch to 5K
4 years ago
Shin splints
Having completed couch to 5k I’ve developed really bad shin splints and did my final run with them hurting and had to limp home. Any suggestions on what I can do to prevent. I think I need to invest in good running shoes but where do I start?
Having completed couch to 5k I’ve developed really bad shin splints and did my final run with them hurting and had to limp home. Any suggestions on what I can do to prevent. I think I need to invest in good running shoes but where do I start?
Dangiletta
in
Couch to 5K
4 years ago
Relugolix versus Leuprolide - Neal Shore video.
Balsam01 & others have posted on the study, but not many responded. The study is re-posted below [2]. Neal Shore was the author & he speaks in [1]. Note that Relugolix [Relumina] is an [u]oral[/u] gonadotropin-releasing hormone (GnRH)
antagonist
, whereas Leuprorelin [Lupron] is a GnRH analogue
Balsam01 & others have posted on the study, but not many responded. The study is re-posted below [2]. Neal Shore was the author & he speaks in [1]. Note that Relugolix [Relumina] is an [u]oral[/u] gonadotropin-releasing hormone (GnRH)
antagonist
, whereas Leuprorelin [Lupron] is a GnRH analogue
pjoshea13
in
Advanced Prostate Cancer
4 years ago
from the American Urological Association 2020 Virtual Meeting
Radical Prostatectomy as Primary Treatment for Prostate Cancer Leads to Better Survival
June 16, 2020,
Wayne Kuznar
(looks familiar, but I don't remember posting -Patrick) Results presented at the American Urological Association 2020 Virtual Meeting demonstrated that of men who received
Radical Prostatectomy as Primary Treatment for Prostate Cancer Leads to Better Survival
June 16, 2020,
Wayne Kuznar
(looks familiar, but I don't remember posting -Patrick) Results presented at the American Urological Association 2020 Virtual Meeting demonstrated that of men who received
pjoshea13
in
Advanced Prostate Cancer
4 years ago
Xtandi added with Lupron
My husband has been on Lupron for 8 years and is becoming resistant as his PSA keeps rising. Oncol. now wants to add xtandi to his treatment plan. Haven't been on this site lately to know what is current protocol or next step. Can anyone offer suggestions. Hope all is well with this virus and otherwise
My husband has been on Lupron for 8 years and is becoming resistant as his PSA keeps rising. Oncol. now wants to add xtandi to his treatment plan. Haven't been on this site lately to know what is current protocol or next step. Can anyone offer suggestions. Hope all is well with this virus and otherwise
ROLNCIN1
in
Advanced Prostate Cancer
4 years ago
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