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Sero Positive RA
Hi everyone, quick question, I was diagnosed sero positive in 2013 and on 22.5mg Injectable MTX & Hydroxychloroquin, I have changed consultants recently and the new one has done a Nuclear full body bone scan (waiting for the report) but he did my bloods and said Rheumatoid Factor is negative?? I knew
Hi everyone, quick question, I was diagnosed sero positive in 2013 and on 22.5mg Injectable MTX & Hydroxychloroquin, I have changed consultants recently and the new one has done a Nuclear full body bone scan (waiting for the report) but he did my bloods and said Rheumatoid Factor is negative?? I knew
Jillybean1983
in
NRAS
5 years ago
Anyone else seem to have some sort of “triggered” intrinsic factor blocking antibody?
I’m 21 years old, an athlete and up until a couple months ago completely healthy. Then I got mono and 12 weeks later the fatigue had not gone away and the dr found I had a b12 deficiency (135 pg/mL). She then gave me a double dose of B12 shot and then I got blood drawn for an IFBA test. It came back
I’m 21 years old, an athlete and up until a couple months ago completely healthy. Then I got mono and 12 weeks later the fatigue had not gone away and the dr found I had a b12 deficiency (135 pg/mL). She then gave me a double dose of B12 shot and then I got blood drawn for an IFBA test. It came back
merpit349
in
Pernicious Anaemia Society
5 years ago
3rd time.
Hi folks hope ur coping well. 1st time had my doses I think 2 three times a week then 1 every 2 months I started to feel better then after 2 months it was stopped. Then back to the doctors weeks later after more or less begging it was reinstated BUT every 3 months now it’s better than nowt. Then 3 months
Hi folks hope ur coping well. 1st time had my doses I think 2 three times a week then 1 every 2 months I started to feel better then after 2 months it was stopped. Then back to the doctors weeks later after more or less begging it was reinstated BUT every 3 months now it’s better than nowt. Then 3 months
Chance15
in
Pernicious Anaemia Society
5 years ago
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Blood Results Antibodies Positive..Any Help or Guidance?
Below are my lab results. Diagnosed Graves Disease February 2019. Off thyroid medication. Feel awful. Pain left side of my head, shoulder, arm, hip and thigh. Itchy eyebrows. Also flush cheeks. Have deviated septum and possible TMJ. Recently put on estrogen patch. Been a year of feeling sick. Why if
Below are my lab results. Diagnosed Graves Disease February 2019. Off thyroid medication. Feel awful. Pain left side of my head, shoulder, arm, hip and thigh. Itchy eyebrows. Also flush cheeks. Have deviated septum and possible TMJ. Recently put on estrogen patch. Been a year of feeling sick. Why if
Kim327
in
Thyroid UK
5 years ago
Functional doctor checking everything!
I posted here before about my suspected low B12 and my experience with my unsympathetic GP. I visited my consultant who was also not interested in listening to me. In fact he was taking blood while I was telling him I was sure I was low in B12 again and he didn't bother to even check it even though I
I posted here before about my suspected low B12 and my experience with my unsympathetic GP. I visited my consultant who was also not interested in listening to me. In fact he was taking blood while I was telling him I was sure I was low in B12 again and he didn't bother to even check it even though I
MariaMe
in
Pernicious Anaemia Society
5 years ago
Intrinsic factor antibody
Hi guys I’ve just had an intrinsic factor antibody blood test came back as 1.45U/ml with I think a reference range of 0.00-6.00 can anyone explain what that means?
Hi guys I’ve just had an intrinsic factor antibody blood test came back as 1.45U/ml with I think a reference range of 0.00-6.00 can anyone explain what that means?
Pixielula
in
Pernicious Anaemia Society
5 years ago
Pernicious anemia with "normal" B12, MMA, and homocysteine
https://www.ncbi.nlm.nih.gov/pubmed/20587489 "Serum B(12) levels ranged from 267 to 447 pg/ml. Homocysteine and methylmalonic acid levels were normal. Testing for antibody to intrinsic factor was positive, consistent with pernicious anaemia. After treatment with intramuscular B(12) injections (1000
https://www.ncbi.nlm.nih.gov/pubmed/20587489 "Serum B(12) levels ranged from 267 to 447 pg/ml. Homocysteine and methylmalonic acid levels were normal. Testing for antibody to intrinsic factor was positive, consistent with pernicious anaemia. After treatment with intramuscular B(12) injections (1000
genesurf
in
Pernicious Anaemia Society
5 years ago
Confused person!
Due to terrible brain fog, confusion and memory problems - I am trying to take stock of where I am. If this is repetitive, I am sorry. Brief history: ME/CFS diagnosed 15 years ago (although having obtained my blood test results recently my B12 was 165 ng/L in 2005), 2 years ago diagnosis of colorectal
Due to terrible brain fog, confusion and memory problems - I am trying to take stock of where I am. If this is repetitive, I am sorry. Brief history: ME/CFS diagnosed 15 years ago (although having obtained my blood test results recently my B12 was 165 ng/L in 2005), 2 years ago diagnosis of colorectal
sea55red
in
Pernicious Anaemia Society
5 years ago
GCA worries
Hi. I’ve been hiding in the wings here for a while, gleaning information. My GP has now been treating me for PMR and, according to her Temporal arteritis/GCA symptoms for about 3 weeks now but I’ve had symptoms on and off for some time. I’m almost 50 and have always been healthy apart from having Sjogren
Hi. I’ve been hiding in the wings here for a while, gleaning information. My GP has now been treating me for PMR and, according to her Temporal arteritis/GCA symptoms for about 3 weeks now but I’ve had symptoms on and off for some time. I’m almost 50 and have always been healthy apart from having Sjogren
JustKath
in
PMRGCAuk
5 years ago
B12 injections been stopped
Hoping for some advice please. My apologies for the length. I have hypothyroidism and B12 deficiency diagnosed in 2017. I also have IBS with a dairy sensitivity since I was 15. I have a healthy balanced diet but cannot digest red meat and have to monitor my dairy input daily. I have been having B12
Hoping for some advice please. My apologies for the length. I have hypothyroidism and B12 deficiency diagnosed in 2017. I also have IBS with a dairy sensitivity since I was 15. I have a healthy balanced diet but cannot digest red meat and have to monitor my dairy input daily. I have been having B12
puddings1
in
Pernicious Anaemia Society
5 years ago
Intrinsic factor test reliability
Would one of you very knowledgeable people please remind me why the anti parietal cell/intrinsic factor test isn’t to be relied upon please. I’m trying to prepare for tomorrow’s fight with GP. Thank you.
Would one of you very knowledgeable people please remind me why the anti parietal cell/intrinsic factor test isn’t to be relied upon please. I’m trying to prepare for tomorrow’s fight with GP. Thank you.
Parlay
in
Pernicious Anaemia Society
5 years ago
Blood Test results - Please Advise...
Hi, I had a blood test at my GP surgery in September and my results were: Serum B12 level: 119 ng/L (150-900) Serum Folate level: 2.3 ug/L (3.1-19.9) I did a thriva blood test after supplementing 5mg folic acid for 4 weeks and 1000mcg Jarrows B12 for 3 weeks and my results are: Total B12: 352 pmol
Hi, I had a blood test at my GP surgery in September and my results were: Serum B12 level: 119 ng/L (150-900) Serum Folate level: 2.3 ug/L (3.1-19.9) I did a thriva blood test after supplementing 5mg folic acid for 4 weeks and 1000mcg Jarrows B12 for 3 weeks and my results are: Total B12: 352 pmol
Sarahlouise1980
in
Pernicious Anaemia Society
5 years ago
latest bloods
stopped ALL supplements including spatone and b12 blood results...holy moly no wonder i feel like poop SERUM B12 AND FOLATE Serum vitamin B12 level 745 ng/L [180.0 - 915.0] Serum folate level 6.5 ug/L [3.1 - 19.9] SERUM FOLATE COMMENT Please note new reference range due to restandardisation to World
stopped ALL supplements including spatone and b12 blood results...holy moly no wonder i feel like poop SERUM B12 AND FOLATE Serum vitamin B12 level 745 ng/L [180.0 - 915.0] Serum folate level 6.5 ug/L [3.1 - 19.9] SERUM FOLATE COMMENT Please note new reference range due to restandardisation to World
mandy72
in
Thyroid UK
5 years ago
Advice needed please
Hi, I have been experiencing various problems over the years but the last couple of months I seem to have crashed. I tested positive for Parietal cell and Intrinsic Factor antibodies about 5 years ago but I didn't think too much about it at the time and my GP dismissed it as not important. I suffer from
Hi, I have been experiencing various problems over the years but the last couple of months I seem to have crashed. I tested positive for Parietal cell and Intrinsic Factor antibodies about 5 years ago but I didn't think too much about it at the time and my GP dismissed it as not important. I suffer from
Fallingapart0627
in
Pernicious Anaemia Society
5 years ago
B12 Deficient Newby - More Questions
So I recently posted about getting the intrinsic factor test and how long to stop injections before taking it. So had the test, and of course it has come back negative. Doctor originally was going to stop the injections, but after I protested and showed him current documentation he relented and is allowing
So I recently posted about getting the intrinsic factor test and how long to stop injections before taking it. So had the test, and of course it has come back negative. Doctor originally was going to stop the injections, but after I protested and showed him current documentation he relented and is allowing
Wolf79
in
Pernicious Anaemia Society
5 years ago
Help with a mystery needed
In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get pregnant a naturopathic dr found that my b12 levels were 350... at the time I had no symptoms. I remember her talking about intrinsic factor
In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get pregnant a naturopathic dr found that my b12 levels were 350... at the time I had no symptoms. I remember her talking about intrinsic factor
CW12
in
Pernicious Anaemia Society
5 years ago
Newly diagnosed
Hello All, I have been diagnosed with PA the one where my body attacks the intrinsic factor. This is all new to me. I am 35 and finally all of my symptoms seem to make sense. My b12 is a 309 which seems to be at the lower end yet according to my blood results isn’t low exactly. My doctor just said all
Hello All, I have been diagnosed with PA the one where my body attacks the intrinsic factor. This is all new to me. I am 35 and finally all of my symptoms seem to make sense. My b12 is a 309 which seems to be at the lower end yet according to my blood results isn’t low exactly. My doctor just said all
Drimmer
in
Pernicious Anaemia Society
5 years ago
Diagnosis
In July I was feeling unwell with extreme fatigue, dizziness, pins & needles, breathlessness & palpitations. Blood tests showed B12 137 n190 - 660 folate 3.7 n 3.9 - 26.8 24 hour ECG showed first degree heart block. I had to wait 3 months to have B12 rechecked & IF antibodies checked. In October the
In July I was feeling unwell with extreme fatigue, dizziness, pins & needles, breathlessness & palpitations. Blood tests showed B12 137 n190 - 660 folate 3.7 n 3.9 - 26.8 24 hour ECG showed first degree heart block. I had to wait 3 months to have B12 rechecked & IF antibodies checked. In October the
Sinclair12
in
Pernicious Anaemia Society
5 years ago
New test results are in
Family doctor - tested b12 with a result of <50 (undetectable?) and referred to neurologist due to neuropathy symptoms Neurologist - 2 more b12 related testing. All 3 of which normalized after 6 weekly shots. But found i had antibodies to parietal cells and intrinsic factor. Stopped injections and sent
Family doctor - tested b12 with a result of <50 (undetectable?) and referred to neurologist due to neuropathy symptoms Neurologist - 2 more b12 related testing. All 3 of which normalized after 6 weekly shots. But found i had antibodies to parietal cells and intrinsic factor. Stopped injections and sent
BethCam
in
Pernicious Anaemia Society
5 years ago
Intrinsic Factor
Hi, I have vitamin B12 injections every 8 weeks but started having to reduce the length of time in between as found the 2 weeks were neurologically symptomatic. I am now finding I’m hitting the 6 week mark and I am so fatigued and symptomatic it is getting me down. I had a blood test before my last injection
Hi, I have vitamin B12 injections every 8 weeks but started having to reduce the length of time in between as found the 2 weeks were neurologically symptomatic. I am now finding I’m hitting the 6 week mark and I am so fatigued and symptomatic it is getting me down. I had a blood test before my last injection
Gloucester12
in
Pernicious Anaemia Society
5 years ago
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