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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
* Long term follow-up of those treated with
FCR
, has shown that if you make to 7 years in remission, your remission is likely to last 20+ years.
* Long term follow-up of those treated with
FCR
, has shown that if you make to 7 years in remission, your remission is likely to last 20+ years.
AussieNeil
Administrator
in
CLL Support
10 months ago
mild struggles
FCR
. Then again in 2012. Various treatments. 2014 ibrutinib. 2016 Venetoclax and obinutuzumab on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54. Seem to constantly have colds. Chronic and recurrent sinusitis.
FCR
. Then again in 2012. Various treatments. 2014 ibrutinib. 2016 Venetoclax and obinutuzumab on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54. Seem to constantly have colds. Chronic and recurrent sinusitis.
Corin850
in
CLL Support
8 months ago
acalabrutinib and tegretol
Hi everyone My 70-year-old father had
FCR
five years ago, with great results. We’ve just been advised he needs to start treatment again, and they’ve chosen Acalabrutinib. He has been advised he had to go off his medication for epilepsy, which is Tegretol.
Hi everyone My 70-year-old father had
FCR
five years ago, with great results. We’ve just been advised he needs to start treatment again, and they’ve chosen Acalabrutinib. He has been advised he had to go off his medication for epilepsy, which is Tegretol.
MelaniePet
in
CLL Support
9 months ago
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Viral infection to Covid and Flu booster gap.
FCR
2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate in not having any infection since before diagnosis. Six weeks ago I became suddenly very unwell over the space of 2 hours.
FCR
2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate in not having any infection since before diagnosis. Six weeks ago I became suddenly very unwell over the space of 2 hours.
JigFettler
Volunteer
in
CLL Support
7 months ago
Update treatment
[/i] [i]But unfortunately, there were no options for me, and the
FCR
was scheduled.[/i] [i]The first time, about two months ago, they gave me only the chemo pills, because the leukocyten were very high.[/i] [i]The rituximab was then taken along the next time.
[/i] [i]But unfortunately, there were no options for me, and the
FCR
was scheduled.[/i] [i]The first time, about two months ago, they gave me only the chemo pills, because the leukocyten were very high.[/i] [i]The rituximab was then taken along the next time.
Renefaassen
in
CLL Support
9 months ago
Being Positive and Supportive
During the
FCR
treatment in 2018 I was just that! Then after 11 skin cancer surgeries, Covid, and many family members anger about my masks, I sunk into despair and all of you have helped me get out of it!! Thank you all and God bless.
During the
FCR
treatment in 2018 I was just that! Then after 11 skin cancer surgeries, Covid, and many family members anger about my masks, I sunk into despair and all of you have helped me get out of it!! Thank you all and God bless.
skipro
in
CLL Support
10 months ago
STEP ONE OF MY THIRD CLINICAL TRIAL huCAR-T19 IL-18
I started with
FCR
in 2010 Ibrutinib 2015 Venclax in 2018. So here I am back at Penn 31/2 years later. Being treatment naive in 2009,
FCR
gave me my longest remission.
I started with
FCR
in 2010 Ibrutinib 2015 Venclax in 2018. So here I am back at Penn 31/2 years later. Being treatment naive in 2009,
FCR
gave me my longest remission.
steve5441
in
CLL Support
10 months ago
alternative therapies
Hi, I was diagnosed in Feb2020, SLL, Unmutated, started treatment with
FCR
which gave me 18months before swollen nodes and spiking bloods showed the SLL was back. During my no treatment time I had a nasty case of Shingles which lasted 3 months then RSV which lasted 6 months.
Hi, I was diagnosed in Feb2020, SLL, Unmutated, started treatment with
FCR
which gave me 18months before swollen nodes and spiking bloods showed the SLL was back. During my no treatment time I had a nasty case of Shingles which lasted 3 months then RSV which lasted 6 months.
MareeM
in
CLL Support
11 months ago
This one is a bit "left field" but here goes...
I have been 5yrs remission since
FCR
, Lymphocyte count 0.7 so on prophylactic Aciclovir (against Herpes infection) and Co-Trimoxazole (PJP prophylaxis) Recently I have stopped this drugs because they may be having and potentially serious side effect (to be posted about in due course when I know more.
I have been 5yrs remission since
FCR
, Lymphocyte count 0.7 so on prophylactic Aciclovir (against Herpes infection) and Co-Trimoxazole (PJP prophylaxis) Recently I have stopped this drugs because they may be having and potentially serious side effect (to be posted about in due course when I know more.
JigFettler
Volunteer
in
CLL Support
10 months ago
MRD blood test after Venetoclax treatment
I had
FCR
treatment in 2014. My blood test results have never been terrible…I was told that my dodgy white cells tend to hide in lymph nodes rather than circulate in my blood stream…..I am therefore wondering if a blood test for MRD will give a reliable indication.
I had
FCR
treatment in 2014. My blood test results have never been terrible…I was told that my dodgy white cells tend to hide in lymph nodes rather than circulate in my blood stream…..I am therefore wondering if a blood test for MRD will give a reliable indication.
yorkie19
in
CLL Support
10 months ago
PICC line or not
I had
FCR
in 2016/2017 which I struggled with the last 3 months of treatment, I started on acalabrutanib but after 1 week had to stop due to severe bone pain , so severe I couldn’t get out of bed or a chair , was told nobody has trouble with this treatment.
I had
FCR
in 2016/2017 which I struggled with the last 3 months of treatment, I started on acalabrutanib but after 1 week had to stop due to severe bone pain , so severe I couldn’t get out of bed or a chair , was told nobody has trouble with this treatment.
mush56
in
CLL Support
10 months ago
V + O , TP53 and p13
Is that true of other treatments 3 I'm on V + O for relapse after
FCR
, have all good markers and am being told I'd be on the V for 2 years instead of 1 and there'd be NO MRD testing Is it the understanding of the group that V is required for 2 years in relapsed patients thank you all so much
Is that true of other treatments 3 I'm on V + O for relapse after
FCR
, have all good markers and am being told I'd be on the V for 2 years instead of 1 and there'd be NO MRD testing Is it the understanding of the group that V is required for 2 years in relapsed patients thank you all so much
skipro
in
CLL Support
1 year ago
UK NICE Approves Ibrutinib +Venetoclax for First Line treatment for ALL Patients from today
However, CLL Support highlighted that there were severe inequalities in access to novel therapies in the UK for younger fitter patients who had no right of access to a novel therapy and could still be treated with
FCR
in some hospitals.
However, CLL Support highlighted that there were severe inequalities in access to novel therapies in the UK for younger fitter patients who had no right of access to a novel therapy and could still be treated with
FCR
in some hospitals.
Jm954
Administrator
in
CLL Support
1 year ago
Severe Thigh Pain
I was diagnosed for CLL 12 months ago and had 6 courses of
FCR
Chemo which ended in August 22 . I have low immune system but feel ok, in the last month I have had severe thigh pain. I did have this during chem but was told due to the injections I had to support me through the period.
I was diagnosed for CLL 12 months ago and had 6 courses of
FCR
Chemo which ended in August 22 . I have low immune system but feel ok, in the last month I have had severe thigh pain. I did have this during chem but was told due to the injections I had to support me through the period.
Hrdy
in
CLL Support
1 year ago
Latest bloodwork
I have been on a low dose of (140mg) for the past 5 years and was previously treated with
FCR
in 2013. I will see my oncologist July 6th to discuss what's next. I am leaving for a 5 week camping roadtrip in my VW van on July 7th and really hoping I will not have to cancel.
I have been on a low dose of (140mg) for the past 5 years and was previously treated with
FCR
in 2013. I will see my oncologist July 6th to discuss what's next. I am leaving for a 5 week camping roadtrip in my VW van on July 7th and really hoping I will not have to cancel.
rubberlegs68
in
CLL Support
1 year ago
dental work while on V + O
A major bridge reconstruction for my front upper and lower teeth During my
FCR
in 2018 I was neutropenic and my oncologist advised against any dental work I have since relapsed had had “all necessary dental work done” before starting V + O.
A major bridge reconstruction for my front upper and lower teeth During my
FCR
in 2018 I was neutropenic and my oncologist advised against any dental work I have since relapsed had had “all necessary dental work done” before starting V + O.
skipro
in
CLL Support
1 year ago
Venetoclax for dummies
That's a rough analogy of how
FCR
works for cll.
FCR
cant really distinguish good cells from cancer cells. Chemotherapy kills all cells indiscriminately with the hope that the new cells produced by our marrow will only be the healthy ones.
That's a rough analogy of how
FCR
works for cll.
FCR
cant really distinguish good cells from cancer cells. Chemotherapy kills all cells indiscriminately with the hope that the new cells produced by our marrow will only be the healthy ones.
cajunjeff
in
CLL Support
10 months ago
Starting Venetoclax next week
I was diagnosed in 2018, had 6 months of
FCR
in 2019 which went pretty smoothly except for severe Neutropenia. I feel fine and my bloods are within normal range. My TP53 is negative but IGHV unmutated. Anyone had a similar journey, what should I expect? X
I was diagnosed in 2018, had 6 months of
FCR
in 2019 which went pretty smoothly except for severe Neutropenia. I feel fine and my bloods are within normal range. My TP53 is negative but IGHV unmutated. Anyone had a similar journey, what should I expect? X
Floxxy
in
CLL Support
1 year ago
What shall i do??
Can i refuse
FCR
, and ask for Acalabrutinib, or follow the doctor’s advice??
Can i refuse
FCR
, and ask for Acalabrutinib, or follow the doctor’s advice??
Renefaassen
in
CLL Support
1 year ago
CLL and Covid experiences
Hi, I am 65, have relapsed CLL after
FCR
treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them?
Hi, I am 65, have relapsed CLL after
FCR
treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them?
skipro
in
CLL Support
1 year ago
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