Search
Search
About
Log in
Join
Experiences with
Factor X deficiency
Posts
Communities
4,865 public posts
Filter results
HAIR CARE
One of you ladies mentioned Nioxin #3 Shampoo for thinning hair. I would like to order this shampoo but would like to know if it actually stops the hair from falling out. I don't want to spend money on it if my hair is going to fall out anyway. Someone else also mentioned Nizoral Shampoo and Conditioner
One of you ladies mentioned Nioxin #3 Shampoo for thinning hair. I would like to order this shampoo but would like to know if it actually stops the hair from falling out. I don't want to spend money on it if my hair is going to fall out anyway. Someone else also mentioned Nizoral Shampoo and Conditioner
viennagirl
in
SHARE Metastatic Breast Cancer
4 years ago
Sudden sharp pains in chest
I keep getting these on the left or right side it’s so annoying I can’t stop being worried about my heart and I’m 16 I got a ekg and chest x ray and still convinced I will go into cardiac arrest or heart attack I’m so sad
I keep getting these on the left or right side it’s so annoying I can’t stop being worried about my heart and I’m 16 I got a ekg and chest x ray and still convinced I will go into cardiac arrest or heart attack I’m so sad
MooreZhi
in
Anxiety Support
4 years ago
As injection schedule decreases, symptoms are returning!
So as some of you know (Seth12345), I was diagnosed with b12d about 8 weeks ago. My loading doses were: once a day for 7 days, once a week for a month and once a month for a year. I just completed the once a week for a month, with the last injection being one day late, on the 8th day. Two days later
So as some of you know (Seth12345), I was diagnosed with b12d about 8 weeks ago. My loading doses were: once a day for 7 days, once a week for a month and once a month for a year. I just completed the once a week for a month, with the last injection being one day late, on the 8th day. Two days later
HopetoB12better
in
Pernicious Anaemia Society
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Help with supplements please!
Hello all, I was hoping for some advice about supplements. Last week I had some great advice from SlowDragon , SeasideSusie and humanbean after my last blood tests. In summary: Low Ferritin at 24 (range 10-291), but blood iron and rest of FBC fine (apart from high % hypochromic cells), B12 good at 874 (
Hello all, I was hoping for some advice about supplements. Last week I had some great advice from SlowDragon , SeasideSusie and humanbean after my last blood tests. In summary: Low Ferritin at 24 (range 10-291), but blood iron and rest of FBC fine (apart from high % hypochromic cells), B12 good at 874 (
luckyed
in
Thyroid UK
4 years ago
Literally scared !!
My back hurts and my body feels weak and I have weird head feeling I’m only 16 I got a ekg and chest x ray like last month but I’m still convinced I’m having a heart attack
My back hurts and my body feels weak and I have weird head feeling I’m only 16 I got a ekg and chest x ray like last month but I’m still convinced I’m having a heart attack
MooreZhi
in
Anxiety Support
4 years ago
Update and support please 🤗
So I’ll give background. 12yrs Hashi -hypo. 11yrs of Levo only. Poor convertor so added T3. I’ve been on combined treatment for just over a year and these last 3wks I’ve had hypo symptoms. I’ve gone from 0% through range FT3 to 94% through range and have felt fantastic for a year 🥳 FT3 Jan - 6.58
So I’ll give background. 12yrs Hashi -hypo. 11yrs of Levo only. Poor convertor so added T3. I’ve been on combined treatment for just over a year and these last 3wks I’ve had hypo symptoms. I’ve gone from 0% through range FT3 to 94% through range and have felt fantastic for a year 🥳 FT3 Jan - 6.58
NWA6
in
Thyroid UK
4 years ago
Could I ask for some advice on vitamins please?
Hello again, My GP recently started me on 25mg of Levothyroxine. She also asked me to start taking an iron supplement which I haven't done as yet. I need to improve my levels of a handful of vitamins and I'm not sure of the best way to do it. I'm due for another blood test in about 5/6 weeks to test
Hello again, My GP recently started me on 25mg of Levothyroxine. She also asked me to start taking an iron supplement which I haven't done as yet. I need to improve my levels of a handful of vitamins and I'm not sure of the best way to do it. I'm due for another blood test in about 5/6 weeks to test
Hidden
in
Thyroid UK
4 years ago
B12 query
Thanks to all who posted to my recent comment about deficiency. Probably going to get B12 active blood test via home kit Have had couple of feroglobin tablets earlier this week ( new pack - thought they were B9 iron tablets - only then realised they were B12 with iron ( B12 ug 10 per tablet on breakdown
Thanks to all who posted to my recent comment about deficiency. Probably going to get B12 active blood test via home kit Have had couple of feroglobin tablets earlier this week ( new pack - thought they were B9 iron tablets - only then realised they were B12 with iron ( B12 ug 10 per tablet on breakdown
Red1973
in
Pernicious Anaemia Society
4 years ago
Intrinsic factor antibody test
Hello, My GP has agreed to test this antibody. I have Hashimoto's/hypothyroidism and take 150 mcg levothyroxine along with low dose naltrexone (currently 1 ml daily, titrating up 0.5 ml every two weeks), methyl-B12, methylfolate, vitamin D, ferrous fumarate, vitamin B6, zinc, magnesium and selenium.
Hello, My GP has agreed to test this antibody. I have Hashimoto's/hypothyroidism and take 150 mcg levothyroxine along with low dose naltrexone (currently 1 ml daily, titrating up 0.5 ml every two weeks), methyl-B12, methylfolate, vitamin D, ferrous fumarate, vitamin B6, zinc, magnesium and selenium.
Zazbag
in
Pernicious Anaemia Society
4 years ago
Dad, Alzheimer's, copd and prozac
Dad's 82, has copd & Alzheimer's. Has been prescribed Prozac for mood but, after 6 weeks, his breathing is very shallow and rapid. Almost like a panic breathlessness...any ideas please? GP sending him for chest x ray but, after examining him, no crackles or signs of infection. It's very worrying
Dad's 82, has copd & Alzheimer's. Has been prescribed Prozac for mood but, after 6 weeks, his breathing is very shallow and rapid. Almost like a panic breathlessness...any ideas please? GP sending him for chest x ray but, after examining him, no crackles or signs of infection. It's very worrying
Maturefromage
in
Lung Conditions Community Forum
4 years ago
Health anxiety
I feel nauseous and really hot and it’s driving my anxiety crazy I literally feel like something is wrong I’m freaking out because all my grandma do is tell me I’m healthy I’m always convinced it’s my heart I got a ekg and chest x ray but now I feel like it’s other things or I stress myself out to much
I feel nauseous and really hot and it’s driving my anxiety crazy I literally feel like something is wrong I’m freaking out because all my grandma do is tell me I’m healthy I’m always convinced it’s my heart I got a ekg and chest x ray but now I feel like it’s other things or I stress myself out to much
Zhiyah1012
in
Anxiety Support
4 years ago
Worried Son
I'd like to know if other members have had B12 injections taken away from them by their GP? My Mum was diagnosed with Pernicious Anemia over 20 years ago and was told that she will need B12 injections for the rest of her life by the Consultant in Haematology. Last year, her GP took them away from her
I'd like to know if other members have had B12 injections taken away from them by their GP? My Mum was diagnosed with Pernicious Anemia over 20 years ago and was told that she will need B12 injections for the rest of her life by the Consultant in Haematology. Last year, her GP took them away from her
IPM1970
in
Pernicious Anaemia Society
4 years ago
Latest blood results
Hi all Since my last post my ENT specialist has started me on Levothyroxine 50mcg. My GP has done further bloods as my Medichecks result showed low ferritin and folate. But typically, GP rang me this morning saying ferritin and folate are within normal range so just take a multivitamin. She said she
Hi all Since my last post my ENT specialist has started me on Levothyroxine 50mcg. My GP has done further bloods as my Medichecks result showed low ferritin and folate. But typically, GP rang me this morning saying ferritin and folate are within normal range so just take a multivitamin. She said she
Chris1802p
in
Thyroid UK
4 years ago
WHICH IRON
I’ve heard iron tablets are good for Hashimotos - which iron is best “Gentle” iron , iron “Complex” or just normal iron ?
I’ve heard iron tablets are good for Hashimotos - which iron is best “Gentle” iron , iron “Complex” or just normal iron ?
Petf
in
Thyroid UK
4 years ago
Low serum ferritin, but iron tests normal?
Hello all, I posted my blood tests results a couple of weeks ago: FT3: 4.2 (range 3.5-6.5) (pre Levo level 3.9) FT4: 15 (range 11.5-22.7) (pre Levo level 10.8) TSH: 0.25 (0.55-4.78) (pre Levo level 0.34, but I am TSH deficient because of pituitary issues - also adrenal insufficient because of ACTH
Hello all, I posted my blood tests results a couple of weeks ago: FT3: 4.2 (range 3.5-6.5) (pre Levo level 3.9) FT4: 15 (range 11.5-22.7) (pre Levo level 10.8) TSH: 0.25 (0.55-4.78) (pre Levo level 0.34, but I am TSH deficient because of pituitary issues - also adrenal insufficient because of ACTH
luckyed
in
Thyroid UK
4 years ago
Pernicious anemia symptoms returned after loading dose of B12!
Hi Everyone, My last loading dose injection of B12 was on 10th June after testing (twice) for a positive intrinsic factor, and slowly my symptoms have return. This weekend I feel awful, with xtreme tiredness, lack of energy, feeling faint, headaches and tinnitus. Please can anyone recommend anything
Hi Everyone, My last loading dose injection of B12 was on 10th June after testing (twice) for a positive intrinsic factor, and slowly my symptoms have return. This weekend I feel awful, with xtreme tiredness, lack of energy, feeling faint, headaches and tinnitus. Please can anyone recommend anything
Iheart_TS
in
Pernicious Anaemia Society
4 years ago
Intrinsic results back
Hi all.I just got my intrinsic factor test results back. Antibodies 3.47 AU/ml^2 (range 1.2-1.53) Positive. Any tips on what to do next appreciated. I’ve got my endo appointment on the 08/July for the Addisons diagnosis So obviously I’ll need to update him on this result. I’m back to self injecting
Hi all.I just got my intrinsic factor test results back. Antibodies 3.47 AU/ml^2 (range 1.2-1.53) Positive. Any tips on what to do next appreciated. I’ve got my endo appointment on the 08/July for the Addisons diagnosis So obviously I’ll need to update him on this result. I’m back to self injecting
Hidden
in
Pernicious Anaemia Society
4 years ago
COUGHING BLOOD, CANCER?
My husband only in the morning had blood we saw the dr & he was immediately referred to the respriratory department, had chest x-ray, chest CT, blood tests, + a camera down his throat, but they couldn't do it as there was a mass by his vocal cords & has now been referred to ENT, who did the camera &
My husband only in the morning had blood we saw the dr & he was immediately referred to the respriratory department, had chest x-ray, chest CT, blood tests, + a camera down his throat, but they couldn't do it as there was a mass by his vocal cords & has now been referred to ENT, who did the camera &
younginmind
in
Oesophageal & Gastric Cancer
4 years ago
Newly Diagnosed
Hi Its lovely to find this page and be able to share with people who understand. Coming to terms with this has been pretty difficult as you will all know. I really want to keep positive on this journey and believe I will be here to see my girls grow up - just need to figure out how to do that! My background
Hi Its lovely to find this page and be able to share with people who understand. Coming to terms with this has been pretty difficult as you will all know. I really want to keep positive on this journey and believe I will be here to see my girls grow up - just need to figure out how to do that! My background
pinklemon01
in
SHARE Metastatic Breast Cancer
4 years ago
Possible B12 deficiency, looking for recommended test list before B12 shot
I ran across someone posting on Reddit who has symptoms that might be from B12 deficiency... tingling, fatigue, etc. He's vegan, his serum B12 tested high, but he's taking daily B12 supplements so his serum test might not be accurate. I recommended trying a B12 shot to see if it helped, but then I
I ran across someone posting on Reddit who has symptoms that might be from B12 deficiency... tingling, fatigue, etc. He's vegan, his serum B12 tested high, but he's taking daily B12 supplements so his serum test might not be accurate. I recommended trying a B12 shot to see if it helped, but then I
genesurf
in
Pernicious Anaemia Society
4 years ago
1
...
78
79
80
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
1172 results
Thyroid UK
1001 results
Lung Conditions Community Forum
435 results
View top 10 communities
Sort by
Most Relevant
Newest