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Recent visit with my RLS Neurologist
Hello RLS community, I had a recent session with my neurologist who is part of the Oregon Health Science University here in Portland. This is my go to doctor for conditions related to RLS. In my most recent visit with him he said he wanted to confirm some thoughts he had about my condition and ordered
Hello RLS community, I had a recent session with my neurologist who is part of the Oregon Health Science University here in Portland. This is my go to doctor for conditions related to RLS. In my most recent visit with him he said he wanted to confirm some thoughts he had about my condition and ordered
jinolke
in
Restless Legs Syndrome
2 months ago
Vitamin and antibody blood test
I got my results back from my test I did on Monday. I’ve attached screen shots below. My ferritin has improved and my antibodies have always been 80 but they seem to have halved ! My vitamin d has also improved. Please can you have a look and see what you think ? And what are thyroglobulin antibodies
I got my results back from my test I did on Monday. I’ve attached screen shots below. My ferritin has improved and my antibodies have always been 80 but they seem to have halved ! My vitamin d has also improved. Please can you have a look and see what you think ? And what are thyroglobulin antibodies
Tuesday28
in
Thyroid UK
2 months ago
Help please to understand blood test results a month after c vaccine
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
brenanddave
in
Pernicious Anaemia Society
2 months ago
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Bad batch of B12
Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every other day, increased to every day after having Covid in July 2021. Taking control has felt miraculous as I have been able to return to full-time
Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every other day, increased to every day after having Covid in July 2021. Taking control has felt miraculous as I have been able to return to full-time
LizWilsonpa
in
Pernicious Anaemia Society
2 months ago
high b12 high mch and mcv
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
nyx19
in
Pernicious Anaemia Society
2 months ago
Just having a bad day
April hasn't been a good month for me and synotoms. Been on only 50mcg levo since end of September. Only JUST this week got an increase to 75 thanks to the private bloods I did due to recommendations on this site. First I caught a sinus cold at the start of Easter break, which triggered a flare up
April hasn't been a good month for me and synotoms. Been on only 50mcg levo since end of September. Only JUST this week got an increase to 75 thanks to the private bloods I did due to recommendations on this site. First I caught a sinus cold at the start of Easter break, which triggered a flare up
Obsdian
in
Thyroid UK
2 months ago
Notes for upcoming GP appointment
Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice. I'm wanting to ask for a Rheumatology referral and have written the below out as a crib sheet for me to take in. I'd appreciate any thoughts
Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice. I'm wanting to ask for a Rheumatology referral and have written the below out as a crib sheet for me to take in. I'd appreciate any thoughts
Wispymisty
in
LUPUS UK
2 months ago
Baclofen and PLMD symptoms
About two months ago I strained my back lifting a swimming pool pump. My PLMD symptoms immediately increased. I began upping my dosage of Baclofen up to 80 mg some nights. My PLMD kept getting worse. My VA Dr ordered a CAT scan, which showed nothing wrong. I met with him after the results came back,
About two months ago I strained my back lifting a swimming pool pump. My PLMD symptoms immediately increased. I began upping my dosage of Baclofen up to 80 mg some nights. My PLMD kept getting worse. My VA Dr ordered a CAT scan, which showed nothing wrong. I met with him after the results came back,
Wanman4
in
Restless Legs Syndrome
6 months ago
Increased my ferritin levels
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Pippins2
in
Restless Legs Syndrome
2 months ago
Help with PCOS inositol supplements (trying to conceive!)
Hi all! I've been diagnosed with PCOS in my teens. I had most of the symptoms on the list, no periods, acne, hirsutism, heavy bleeding when periods deign to appear. I lost count of how many different pills I took and had most of their side effects (apart from blood clots thankfully!). It got to a point
Hi all! I've been diagnosed with PCOS in my teens. I had most of the symptoms on the list, no periods, acne, hirsutism, heavy bleeding when periods deign to appear. I lost count of how many different pills I took and had most of their side effects (apart from blood clots thankfully!). It got to a point
Afive
in
PCOS UK (Verity)
6 months ago
My Gabapentin Dilemma
Help! I need some advice regarding my Gabapentin treatments. This is my first post so I hope I don’t ramble too much. I’m over 70 years old with RLS for over 30-40 years. Fortunately I don’t have RLS attacks during the day but have them almost every night after I fall asleep. On high doses of Gabapentin
Help! I need some advice regarding my Gabapentin treatments. This is my first post so I hope I don’t ramble too much. I’m over 70 years old with RLS for over 30-40 years. Fortunately I don’t have RLS attacks during the day but have them almost every night after I fall asleep. On high doses of Gabapentin
Sleepless82
in
Restless Legs Syndrome
2 months ago
Escape from DA Augmentation
Thanks to the support of several contributors to this forum and especially Joolsg, LotteM, and my patient GP, I have been able to plan a route which seems at last to be positive and I feel I should post a note on my current situation. I am 3 months+ since my last DA rotigotine patch and at which point
Thanks to the support of several contributors to this forum and especially Joolsg, LotteM, and my patient GP, I have been able to plan a route which seems at last to be positive and I feel I should post a note on my current situation. I am 3 months+ since my last DA rotigotine patch and at which point
davchar23
in
Restless Legs Syndrome
6 months ago
FINALLY found a scientific study that supports my theory about Brain Iron and Serum Iron. Finally!!!
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
DesertOasis
in
Restless Legs Syndrome
7 months ago
do I need to stop Biotin containing supplements before a Blue Horizon iron status profile test?
I am testing my iron after very low ferritin results on a thyroid plus vitamins test ( I am seeing a Dr at private online clinic from the Thyroid UK list) In the past II had normal/high iron, so before I supplement I want to check all the iron indicators my question is: do I need to stop my b complex
I am testing my iron after very low ferritin results on a thyroid plus vitamins test ( I am seeing a Dr at private online clinic from the Thyroid UK list) In the past II had normal/high iron, so before I supplement I want to check all the iron indicators my question is: do I need to stop my b complex
london81
in
Thyroid UK
6 months ago
Could it be MS?
For the last 11 months, I have been experiencing numbness and tingling in both feet. I have noticed when its cold I feel worse. I also have numbness, tingling and weakness on my left side in my hand and lower arm. I had a MRI in April 2023 with no contrast; both came back normal. My symptoms have
For the last 11 months, I have been experiencing numbness and tingling in both feet. I have noticed when its cold I feel worse. I also have numbness, tingling and weakness on my left side in my hand and lower arm. I had a MRI in April 2023 with no contrast; both came back normal. My symptoms have
brwnbaby
in
My MSAA Community
6 months ago
foods to eat for longevity
https://theenergyblueprint.com/foods-you-need-to-eat-for-longevity/?inf_contact_key=77e91c5d37fb88ad538161bb2cf2cb6ecc0558ed5d4c28cbfab114022b1ec50d Energy blueprint. Foods & Supplements You NEED TO EAT For Longevity and Energy | Dr. Michael Murray. This was really interesting. (Transcript has a few
https://theenergyblueprint.com/foods-you-need-to-eat-for-longevity/?inf_contact_key=77e91c5d37fb88ad538161bb2cf2cb6ecc0558ed5d4c28cbfab114022b1ec50d Energy blueprint. Foods & Supplements You NEED TO EAT For Longevity and Energy | Dr. Michael Murray. This was really interesting. (Transcript has a few
LAJ12345
in
Cure Parkinson's
8 months ago
Sunshine jane
HelloMy friend had her thyroid removed 30 years ago and is very poorly with fatigue and body pains. Her GP refuses to test for iron saying she is showing ok for iron in recent iron tests. She is coming to see me today for advice re what to do, may be blood test with Medichecks. Can anyone suggest the
HelloMy friend had her thyroid removed 30 years ago and is very poorly with fatigue and body pains. Her GP refuses to test for iron saying she is showing ok for iron in recent iron tests. She is coming to see me today for advice re what to do, may be blood test with Medichecks. Can anyone suggest the
smilingjane
in
Thyroid UK
2 months ago
Opinion on RLS diagnosis
I am a 35 YO female, and I’ve been suffering from migraine for the past 3 years. The intensity and frequency of migraine has increased throughout the years going from 1 debilitating attack per month to 6-8 per month.Last august 2023, I had an increase in attacks and that’s when the supposedly RLS symptoms
I am a 35 YO female, and I’ve been suffering from migraine for the past 3 years. The intensity and frequency of migraine has increased throughout the years going from 1 debilitating attack per month to 6-8 per month.Last august 2023, I had an increase in attacks and that’s when the supposedly RLS symptoms
Ariel88
in
Restless Legs Syndrome
5 months ago
Vitamin D levels
Hi guys, have a blood test at my GP tomorrow morning after I sent a message about getting my Vit D, Folate, Ferritin, B12 etc tested Is it the case now that if deficient, GPs won't treat? My levels a couple of years ago were 16 so very deficient Just worried if it comes back that low again, that GP
Hi guys, have a blood test at my GP tomorrow morning after I sent a message about getting my Vit D, Folate, Ferritin, B12 etc tested Is it the case now that if deficient, GPs won't treat? My levels a couple of years ago were 16 so very deficient Just worried if it comes back that low again, that GP
yewotc23
in
Thyroid UK
2 months ago
New to the group - looking for some realistic advice on recovery time after loading doses
Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this hasn't been mentioned at all by my GP). Had 6 x loading doses followed by 5mg folic acid that I'm on for three months. I was told last week that since
Hi all. I am new to the group and this delightful condition we all have! Similar story to many, blood tests showing low B12/folate/ferritin (although this hasn't been mentioned at all by my GP). Had 6 x loading doses followed by 5mg folic acid that I'm on for three months. I was told last week that since
ClaireWF1346
in
Pernicious Anaemia Society
3 months ago
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