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New to community
I'm new to this community; but not new to MS. I was diagnosed with MS in February 2004 & have PPMS; I was diagnosed while living in NY & MD was great; tried Rebif initially, (no help-he didn't think it would work, but tried it anyway). Then, he tried Tysaburi, but developed optic neuritis after 1st dose
I'm new to this community; but not new to MS. I was diagnosed with MS in February 2004 & have PPMS; I was diagnosed while living in NY & MD was great; tried Rebif initially, (no help-he didn't think it would work, but tried it anyway). Then, he tried Tysaburi, but developed optic neuritis after 1st dose
letselia
in
My MSAA Community
8 years ago
Hi from Texas
Wanted to say Hi to everyone. I was diagnosed with this beast in 2005. I have been on 3 different meds and about to go back on Tysabri as long as my blood work comes back ok. I went from Rebif to Tysabri to Techfidera back to Tysabri and now on Techfidera again. I am getting weaker again so I talked
Wanted to say Hi to everyone. I was diagnosed with this beast in 2005. I have been on 3 different meds and about to go back on Tysabri as long as my blood work comes back ok. I went from Rebif to Tysabri to Techfidera back to Tysabri and now on Techfidera again. I am getting weaker again so I talked
Justrubl
in
My MSAA Community
8 years ago
M.A.S. Multiple Autoimmune Syndrome
Diagnosed with MS in 2000, I injected betaseron then rebif then finally avonex for 9 years. My body began rejecting the interferons, injection sites were even leaking. I had no place left to poke. I then opted to stop treatment and go as healthy natural as I could. I found Charlotte's Web CBD oil
Diagnosed with MS in 2000, I injected betaseron then rebif then finally avonex for 9 years. My body began rejecting the interferons, injection sites were even leaking. I had no place left to poke. I then opted to stop treatment and go as healthy natural as I could. I found Charlotte's Web CBD oil
Sierranne
in
My MSAA Community
8 years ago
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The countdown till the wedding continues we have 3 more days
Ok to start off 3 days ago I was having horrible pain in my left side it was from a kidney stone I finally went into my doctor's office today I was afraid I wasn't going to be able to walk down the aisle definitely not going to be able to dance or anything like that and even though you're normally not
Ok to start off 3 days ago I was having horrible pain in my left side it was from a kidney stone I finally went into my doctor's office today I was afraid I wasn't going to be able to walk down the aisle definitely not going to be able to dance or anything like that and even though you're normally not
Julietsmombless2015
in
LUPUS UK
8 years ago
New to this site
I am new to this site so forgive me I am not sure how to do this. I have PPMS and I am in a wheelchair full time. I am 64 years old I was diagnosed in 2001. I hope this helps. Dr put me on Rebif to slow progression and I don't know if it is working or not but I try.
I am new to this site so forgive me I am not sure how to do this. I have PPMS and I am in a wheelchair full time. I am 64 years old I was diagnosed in 2001. I hope this helps. Dr put me on Rebif to slow progression and I don't know if it is working or not but I try.
Mark1193
in
My MSAA Community
8 years ago
REBIF 1st shot yesterday UPDATE
I know it was just my 1st injection and I was so worried about the pain from more injections and the flu-like symptoms. I was on Avonex years ago and they were painful because I had to put the meds right into the muscle. I also have been on Lovenox shots so many times for my blood clotting disorder,
I know it was just my 1st injection and I was so worried about the pain from more injections and the flu-like symptoms. I was on Avonex years ago and they were painful because I had to put the meds right into the muscle. I also have been on Lovenox shots so many times for my blood clotting disorder,
dar58
in
My MSAA Community
8 years ago
Aubagio
My husband switched to Aubagio a few years ago from Rebif and has been satisfied with it. I haven't met anyone else who takes it. Anyone out there?
My husband switched to Aubagio a few years ago from Rebif and has been satisfied with it. I haven't met anyone else who takes it. Anyone out there?
Joalyn
in
My MSAA Community
8 years ago
Rebif
I am starting Rebif on Monday. Just want to know experiences others have had, either positive or negative. Side effects etc. Thank you.
I am starting Rebif on Monday. Just want to know experiences others have had, either positive or negative. Side effects etc. Thank you.
dar58
in
My MSAA Community
8 years ago
Multiple MS therapies?
Hello All, I am wondering your thoughts if my MS life is "normal"? I was diagnosed in 2013. Doc put me on Rebif (#1) and said we'd do an MRI after a year to see how it's working. A year later, MRI showed multiple new active lesions. So, we change to Tecfidera (#2). At the end of a year, MRI shows multiple
Hello All, I am wondering your thoughts if my MS life is "normal"? I was diagnosed in 2013. Doc put me on Rebif (#1) and said we'd do an MRI after a year to see how it's working. A year later, MRI showed multiple new active lesions. So, we change to Tecfidera (#2). At the end of a year, MRI shows multiple
AYW68SS
in
My MSAA Community
8 years ago
Proton Therapy Completed 6/30/16 University of Md Proton Center
Proton Therapy Experience Completed 6/30/2016 University of Md Proton Center My Gleason score was 6. Five days after beginning treatment urgency was a major issue. The md started Flomax. Symptoms disappeared immediately. During the treatment I was able to climax and experience erections with generic
Proton Therapy Experience Completed 6/30/2016 University of Md Proton Center My Gleason score was 6. Five days after beginning treatment urgency was a major issue. The md started Flomax. Symptoms disappeared immediately. During the treatment I was able to climax and experience erections with generic
pbraswell
in
Prostate Cancer And Gay Men
8 years ago
Introducing myself
Hi everyone! My name is April. I have had MS for 21 years... fist hit in 1995 - months after my son was born; officially diagnosed in 2001 - at first thought it was Anthrax because of the "inconclusive" results in my office (DC). I have been on Betaseron, Copaxone (twice - 7 & 3 day), Rebif and Tysabri
Hi everyone! My name is April. I have had MS for 21 years... fist hit in 1995 - months after my son was born; officially diagnosed in 2001 - at first thought it was Anthrax because of the "inconclusive" results in my office (DC). I have been on Betaseron, Copaxone (twice - 7 & 3 day), Rebif and Tysabri
April-1995MSWarrior
in
My MSAA Community
8 years ago
Unexplainable stomach discomfort
4weeks ago I started having discomfort in my tummy. It is not a sharp pain, it feels like every thing in my tummy are twisting and turning. It can start at anytime. I can wake up in the middle of the night and can't go back to sleep becos of the twisting and turning. At first I thought that I could manage
4weeks ago I started having discomfort in my tummy. It is not a sharp pain, it feels like every thing in my tummy are twisting and turning. It can start at anytime. I can wake up in the middle of the night and can't go back to sleep becos of the twisting and turning. At first I thought that I could manage
ijeasike
in
LUPUS UK
8 years ago
This was my Journey - It May be Helpful to You
I had my TURP (Trans Urethral Resection of the Prostate) in October of 2011 at age 65. Subsequent analysis of the material removed showed cancer cells in less than 5% of the material and Gleason graded 3+3=6. I was staged T1a by my urologist. To say I was shocked when I was told I had the big C, is
I had my TURP (Trans Urethral Resection of the Prostate) in October of 2011 at age 65. Subsequent analysis of the material removed showed cancer cells in less than 5% of the material and Gleason graded 3+3=6. I was staged T1a by my urologist. To say I was shocked when I was told I had the big C, is
ffiore
in
Advanced Prostate Cancer
8 years ago
Er says follow up for kidney stone with urology,but the er will not give DR proof of stone....Why am I suffering because idiots do drugs!
Ok they told me and showed me even the stone and size 4mm or larger hard to tell by ultra sound.The Doctor preformed the ultra sound after the x ray showed stones in the kidney but not passing,so he showed my fiance and I the stone on the ultra sound .But he never documented anything about it.He said
Ok they told me and showed me even the stone and size 4mm or larger hard to tell by ultra sound.The Doctor preformed the ultra sound after the x ray showed stones in the kidney but not passing,so he showed my fiance and I the stone on the ultra sound .But he never documented anything about it.He said
Julietsmombless2015
in
LUPUS UK
8 years ago
On to the Next Step
2012-Urologist biopsy with Gleason 9; (2012)-Dattoli Cancer Center, Sarasota, FL for Color Dopler affirmative PCA; 8 weeks Conformed Radiation, seeding, follow-up radiation; ADT. (2014) PSA doubling-Sand Lake Imaging Pet,CT/MRI, Ferheim (sp) imaging-no mets found. Continued ADT and supplements+Metformin
2012-Urologist biopsy with Gleason 9; (2012)-Dattoli Cancer Center, Sarasota, FL for Color Dopler affirmative PCA; 8 weeks Conformed Radiation, seeding, follow-up radiation; ADT. (2014) PSA doubling-Sand Lake Imaging Pet,CT/MRI, Ferheim (sp) imaging-no mets found. Continued ADT and supplements+Metformin
Baddawg
in
Advanced Prostate Cancer
9 years ago
Illprost
First week our the way. Had illprost aka flolan which opens up the blood vessels. Wait and see what the next few weeks are like, if there is any improvement on these dreaded ulcers on my feet. Just started taking daily injections to prevent blood clots......something else to add to the list of meds lol
First week our the way. Had illprost aka flolan which opens up the blood vessels. Wait and see what the next few weeks are like, if there is any improvement on these dreaded ulcers on my feet. Just started taking daily injections to prevent blood clots......something else to add to the list of meds lol
dzagotskillz
in
LUPUS UK
10 years ago
Iv Flolan
Hi guys I am gong into hospital next week to have to have flolan. This will be done by IV and will have to have it every day for a week. This is another attempt to try and heal these ulcers on my ankles. I feel like an experiment sometimes. Will keep you posted. Treatment starts Monday.
Hi guys I am gong into hospital next week to have to have flolan. This will be done by IV and will have to have it every day for a week. This is another attempt to try and heal these ulcers on my ankles. I feel like an experiment sometimes. Will keep you posted. Treatment starts Monday.
dzagotskillz
in
LUPUS UK
10 years ago
Treatment for ulcers
Hi I had rituximab which has not worked unfortunately. My consultant is suggesting I try aavaa which is a combination of asprin, antibiotics, flolan and someother stuff! As anyone tried this? I have tried every dressing imaginable. Using iodoflex at the moment. Keeps ulcers clean anyhow.
Hi I had rituximab which has not worked unfortunately. My consultant is suggesting I try aavaa which is a combination of asprin, antibiotics, flolan and someother stuff! As anyone tried this? I have tried every dressing imaginable. Using iodoflex at the moment. Keeps ulcers clean anyhow.
dzagotskillz
in
LUPUS UK
10 years ago
34 months on a Phase I-b Clinical Trial for Ibrutinib. A day of monitoring at OSU medical center with CLL specialist Dr. John Byrd
The weather in Columbus OH was wet and cool as I made my walk to the James Cancer Center along the newly restored Olentangy River. The Union cemetery sported flowering Eastern Red Buds as I thought about my impending BMB (Bone Marrow Biopsy). Had Ibrutinib finally put the CLL Bear into deep hibernation
The weather in Columbus OH was wet and cool as I made my walk to the James Cancer Center along the newly restored Olentangy River. The Union cemetery sported flowering Eastern Red Buds as I thought about my impending BMB (Bone Marrow Biopsy). Had Ibrutinib finally put the CLL Bear into deep hibernation
ThreeWs
in
CLL Support
10 years ago
Has anybody had personal experience of Flolan (prostacyclin or epoprostenol) as a treatment for pulmonary hypertension?
morrid
in
Lung Conditions Community Forum
11 years ago
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