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Ocrevus News from ECTRIMS
http://www.businesswire.com/news/home/20171026006738/en/New-OCREVUS-Ocrelizumab-Data-ECTRIMS-Advance-Clinical There is a bit of good news for RRMS people in that there is new data showing Ocrevus significantly prevented progression over Rebif when measured by a new measurement (PIRA). Personally, I
http://www.businesswire.com/news/home/20171026006738/en/New-OCREVUS-Ocrelizumab-Data-ECTRIMS-Advance-Clinical There is a bit of good news for RRMS people in that there is new data showing Ocrevus significantly prevented progression over Rebif when measured by a new measurement (PIRA). Personally, I
Raingrrl
in
My MSAA Community
7 years ago
First post, take it easy on the new guy
Greetings. Diagnosed in March 2016 with S4 PSA 658. Since diagnosis, have been through quarterly Lupron and Zometa treatments, 6 rounds of chemo which ended Halloween 2016 and saw the PSA hit a nadir of 1.59. Since then, it doubled and tripled until it hit 226 in May 2017 - so MO put me on Zytiga/Prednisone
Greetings. Diagnosed in March 2016 with S4 PSA 658. Since diagnosis, have been through quarterly Lupron and Zometa treatments, 6 rounds of chemo which ended Halloween 2016 and saw the PSA hit a nadir of 1.59. Since then, it doubled and tripled until it hit 226 in May 2017 - so MO put me on Zytiga/Prednisone
ontheroad589
in
Advanced Prostate Cancer
7 years ago
SLL 13q deleted and prostrate issues
I'm on w/w for about 15 months. My hemo/oncologist thinks I may not need treatment for a couple of years at least, but...... My nodes are all swollen but have seemed to have stabilized. All my blood work is good. My issue is that I developed urinary retention about 12 months ago and am on flomax to
I'm on w/w for about 15 months. My hemo/oncologist thinks I may not need treatment for a couple of years at least, but...... My nodes are all swollen but have seemed to have stabilized. All my blood work is good. My issue is that I developed urinary retention about 12 months ago and am on flomax to
Awksom
in
CLL Support
7 years ago
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Best Things For Chapped Lips!
I've been dealing with chapped lips for almost 5 years now. Here are some of the best products! And most of them are quite cheap! xx 1. EOS - https://evolutionofsmooth.com/ This is a really cheap product, but one of the best. It moisturises your lips without getting it to greasy or heavy and it really
I've been dealing with chapped lips for almost 5 years now. Here are some of the best products! And most of them are quite cheap! xx 1. EOS - https://evolutionofsmooth.com/ This is a really cheap product, but one of the best. It moisturises your lips without getting it to greasy or heavy and it really
jessmooreXx
in
MY SKIN
7 years ago
WANT TO FEEL WELL AGAIN - WORRIED & PAIN
I shouldn't even be online since I have touch of OCD and remain anxious and distraught and was told by relatives to NOT do any research. 61 y.o just relocate away from family and now in Fla. Medical care quite different down here than up North. But, health issues before I arrived here and urologists
I shouldn't even be online since I have touch of OCD and remain anxious and distraught and was told by relatives to NOT do any research. 61 y.o just relocate away from family and now in Fla. Medical care quite different down here than up North. But, health issues before I arrived here and urologists
rickym1
in
Advanced Prostate Cancer
7 years ago
Progress Stalled , what to do ?
Hi all, DX in oct of 2016, Gleason 9 or 8 in all 8 samples from detailed 3D MRI guided biopsy. Grade of T3b l1 m0 , considered inoperable due to size & seminal vesicle involvement as well as Hydronephrosis in right Kidney. PSA at DX was 7.3, started 50mg Casodex immediately & then Eligard shots. Dec
Hi all, DX in oct of 2016, Gleason 9 or 8 in all 8 samples from detailed 3D MRI guided biopsy. Grade of T3b l1 m0 , considered inoperable due to size & seminal vesicle involvement as well as Hydronephrosis in right Kidney. PSA at DX was 7.3, started 50mg Casodex immediately & then Eligard shots. Dec
Billash
in
Advanced Prostate Cancer
7 years ago
Gilenya
Hi, I am going to be starting Gilenya next week and was looking to see what experiences people have had with this medication. I was diagnosed in 2012 and have been on Rebif for the last 5 years. I am switching because recently I have been feeling really wiped out the day after my shots. Thank you🌻
Hi, I am going to be starting Gilenya next week and was looking to see what experiences people have had with this medication. I was diagnosed in 2012 and have been on Rebif for the last 5 years. I am switching because recently I have been feeling really wiped out the day after my shots. Thank you🌻
Vallie02
in
My MSAA Community
7 years ago
Starting Meds ~ Any opinions?
Hi everyone ... I was diagnosed in January with RRMS & will be starting medication soon. I have been given info on orals & injectables ... it all seems very overwhelming. Injectables: Avonex; Betaseron; Rebif; Copaxone Oral: Aubagio; Tecfidera Your thoughts ... Thank you, Carrie
Hi everyone ... I was diagnosed in January with RRMS & will be starting medication soon. I have been given info on orals & injectables ... it all seems very overwhelming. Injectables: Avonex; Betaseron; Rebif; Copaxone Oral: Aubagio; Tecfidera Your thoughts ... Thank you, Carrie
Daring_Greatly
in
My MSAA Community
7 years ago
Annoying experience in nhs
I just got home from an admission. I had a flolan infusion which i stay for 5nights. This is not the 1st time am going into hospital for this infusion so am a regular in this ward. This last infusion was horrible, the way flolan is administered the infusions is very continous. When one tube is finished
I just got home from an admission. I had a flolan infusion which i stay for 5nights. This is not the 1st time am going into hospital for this infusion so am a regular in this ward. This last infusion was horrible, the way flolan is administered the infusions is very continous. When one tube is finished
ijeasike
in
LUPUS UK
8 years ago
Joe R
My name is Joe I'm 50 and I've had MS since 1997. I've been on Rebif for the better part of 11 years, Until I started OCREVUS 2 years ago, after first dose it seemed to be helping but not so much anymore. The Dr diagnosed me with secondary progressive MS about 6 1/2 years ago. I've been to Jefferson
My name is Joe I'm 50 and I've had MS since 1997. I've been on Rebif for the better part of 11 years, Until I started OCREVUS 2 years ago, after first dose it seemed to be helping but not so much anymore. The Dr diagnosed me with secondary progressive MS about 6 1/2 years ago. I've been to Jefferson
Russso
in
My MSAA Community
8 years ago
Medicine
What everyone taking for there MS?? Me just started tecfidera 2 days ago after Using rebif for a while
What everyone taking for there MS?? Me just started tecfidera 2 days ago after Using rebif for a while
Lay24
in
My MSAA Community
8 years ago
Iloprost
Hi reading your story about Iloprost Im from N.I. & couldn't tolerate Iloprost so I get Flolan infusion instead I get it for 6 hours for 5 days & it is much easier to tolerate. I now get it every 3 months for my Raynauds & Scleroderma.
Hi reading your story about Iloprost Im from N.I. & couldn't tolerate Iloprost so I get Flolan infusion instead I get it for 6 hours for 5 days & it is much easier to tolerate. I now get it every 3 months for my Raynauds & Scleroderma.
Gdonnelly
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Stopping My MS Therapy
I started Rebif December 2015. The whole year of 2016 I noticed a decline in my abilities. Of course we all face that dreaded fatigue monster. Gradually through 2016 I have been getting more and more tired - to the point of not being able to stay awake. I had my first relapse in like 8 years by experiencing
I started Rebif December 2015. The whole year of 2016 I noticed a decline in my abilities. Of course we all face that dreaded fatigue monster. Gradually through 2016 I have been getting more and more tired - to the point of not being able to stay awake. I had my first relapse in like 8 years by experiencing
amyshif1
in
My MSAA Community
8 years ago
I'm new here. A little bit about me...
Hi, I was diagnosed 2006 with RRMS. I am 50 years old. This year has really been hard on me. I have experience the MS hug about six times so far this year and it seems that each time the MS hug gets more painful and is lasting longer. I also deal with fatigue so great I am having a hard time standing
Hi, I was diagnosed 2006 with RRMS. I am 50 years old. This year has really been hard on me. I have experience the MS hug about six times so far this year and it seems that each time the MS hug gets more painful and is lasting longer. I also deal with fatigue so great I am having a hard time standing
amyshif1
in
My MSAA Community
8 years ago
GODFIDENCE!
Hello, I was diagnosed with MS in August 2011. I then obtained a second opinion which it was confirmed October 2011. I then began to look for a physician that specialized in MS. In the first meeting with my physician, two of the first questions I asked is, 1.Will I have/need to give up wearing
Hello, I was diagnosed with MS in August 2011. I then obtained a second opinion which it was confirmed October 2011. I then began to look for a physician that specialized in MS. In the first meeting with my physician, two of the first questions I asked is, 1.Will I have/need to give up wearing
Kimlovesshoes
in
My MSAA Community
8 years ago
Introduction
Hi all, My name is Mark Graham from Bondurant Iowa. My MS started off as vision problems in 1998. I was diagnosed in 2004 after an MRI showed lesions. I started on Copaxone immediately after the diagnosis. Changed to Tysabri and had one infusion then they took it off the market. Went back to Copaxone
Hi all, My name is Mark Graham from Bondurant Iowa. My MS started off as vision problems in 1998. I was diagnosed in 2004 after an MRI showed lesions. I started on Copaxone immediately after the diagnosis. Changed to Tysabri and had one infusion then they took it off the market. Went back to Copaxone
megraham
in
My MSAA Community
8 years ago
Penis bleeding and frequent urination
Hello. I am 32 and have a problem of frequent urination. It all first started in my puberty ( around 13 ). I was constantly seeing red dots in my underwear. At least 4 - 5 dots in 3 - 4 days time. They were clearly coming from my penis and had nothing to do with my anus. These little bleedings continued
Hello. I am 32 and have a problem of frequent urination. It all first started in my puberty ( around 13 ). I was constantly seeing red dots in my underwear. At least 4 - 5 dots in 3 - 4 days time. They were clearly coming from my penis and had nothing to do with my anus. These little bleedings continued
Arjunaone
in
Men's Health Forum
8 years ago
CharlesHH
Hello, I am a 53 year old male that was diagnosed in 2012 with rrms and is now in a progressive stage. I was on copaxone for 2 years rebif for 1 year and currently on retuxin every 6 months. I have tried every thing to slow the progression but have not found anything to slow it (i.e. diet,exercise,drugs
Hello, I am a 53 year old male that was diagnosed in 2012 with rrms and is now in a progressive stage. I was on copaxone for 2 years rebif for 1 year and currently on retuxin every 6 months. I have tried every thing to slow the progression but have not found anything to slow it (i.e. diet,exercise,drugs
CharlesHH
in
My MSAA Community
8 years ago
MS has met "its" match !
Hi Everyone, I am new to this community, but from what I read I know I finally found the right "place" to be. There is way too much to get into right now so I'll give you the condensed version. I am a single 52 yo female who has never been married & has no children but I have a dog. I was diagnosed
Hi Everyone, I am new to this community, but from what I read I know I finally found the right "place" to be. There is way too much to get into right now so I'll give you the condensed version. I am a single 52 yo female who has never been married & has no children but I have a dog. I was diagnosed
Me63
in
My MSAA Community
8 years ago
To start a new treatment Beliumumab
Hello everyone How are u all doing? As the title of my post say am about to start a new treatment on monday called beliumumab or belysta which is a biological treatment. On tuesday i was able to get an explanation of the use of the term chemotherapy in relation with lupus treatment. Good enough my mum
Hello everyone How are u all doing? As the title of my post say am about to start a new treatment on monday called beliumumab or belysta which is a biological treatment. On tuesday i was able to get an explanation of the use of the term chemotherapy in relation with lupus treatment. Good enough my mum
ijeasike
in
LUPUS UK
8 years ago
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