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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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R-CHOP Treatment
After
FCR
chemo 15 years ago and numerous oral medications since I am in chemo again. They tried a milder chemo to reduce my lymph nodes (they were huge). Some success, but not as much as I needed. So now I've had one round of R-CHOP. All that it has done for me so far is take my wbc's to 0.4.
After
FCR
chemo 15 years ago and numerous oral medications since I am in chemo again. They tried a milder chemo to reduce my lymph nodes (they were huge). Some success, but not as much as I needed. So now I've had one round of R-CHOP. All that it has done for me so far is take my wbc's to 0.4.
scorpio74944
in
CLL Support
8 months ago
Wife getting MMR vaccine booster - isolate or not?
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6
FCR
treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles!
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6
FCR
treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles!
xpro3
in
CLL Support
4 months ago
hu CAR-T 19 IL-18 4th Generation Clinical Trial 90 Day Check-up With All of My Favorite Tests
It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my
FCR
treatment. All of the other treatments didn't require a BMB to confirm a negative reading, I had a few remissions, but they were just on paper.
It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my
FCR
treatment. All of the other treatments didn't require a BMB to confirm a negative reading, I had a few remissions, but they were just on paper.
steve5441
in
CLL Support
7 months ago
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moving on to next treatment-considering Nurex
Have had multiple treatments
FCR
,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would appreciate their thoughts or other members on this clinical trial.
Have had multiple treatments
FCR
,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would appreciate their thoughts or other members on this clinical trial.
Osprey69
in
CLL Support
10 months ago
Finding joy and peace in God and His beautiful creations
Just had my 16th and 17th malignant skin cancer removed since receiving
FCR
in 2018 despite following all the recommendations My back pain that became radicular pain is due to some severe spinal stenosis and a large herniated disc.
Just had my 16th and 17th malignant skin cancer removed since receiving
FCR
in 2018 despite following all the recommendations My back pain that became radicular pain is due to some severe spinal stenosis and a large herniated disc.
skipro
in
CLL Support
3 days ago
Windermere
I had
FCR
in 2012 was in remission until 2018. Then started ibrutinib and still on it, how long is it likely to keep me in remission.
I had
FCR
in 2012 was in remission until 2018. Then started ibrutinib and still on it, how long is it likely to keep me in remission.
Windemere
in
CLL Support
1 year ago
What’s next?
Less than a year later I started
FCR
. After completing
FCR
my blood counts rose steadily until I reached stage 4 which led to two years of Venclexta (400mg daily) treatments. Throughout all treatments I’ve had monthly bloodwork, yearly PET scans and 3 MRD test using Flow Cytometry.
Less than a year later I started
FCR
. After completing
FCR
my blood counts rose steadily until I reached stage 4 which led to two years of Venclexta (400mg daily) treatments. Throughout all treatments I’ve had monthly bloodwork, yearly PET scans and 3 MRD test using Flow Cytometry.
Pokerguy
in
CLL Support
11 months ago
mild struggles
FCR
. Then again in 2012. Various treatments. 2014 ibrutinib. 2016 Venetoclax and obinutuzumab on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54. Seem to constantly have colds. Chronic and recurrent sinusitis.
FCR
. Then again in 2012. Various treatments. 2014 ibrutinib. 2016 Venetoclax and obinutuzumab on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54. Seem to constantly have colds. Chronic and recurrent sinusitis.
Corin850
in
CLL Support
10 months ago
Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
* Long term follow-up of those treated with
FCR
, has shown that if you make to 7 years in remission, your remission is likely to last 20+ years.
* Long term follow-up of those treated with
FCR
, has shown that if you make to 7 years in remission, your remission is likely to last 20+ years.
AussieNeil
Partner
in
CLL Support
1 year ago
Viral infection to Covid and Flu booster gap.
FCR
2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate in not having any infection since before diagnosis. Six weeks ago I became suddenly very unwell over the space of 2 hours.
FCR
2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate in not having any infection since before diagnosis. Six weeks ago I became suddenly very unwell over the space of 2 hours.
JigFettler
Volunteer
in
CLL Support
10 months ago
acalabrutinib and tegretol
Hi everyone My 70-year-old father had
FCR
five years ago, with great results. We’ve just been advised he needs to start treatment again, and they’ve chosen Acalabrutinib. He has been advised he had to go off his medication for epilepsy, which is Tegretol.
Hi everyone My 70-year-old father had
FCR
five years ago, with great results. We’ve just been advised he needs to start treatment again, and they’ve chosen Acalabrutinib. He has been advised he had to go off his medication for epilepsy, which is Tegretol.
MelaniePet
in
CLL Support
11 months ago
Update treatment
[/i] [i]But unfortunately, there were no options for me, and the
FCR
was scheduled.[/i] [i]The first time, about two months ago, they gave me only the chemo pills, because the leukocyten were very high.[/i] [i]The rituximab was then taken along the next time.
[/i] [i]But unfortunately, there were no options for me, and the
FCR
was scheduled.[/i] [i]The first time, about two months ago, they gave me only the chemo pills, because the leukocyten were very high.[/i] [i]The rituximab was then taken along the next time.
Renefaassen
in
CLL Support
1 year ago
Being Positive and Supportive
During the
FCR
treatment in 2018 I was just that! Then after 11 skin cancer surgeries, Covid, and many family members anger about my masks, I sunk into despair and all of you have helped me get out of it!! Thank you all and God bless.
During the
FCR
treatment in 2018 I was just that! Then after 11 skin cancer surgeries, Covid, and many family members anger about my masks, I sunk into despair and all of you have helped me get out of it!! Thank you all and God bless.
skipro
in
CLL Support
1 year ago
STEP ONE OF MY THIRD CLINICAL TRIAL huCAR-T19 IL-18
I started with
FCR
in 2010 Ibrutinib 2015 Venclax in 2018. So here I am back at Penn 31/2 years later. Being treatment naive in 2009,
FCR
gave me my longest remission.
I started with
FCR
in 2010 Ibrutinib 2015 Venclax in 2018. So here I am back at Penn 31/2 years later. Being treatment naive in 2009,
FCR
gave me my longest remission.
steve5441
in
CLL Support
1 year ago
alternative therapies
Hi, I was diagnosed in Feb2020, SLL, Unmutated, started treatment with
FCR
which gave me 18months before swollen nodes and spiking bloods showed the SLL was back. During my no treatment time I had a nasty case of Shingles which lasted 3 months then RSV which lasted 6 months.
Hi, I was diagnosed in Feb2020, SLL, Unmutated, started treatment with
FCR
which gave me 18months before swollen nodes and spiking bloods showed the SLL was back. During my no treatment time I had a nasty case of Shingles which lasted 3 months then RSV which lasted 6 months.
MareeM
in
CLL Support
1 year ago
This one is a bit "left field" but here goes...
I have been 5yrs remission since
FCR
, Lymphocyte count 0.7 so on prophylactic Aciclovir (against Herpes infection) and Co-Trimoxazole (PJP prophylaxis) Recently I have stopped this drugs because they may be having and potentially serious side effect (to be posted about in due course when I know more.
I have been 5yrs remission since
FCR
, Lymphocyte count 0.7 so on prophylactic Aciclovir (against Herpes infection) and Co-Trimoxazole (PJP prophylaxis) Recently I have stopped this drugs because they may be having and potentially serious side effect (to be posted about in due course when I know more.
JigFettler
Volunteer
in
CLL Support
1 year ago
MRD blood test after Venetoclax treatment
I had
FCR
treatment in 2014. My blood test results have never been terrible…I was told that my dodgy white cells tend to hide in lymph nodes rather than circulate in my blood stream…..I am therefore wondering if a blood test for MRD will give a reliable indication.
I had
FCR
treatment in 2014. My blood test results have never been terrible…I was told that my dodgy white cells tend to hide in lymph nodes rather than circulate in my blood stream…..I am therefore wondering if a blood test for MRD will give a reliable indication.
yorkie19
in
CLL Support
1 year ago
PICC line or not
I had
FCR
in 2016/2017 which I struggled with the last 3 months of treatment, I started on acalabrutanib but after 1 week had to stop due to severe bone pain , so severe I couldn’t get out of bed or a chair , was told nobody has trouble with this treatment.
I had
FCR
in 2016/2017 which I struggled with the last 3 months of treatment, I started on acalabrutanib but after 1 week had to stop due to severe bone pain , so severe I couldn’t get out of bed or a chair , was told nobody has trouble with this treatment.
mush56
in
CLL Support
1 year ago
V + O , TP53 and p13
Is that true of other treatments 3 I'm on V + O for relapse after
FCR
, have all good markers and am being told I'd be on the V for 2 years instead of 1 and there'd be NO MRD testing Is it the understanding of the group that V is required for 2 years in relapsed patients thank you all so much
Is that true of other treatments 3 I'm on V + O for relapse after
FCR
, have all good markers and am being told I'd be on the V for 2 years instead of 1 and there'd be NO MRD testing Is it the understanding of the group that V is required for 2 years in relapsed patients thank you all so much
skipro
in
CLL Support
1 year ago
UK NICE Approves Ibrutinib +Venetoclax for First Line treatment for ALL Patients from today
However, CLL Support highlighted that there were severe inequalities in access to novel therapies in the UK for younger fitter patients who had no right of access to a novel therapy and could still be treated with
FCR
in some hospitals.
However, CLL Support highlighted that there were severe inequalities in access to novel therapies in the UK for younger fitter patients who had no right of access to a novel therapy and could still be treated with
FCR
in some hospitals.
Jm954
Administrator
in
CLL Support
1 year ago
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