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Factor X deficiency
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Rheumy update for all that wanted one
Hey guys! Just an update on my second face to face today. This is a long one.. so apologies for the long read... but I have finally left an appointment feeling like I have been listened to and believed.. and I’m just over the moon.. even if the outcomes not exactly the most positive... So I had my
Hey guys! Just an update on my second face to face today. This is a long one.. so apologies for the long read... but I have finally left an appointment feeling like I have been listened to and believed.. and I’m just over the moon.. even if the outcomes not exactly the most positive... So I had my
BabyOleg
in
LUPUS UK
3 years ago
False reading?
Hi my daughters B12 was 143 & she was given prescribed B12 50mg x2 daily. She’s had a recent blood test & her levels are 479 n/g. Her consultant wants her to come off the tablets & take a multivitamin. I’m a bit concerned it could be a false reading because she’s taking B12. It’s the second time she
Hi my daughters B12 was 143 & she was given prescribed B12 50mg x2 daily. She’s had a recent blood test & her levels are 479 n/g. Her consultant wants her to come off the tablets & take a multivitamin. I’m a bit concerned it could be a false reading because she’s taking B12. It’s the second time she
Runner169
in
Pernicious Anaemia Society
3 years ago
curcumin supplementation interfering with iron?
I am wondering if this Google article holds any truth. (I am low in ferritin and working on increasing it thru iron supplementation with Vit C) Turmeric And Iron Deficiency: Can too much turmeric intake lead to iron deficiency? "Turmeric And Iron Deficiency: Can too much turmeric intake lead to iron
I am wondering if this Google article holds any truth. (I am low in ferritin and working on increasing it thru iron supplementation with Vit C) Turmeric And Iron Deficiency: Can too much turmeric intake lead to iron deficiency? "Turmeric And Iron Deficiency: Can too much turmeric intake lead to iron
kicker2
in
Restless Legs Syndrome
3 years ago
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Got my T3 today
Hi, Endo started on a trial of T3 for 3 months 20mcg tablets but 10mcg with my 100 Levo I'm taking I'm not sure how to take it I take my 100 Levo at night about 9.30 if I'm right 10mcg is about 30mcg of Levo? I've also got to take Iron tablets as low end range iron which I thought my Gp said
Hi, Endo started on a trial of T3 for 3 months 20mcg tablets but 10mcg with my 100 Levo I'm taking I'm not sure how to take it I take my 100 Levo at night about 9.30 if I'm right 10mcg is about 30mcg of Levo? I've also got to take Iron tablets as low end range iron which I thought my Gp said
Hidden
in
Thyroid UK
3 years ago
Help! Newly diagnosed CLL
Came down with a UTI (unknown for me), blood in the urine, third course of antibiotics. Did FBC and scored 74% lymphocytes (and other WBC anomalies. Long story short, just diagnosed CLL. Slightly swollen neck lymphs. Not sure if it’s the antibiotics (been on them for just over 2 weeks) but have also
Came down with a UTI (unknown for me), blood in the urine, third course of antibiotics. Did FBC and scored 74% lymphocytes (and other WBC anomalies. Long story short, just diagnosed CLL. Slightly swollen neck lymphs. Not sure if it’s the antibiotics (been on them for just over 2 weeks) but have also
Petroc
in
CLL Support
3 years ago
Gastritis improvement with injections
I am curious if those with gastritis have found it improved after injections. I had an endoscopy last year, after monthly injections were started, which showed moderate gastritis. This year, the endoscopy showed marked improvement, along with better bowel movements and less intestinal cramping. The
I am curious if those with gastritis have found it improved after injections. I had an endoscopy last year, after monthly injections were started, which showed moderate gastritis. This year, the endoscopy showed marked improvement, along with better bowel movements and less intestinal cramping. The
siamesefrmsiam
in
Pernicious Anaemia Society
3 years ago
Positive intrinsic factor tests
Hi there, I have had 2 positive intrinsic factor antibody tests. I also have all of the symptoms of PA. Fatigue, nausea, pins and needles in feet, loose stools, acid reflux and difficulty concentrating. My blood serum B12 levels however seem within the normal range. What do you guys think this means
Hi there, I have had 2 positive intrinsic factor antibody tests. I also have all of the symptoms of PA. Fatigue, nausea, pins and needles in feet, loose stools, acid reflux and difficulty concentrating. My blood serum B12 levels however seem within the normal range. What do you guys think this means
JSD100
in
Pernicious Anaemia Society
3 years ago
Biological
I am being put on adalimumab in about a month's time. I have just had a chest x-ray. First one ever! Lots of blood tests and one of the blood tests to see if I have had chicken pox, if I have not had it I am going to get a vaccine for it and then start the new drug! By the time I start the drug I am
I am being put on adalimumab in about a month's time. I have just had a chest x-ray. First one ever! Lots of blood tests and one of the blood tests to see if I have had chicken pox, if I have not had it I am going to get a vaccine for it and then start the new drug! By the time I start the drug I am
Carolsos
in
NRAS
3 years ago
Concerned about early signs of heart failure
I had a dual chamber pacemaker November 2020, 4 days after that a lead punctured my heart ,I had both leads replaced a week after I’d had my pacemaker . This caused pericarditis and an effusion . A few weeks ago I started feeling more unwell , my heart would go over 130 on slight exertion , this got
I had a dual chamber pacemaker November 2020, 4 days after that a lead punctured my heart ,I had both leads replaced a week after I’d had my pacemaker . This caused pericarditis and an effusion . A few weeks ago I started feeling more unwell , my heart would go over 130 on slight exertion , this got
Westie2012
in
British Heart Foundation
3 years ago
Lymphoma Questions
Hi All, Sorry to post on such a crappy topic. So this study came out and it kind of scared me a bit as I have a focus score of 8 from my biopsy at diagnosis which is quite high. The study is here: https://www.sciencedirect.com/science/article/abs/pii/S0896841121000561 It seems to suggest that the higher
Hi All, Sorry to post on such a crappy topic. So this study came out and it kind of scared me a bit as I have a focus score of 8 from my biopsy at diagnosis which is quite high. The study is here: https://www.sciencedirect.com/science/article/abs/pii/S0896841121000561 It seems to suggest that the higher
Insomniacette
in
LUPUS UK
3 years ago
Castor Oil
I said that I would report back after another catheterization. I just inserted a catheter and it went in as if there were virtually no obstruction. Unless it is just expectation and that I can some how control my sphincter which I haven't been able to in over a year, probably two. Getting ready for
I said that I would report back after another catheterization. I just inserted a catheter and it went in as if there were virtually no obstruction. Unless it is just expectation and that I can some how control my sphincter which I haven't been able to in over a year, probably two. Getting ready for
spencoid2
in
Advanced Prostate Cancer
3 years ago
Dry cough
I am wondering if anyone has had issues with a dry cough after treatment for metastatic breast cancer brain surgeries. I started taking letrozole in late February and then started Ibrance a month or so later. I stopped the Ibrance after three rounds and I am taking another drug, Gallium Maltolate, instead
I am wondering if anyone has had issues with a dry cough after treatment for metastatic breast cancer brain surgeries. I started taking letrozole in late February and then started Ibrance a month or so later. I stopped the Ibrance after three rounds and I am taking another drug, Gallium Maltolate, instead
IzzyZorro
in
SHARE Metastatic Breast Cancer
3 years ago
No one will believe this
I have had difficult urinating for years. I have posted about catheter horrors and about finally finding one that works, sort of. I believe I have scar tissue at my bladder neck because that is where the cath encounters difficult in insertion. My urologist wanted to do another TURP, no way, it took
I have had difficult urinating for years. I have posted about catheter horrors and about finally finding one that works, sort of. I believe I have scar tissue at my bladder neck because that is where the cath encounters difficult in insertion. My urologist wanted to do another TURP, no way, it took
spencoid2
in
Advanced Prostate Cancer
3 years ago
B12 injection appointment
Hi, Following on from my previous post (not sure if I should have started new or just added to last one, if admin want to let me know) Anyway, I went to my appointment and had my jab as I had an ampoule with me but have been told I will no longer be given B12 injections. When I asked why, i was told
Hi, Following on from my previous post (not sure if I should have started new or just added to last one, if admin want to let me know) Anyway, I went to my appointment and had my jab as I had an ampoule with me but have been told I will no longer be given B12 injections. When I asked why, i was told
lfc4eva
in
Pernicious Anaemia Society
3 years ago
Hampshire (UK) neurologist anyone?
Hi. New to the forum and hoping someone can help. I am yet to be diagnosed, waiting for intrinsic factor test result (done privately as GP is being incredibly difficult 😢). I'm due to see gp in 2 hrs as I ended up in a and e Sunday morning falling over from fixings, fainting, whole body tremors etc
Hi. New to the forum and hoping someone can help. I am yet to be diagnosed, waiting for intrinsic factor test result (done privately as GP is being incredibly difficult 😢). I'm due to see gp in 2 hrs as I ended up in a and e Sunday morning falling over from fixings, fainting, whole body tremors etc
KrissieJ
in
Pernicious Anaemia Society
3 years ago
B12 levels and symptoms
I am wondering if anyone can help or advise me on levels and symptoms. My B12 was 183 last August and then 247 in May as I supplemented for a while, but I was admitted to hospital with a racing heart beat of 123. I have regular disabling palpitations, fatigue, crumbling nails, blurred vision, balance
I am wondering if anyone can help or advise me on levels and symptoms. My B12 was 183 last August and then 247 in May as I supplemented for a while, but I was admitted to hospital with a racing heart beat of 123. I have regular disabling palpitations, fatigue, crumbling nails, blurred vision, balance
Mrss25
in
Pernicious Anaemia Society
3 years ago
Cause of b12 deficiency? Should I get private bloods?
Looking for advice. Been having b12 symptoms on and off for awhile: nausea, tingling in body burning on hand, tiredness, brain fog. 10 months ago I was told I was slightly deficient and to supplement, repeat bloods in 3 months. Told they came back fine (I have never had the values for any of my tests
Looking for advice. Been having b12 symptoms on and off for awhile: nausea, tingling in body burning on hand, tiredness, brain fog. 10 months ago I was told I was slightly deficient and to supplement, repeat bloods in 3 months. Told they came back fine (I have never had the values for any of my tests
Gemgem123
in
Pernicious Anaemia Society
3 years ago
Just been told my husband has cLL can anyone give some information
Hi I just new to forum my husband white blood cells were high so was referred to hemaglobian clinic in Glasgow were shocked to b told he has cLL he is 56 years old and works on building site so fit for his age we got chest X-ray next week and appointment in 3 months with clinic he is having pain in his
Hi I just new to forum my husband white blood cells were high so was referred to hemaglobian clinic in Glasgow were shocked to b told he has cLL he is 56 years old and works on building site so fit for his age we got chest X-ray next week and appointment in 3 months with clinic he is having pain in his
Mcginlay
in
CLL Support
3 years ago
Lower Right Quadrant Pain
Hi, I have IBS and about a week ago started up with stabbing/twisting pains in my LRQ after mistakenly eating udon (didn't know it was wheat). I get pain around the belly button, right side and then down into the ileocecal area. Nothing helps. Not Tylenol or castor oil packs. It has waxed and waned for
Hi, I have IBS and about a week ago started up with stabbing/twisting pains in my LRQ after mistakenly eating udon (didn't know it was wheat). I get pain around the belly button, right side and then down into the ileocecal area. Nothing helps. Not Tylenol or castor oil packs. It has waxed and waned for
elmer69
in
IBS Network
3 years ago
B12 results help please
I have received my results which I had tested privately. Does this mean that I do not have PA? B12 -139 pmol/L (25.1. -165 pmol/L) Intrinsic factor - negative I have been suffering with many symptoms but these maybe attributed to hypothyroidism or another endocrine disease so I am trying to exclude
I have received my results which I had tested privately. Does this mean that I do not have PA? B12 -139 pmol/L (25.1. -165 pmol/L) Intrinsic factor - negative I have been suffering with many symptoms but these maybe attributed to hypothyroidism or another endocrine disease so I am trying to exclude
Triciatextiles
in
Pernicious Anaemia Society
3 years ago
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