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Shingles - does anyone have any advice?
morning all It’s been quite a ride…my ear started bothering me a bit on Monday . Just a small uptick in tinnitus which I tried to ignore. By Tuesday I was a bit worried because I have had total hearing loss in the past due to auto immune attack which was only (partially) restored due to mega doses of
morning all It’s been quite a ride…my ear started bothering me a bit on Monday . Just a small uptick in tinnitus which I tried to ignore. By Tuesday I was a bit worried because I have had total hearing loss in the past due to auto immune attack which was only (partially) restored due to mega doses of
Bon1
in
NRAS
9 months ago
This one is a bit "left field" but here goes...
"Can any one hear me", says the Robin? OK! Infatuation with Robins aside... After my spectacular successful knee replacement I decide to buy myself a new mountain bike. BUT... bear with me... I have been 5yrs remission since FCR, Lymphocyte count 0.7 so on prophylactic Aciclovir (against Herpes infection
"Can any one hear me", says the Robin? OK! Infatuation with Robins aside... After my spectacular successful knee replacement I decide to buy myself a new mountain bike. BUT... bear with me... I have been 5yrs remission since FCR, Lymphocyte count 0.7 so on prophylactic Aciclovir (against Herpes infection
JigFettler
Volunteer
in
CLL Support
10 months ago
shingles and acyclovir
Hi lovely people i am on asking for your advice yet again.My mum has GCA and on her 2nd week tapering down to 17.5mg pred.She had been doing well and feeling quite good up till last Monday where she had tingling feeling in her left cheek but otherwise okay. By Wednesday she had red rash and it was bit
Hi lovely people i am on asking for your advice yet again.My mum has GCA and on her 2nd week tapering down to 17.5mg pred.She had been doing well and feeling quite good up till last Monday where she had tingling feeling in her left cheek but otherwise okay. By Wednesday she had red rash and it was bit
Buchanan16
in
PMRGCAuk
10 months ago
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Thoughts on L lysine
Hi everyone, I suffer from cold sores and I wanted to know if anybody take L lysine along with the valtrex or acyclovir ? I have been having one outbreak after another , just trying to get this to calm down. Any suggestions greatly appreciated. Thank you !
Hi everyone, I suffer from cold sores and I wanted to know if anybody take L lysine along with the valtrex or acyclovir ? I have been having one outbreak after another , just trying to get this to calm down. Any suggestions greatly appreciated. Thank you !
Jances13
in
LUPUS UK
11 months ago
Valtrex vs Acyclovir
I have been taking valtrex when ever I get an outbreak. But lately I get rid of one outbreak another comes . Would it help if I switch to acyclovir to see if this works better ? Any thoughts greatly appreciated. Thanks.
I have been taking valtrex when ever I get an outbreak. But lately I get rid of one outbreak another comes . Would it help if I switch to acyclovir to see if this works better ? Any thoughts greatly appreciated. Thanks.
Jances13
in
BASHH
11 months ago
Thoughts on Chickenpox
I was with my daughter and grandson this morning and she mentioned Chickenpox was going around. A bit worrying I thought, so best take evasive action having had shingles a few years ago. Reading the NHS website it states shingles cannot be caught from Chickenpox, however I wonder if that includes
I was with my daughter and grandson this morning and she mentioned Chickenpox was going around. A bit worrying I thought, so best take evasive action having had shingles a few years ago. Reading the NHS website it states shingles cannot be caught from Chickenpox, however I wonder if that includes
Oleboyredw-uk
in
CLL Support
1 year ago
Shingles on face and head with CLL
Hi everyone, I am on the Flair trial but have been off treatment for 18 months +. I have Shingles on my face and head and have been prescribed acyclovir over the phone which I am taking. The question is whether anything else can be done to speed recovery. On 11th April I am doing a fairly gruelling
Hi everyone, I am on the Flair trial but have been off treatment for 18 months +. I have Shingles on my face and head and have been prescribed acyclovir over the phone which I am taking. The question is whether anything else can be done to speed recovery. On 11th April I am doing a fairly gruelling
chillsome
in
CLL Support
1 year ago
POST-HERPETIC NEURALGIA
Hi, first time on here and hopefully might find some advice, if not it might prompt some to ensure they get the appropriate shingles vaccine. I was diagnosed with CLL in 2014 with my first round treatment in 2017. This went reasonably well and I then went 4 years before it was decided that I would need
Hi, first time on here and hopefully might find some advice, if not it might prompt some to ensure they get the appropriate shingles vaccine. I was diagnosed with CLL in 2014 with my first round treatment in 2017. This went reasonably well and I then went 4 years before it was decided that I would need
OWLS26
in
CLL Support
1 year ago
I think, I get over Behçet disease.
Hello, I'm Josaphat from Madagascar. My first symptom for Behçet disease appeared in Mars 2020. I had sores in my mouth. After that It started to appear my genital. I consulted doctor for many times and they always suggested me to use either antibiotics or aciclovir. With time, my situation became worse
Hello, I'm Josaphat from Madagascar. My first symptom for Behçet disease appeared in Mars 2020. I had sores in my mouth. After that It started to appear my genital. I consulted doctor for many times and they always suggested me to use either antibiotics or aciclovir. With time, my situation became worse
BaolahyJosaphat
in
Behçet's UK
1 year ago
pmr and now shingles
hi- I’m on day 6 of aciclovir for shingles. I cannot believe how bad I feel. The electric shock like pains up the side of my head 😱. And the general aches. Any advice? I’m down to 4 mg pred and was doing ok after the initial fatigue when I dropped down . Should I stay in bed? I really can’t believe
hi- I’m on day 6 of aciclovir for shingles. I cannot believe how bad I feel. The electric shock like pains up the side of my head 😱. And the general aches. Any advice? I’m down to 4 mg pred and was doing ok after the initial fatigue when I dropped down . Should I stay in bed? I really can’t believe
Fiddlemum
in
PMRGCAuk
1 year ago
anyone had shingles ?
afternoon as anyone had shingles , i was feeling back to my old self 3 months after op . then i had 4th covid vaccine and then 7days after i had pain on my right side and then got told could be gallstones then a rash came on the right side were my pain was so i phoned my doctors told them i
afternoon as anyone had shingles , i was feeling back to my old self 3 months after op . then i had 4th covid vaccine and then 7days after i had pain on my right side and then got told could be gallstones then a rash came on the right side were my pain was so i phoned my doctors told them i
Mrshappyme
in
Pelvic Pain Support Network
1 year ago
Am Iwell?
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
Dawson21
in
CLL Support
1 year ago
Hair loss after transplant
Hi friends, my daughter had her transplant in June 2022. She is taking tacrolimus, cellcept, prednisone , acyclovir, and K-phos. Her hair has been falling out a lot since then. I realize that compared to many of the side effects, this is not as bad. So her doctors are not bothered by it. But for a 22
Hi friends, my daughter had her transplant in June 2022. She is taking tacrolimus, cellcept, prednisone , acyclovir, and K-phos. Her hair has been falling out a lot since then. I realize that compared to many of the side effects, this is not as bad. So her doctors are not bothered by it. But for a 22
SujaA
in
Kidney Transplant
1 year ago
Could someone help advise what these skin growths/bumps would be? This might be quite long but any help would be great! :)
Hi all, I really hope somebody can advise me! Sorry if this is long. I've decided to finally post online and ask about this problem because I am getting nowhere with it with the GPs or the hospital (more on those later) So anyway, in August 2021, I noticed a red raised bump, looked similar to a spot
Hi all, I really hope somebody can advise me! Sorry if this is long. I've decided to finally post online and ask about this problem because I am getting nowhere with it with the GPs or the hospital (more on those later) So anyway, in August 2021, I noticed a red raised bump, looked similar to a spot
canaryfan86
in
MY SKIN
2 years ago
VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (CLL/SLL)
This pinned post replaces our earlier reference post about vaccinations for those with CLL/SLL. It has been divided into four sections, presented as a pinned post plus three replies.
Part 1 - GENERAL ADVICE & INFORMATION
is contained in this main post
Part 2 - VACCINES RECOMMENDED ANNUALLY
This pinned post replaces our earlier reference post about vaccinations for those with CLL/SLL. It has been divided into four sections, presented as a pinned post plus three replies.
Part 1 - GENERAL ADVICE & INFORMATION
is contained in this main post
Part 2 - VACCINES RECOMMENDED ANNUALLY
CLLerinOz
Volunteer
in
CLL Support
2 years ago
Anti virals
I have been on ibrutinib 5 . 5 years and still bloods are very good and I tolerate it very well ,I live a normal life and do all the things I done before . This year my old consultant retired and I now have a new one and he seems very good . I had a eye infection a few months ago gave me cloudy vision
I have been on ibrutinib 5 . 5 years and still bloods are very good and I tolerate it very well ,I live a normal life and do all the things I done before . This year my old consultant retired and I now have a new one and he seems very good . I had a eye infection a few months ago gave me cloudy vision
cartwheels
in
CLL Support
2 years ago
Additional drugs stopped. Is this other peoples experience.
I’m on V and O. Well actually just V now. Having finished my O cycles. My consultant has stopped my aciclovir and Cotrimoxazole. My V will continue until February. Is this other peoples experience?
I’m on V and O. Well actually just V now. Having finished my O cycles. My consultant has stopped my aciclovir and Cotrimoxazole. My V will continue until February. Is this other peoples experience?
Jake_Bullet
in
CLL Support
2 years ago
Update after uMRD/completed antiobiotic
I am not feeling very good at all. I was hoping that after I completed the round of antibiotics on Monday, that I would be seeing some improvement. Every day this week seems to be getting worse. My ankles are swollen, and my knees are also swollen. I have joint pain in the ankles, knees, wrist and
I am not feeling very good at all. I was hoping that after I completed the round of antibiotics on Monday, that I would be seeing some improvement. Every day this week seems to be getting worse. My ankles are swollen, and my knees are also swollen. I have joint pain in the ankles, knees, wrist and
McBuster
in
CLL Support
2 years ago
Post Shingles Pain
I had mild shingles (not bad blisters) as I'd had the injection but much pain in my teeth. But following the acyclovir course and things subsided the pain in my teeth came back. It started on the same side (right face) but then moved around to the left jaw top and bottom as it pleased. Felt like a tooth
I had mild shingles (not bad blisters) as I'd had the injection but much pain in my teeth. But following the acyclovir course and things subsided the pain in my teeth came back. It started on the same side (right face) but then moved around to the left jaw top and bottom as it pleased. Felt like a tooth
omits
in
MPN Voice
2 years ago
Post Shingle Aciclovir
I had the vaccine 2017 (the older one which is less effective). I got Shingles six weeks ago and four days in started Aciclovir. It was in my right side face. I did not have it really serious (almost indetectible blisters but one on eyelid. The real pain was in my jaw like I had multiple abscesses. This
I had the vaccine 2017 (the older one which is less effective). I got Shingles six weeks ago and four days in started Aciclovir. It was in my right side face. I did not have it really serious (almost indetectible blisters but one on eyelid. The real pain was in my jaw like I had multiple abscesses. This
omits
in
MPN Voice
2 years ago
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