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Your advice please - not sure what to do next
Hi all This is my second post with some more info and the hope that you can advise on what my next steps should be as feel like going round in circles at moment :-/ Here’s my lowdown: Have borderline low vit B12 deficiency, 242 ng/l at August 2016 (210-900) and 192ng/l as at May 2018 (181-800). I have
Hi all This is my second post with some more info and the hope that you can advise on what my next steps should be as feel like going round in circles at moment :-/ Here’s my lowdown: Have borderline low vit B12 deficiency, 242 ng/l at August 2016 (210-900) and 192ng/l as at May 2018 (181-800). I have
Scully12
in
Pernicious Anaemia Society
6 years ago
Im experience with PA.
I had several panic attacks, then did a blood test, which showed my red blood cell count was about half of normal and twice as big. the doctors (in Ghana) ignored and told me to go and eat some fruits lol. I did my own research and concluded that it was B12 def. I had a B12 test done and the level was
I had several panic attacks, then did a blood test, which showed my red blood cell count was about half of normal and twice as big. the doctors (in Ghana) ignored and told me to go and eat some fruits lol. I did my own research and concluded that it was B12 def. I had a B12 test done and the level was
Borregaard
in
Pernicious Anaemia Society
6 years ago
Unusual symptoms or normal?
Just diagnosed with b12 def’ following 2 blood tests. Just had first loading injection two days ago and today I feel horrendous. Stomach is bloated and feels like it’s full of acid (if that makes sense). Is this normal, off to docs for second injection tomorrow but I just feel so uncomfortable tonight
Just diagnosed with b12 def’ following 2 blood tests. Just had first loading injection two days ago and today I feel horrendous. Stomach is bloated and feels like it’s full of acid (if that makes sense). Is this normal, off to docs for second injection tomorrow but I just feel so uncomfortable tonight
Rach_Anne
in
Pernicious Anaemia Society
6 years ago
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IF Blocking Antibody Test Cost?
Hi Everyone! Haven’t posted much but am so pleased with all the info I read here. Sadly, I now join the countless others being dismissed by the medical profession in getting help for B12 def, etc. Finally got my (new) Dr. to let me test for Intrinsic Factor and will do that soon. Does anyone know what
Hi Everyone! Haven’t posted much but am so pleased with all the info I read here. Sadly, I now join the countless others being dismissed by the medical profession in getting help for B12 def, etc. Finally got my (new) Dr. to let me test for Intrinsic Factor and will do that soon. Does anyone know what
Pepless
in
Pernicious Anaemia Society
6 years ago
End of the road or new beginning Help required
Hi All I really need soome help ive been to every doctor I can I also tried alternative too nothing has helped. Its time i think I try and help myself but I really need some advice. Im diagnoised with underactive thyroid I take 50 Eltroxin 20 Thybon 60mg CQ10. Im still exhasted bed 9 o clock most night
Hi All I really need soome help ive been to every doctor I can I also tried alternative too nothing has helped. Its time i think I try and help myself but I really need some advice. Im diagnoised with underactive thyroid I take 50 Eltroxin 20 Thybon 60mg CQ10. Im still exhasted bed 9 o clock most night
TiTre
in
Thyroid UK
6 years ago
Further healing through diet
At the age of 35, I was diagnosed with hashimotos. Two years ago at the age of 40, I was diagnosed with pernicious anemia, testing positive for both intrinsic factor and parietal cell antibodies. I'm now on a b12 monthly maintenance schedule and doing well. Like many here, I've also known what it's
At the age of 35, I was diagnosed with hashimotos. Two years ago at the age of 40, I was diagnosed with pernicious anemia, testing positive for both intrinsic factor and parietal cell antibodies. I'm now on a b12 monthly maintenance schedule and doing well. Like many here, I've also known what it's
research4oscar
in
Pernicious Anaemia Society
6 years ago
Baffled
Am baffled. December 2005 B12 Level 106. But had not been told. Jan 2006 Had scopes for tummy trouble and was informed I needed to go to my doctors for B12 jabs for PA. My levels every year where in normal range until 2014 which then have been 2000. Twice the jabs have been stopped for 6 months as my
Am baffled. December 2005 B12 Level 106. But had not been told. Jan 2006 Had scopes for tummy trouble and was informed I needed to go to my doctors for B12 jabs for PA. My levels every year where in normal range until 2014 which then have been 2000. Twice the jabs have been stopped for 6 months as my
yorky60
in
Pernicious Anaemia Society
6 years ago
Newbie- Hyperthyroidism
Hi All, Just looking for some advice and things I can or need to do to alleviate the pain. I had swollen ankles, joint pain lack of sleep, over heating and weight gain this has been going on for over a year with my doctor putting me on frusemide 20 then 40 mg On Friday 29th June I was diagnosed with
Hi All, Just looking for some advice and things I can or need to do to alleviate the pain. I had swollen ankles, joint pain lack of sleep, over heating and weight gain this has been going on for over a year with my doctor putting me on frusemide 20 then 40 mg On Friday 29th June I was diagnosed with
beesting1966
in
Thyroid UK
6 years ago
Here we go again....
I had a g.p. appt last Tuesday (17th July) to discuss the possibility of my having B12 Deficiency, or PA. I took along with me, some paperwork that listed quite a few of the symptoms that I myself am experiencing. After relaying everything that I thought important, including low normal B12, 263ng/
I had a g.p. appt last Tuesday (17th July) to discuss the possibility of my having B12 Deficiency, or PA. I took along with me, some paperwork that listed quite a few of the symptoms that I myself am experiencing. After relaying everything that I thought important, including low normal B12, 263ng/
Chelle1310
in
Pernicious Anaemia Society
6 years ago
Pip Today
I have my Pip assessment today at 1pm feeling very emotional pain level 10. I have totally unmanageable diabetes, long term fibo, rheumatoid factor of 340, can’t move at all worried after reading so many horror stories Dan
I have my Pip assessment today at 1pm feeling very emotional pain level 10. I have totally unmanageable diabetes, long term fibo, rheumatoid factor of 340, can’t move at all worried after reading so many horror stories Dan
Dannyf123
in
Fibromyalgia Action UK
6 years ago
Scary symptoms
I have been losing weight over the past 4 months, from 167 to 123. I have been anemic for years, and in rhe beginning of this 4 months, the symptoms were vague and i thought it was the flu. Doc said i had extremely low iron and vitamin B12 deficiency. as well as vitamin D. I am on all of these still
I have been losing weight over the past 4 months, from 167 to 123. I have been anemic for years, and in rhe beginning of this 4 months, the symptoms were vague and i thought it was the flu. Doc said i had extremely low iron and vitamin B12 deficiency. as well as vitamin D. I am on all of these still
jennyfromthabayfr
in
Pernicious Anaemia Society
6 years ago
B12 in Multivitamin
Hi all, I was diagnosed with PA & Celiac Disease last October after being sick for more than 6 years. 4 of which I could barely put one foot in front of the other let alone remember why I was trying in the 1st place. Every doctor I saw immediately prescribed antidepressants, (which I refused to take
Hi all, I was diagnosed with PA & Celiac Disease last October after being sick for more than 6 years. 4 of which I could barely put one foot in front of the other let alone remember why I was trying in the 1st place. Every doctor I saw immediately prescribed antidepressants, (which I refused to take
esteloca
in
Pernicious Anaemia Society
6 years ago
Advice welcome
I have just been diagnosed with autoimmune gastritis. I have had gastrointestinal problems for years, since the age of 18, and I am now 44. Just before the gastritis diagnoses I asked my GP for a B12 test as I had heard that it could be connected to stomach issues, and I had just found out my dad has
I have just been diagnosed with autoimmune gastritis. I have had gastrointestinal problems for years, since the age of 18, and I am now 44. Just before the gastritis diagnoses I asked my GP for a B12 test as I had heard that it could be connected to stomach issues, and I had just found out my dad has
natcap1
in
Pernicious Anaemia Society
6 years ago
Anecdotes of cures
Is anyone aware of any anecdotes of cures for PA? All over the internet there are stories of people curing cancer through juice diets etc. There are also plenty of people claiming to have cured their autoimmune disease through diet. But you don't really see anything about anyone curing PA. And by
Is anyone aware of any anecdotes of cures for PA? All over the internet there are stories of people curing cancer through juice diets etc. There are also plenty of people claiming to have cured their autoimmune disease through diet. But you don't really see anything about anyone curing PA. And by
topher2018
in
Pernicious Anaemia Society
6 years ago
Intrinsic Factor vs Parietal Cell Antibodies
If a person tested positive for the intrinsic factor antibody but negative to the parietal cell antibody, would that mean that the parietal cells in the stomach are not under attack, only the intrinsic factor that those cells produce? And would that mean that the stomach might be still producing acid
If a person tested positive for the intrinsic factor antibody but negative to the parietal cell antibody, would that mean that the parietal cells in the stomach are not under attack, only the intrinsic factor that those cells produce? And would that mean that the stomach might be still producing acid
topher2018
in
Pernicious Anaemia Society
6 years ago
Recently Diagnosed - Seeking Information
I am a 49 year old male who was diagnosed on July 3, 2018 with pernicious anemia resulting from autoimmune atrophic gastritis based on a B12 level of less than 147 and a positive test for the intrinsic factor antibody. I have been receiving daily shots of B12 (the cobalamin version). They are making
I am a 49 year old male who was diagnosed on July 3, 2018 with pernicious anemia resulting from autoimmune atrophic gastritis based on a B12 level of less than 147 and a positive test for the intrinsic factor antibody. I have been receiving daily shots of B12 (the cobalamin version). They are making
topher2018
in
Pernicious Anaemia Society
6 years ago
Oh dear! I am likely to have B12 toxicity!
Just been to see another different GP for a new prescription for an unrelated problem. While there I said I had not felt as well as I do now for twenty years now I was SI B12 every other day, and have done for 120 days, also added if I try going longer than three days sum specific symptoms return. She
Just been to see another different GP for a new prescription for an unrelated problem. While there I said I had not felt as well as I do now for twenty years now I was SI B12 every other day, and have done for 120 days, also added if I try going longer than three days sum specific symptoms return. She
jointpain
in
Pernicious Anaemia Society
6 years ago
Autoimmune gastritis/PA
Hi everyone, Im wondering if anyone could give me any advice please. I had an endoscopy yesterday, it revealed multiple ulcers and oesophagitis. I’ve been put on omeprazole for 8 wks then a repeat endoscopy to see if any improvement. I thought omeprazole inhibits acid in the stomach but I already
Hi everyone, Im wondering if anyone could give me any advice please. I had an endoscopy yesterday, it revealed multiple ulcers and oesophagitis. I’ve been put on omeprazole for 8 wks then a repeat endoscopy to see if any improvement. I thought omeprazole inhibits acid in the stomach but I already
Sleepyfromwales
in
Pernicious Anaemia Society
6 years ago
Help/suggestions with BH thyroid test results
I have just received the results from my Blue Horizon thyroid +11 test today. Blood test was taken first thing in the morning, finger prick method, fasting. I have not been diagnosed yet with a thyroid disorder, but am pretty sure that's the case as my mother has and grandmother had thyroid disease.
I have just received the results from my Blue Horizon thyroid +11 test today. Blood test was taken first thing in the morning, finger prick method, fasting. I have not been diagnosed yet with a thyroid disorder, but am pretty sure that's the case as my mother has and grandmother had thyroid disease.
Cherj
in
Thyroid UK
6 years ago
Do I ask for more?
Hello Everyone! I was just diagnosed with B12 deficiency (227 was my score). I have been taking a Bioactive liquid Methylcobalamin-Adenosylcobalamin supplement for 12 days now: 2500mcg for 7 days & 5000mcg for 5 days. I do not feel any better at this point. My Dr. did not test for intrinsic factor and
Hello Everyone! I was just diagnosed with B12 deficiency (227 was my score). I have been taking a Bioactive liquid Methylcobalamin-Adenosylcobalamin supplement for 12 days now: 2500mcg for 7 days & 5000mcg for 5 days. I do not feel any better at this point. My Dr. did not test for intrinsic factor and
Pepless
in
Pernicious Anaemia Society
6 years ago
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