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Advice
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Kma123
in
Pernicious Anaemia Society
7 months ago
Subclinical hypothyroidism advice for next appointment
Hi, I was told I was I had Subclinical hypothyroidism in 2017 but was not significant so no further input. Unsure of exact results but TSH was raised, but <10 with normal T4 (but do not have a copy of the results). Past few years have noticed hair loss, muscle aches & pains, tiredness, some weight gain
Hi, I was told I was I had Subclinical hypothyroidism in 2017 but was not significant so no further input. Unsure of exact results but TSH was raised, but <10 with normal T4 (but do not have a copy of the results). Past few years have noticed hair loss, muscle aches & pains, tiredness, some weight gain
bluepenguin
in
Thyroid UK
6 months ago
Blood results
HiI'm just looking some advice on recent NHS b12 and folate results: B12 284 (197-779) Folate. 4.6 (3-26) Of course GP receptionist said all 'normal " on phone but I have asked for a print out of results and will pick them up tomorrow. I had asked my GP if I could be tested for intrinsic factor
HiI'm just looking some advice on recent NHS b12 and folate results: B12 284 (197-779) Folate. 4.6 (3-26) Of course GP receptionist said all 'normal " on phone but I have asked for a print out of results and will pick them up tomorrow. I had asked my GP if I could be tested for intrinsic factor
Hollybushroad
in
Pernicious Anaemia Society
1 year ago
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Intrinsic factor antibody result
Hi all, I've only just seen the result of an Intrinsic
Factor
Antibody
test
that was done in December before
I
started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not?
Hi all, I've only just seen the result of an Intrinsic
Factor
Antibody
test
that was done in December before
I
started SI which I don't know how to interpret. I got a result of 2 u/ml (reference range is 0-24 u/ml). Is that a positive or a negative result? Does that confirm PA or not?
Gecko22
in
Pernicious Anaemia Society
1 year ago
PPI complications
I've now had my endoscopy. I wanted to find out what state my stomach was in after taking PPIs (Omeprazol) for over 5 years and an H2 Blocker for 15 years before that (the now withdrawn Ranitidine of carcinogenic fame). What the endoscopy revealed were fundic polyps which are 'accepted' as a standard
I've now had my endoscopy. I wanted to find out what state my stomach was in after taking PPIs (Omeprazol) for over 5 years and an H2 Blocker for 15 years before that (the now withdrawn Ranitidine of carcinogenic fame). What the endoscopy revealed were fundic polyps which are 'accepted' as a standard
Orchard33
in
IBS Network
1 year ago
How likely is it I have PA
Hello, I would appreciate some feedback on your own experiences of diagnosis. - 3 months ago I had a B12 level of <142 and a range of related symptoms - Full Blood count did not show an abnormalities but I was also deficient in ferritin. - I am 37 and have been diagnosed with hashimotos since I
Hello, I would appreciate some feedback on your own experiences of diagnosis. - 3 months ago I had a B12 level of <142 and a range of related symptoms - Full Blood count did not show an abnormalities but I was also deficient in ferritin. - I am 37 and have been diagnosed with hashimotos since I
Sparkleros
in
Pernicious Anaemia Society
10 months ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
8 months ago
Daughters blood results, advice please
15 year old daughter has been having lots of time off school. not ideal in yr 10 and now 11. I feel a bit guilty about it all, think I have dropped the ball on this one. She had digestion problems when small, had an umbilical hernia repaired about 2 1/2- 3 years then several years of issues, vomiting
15 year old daughter has been having lots of time off school. not ideal in yr 10 and now 11. I feel a bit guilty about it all, think I have dropped the ball on this one. She had digestion problems when small, had an umbilical hernia repaired about 2 1/2- 3 years then several years of issues, vomiting
Polo22
in
Pernicious Anaemia Society
10 months ago
Intrinsic factor antibodys
Hi I recently had bloods done at GP which one of them was b12. It came back as no action required but I told GP that I think it still to low at 211.. range (180-800) she said about doing another test that might effect the absorbtion of b12 intrinsic factor antibody. My result was 3.66. was prescribed
Hi I recently had bloods done at GP which one of them was b12. It came back as no action required but I told GP that I think it still to low at 211.. range (180-800) she said about doing another test that might effect the absorbtion of b12 intrinsic factor antibody. My result was 3.66. was prescribed
suzybear
in
Thyroid UK
11 months ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
5 months ago
Really lost - doctor advised me to stop injecting and now B12 keeps going down
I
also had a positive result for an Intrinsic
Factor
Abs
test
(17.2) - however, they tested my IF right after the doctor injected me with B12, so I'm not sure how reliable that result is. I've had a few more IF tests over the years and they have all been negative.
I
also had a positive result for an Intrinsic
Factor
Abs
test
(17.2) - however, they tested my IF right after the doctor injected me with B12, so I'm not sure how reliable that result is. I've had a few more IF tests over the years and they have all been negative.
marlesk
in
Pernicious Anaemia Society
5 months ago
Uncertain PMR or EORA?
Good morning, My first visit to see the Rheumatologist referred by GP and taking Naproxen for three months. Hip pain much better but not doing much walking, shoulders heavy with impaired mobility and last four weeks hands stiff and tight feeling. ESR was 50 in March, 76 in April. CRP was 22 March
Good morning, My first visit to see the Rheumatologist referred by GP and taking Naproxen for three months. Hip pain much better but not doing much walking, shoulders heavy with impaired mobility and last four weeks hands stiff and tight feeling. ESR was 50 in March, 76 in April. CRP was 22 March
Woollyback1
in
PMRGCAuk
1 year ago
Castor oil
Has Anyone used castor oil, is there any benefits in using it for ostoarthritis on the feet?
Has Anyone used castor oil, is there any benefits in using it for ostoarthritis on the feet?
Greenginger12
in
Arthritis Ireland
1 year ago
interesting find
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
Thrones12
in
Pernicious Anaemia Society
1 year ago
GP says results are fine
Fatigue, brainfog, muscle aches, joint pain, and other various symptoms. Below are my blood test results. The GP stated there is nothing of concern. He seemed more focused on mental health issues. Is there anything obvious below? Someone said to post here. Rheumatoid factor 8 Range: Below 12.5
Fatigue, brainfog, muscle aches, joint pain, and other various symptoms. Below are my blood test results. The GP stated there is nothing of concern. He seemed more focused on mental health issues. Is there anything obvious below? Someone said to post here. Rheumatoid factor 8 Range: Below 12.5
ArinEla
in
Thyroid UK
4 months ago
Article on Castor Oil benefits
I would like to share this article. It may be beneficial to kidneys. I hope it can be accessed with the following link. If not, I’m sorry! https://stevegallik.org/can-castor-oil-packs-heal-kidney-nephrons/
I would like to share this article. It may be beneficial to kidneys. I hope it can be accessed with the following link. If not, I’m sorry! https://stevegallik.org/can-castor-oil-packs-heal-kidney-nephrons/
CuriousCKD
in
Kidney Disease
1 year ago
Mayo Clinic studies B12 def, are very interesting!!
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
brenanddave
in
Pernicious Anaemia Society
1 year ago
For ladies with unexplained infertility
Hello ladies As I approach my 12th week of pregnancy I thought I'd share what I did differently in hopes that it helps someone in a similar position. I have had 7 miscarriages previously and 5 of them ended between 4 - 5 weeks. Every time it was the same pattern. I had no issue conceiving but I kept
Hello ladies As I approach my 12th week of pregnancy I thought I'd share what I did differently in hopes that it helps someone in a similar position. I have had 7 miscarriages previously and 5 of them ended between 4 - 5 weeks. Every time it was the same pattern. I had no issue conceiving but I kept
Xoya
in
Fertility Network UK
8 hours ago
Reducing pred
Hello everyone I was diagnosed with PMR 4 years ago and each time I reduce I get another flare up. I am trying to reduce to zero as advised by my GP. I started at 4mg down to 3 and a half after 2 weeks then down to 3mg. Now my aches and pains have got worse so I have gone back to 4mg again. ESR
Hello everyone I was diagnosed with PMR 4 years ago and each time I reduce I get another flare up. I am trying to reduce to zero as advised by my GP. I started at 4mg down to 3 and a half after 2 weeks then down to 3mg. Now my aches and pains have got worse so I have gone back to 4mg again. ESR
Calypsocat
in
PMRGCAuk
11 hours ago
Just checking in...
How is everyone doing lately with their PBC? For some of us, the temps are cooler - maybe helping with less itching. Do you feel you are still living life as best you can despite any of the symptoms that may occur unexpectedly in your day? We all have PBC so differently, don't we? I hope you all try
How is everyone doing lately with their PBC? For some of us, the temps are cooler - maybe helping with less itching. Do you feel you are still living life as best you can despite any of the symptoms that may occur unexpectedly in your day? We all have PBC so differently, don't we? I hope you all try
DonnaBoll
Administrator
in
PBC Foundation
11 hours ago
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