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Newbie
Hello all, I’m new here and just after some advice because this world of endo feels a little overwhelming atm. A little about me - I’m 27yo and have always suffered with v heavy painful periods and accepted it as ‘normal’. Was on mefenamic acid in my early teens, then got by on OTC painkillers. Tricycled
Hello all, I’m new here and just after some advice because this world of endo feels a little overwhelming atm. A little about me - I’m 27yo and have always suffered with v heavy painful periods and accepted it as ‘normal’. Was on mefenamic acid in my early teens, then got by on OTC painkillers. Tricycled
SamQuinn
in
Endometriosis UK
3 years ago
Professor Furniss discusses surgery to prevent lymphoedema at the time of lymph node removal.
In the next of our questions to the expert series Professor Furniss and Anita discuss the use of surgery to prevent lymphoedema at the time of lymph node removal. https://youtu.be/4aSbVPe_wg4
In the next of our questions to the expert series Professor Furniss and Anita discuss the use of surgery to prevent lymphoedema at the time of lymph node removal. https://youtu.be/4aSbVPe_wg4
LymphSuppNetwork
LSN
in
LSN
3 years ago
Had anyone had the Covid antibody test?
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be covered 35-55% for the Covid vaccine. I am taking three of these. It recommended an antibody test - it was the SARS COVID anti spike test I think
christine2715
in
PMRGCAuk
3 years ago
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Still waiting for gallbladder removal
Hi there, i was diagnosed with gallstones in may 2020. At the time i couldnt have anything done as i was pregnant and in my third trimester. Since then i have made frequent visits to a&e for pain relief. They hve sent me home with co amoxiclav 4 times as always showing infection. I have also had ERCP
Hi there, i was diagnosed with gallstones in may 2020. At the time i couldnt have anything done as i was pregnant and in my third trimester. Since then i have made frequent visits to a&e for pain relief. They hve sent me home with co amoxiclav 4 times as always showing infection. I have also had ERCP
Bbbhddd
in
British Liver Trust
3 years ago
Surgical Menopause - Estradiol gel dose???
Hi all, Anyone who takes estradiol gel for menopause, please may I ask how many pumps you apply each day? I had a total hysterectomy a year ago (everything removed including tubes ovaries cervix) which of course meant I started surgical menopause straight away. After 6 weeks I was prescribed Estradiol
Hi all, Anyone who takes estradiol gel for menopause, please may I ask how many pumps you apply each day? I had a total hysterectomy a year ago (everything removed including tubes ovaries cervix) which of course meant I started surgical menopause straight away. After 6 weeks I was prescribed Estradiol
Mashtikka
in
Endometriosis UK
3 years ago
Butterfingers! Feeling frustrated and poor.
I am dyspraxic, which means that I have always been extremely clumsy and have terrible executive functioning. With advancing age, my dyspraxia has also meant that I have also experienced increasing aphasia - I can often see/hear the word in my brain, it just doesn't make it to my mouth. Since being on
I am dyspraxic, which means that I have always been extremely clumsy and have terrible executive functioning. With advancing age, my dyspraxia has also meant that I have also experienced increasing aphasia - I can often see/hear the word in my brain, it just doesn't make it to my mouth. Since being on
Hidden
in
PMRGCAuk
3 years ago
I’m new
Hello, I have been having digestive problems for some time now ....endoscopy was normal and so I asked my gp to refer me to a gastroenterologist. Due to covid I’ve not met him but spoken on the telephone....he noticed on a CT scan that I had 10 years ago before gallbladder removal that I had a fatty
Hello, I have been having digestive problems for some time now ....endoscopy was normal and so I asked my gp to refer me to a gastroenterologist. Due to covid I’ve not met him but spoken on the telephone....he noticed on a CT scan that I had 10 years ago before gallbladder removal that I had a fatty
Mrsmaggie
in
British Liver Trust
3 years ago
Long timer-choice between Faslodex + Picray or Tamoxifen
17 years since diagnosed at stage IV with bone mets, E + P+ her2neu - mbc. Almost five years on Femara (Letrozole) plus Zometa, then over 9 years on Faslodex plus Zometa, then Xgeva, now over 3 years on Exemestane plus Xgeva. Alot of lymph nodes showing up on scans , had cancer cells found in blockage
17 years since diagnosed at stage IV with bone mets, E + P+ her2neu - mbc. Almost five years on Femara (Letrozole) plus Zometa, then over 9 years on Faslodex plus Zometa, then Xgeva, now over 3 years on Exemestane plus Xgeva. Alot of lymph nodes showing up on scans , had cancer cells found in blockage
PJBinMI
in
SHARE Metastatic Breast Cancer
3 years ago
Information for people in the UK on Tocilizumab (Ro-Actemra) injections
Hello, and apologies for not posting for such a long time. As one of the few (and greatly privileged) LVV-GCA sufferers in the UK lucky enough to have been prescribed subcutaneous Tocilizumab injections, I have a couple of items of news. First of all, along with my husband, I have been a participant
Hello, and apologies for not posting for such a long time. As one of the few (and greatly privileged) LVV-GCA sufferers in the UK lucky enough to have been prescribed subcutaneous Tocilizumab injections, I have a couple of items of news. First of all, along with my husband, I have been a participant
Suzita76
in
PMRGCAuk
3 years ago
Hyster+Oopherectomy vs Lupron/Orlissa for endo pain?
I'm new the group and have been reading all of your helpful posts about endo, surgery, pain relief, etc. I wanted to get some feedback on hysterectomy+oopherectomy for severe endometriosis and recurrent endometrioma or would taking Lupron or Orlissa be a better way to go? I'm also wondering for those
I'm new the group and have been reading all of your helpful posts about endo, surgery, pain relief, etc. I wanted to get some feedback on hysterectomy+oopherectomy for severe endometriosis and recurrent endometrioma or would taking Lupron or Orlissa be a better way to go? I'm also wondering for those
ciaotuffy
in
Endometriosis UK
3 years ago
Has anyone on here moved abroad with MBC?
I am planning on moving to Europe (feel free to recommend) in 2023. I was diagnosed with de novo stage IV breast cancer in Aug 2013 at 42. 12 weeks of taxol straight in a row, all mets (lung, breast, liver) responded well. Hysterectomy Dec 2013, lumpectomy Dec 2014. Been NED for many years and am
I am planning on moving to Europe (feel free to recommend) in 2023. I was diagnosed with de novo stage IV breast cancer in Aug 2013 at 42. 12 weeks of taxol straight in a row, all mets (lung, breast, liver) responded well. Hysterectomy Dec 2013, lumpectomy Dec 2014. Been NED for many years and am
luvnak907
in
SHARE Metastatic Breast Cancer
3 years ago
Online groups, talks and workshops with Ovacome this week
Hello All This is to let you know about the Ovacome online events taking place this week. London ovarian cancer support group - Monday 8 March, 3.30-5pm https://www.ovacome.org.uk/Event/london-support-group-event Gentle home exercise class - Tuesday 9 March, 2-3pm https://www.ovacome.org.uk/Event
Hello All This is to let you know about the Ovacome online events taking place this week. London ovarian cancer support group - Monday 8 March, 3.30-5pm https://www.ovacome.org.uk/Event/london-support-group-event Gentle home exercise class - Tuesday 9 March, 2-3pm https://www.ovacome.org.uk/Event
OvacomeSupport
Administrator
in
My Ovacome
3 years ago
Please help!! Ibs , acid reflex or what is it?? Suffering , stressed drs won't listen, and depressed I have no life!
My whole life I was constipated only used the restroom prob once every 2 or 3 weeks! A few years ago I started getting the opposite after what I thought was bad food! Turned out after 10 drs, ultrasound, ctscan, blood test, dehydration and a hida scan my gallbladder was functioning 14% so it came out
My whole life I was constipated only used the restroom prob once every 2 or 3 weeks! A few years ago I started getting the opposite after what I thought was bad food! Turned out after 10 drs, ultrasound, ctscan, blood test, dehydration and a hida scan my gallbladder was functioning 14% so it came out
Noyfb
in
IBS Network
3 years ago
Femara vs tamoxifen for gynecomastia
Femara was suggested to prevent gynecomastia while taking casodex, however it seems tamoxifen is overwhelmingly referenced on this board. Can either of these drugs affect PSA lowering results of casodex, and is tamoxifen preferred and if so why. Thanks as always for your support.
Femara was suggested to prevent gynecomastia while taking casodex, however it seems tamoxifen is overwhelmingly referenced on this board. Can either of these drugs affect PSA lowering results of casodex, and is tamoxifen preferred and if so why. Thanks as always for your support.
jjpeabody
in
Advanced Prostate Cancer
3 years ago
Recovery time after cervical polyp removal
Hi, I have a hospital appointment to remove a small cervical polyp. If you’ve had this procedure, how long after were you able to do physical activity, such as heavy lifting or walking a strong dog that pulls occasionally? Did the hospital insist that someone accompanied you home after the procedure
Hi, I have a hospital appointment to remove a small cervical polyp. If you’ve had this procedure, how long after were you able to do physical activity, such as heavy lifting or walking a strong dog that pulls occasionally? Did the hospital insist that someone accompanied you home after the procedure
IvanaT
in
Women's Health
3 years ago
Pelvic MRI experience..
So I’ve gone from sepsis, to fobbed off, to emergency MRI that I had last night! Results to follow! So far have been told I need an oophorectomy and hysterectomy after the first MDT! Awaiting the second one that is going to compare this MRI with the MRI I had back in November. So I rocked up to my appointment
So I’ve gone from sepsis, to fobbed off, to emergency MRI that I had last night! Results to follow! So far have been told I need an oophorectomy and hysterectomy after the first MDT! Awaiting the second one that is going to compare this MRI with the MRI I had back in November. So I rocked up to my appointment
Heloo85
in
Endometriosis UK
3 years ago
Update to ? Tocilizumab
I recently wrote for advice prior to starting on Tocilizumab as I was little nervous about side effects. I have now had 3 injections and my CRP is back to normal so have started to taper my prednisone down again. However I have been having sharp pains in my head, Rt temporal area, but also above and
I recently wrote for advice prior to starting on Tocilizumab as I was little nervous about side effects. I have now had 3 injections and my CRP is back to normal so have started to taper my prednisone down again. However I have been having sharp pains in my head, Rt temporal area, but also above and
Hiland
in
PMRGCAuk
3 years ago
Journey update: LVV/GCA, tocilizumab and exercise
I have been diagnosed with LVV/GCA beginning of February (though MRI/MRA and PET/CT were not fully conclusive). With the help of Tocilizumab I now arrived at 12.5 mg prednisolone per day. I know that this is a very fast taper but it worked well until now and from now on the steps will become much smaller
I have been diagnosed with LVV/GCA beginning of February (though MRI/MRA and PET/CT were not fully conclusive). With the help of Tocilizumab I now arrived at 12.5 mg prednisolone per day. I know that this is a very fast taper but it worked well until now and from now on the steps will become much smaller
DeepThought2
in
PMRGCAuk
3 years ago
Covid vaccine & PMR
Having had my vaccine today, I asked the nurse if my antibodies would produce equally as well as someone who didn’t have autoimmune issues. She said probably not but the only way to find out that would be to have an antibody test after the 2nd vaccine. I have thyroid issues, hashimotos, and PMR, has
Having had my vaccine today, I asked the nurse if my antibodies would produce equally as well as someone who didn’t have autoimmune issues. She said probably not but the only way to find out that would be to have an antibody test after the 2nd vaccine. I have thyroid issues, hashimotos, and PMR, has
Daisy1624
in
PMRGCAuk
3 years ago
Waiting over 12 months for procedures, how can I escalate this?
Hi everyone. New to these boards although unfortunately not new to endo. After going back and forth to the GP and various consultants for about 4 years I finally got a diagnosis and referred to have a laparoscopy, endoscopy and possible oophorectomy. This was over 12 months ago! I was advised at the
Hi everyone. New to these boards although unfortunately not new to endo. After going back and forth to the GP and various consultants for about 4 years I finally got a diagnosis and referred to have a laparoscopy, endoscopy and possible oophorectomy. This was over 12 months ago! I was advised at the
Vinnie99
in
Endometriosis UK
3 years ago
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