FYI -Statement From the Macular Society FB... - Macular Society

Macular Society

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FYI -Statement From the Macular Society FB page yesterday & Gov alert

11 Replies

"A reminder that anti-VEGF injections are urgent medical appointments. During lockdown patients should still attend their injections if they are well enough to do so and haven’t been told to self isolate #covid19"

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11 Replies
Corriesboy profile image
Corriesboy

Thanks I have been really worried about this, as I have appointment mid April and hope it goes ahead. My last injection was January and now on scans and checkup to see if I need another. Worried sick about my eye deteriorating and not being able to get injection just like lots of other people.

Going to a hospital doesn’t bother me I can take precautions. I’m in Scotland.

Thanks for you advice

🙏❤️

in reply toCorriesboy

I'm worried for everyone too x I see these positive messages from the Mac Soc but then i see on here some clinics are closing or restricting who gets inj ....I know the mac soc and royal college of Ophthalmologists are working together communicating with clinics, just hope they listen!

Take care x

Shimano profile image
Shimano in reply toCorriesboy

Hi corriesboy. Also in Scotland and have Consultation for 4 April for review. 2 months since last injection and no further appt given yet. May have to phone and see what situation is, that’s if I can get through. Also, I am worried about being in hospital environment. What precautions will you take apart from hand washing etc. Stay well everybody. Off for a solitary walk to listen to the birds sing.

Corriesboy profile image
Corriesboy in reply toShimano

Hi Shimano,

I haven’t heard anything from hospital so just taking it that appointment will go ahead .

Wash hands, stay a safe distance even if I have to stand , gloves 🧤 I’m in Lanarkshire not the best area 😳😷

Take care and stay safe.

🙏😃

Shimano profile image
Shimano in reply toCorriesboy

Thanks corriesboy. No, Lanarkshire can be a bit hairy. It’s reputation isn’t the best. The system not the folks I think. Hate the injections which I find very painful but be worse not to get them....I think!!!all the best. Shimano ......that the name of my bike by the way.

Corriesboy profile image
Corriesboy in reply toShimano

Corriesboy was my horse name , I’ve had 18 injections all at Hairmyres Hospital and have to say not one problem. Nurses are wonderful. Only once I had one from a doctor which I did feel , so I said to receptionist and they put me in with nurses in future as I I’m working day after injection.

Where do you go?

X

Shimano profile image
Shimano in reply toCorriesboy

Ayrshire. Interesting your pain depends on who does it. All mine painful but HOW they are given makes a difference. Seem to be allergic to iodine so eyes like barbed wire afterwards for 24 hrs. I think they did something different last time so had no agony afterwards. Previous time looked like something out of horror movie as had burst blood vessel. Guess you miss having a horse but great to have had one. News horrific tonight. Take care.

Corriesboy profile image
Corriesboy in reply toShimano

Still have my daughters horse and 10 Shetlands . Shetland foal due in May . Keeps me busy. But I do also work full time , working from home at moment.

Yes the news is awful ,younger healthy people seem to be getting this and passing .

The nurses at hairmyres always irrigate the eye well after the iodine is applied , honestly no pain or irritation after apart from that one time the doctor gave me it , sometimes I wonder have I had an injection they are so good, even the actual injection it over in seconds they really are a great lot of nurses in there and they saved my sight as it was going fast in left eye very scary .

I have Myopic CNV .

Take care and stay safe 🙏

Shimano profile image
Shimano in reply toCorriesboy

Blimey. Can you send me a nurse. A totally different experience from mine. Good to have horses around. Animals often more sense than humans and more compatable. Raining but going for a run on the bike to get some fresh air. Great to still be able to get out of the house. Cheers.

tallyho profile image
tallyho

I am going to watch thank you for posting this

Sijslws profile image
Sijslws

I live on the Sussex Coast and whilst on monthly Eyelea injections the notification of the next appointment comes out in the post a couple of weeks before but once in a while it doesn't happen and I have had to phone up. Am now coming overdue for receiving an appointment Fortunately the Eye Unit is no longer within the District Hospital but on what was the site of a closed hospital adjacent to hospital trust operated outpatient clinics. As I am over 70 with Type 2 Diabetes and due to her COPD my wife is on the extra vulnerable register we are having to be extra stringent on the stay at home requirements. Have received no communication as to what is happening to the Injections Clinic and as the Injections Clinic is almost entirely older people would not be surprised if they were cancelled or severely curtailed. If I were to receive an appointment I would certainly have a dilemma between the importance of keeping on top of the injection regime for my eyes and the need to maintain the strict isolation to keep my wife safe. To get myself to the Eye Clinic involves two buses in each direction.

Alun

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