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Am Iwell?
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
Dawson21
in
CLL Support
2 years ago
Hair loss after transplant
Hi friends, my daughter had her transplant in June 2022. She is taking tacrolimus, cellcept, prednisone , acyclovir, and K-phos. Her hair has been falling out a lot since then. I realize that compared to many of the side effects, this is not as bad. So her doctors are not bothered by it. But for a 22
Hi friends, my daughter had her transplant in June 2022. She is taking tacrolimus, cellcept, prednisone , acyclovir, and K-phos. Her hair has been falling out a lot since then. I realize that compared to many of the side effects, this is not as bad. So her doctors are not bothered by it. But for a 22
SujaA
in
Kidney Transplant
2 years ago
Could someone help advise what these skin growths/bumps would be? This might be quite long but any help would be great! :)
Hi all, I really hope somebody can advise me! Sorry if this is long. I've decided to finally post online and ask about this problem because I am getting nowhere with it with the GPs or the hospital (more on those later) So anyway, in August 2021, I noticed a red raised bump, looked similar to a spot
Hi all, I really hope somebody can advise me! Sorry if this is long. I've decided to finally post online and ask about this problem because I am getting nowhere with it with the GPs or the hospital (more on those later) So anyway, in August 2021, I noticed a red raised bump, looked similar to a spot
canaryfan86
in
MY SKIN
2 years ago
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VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (CLL/SLL)
This pinned post replaces our earlier reference post about vaccinations for those with CLL/SLL. It has been divided into four sections, presented as a pinned post plus three replies.
Part 1 - GENERAL ADVICE & INFORMATION
is contained in this main post
Part 2 - VACCINES RECOMMENDED ANNUALLY
This pinned post replaces our earlier reference post about vaccinations for those with CLL/SLL. It has been divided into four sections, presented as a pinned post plus three replies.
Part 1 - GENERAL ADVICE & INFORMATION
is contained in this main post
Part 2 - VACCINES RECOMMENDED ANNUALLY
CLLerinOz
Administrator
in
CLL Support
2 years ago
Anti virals
I have been on ibrutinib 5 . 5 years and still bloods are very good and I tolerate it very well ,I live a normal life and do all the things I done before . This year my old consultant retired and I now have a new one and he seems very good . I had a eye infection a few months ago gave me cloudy vision
I have been on ibrutinib 5 . 5 years and still bloods are very good and I tolerate it very well ,I live a normal life and do all the things I done before . This year my old consultant retired and I now have a new one and he seems very good . I had a eye infection a few months ago gave me cloudy vision
cartwheels
in
CLL Support
2 years ago
Additional drugs stopped. Is this other peoples experience.
I’m on V and O. Well actually just V now. Having finished my O cycles. My consultant has stopped my aciclovir and Cotrimoxazole. My V will continue until February. Is this other peoples experience?
I’m on V and O. Well actually just V now. Having finished my O cycles. My consultant has stopped my aciclovir and Cotrimoxazole. My V will continue until February. Is this other peoples experience?
Jake_Bullet
in
CLL Support
2 years ago
Update after uMRD/completed antiobiotic
I am not feeling very good at all. I was hoping that after I completed the round of antibiotics on Monday, that I would be seeing some improvement. Every day this week seems to be getting worse. My ankles are swollen, and my knees are also swollen. I have joint pain in the ankles, knees, wrist and
I am not feeling very good at all. I was hoping that after I completed the round of antibiotics on Monday, that I would be seeing some improvement. Every day this week seems to be getting worse. My ankles are swollen, and my knees are also swollen. I have joint pain in the ankles, knees, wrist and
McBuster
in
CLL Support
2 years ago
Post Shingles Pain
I had mild shingles (not bad blisters) as I'd had the injection but much pain in my teeth. But following the acyclovir course and things subsided the pain in my teeth came back. It started on the same side (right face) but then moved around to the left jaw top and bottom as it pleased. Felt like a tooth
I had mild shingles (not bad blisters) as I'd had the injection but much pain in my teeth. But following the acyclovir course and things subsided the pain in my teeth came back. It started on the same side (right face) but then moved around to the left jaw top and bottom as it pleased. Felt like a tooth
omits
in
MPN Voice
2 years ago
Post Shingle Aciclovir
I had the vaccine 2017 (the older one which is less effective). I got Shingles six weeks ago and four days in started Aciclovir. It was in my right side face. I did not have it really serious (almost indetectible blisters but one on eyelid. The real pain was in my jaw like I had multiple abscesses. This
I had the vaccine 2017 (the older one which is less effective). I got Shingles six weeks ago and four days in started Aciclovir. It was in my right side face. I did not have it really serious (almost indetectible blisters but one on eyelid. The real pain was in my jaw like I had multiple abscesses. This
omits
in
MPN Voice
2 years ago
Any correlation between Pca and Herpes virus?
I recently read some papers that have found some correlation between Alzheimer's and the Herpes virus. I also have a friend who was diagnosed with stage 3 Multiple Myeloma (bone marrow cancer) that spent 3 years researching his issue and concluded that the Herpes Simplex virus is likely the culprit,
I recently read some papers that have found some correlation between Alzheimer's and the Herpes virus. I also have a friend who was diagnosed with stage 3 Multiple Myeloma (bone marrow cancer) that spent 3 years researching his issue and concluded that the Herpes Simplex virus is likely the culprit,
EaNa
in
Prostate Cancer Network
2 years ago
Aciclovir side effects
I am getting cloudy urine as I treat my shingles. Has anyone experienced this? I have done a urine test strip and all appears normal. Advice welcome. Thanks.
I am getting cloudy urine as I treat my shingles. Has anyone experienced this? I have done a urine test strip and all appears normal. Advice welcome. Thanks.
omits
in
Men's Health Forum
2 years ago
Shingles, weakness, sleepiness,
Hi everyone, I got shingles just over three weeks ago, i mistakenly thought it was hives and unfortunately started antiviral aciclovir a week late,so may not be effective. The rashes are mostly gone however the pain comes and go at random sometimes very strong and deep within the body like something
Hi everyone, I got shingles just over three weeks ago, i mistakenly thought it was hives and unfortunately started antiviral aciclovir a week late,so may not be effective. The rashes are mostly gone however the pain comes and go at random sometimes very strong and deep within the body like something
filorera
in
PMRGCAuk
2 years ago
Has anybody else developed Auto Immune Haemolytic Anaemia with their CLL?
I was diagnosed with CLL just over 3 years ago and gave been on W&W since December last year when I was admitted to hospital with severe anaemia, after many tests and blood transfusions I was diagnosed with Auto Immune Haemolytic Anaemia (AIHA), I was discharged after 2 weeks with medication that included
I was diagnosed with CLL just over 3 years ago and gave been on W&W since December last year when I was admitted to hospital with severe anaemia, after many tests and blood transfusions I was diagnosed with Auto Immune Haemolytic Anaemia (AIHA), I was discharged after 2 weeks with medication that included
Wen_dy
in
CLL Support
2 years ago
Shingles! Cause of my hip and leg pain?
Having had severe left hip and leg pain for nearly two weeks, I came out with a rash on the same leg and foot. As I also had a slightly elevated temperature, I was advised by my hematology team to go to A&E. I was there for several hours, treated by everyone with care and compassion and culminating in
Having had severe left hip and leg pain for nearly two weeks, I came out with a rash on the same leg and foot. As I also had a slightly elevated temperature, I was advised by my hematology team to go to A&E. I was there for several hours, treated by everyone with care and compassion and culminating in
Michali45
in
MPN Voice
2 years ago
Shingles and daughters sports day
Hi all. I took a day off for my daughter's sports day but developed shingles last week (I work in a fairly stressful job and also have endometriosis, have been in a pain flare for the last 4 days). The shingles spots were just on my leg and I've been on antiviral med acyclovir but now I have a spot on
Hi all. I took a day off for my daughter's sports day but developed shingles last week (I work in a fairly stressful job and also have endometriosis, have been in a pain flare for the last 4 days). The shingles spots were just on my leg and I've been on antiviral med acyclovir but now I have a spot on
Malachitegoose
in
Women's Health
2 years ago
Shingles and endo
Hi all. I have got shingles and endo pain at the same time! 😖 And I'm likely going to have to continue in work as I have appointments to keep and am responsible for patient care. I will call my line manager tomorrow to see if she wants me in or not. I'm on acyclovir for shingles and my usual cocktail
Hi all. I have got shingles and endo pain at the same time! 😖 And I'm likely going to have to continue in work as I have appointments to keep and am responsible for patient care. I will call my line manager tomorrow to see if she wants me in or not. I'm on acyclovir for shingles and my usual cocktail
Malachitegoose
in
Endometriosis UK
2 years ago
Shingles and azathioprine
Hi all, today I have been diagnosed with shingles. The doctor started me on Aciclovir. I’m not sure if I can keep taking my azathioprine or not. Forgot to ask the doctor. Anyone has been in the same situation as me? Thanks.x
Hi all, today I have been diagnosed with shingles. The doctor started me on Aciclovir. I’m not sure if I can keep taking my azathioprine or not. Forgot to ask the doctor. Anyone has been in the same situation as me? Thanks.x
Sezvic
in
LUPUS UK
2 years ago
herpes attacks
I am sorry to bring this topic into the discussion as many feel unwilling to talk about it. As very much part of the liberated 1960's generation, those who came of age in the 1960s and had a lot of liberated fun at the time, I found I had contracted genital herpes. Once you have it it cannot be cured
I am sorry to bring this topic into the discussion as many feel unwilling to talk about it. As very much part of the liberated 1960's generation, those who came of age in the 1960s and had a lot of liberated fun at the time, I found I had contracted genital herpes. Once you have it it cannot be cured
Bennijax
in
PMRGCAuk
2 years ago
Diagnosed with Shingles MDS/MPN Overlap Syndrome
Just been diagnosed with Shingles confined to my scalp at the moment. I've been prescribed Aciclovir 800mg 5 times a day. I have very low neutrophils.....should I have antibiotics too?
Just been diagnosed with Shingles confined to my scalp at the moment. I've been prescribed Aciclovir 800mg 5 times a day. I have very low neutrophils.....should I have antibiotics too?
Tartanlady
in
MPN Voice
2 years ago
Immune System
Since September last year I keep coming down with really heavy coughs and colds that lay me low for up to a couple of weeks at a time. I was In the middle of a bout on the 10th February and I was prescribed antibiotics for it. Now, just over a month later I've come down with it again, but this time I've
Since September last year I keep coming down with really heavy coughs and colds that lay me low for up to a couple of weeks at a time. I was In the middle of a bout on the 10th February and I was prescribed antibiotics for it. Now, just over a month later I've come down with it again, but this time I've
willsie01
in
Thyroid UK
3 years ago
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