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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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PICC line or not
I had
FCR
in 2016/2017 which I struggled with the last 3 months of treatment, I started on acalabrutanib but after 1 week had to stop due to severe bone pain , so severe I couldn’t get out of bed or a chair , was told nobody has trouble with this treatment.
I had
FCR
in 2016/2017 which I struggled with the last 3 months of treatment, I started on acalabrutanib but after 1 week had to stop due to severe bone pain , so severe I couldn’t get out of bed or a chair , was told nobody has trouble with this treatment.
mush56
in
CLL Support
1 year ago
V + O , TP53 and p13
Is that true of other treatments 3 I'm on V + O for relapse after
FCR
, have all good markers and am being told I'd be on the V for 2 years instead of 1 and there'd be NO MRD testing Is it the understanding of the group that V is required for 2 years in relapsed patients thank you all so much
Is that true of other treatments 3 I'm on V + O for relapse after
FCR
, have all good markers and am being told I'd be on the V for 2 years instead of 1 and there'd be NO MRD testing Is it the understanding of the group that V is required for 2 years in relapsed patients thank you all so much
skipro
in
CLL Support
1 year ago
UK NICE Approves Ibrutinib +Venetoclax for First Line treatment for ALL Patients from today
However, CLL Support highlighted that there were severe inequalities in access to novel therapies in the UK for younger fitter patients who had no right of access to a novel therapy and could still be treated with
FCR
in some hospitals.
However, CLL Support highlighted that there were severe inequalities in access to novel therapies in the UK for younger fitter patients who had no right of access to a novel therapy and could still be treated with
FCR
in some hospitals.
Jm954
Administrator
in
CLL Support
1 year ago
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Update
We had a consult at the Mayo clinic with a transplant specialist who concurs with his local oncologist that a transplant is the best treatment, and also that the MDS is likely the result of his earlier treatment for CLL ( six cycles of
FCR
, nearly ten years ago now).
We had a consult at the Mayo clinic with a transplant specialist who concurs with his local oncologist that a transplant is the best treatment, and also that the MDS is likely the result of his earlier treatment for CLL ( six cycles of
FCR
, nearly ten years ago now).
dwolden
in
CLL Support
8 months ago
Latest bloodwork
I have been on a low dose of (140mg) for the past 5 years and was previously treated with
FCR
in 2013. I will see my oncologist July 6th to discuss what's next. I am leaving for a 5 week camping roadtrip in my VW van on July 7th and really hoping I will not have to cancel.
I have been on a low dose of (140mg) for the past 5 years and was previously treated with
FCR
in 2013. I will see my oncologist July 6th to discuss what's next. I am leaving for a 5 week camping roadtrip in my VW van on July 7th and really hoping I will not have to cancel.
rubberlegs68
in
CLL Support
1 year ago
Severe Thigh Pain
I was diagnosed for CLL 12 months ago and had 6 courses of
FCR
Chemo which ended in August 22 . I have low immune system but feel ok, in the last month I have had severe thigh pain. I did have this during chem but was told due to the injections I had to support me through the period.
I was diagnosed for CLL 12 months ago and had 6 courses of
FCR
Chemo which ended in August 22 . I have low immune system but feel ok, in the last month I have had severe thigh pain. I did have this during chem but was told due to the injections I had to support me through the period.
Hrdy
in
CLL Support
1 year ago
Venetoclax for dummies
That's a rough analogy of how
FCR
works for cll.
FCR
cant really distinguish good cells from cancer cells. Chemotherapy kills all cells indiscriminately with the hope that the new cells produced by our marrow will only be the healthy ones.
That's a rough analogy of how
FCR
works for cll.
FCR
cant really distinguish good cells from cancer cells. Chemotherapy kills all cells indiscriminately with the hope that the new cells produced by our marrow will only be the healthy ones.
cajunjeff
in
CLL Support
1 year ago
dental work while on V + O
A major bridge reconstruction for my front upper and lower teeth During my
FCR
in 2018 I was neutropenic and my oncologist advised against any dental work I have since relapsed had had “all necessary dental work done” before starting V + O.
A major bridge reconstruction for my front upper and lower teeth During my
FCR
in 2018 I was neutropenic and my oncologist advised against any dental work I have since relapsed had had “all necessary dental work done” before starting V + O.
skipro
in
CLL Support
1 year ago
Starting Venetoclax next week
I was diagnosed in 2018, had 6 months of
FCR
in 2019 which went pretty smoothly except for severe Neutropenia. I feel fine and my bloods are within normal range. My TP53 is negative but IGHV unmutated. Anyone had a similar journey, what should I expect? X
I was diagnosed in 2018, had 6 months of
FCR
in 2019 which went pretty smoothly except for severe Neutropenia. I feel fine and my bloods are within normal range. My TP53 is negative but IGHV unmutated. Anyone had a similar journey, what should I expect? X
Floxxy
in
CLL Support
1 year ago
What shall i do??
Can i refuse
FCR
, and ask for Acalabrutinib, or follow the doctor’s advice??
Can i refuse
FCR
, and ask for Acalabrutinib, or follow the doctor’s advice??
Renefaassen
in
CLL Support
2 years ago
CLL and Covid experiences
Hi, I am 65, have relapsed CLL after
FCR
treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them?
Hi, I am 65, have relapsed CLL after
FCR
treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them?
skipro
in
CLL Support
2 years ago
CLL symptoms and Obin reactions
What do any group members know about it Next I remember feeling sick and have spleen pain The months leading up to Tx with
FCR
in early 2018.
What do any group members know about it Next I remember feeling sick and have spleen pain The months leading up to Tx with
FCR
in early 2018.
skipro
in
CLL Support
1 year ago
lymphocytes/neutrophils
Hello everyone, My name is Kim and I’m a 57 year old female with CLL. I was diagnosed 13 years ago and underwent aggressive chemo as a result. After 5 of 6 of fludarabine cyclophosphamide rituximab I went into semi remission and now after many hospitalizations with infection have IVIG once a month
Hello everyone, My name is Kim and I’m a 57 year old female with CLL. I was diagnosed 13 years ago and underwent aggressive chemo as a result. After 5 of 6 of fludarabine cyclophosphamide rituximab I went into semi remission and now after many hospitalizations with infection have IVIG once a month
Kimsome
in
CLL Support
1 year ago
Richters Transformation
I recently informed here that after nine therapy free years since 2014 (
FCR
) my CLL bounced back in 10/2022 with an DLBCL and a suspicion of Richters. Biopsy and Lab tests predicted that.
I recently informed here that after nine therapy free years since 2014 (
FCR
) my CLL bounced back in 10/2022 with an DLBCL and a suspicion of Richters. Biopsy and Lab tests predicted that.
seoul1949
in
CLL Support
11 months ago
Levodopa vs Other Parkinson medicines against Fatigue
Does Sinemet does a good job in improving fatigue compared to other Parkinson's medications? Case history: My mom, 58 years old was diagnosed with Parkinson's two years back. Her major symptom is Fatigue and drug induced dystonia. Then the neurologist prescribed the following set of tablets: Sinemet
Does Sinemet does a good job in improving fatigue compared to other Parkinson's medications? Case history: My mom, 58 years old was diagnosed with Parkinson's two years back. Her major symptom is Fatigue and drug induced dystonia. Then the neurologist prescribed the following set of tablets: Sinemet
gdineshnathan
in
Cure Parkinson's
11 months ago
V + O adverse affects
I am relapsed after
FCR
, have enlarged spleen (2-3 fold normal) ALC of 200,000, Hbg of 12.1 and platelets of 105,000 and EXTREME fatigue before starting treatment. After test dose of 100 mg of O, I felt pretty sick.
I am relapsed after
FCR
, have enlarged spleen (2-3 fold normal) ALC of 200,000, Hbg of 12.1 and platelets of 105,000 and EXTREME fatigue before starting treatment. After test dose of 100 mg of O, I felt pretty sick.
skipro
in
CLL Support
1 year ago
Sinemet Plus 25mg/100mg tablets Side effects?
My brother takes Sinemet plus 25mg/100mg tablets - One and a half tablets at 8am, 11am, 2pm, 5pm and 8pm. Half Sinemet CR 25mg/100mg tablets - one taken at bedtime. I have noticed after taking Sinemet plus he is unable to get out of chair or bed for up to an hour, dizziness and sleepiness. His vision
My brother takes Sinemet plus 25mg/100mg tablets - One and a half tablets at 8am, 11am, 2pm, 5pm and 8pm. Half Sinemet CR 25mg/100mg tablets - one taken at bedtime. I have noticed after taking Sinemet plus he is unable to get out of chair or bed for up to an hour, dizziness and sleepiness. His vision
Sarah106
in
Cure Parkinson's
9 months ago
Relapse/Refractory CLL
Fyi, some info on my CLL: - diagnosed and treated w/
FCR
in 2013 (no watch and wait for me!) - treated again in 2019 with venetoclax+rituximub. I have heart issues, although not Afib, which is why I went w/venetoclax+rituximab in 2019.
Fyi, some info on my CLL: - diagnosed and treated w/
FCR
in 2013 (no watch and wait for me!) - treated again in 2019 with venetoclax+rituximub. I have heart issues, although not Afib, which is why I went w/venetoclax+rituximab in 2019.
TeamDirtyBoots
in
CLL Support
1 year ago
CLL survival times ARE improving, thanks to BTK and BCL-2 inhibitors
Those older chemoimmunotherapy treatments, typically Bendamustine + Rituximab (BR) or Fludarabine + Cyclophosphamide + Rituximab (
FCR
), selected for tougher to treat sub-clones, which they cause through inducing DNA damage that will hopefully trigger apoptosis [u]if[/u] the TP53 gene isn't mutated or
Those older chemoimmunotherapy treatments, typically Bendamustine + Rituximab (BR) or Fludarabine + Cyclophosphamide + Rituximab (
FCR
), selected for tougher to treat sub-clones, which they cause through inducing DNA damage that will hopefully trigger apoptosis [u]if[/u] the TP53 gene isn't mutated or
AussieNeil
Partner
in
CLL Support
5 months ago
Richters and DLBCL after CLL in 2013
., started
FCR
6 cycles in Uni Clinic Cologne (Prof Hallek) up to 4/2014. MRD neg and CR. Then 9 years without therapy living well, no side effects. Now, in Oct 2023 the CLL quickly turned back with RT and tp 53, as well as DLBCL near stomach. LDH was around 1.600!!
., started
FCR
6 cycles in Uni Clinic Cologne (Prof Hallek) up to 4/2014. MRD neg and CR. Then 9 years without therapy living well, no side effects. Now, in Oct 2023 the CLL quickly turned back with RT and tp 53, as well as DLBCL near stomach. LDH was around 1.600!!
seoul1949
in
CLL Support
2 years ago
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