Experiences with

Fibrosis

HiI was diagnosed with bronchiectasis at the beginning of the year, at the time it was mentioned i have a mutated CFTR gene, which I assumed meant I was a carrier. My daughter had CF in the 80's. I've just been to the CF clinic, i thought it was for gene studies , and was gobsmacked to be told I have

55yr old man born with no immune system, Brutons XLA , led to bronchiectasis or Non Famillia Cystic Fibrosis. Lung conditions went into freefall since Xmas, now on oxygen 24hs a day and being referred for transplant list . Anyone out there either been or going through the same process.

has anyone here cured corporal fibrosis? I cant get hard,only semis,got diagnosed with corpora fibrosis(not peyronies) of the upper third of my penis.Considering doing prp and stem cells therapy.

Has anyone any idea how long repair of a mild stage of fibrosis takes, with a healthy lifestyle, no alcohol etc?

Before my sct I had significant fibrosis of my bone marrow. I have recently had a bone density scan which is in the osteopenia levels but I am 71. I don't really know what happens to the fibrosis after the sct.

Key point "If you can stop the inflammation, you will halt the fibrosis. Once you do that, you give your body's cleanup systems time to work on the fibrosis. If you can maintain an inflammation free organ, the body can reduce the amount of fibrosis in it over time.

For instance if VAF is 20% and reticulin fibrosis is MF 0-1+/3, would it be expected that if VAF was say 50% that reticulin fibrosis might jump to MF 2/3 or even 3/3? Hope I have made sense.

Hi Everyone, Scarring, or fibrosis, in the liver is what causes its stiffness. Correct?

Hi there. Continuing my journey to recovery, I was today told by my doctor that I need to have a blood test to see if I have any scarring of the liver. My LFT’s are better than they were in June last year. An ultrasound in August 23 noticed a fatty liver. So, can you still get scarring of the liver

Hi Everyone, Scarring, or fibrosis, in the liver is what causes its stiffness. Correct? Thanks, Terry

However, nobody really spoke to the value of the Fib-4 equation score as a valid indicator of the extent of fibrosis, about which I was curious. What are your opinions on Fib-4?

has anyone any advice on how serious dermal fibrosis is at all as there seems to be very little information available.

Hi everyone Just wondering about taking resveratrol supplements as it’s said it can be against liver fibrosis. Do you have any experience?

So sle can cause breathing problems beyond the textbook fibrosis and pleura issues.

Just had a Liver Fibrosis Blood Panel done: Fibrosis score is 0.85 indicating severe fribrosis. What a contradiction. AST is fine, ALT slightly elevated (45). Bilirubin high but could be due to my hereditary spherocytosis (a type of anemia).

Hi All, What are people's thoughts on the Fib-4 test in terms of its accuracy and reliability as an indicator of fibrosis? Thanks in advance, TT

Hi All, What are people's thoughts on the Fib-4 test in terms of its accuracy and reliability as an indicator of fibrosis? Thanks in advance, TT

Well after receiving a fibroscan and score being kpa 19.4 cap 3 50 they gave me a diagnosis of stage 4 fibrosis. My bloods are all normal, ultersound picked up on N.A.F.L.D but outline of my liver was smooth ..

The fibroscan shoes 19.5 apk 350 cap now Been told that stage 4 fibrosis I'm so scared only 33 I don't drink or smoke

Recently drug was approved by fda for reducing liver fibrosis .Is any body aware of this drug or anybody has experience using it