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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Persistent pancytopenia/ "LGL"????
So I'm going to do a deep dive about this large granular lymphocyte leukemia, but would like to hear from folks about their experience with post
FCR
-cytopenia or any resources that othrs can recommend.
So I'm going to do a deep dive about this large granular lymphocyte leukemia, but would like to hear from folks about their experience with post
FCR
-cytopenia or any resources that othrs can recommend.
dwolden
in
CLL Support
2 years ago
Anyone Taking Both Sinemet and CR ?
When first diagnosed by my primary care physician he prescribed Sinemet CR 25/100 to be taken at 6 hour intervals 4 times daily , today I met with a Neurologist/Parkinson’s movement disorder specialist, she changed my regiment to the quick release Sinemet 25/100 three times daily at 5 hour intervals
When first diagnosed by my primary care physician he prescribed Sinemet CR 25/100 to be taken at 6 hour intervals 4 times daily , today I met with a Neurologist/Parkinson’s movement disorder specialist, she changed my regiment to the quick release Sinemet 25/100 three times daily at 5 hour intervals
BoomMate112055
in
Cure Parkinson's
1 year ago
People's lived experience of complete remission after long illness?
Quick background: dx in 2008 when I was 43 yo;
FCR
2011 → MRD (minimal residual disease); lenolidamide 2011-14; zanibrutrinib 2014-2019; BCl2 inhibitor 2019-now; adenocarcinoma lung removed 2018. Current tx is a trial BCl2 inhibitor (Beigene).
Quick background: dx in 2008 when I was 43 yo;
FCR
2011 → MRD (minimal residual disease); lenolidamide 2011-14; zanibrutrinib 2014-2019; BCl2 inhibitor 2019-now; adenocarcinoma lung removed 2018. Current tx is a trial BCl2 inhibitor (Beigene).
Greyhound23
in
CLL Support
2 years ago
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NUREX - 2127 ONE YEAR ANNIVERSARY STARTING CYCLE 14
FCR
2010 all 6 cycles. 5 1/2 years remission 2. Ibrutinib 3 years developed C-481 resistance 3. Venetoclax 18 months never really worked for me, didn't like hospital ramp-up 4. Loxo-305 20 months CR then I developed a mutation that worked it's way around the drug.
FCR
2010 all 6 cycles. 5 1/2 years remission 2. Ibrutinib 3 years developed C-481 resistance 3. Venetoclax 18 months never really worked for me, didn't like hospital ramp-up 4. Loxo-305 20 months CR then I developed a mutation that worked it's way around the drug.
steve5441
in
CLL Support
2 years ago
Five-year results for the iFCG regimen: first-line treatment of CLL patients with mutated IGHV and without del(17p)/TP53 mutation
://healthunlocked.com/cllsupport/posts/141635709/novel-combos-are-shaking-up-the-cll-landscape-but-
fcr
-still-has-its-place The update reports outcomes with a median follow-up of 56.8 months.
://healthunlocked.com/cllsupport/posts/141635709/novel-combos-are-shaking-up-the-cll-landscape-but-
fcr
-still-has-its-place The update reports outcomes with a median follow-up of 56.8 months.
bennevisplace
in
CLL Support
2 years ago
Concise summary of the treatment history of CLL from the 1950s to the present, by Dr Bruce Cheson, contributor to the iwCLL and much more
It took until the early 90's before Fludarabine, the 'F' in
FCR
joined, then Rituximab (the 'R') just over 20 years ago, started the long reign of
FCR
as the gold standard, a title it still holds in far too many countries.
It took until the early 90's before Fludarabine, the 'F' in
FCR
joined, then Rituximab (the 'R') just over 20 years ago, started the long reign of
FCR
as the gold standard, a title it still holds in far too many countries.
AussieNeil
Partner
in
CLL Support
2 years ago
Finishing 2 years of Rituxan and Venetoclax
He was treated with the following: -
FCR
(4 year remission) - Imbruvica (worked for 5 years but caused A-fib) - And since 2020, 6 cycles of Rituxan and 2 years of Venetoclax CBCs are okay except for Platelets just below normal (around 120-130 K).
He was treated with the following: -
FCR
(4 year remission) - Imbruvica (worked for 5 years but caused A-fib) - And since 2020, 6 cycles of Rituxan and 2 years of Venetoclax CBCs are okay except for Platelets just below normal (around 120-130 K).
Carolinaj
in
CLL Support
2 years ago
FCR-6plus years in remission - am I cured.
Had my 6 monthly telephone consultation yesterday. Still in remission with wbc at 5.7 and all in normal range. Super. So, I get round to the question “I know there is no cure as such but am I heading that way?” Answer; the nature of CLL means I could stay in remission for years or next time be heading
Had my 6 monthly telephone consultation yesterday. Still in remission with wbc at 5.7 and all in normal range. Super. So, I get round to the question “I know there is no cure as such but am I heading that way?” Answer; the nature of CLL means I could stay in remission for years or next time be heading
devonrr
in
CLL Support
2 years ago
Total knee replacement. Looking for advice, guidance and wisdom.
Currently in post
FCR
remission. 2. What may I reasonably expect in terms of activity from the new knee. Will I be able to ride my pedal bicycle? In otherwords will I be able to enjoy full pedal strength from my leg as I have done for the last 30yrs? I really like a good hill to pedal up!
Currently in post
FCR
remission. 2. What may I reasonably expect in terms of activity from the new knee. Will I be able to ride my pedal bicycle? In otherwords will I be able to enjoy full pedal strength from my leg as I have done for the last 30yrs? I really like a good hill to pedal up!
JigFettler
Volunteer
in
CLL Support
2 years ago
Any recent experiences of AIHA developing in progressive CLL - particularly in those treated with or awaiting Venetoclax treatment?
Ive had eight good years remission from my first line
FCR
and got very comfortable packaging CLL away somewhere in the dark recesses of my brain...and here was that glaring neon hospital light re-illuminating it all too brightly.
Ive had eight good years remission from my first line
FCR
and got very comfortable packaging CLL away somewhere in the dark recesses of my brain...and here was that glaring neon hospital light re-illuminating it all too brightly.
jibs60
in
CLL Support
2 years ago
A hellish 2 months. Very confused about MRD measurements.
Hi everyone, I've had
FCR
(2010) BR (2015) Ibrutinib (2017) and now Venetoclax for the past 18 months.
Hi everyone, I've had
FCR
(2010) BR (2015) Ibrutinib (2017) and now Venetoclax for the past 18 months.
Ruhi9
in
CLL Support
1 year ago
RISK OF DYING OF COVID DURING THIS OMICRON PHASE
I have relapse CLL that came back in June 2020, just 2 years after
FCR
. I am looking at starting up treatment again in the near future. I have had 4 Pfizer and 2 Moderna full dose boosters. Not much antibody response. I get IVIgG every month. I've had Evusheld 3 times. Any input????
I have relapse CLL that came back in June 2020, just 2 years after
FCR
. I am looking at starting up treatment again in the near future. I have had 4 Pfizer and 2 Moderna full dose boosters. Not much antibody response. I get IVIgG every month. I've had Evusheld 3 times. Any input????
skipro
in
CLL Support
2 years ago
CoVid 19 and CLL
I underwent 3 rounds of
FCR
Chemo in early 2018, stopped because of profound neutropenia for another 9 months.
I underwent 3 rounds of
FCR
Chemo in early 2018, stopped because of profound neutropenia for another 9 months.
skipro
in
CLL Support
2 years ago
Imbruvica
I underwent chemotherapy (
FCR
) in 2010-2011. The CLL went into remission. Now my white blood cells are increasing and my platelets are decreasing. I am in very good shape and my quality of life is excellent. My oncologist is considering treating me with Imbruvica.
I underwent chemotherapy (
FCR
) in 2010-2011. The CLL went into remission. Now my white blood cells are increasing and my platelets are decreasing. I am in very good shape and my quality of life is excellent. My oncologist is considering treating me with Imbruvica.
DesertRat6
in
CLL Support
2 years ago
Rituximab and Venentoclax treatment reaction
Hi All it's been a while since I've posted here.just for background I had
FCR
in 2010, ibrutinib 2015 until 2018 had to stop with stomach bleed and swelling.then just over year ago I went on the Rituximab (IV)for six months and oral Venentoclax varying dosages 200 to 400 mgs.
Hi All it's been a while since I've posted here.just for background I had
FCR
in 2010, ibrutinib 2015 until 2018 had to stop with stomach bleed and swelling.then just over year ago I went on the Rituximab (IV)for six months and oral Venentoclax varying dosages 200 to 400 mgs.
Mick491
in
CLL Support
2 years ago
What a journey
THANKS FOR THE ADD....Back in 2010 I was sent to a local oncologist, and he was my doctor for 3 years, he pushed for
FCR
straight out of the gate, I had done so much reading and research, I knew better than doing it.
THANKS FOR THE ADD....Back in 2010 I was sent to a local oncologist, and he was my doctor for 3 years, he pushed for
FCR
straight out of the gate, I had done so much reading and research, I knew better than doing it.
CAM729
in
CLL Support
2 years ago
CLL RELAPSE.. LATEST TREATMENTS AVAILABLE
FCR
was given starting with immunotherapy 2019- relapse of CLL- started having Ibrutinib 2020 Nov- got covid ( episode 1) 2021- April - COVID ( episode2) June- relapse of CLL as Ibrutinib stopped working .. there was a suspicion of DLBCL so RCHOP one cycle was given but patient wasn’t able to tolerate
FCR
was given starting with immunotherapy 2019- relapse of CLL- started having Ibrutinib 2020 Nov- got covid ( episode 1) 2021- April - COVID ( episode2) June- relapse of CLL as Ibrutinib stopped working .. there was a suspicion of DLBCL so RCHOP one cycle was given but patient wasn’t able to tolerate
theoptimistduo
in
CLL Support
2 years ago
MULTIPLE CLL RELAPSES- NEE TREATMENT OPTIONS AND EXPERIENCES
FCR
was given starting with immunotherapy 2019- relapse of CLL- started having Ibrutinib 2020 Nov- got covid ( episode 1) 2021- April - COVID ( episode2) June- relapse of CLL as Ibrutinib stopped working .. there was a suspicion of DLBCL so RCHOP one cycle was given but patient wasn’t able to tolerate
FCR
was given starting with immunotherapy 2019- relapse of CLL- started having Ibrutinib 2020 Nov- got covid ( episode 1) 2021- April - COVID ( episode2) June- relapse of CLL as Ibrutinib stopped working .. there was a suspicion of DLBCL so RCHOP one cycle was given but patient wasn’t able to tolerate
theoptimistduo
in
CLL America Support
2 years ago
Has anyone had a brain MRI while on venetoclax or rituximib ?
I have cardiologist (due to a "mild" heart attack and subsequent Afibs after
FCR
a few years ago), who thought it wasn't a heart related "faint' as i seemed to have just settled to the floor as distinct from a damaging "splat".
I have cardiologist (due to a "mild" heart attack and subsequent Afibs after
FCR
a few years ago), who thought it wasn't a heart related "faint' as i seemed to have just settled to the floor as distinct from a damaging "splat".
Moggn
in
CLL Support
2 years ago
My Covid experience.
When first diagnosed, the local oncologist scheduled me for
FCR
the next week but fortunately I asked for a second opinion and went to a CLL specialist who said “NO!!!” I know that some day I may need an experimental drug that may well lengthen my life.
When first diagnosed, the local oncologist scheduled me for
FCR
the next week but fortunately I asked for a second opinion and went to a CLL specialist who said “NO!!!” I know that some day I may need an experimental drug that may well lengthen my life.
fishnman
in
CLL Support
2 years ago
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